Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for January 2023

Are you diagnosed with POTs? I have some questions

Hello everyone, If you are a member who is diagnosed with POTs and willing to answer some questions for me, I would be most grateful. I believe I might be...

Hello everyone, If you are a member who is diagnosed with POTs and willing to a...

Hidden

•1 year ago

9 Replies

help for a private respiratory doctor

does anyone know if there is a private doctor in Glasgow who can help me with my respiratory problems as I can’t take it anymore

does anyone know if there is a private doctor in Glasgow who can help me with my...

Liz2468

•1 year ago

4 Replies

Food and Flare-Ups, Clinical Significance of ANA

Hi everyone, I am curious about certain foods and their connection to flare-ups. I have found that gluten, soy, dairy, and refined sugars cause a lot of...

Hi everyone, I am curious about certain foods and their connection to flare-ups...

Hidden

•1 year ago

5 Replies

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Sjogens

Hi folks , haven’t posted for a while - hope everyone is doing ok - my question is I have Sjogens as well as Lupus SLE and I have been using Holland and Barret...

Hi folks , haven’t posted for a while - hope everyone is doing ok - my question ...

svfarmer

•1 year ago

66 Replies

Advice on chronic pneumonia

Hello FolksI have joined on behalf of my friend whom has a definite diagnoses of lupus. Although she has experienced lupus related health problems over a...

Hello FolksI have joined on behalf of my friend whom has a definite diagnoses of...

Honey-bee1

•1 year ago

1 Reply

Special Cutie Arrival

Hello EveryoneCan't believe its 'cutie' time again, fortnights fly by and i just had to share this good news story. Chester Zoo is celebrating this new male...

Hello EveryoneCan't believe its 'cutie' time again, fortnights fly by and i just...

misty14

•1 year ago

18 Replies

Covid again

So turns out it's covid that has been the cause of this weeks illness x

BonnyB

•1 year ago

8 Replies

Newly diagnosed with Lupus and aching again now - what next?

Hi all, First post on here…a bit daunting, but I hope I can get some advice 😊 I was diagnosed with Lupus SLE at the end of June and since taking...

Hi all, First post on here…a bit daunting, but I hope I can get some advice 😊 ...

Liliepepette

•1 year ago

15 Replies

Personal Independence Payment

Hi all, Hope you're all keeping okay? I have applied for PIP for the first time. I suffer from joint pains, muscle aches, headaches, extreme fatigue and...

Hi all, Hope you're all keeping okay? I have applied for PIP for the first time...

Simbob

•1 year ago

19 Replies

Hydradenitus Supperativa connected to Lupus

I’d like to ask if anyone here with Lupus has been diagnosed with Hydradenitus Supperativa, I have been told by a rheumatologist I do not have lupus yet I...

I’d like to ask if anyone here with Lupus has been diagnosed with Hydradenitus S...

Noseyparker1

•1 year ago

3 Replies

Rhumotolgy no more

Hi History I was diagnosed with MCTD. Was told it is a mild form. Lupus markers and inflammation is slightly elevated so was given hydroxychloroquine to...

Hi History I was diagnosed with MCTD. Was told it is a mild form. Lupus markers...

Awwy

•1 year ago

15 Replies

Not sure if this is the right place

Hi all not sure if this is the right place to post but don't really know where else to turn, sorry if it's wrong. As some of you may know from my previous...

Hi all not sure if this is the right place to post but don't really know where e...

Haylz2109

•1 year ago

42 Replies

Do you live in Aberdeen or the surrounding area? Join us for our first face to face Coffee & Chat meeting on Saturday 4th February.

Join us for our first Aberdeen face to face Coffee & Chat group meeting on Saturday 4th February at 10 a.m. at Pret (coffee shop), 234 Union Street, Aberdeen...

Join us for our first Aberdeen face to face Coffee & Chat group meeting on Satur...

Alida_Bennett

Partner•1 year ago

Be the first to reply

Shingles vaccine

Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?

Shingles vaccination. I’ve been offered this vaccination but as this is a live v...

61Annie

•1 year ago

6 Replies

Raynauds

Hi all, I'm getting lost looking for socks to keep my feet from getting cold that are not too expensive Any tips on what type I should buy? Thanks

Hi all, I'm getting lost looking for socks to keep my feet from getting cold th...

Dmusky

•1 year ago

9 Replies

Joint pain.

Hi. I have mixed connective tissue disease, probable Lupus and Sjorgens. I'm on Hydroxychloroquine, and am unable to take several medications due to reacting...

Hi. I have mixed connective tissue disease, probable Lupus and Sjorgens. I'm on ...

Pinky1go

•1 year ago

5 Replies

any tips for everyday intense fatigue??!

Hello everyone. I was just wondering if anyone had some advice on how to combat the everyday tiredness. Some days I am relatively okay but some (like today) I...

Hello everyone. I was just wondering if anyone had some advice on how to combat ...

nada28

•1 year ago

8 Replies

Sarilumab 200mg SC

Has anyone been prescribed this drug for rheumatoid arthritis. Have you found it beneficial, did you have any side effects. Many thanks .

Has anyone been prescribed this drug for rheumatoid arthritis. Have you found ...

rubybelle12

•1 year ago

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UCTD classification

Hello everyoneA forum friend has given me this picture of the different criteria for UCTD diagnosis. I'm posting it as i think it gives more info on each one...

Hello everyoneA forum friend has given me this picture of the different criteri...

misty14

•1 year ago

21 Replies

Do you live in FORT WILLIAM, or the surrounding area? Join us for our first LUPUS UK Coffee & Chat group meeting on Wednesday 1st February.

Join us for our first Fort William Coffee & Chat group meeting on Wednesday 1st February at 11 a.m. at New Connections, Waverley House, High Street, Fort...

Join us for our first Fort William Coffee & Chat group meeting on Wednesday 1st ...

Alida_Bennett

Partner•1 year ago

3 Replies

Antibiotics ? Urgent request for help which ones are safe to use?

Hi, diagnosed in 2021 with SLE (scalp so far) bloods since all ok no change. Just use topical steroid on scalp. Currently got a cyst on shoulder - as I know...

Hi, diagnosed in 2021 with SLE (scalp so far) bloods since all ok no change. Jus...

carorueil

•1 year ago

2 Replies

Blood clotted

Hi my doctor took blood test to check my ESR levels. I got a call from the receptionist yesterday to say it needs repeated as the test could not be done due to...

Hi my doctor took blood test to check my ESR levels. I got a call from the recep...

kate47

•1 year ago

5 Replies

steroids

Is it possible at all to lose any weight while on steroids I’m currently tapering from 50 mg I’m now at 6 mg ! My skin is an absolute mess patchy rashes all...

Is it possible at all to lose any weight while on steroids I’m currently taperin...

Sandrakee

•1 year ago

4 Replies

Do you live in ABERDEEN, or the surrounding area? Join us for our first LUPUS UK Coffee & Chat group meeting on Saturday 4th February.

Join us for our first Aberdeen Coffee & Chat group meeting on Saturday 4th February at 10 a.m. at Pret (coffee shop), 234 Union Street, Aberdeen AB25 1HJ. The...

Join us for our first Aberdeen Coffee & Chat group meeting on Saturday 4th Febru...

Alida_Bennett

Partner•1 year ago

Be the first to reply

information request for Professor D’Cruz

good morning everybody. Without giving a whole load of background info my lupus has become more active and the last 6 months I’ve been dealing with a...

good morning everybody. Without giving a whole load of background info my lupus...

Mifford

•1 year ago

5 Replies

Contrast with CT Scan

Any of you had contrast in your vein for a CT scan? I had rheumatology appointment on Monday. He did a 2 week referral for a scan as my lymph nodes are...

Any of you had contrast in your vein for a CT scan? I had rheumatology appointm...

BonnyB

•1 year ago

10 Replies

boils and lupus

Hi all, Still fighting to get any support even though it has been confirmed I have lupus! I now have started to get giant boils in my groin and armpit. Does...

Hi all, Still fighting to get any support even though it has been confirmed I h...

M0wnt

•1 year ago

10 Replies

TMJ pain

Has anyone any suggestions re alleviating TMJ pain, recent development (2weeks)

Has anyone any suggestions re alleviating TMJ pain, recent development (2weeks) ...

provence2022

•1 year ago

8 Replies

All over body swelling

Hi I have SLE, class 5 lupus nephritis and recently Sjogrens. I am fortunate that I have never had the joint pain and swelling although I have quite loose...

Hi I have SLE, class 5 lupus nephritis and recently Sjogrens. I am fortunate ...

Emily00

•1 year ago

2 Replies

dogs who have been vaccinated

my son has had his dog vaccinated and the vet says not to go anywhere near someone who is extremely vulnerable at the moment that’s me can anyone confirm this...

my son has had his dog vaccinated and the vet says not to go anywhere near someo...

Ivonfield

•1 year ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2023

Are you diagnosed with POTs? I have some questions

help for a private respiratory doctor

Food and Flare-Ups, Clinical Significance of ANA

Sjogens

Advice on chronic pneumonia

Special Cutie Arrival

Covid again

Newly diagnosed with Lupus and aching again now - what next?

Personal Independence Payment

Hydradenitus Supperativa connected to Lupus

Rhumotolgy no more

Not sure if this is the right place

Do you live in Aberdeen or the surrounding area? Join us for our first face to face Coffee & Chat meeting on Saturday 4th February.

Shingles vaccine

Raynauds

Joint pain.

any tips for everyday intense fatigue??!

Sarilumab 200mg SC

UCTD classification

Do you live in FORT WILLIAM, or the surrounding area? Join us for our first LUPUS UK Coffee & Chat group meeting on Wednesday 1st February.

Antibiotics ? Urgent request for help which ones are safe to use?

Blood clotted

steroids

Do you live in ABERDEEN, or the surrounding area? Join us for our first LUPUS UK Coffee & Chat group meeting on Saturday 4th February.

information request for Professor D’Cruz

Contrast with CT Scan

boils and lupus

TMJ pain

All over body swelling

dogs who have been vaccinated

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