Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2022

Finding a support group

Hello all,I'm on here as a sufferer of both lupus and severe liver damage and would just like to ask if anyone knows of any groups in the Coventry or nuneaton...

Hello all,I'm on here as a sufferer of both lupus and severe liver damage and wo...

Vsully

•1 year ago

1 Reply

Pembrokeshire Lupus Support Group - last two meetings of the year

Hello everyone We have two meetings left this year. Firstly, tomorrow, we are meeting at Crundale Village Hall, near Haverfordwest. Face-to-face. 12 midday...

Hello everyone We have two meetings left this year. Firstly, tomorrow, we are...

Wendy39

•1 year ago

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South Wales Lupus Support Groups and Campaign

Hello everyone If any of you are from South Wales, Dalila and I thought you might like to read this article she has put together, detailing how we are trying...

Hello everyone If any of you are from South Wales, Dalila and I thought you mig...

Wendy39

•1 year ago

9 Replies

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Relative has Rash 3weeks now back ache & urinating lots- kidneys? Help

my relative has SLE and not really looked after by medics- she has an itchy rash 3 weeks now and since yesterday has awful sinus, sore throat, cough, urinating...

my relative has SLE and not really looked after by medics- she has an itchy rash...

Robinface

•1 year ago

5 Replies

Knitted friends

Hi everybody, It is ages since I put up a post but I’ve been thinking of you all and having a look in from time to time. It has been a very challenging year...

Hi everybody, It is ages since I put up a post but I’ve been thinking of you al...

Spotty-ewe

•1 year ago

58 Replies

SLE Lupus, Diet and exercise to keep weight off

Hey everyone, I have just experienced a second round of the flu. Basically got no energy for about 5 to 6 weeks and put on a bit of weight around the abdomen....

Hey everyone, I have just experienced a second round of the flu. Basically got n...

Jazzy_in_Tas

•1 year ago

1 Reply

Does Multiple Positive ANA Tests Usually Mean Autoimmune Disease?

Hi everyone, I have posted on here multiple times so I will keep this short. Since 2020, I have now had 4 positive ANA test results, all homogenous. They...

Hi everyone, I have posted on here multiple times so I will keep this short. S...

Hidden

•1 year ago

5 Replies

Lupus or Mixed Connective Tissue disease? 🤔

Hello everyone I’m confused! (Doesn’t take much these days!) I’ve had a consultant review today and he referred to my diagnosis as mixed connective tissues...

Hello everyone I’m confused! (Doesn’t take much these days!) I’ve had a consult...

Susieliz39

•1 year ago

14 Replies

Merry Christmas from Bea & Mira 🐶🐶

hi folks thought as it’s almost Christmas I would post a pic of my girls in their Christmas jumpers I knitted. A big Thankyou to everyone for your support...

hi folks thought as it’s almost Christmas I would post a pic of my girls in thei...

svfarmer

•1 year ago

31 Replies

Malar rash skincare

Hello! Please forgive me for being here as I don't have a diagnosis for lupus yet but am suffering with (confirmed) malar rash. I have had a lip biopsy and...

Hello! Please forgive me for being here as I don't have a diagnosis for lupus ye...

AcheyAnnie

•1 year ago

10 Replies

Confusing antibody test results

Hi everyone, I am just wondering in what way people got diagnosed with Lupus on here? I have nearly every symptom, and have done for nearly three years- with...

Hi everyone, I am just wondering in what way people got diagnosed with Lupus on ...

Marzipan3468

•1 year ago

26 Replies

Harrogate Christmas Coffee & Chat - Sunday 18th December

Join us for our Harrogate Coffee & Chat on Sunday 18th December, from 11 a.m. at Jespers Coffee Shop, HG1 1ST

Join us for our Harrogate Coffee & Chat on Sunday 18th December, from 11 a.m. a...

Alida_Bennett

Partner•1 year ago

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Can anyone relate

Hello everybody, this is my first post, I've been busy reading lots of posts on here and finding my way around. I'm recently diagnosed with sle lupus and...

Hello everybody, this is my first post, I've been busy reading lots of posts on...

Lucylou72

•1 year ago

25 Replies

Painful lump on the sole of the foot - any experiences.

I'm wondering if any of you have experience of a small, hard lump on the sole of the foot. Very painful under pressure & to walk on.It has come on...

I'm wondering if any of you have experience of a small, hard lump on the sole of...

sarahsch

•1 year ago

8 Replies

Cutie kids

Hello everyoneJust had to show you this gorgeous threesome in their woolly jumpers!. Don't they look cute?!. Meet Jackson, Joshua and Jasmine who have joined...

Hello everyoneJust had to show you this gorgeous threesome in their woolly jumpe...

misty14

•1 year ago

35 Replies

Alternative to immunosuppression drugs

Does anyone with moderate to severe lupus manage their condition without strong drugs which suppress their immune system? I am on 3mg prednisolone. I have...

Does anyone with moderate to severe lupus manage their condition without strong ...

Lovemydogs1

•1 year ago

18 Replies

Raynards foot moisturiser

hello everyone, can anyone advise a good foot moisturiser for raynards I have blisters and inflamed feet can’t hardly walk due to sole foot pains. Thank you 🙏...

hello everyone, can anyone advise a good foot moisturiser for raynards I have bl...

Geeforce99

•1 year ago

4 Replies

Thank you!

I love this group, it has helped me with my health and work issues, I had. Thank you all ever so much and have a lovely peaceful, as pain free as possible,...

I love this group, it has helped me with my health and work issues, I had. Thank...

MonicaT

•1 year ago

2 Replies

What can I do? Help please?

Hi, I was diagnosed with mixed connective tissue disease in March this year. In August I started taking hydroxychloroquine at 200mg. I saw my rhumotolgist...

Hi, I was diagnosed with mixed connective tissue disease in March this year. In ...

Awwy

•1 year ago

43 Replies

Issues Working from Home

I have had Lupus over 20+ years and worked for this company 20+ years as well. We all worked at home due to the Pandemic, during this time I had Covid and was...

I have had Lupus over 20+ years and worked for this company 20+ years as well. W...

tracysmilieANU

•1 year ago

6 Replies

Extreme ragged breakage

Hi All, I am wondering if anyone has experienced ragged, short breakage across the front of their hair that did not grow back without treatment or a number of...

Hi All, I am wondering if anyone has experienced ragged, short breakage across ...

PainfulJourney

•1 year ago

1 Reply

Hair loss

Hi guys. i was diagnosed with SLE a couple weeks ago Over the last couple of months, but defo worst in the last couple of weeks, i have been losing so much...

Hi guys. i was diagnosed with SLE a couple weeks ago Over the last couple of mon...

nada28

•1 year ago

19 Replies

Wobbly leg!

Hi everyone, one of my legs has started 'wobbling' after I stand up from sitting for a while. It almost feels as though it's not quite connected properly at...

Hi everyone, one of my legs has started 'wobbling' after I stand up from sitting...

SLS2103

•1 year ago

2 Replies

Hydroxychloroquine side affects

Hi, I've been on hydroxychloroquine for 2 years now and my weight is slowly creeping up and I'm struggling to lose it.I've also lost more than 50% of the...

Hi, I've been on hydroxychloroquine for 2 years now and my weight is slowly cree...

pattypatchwork

•1 year ago

7 Replies

? Local Group

Can anyone tell me if there is a Lupus group in West London?

Mozart52

•1 year ago

1 Reply

Medication ingredient changes?

Hi, For the last 6 weeks I have been itching all over my torso, head and arms. To the extent I am making myself bleed daily. I haven't changed washing powder,...

Hi, For the last 6 weeks I have been itching all over my torso, head and arms. T...

LupusNewbie

•1 year ago

17 Replies

outrage at pip assessment

Hi all forum folk, wishing you all the best I had my pip report back and was out raged and stressed at there report !!!said I have no issue taking the call...

Hi all forum folk, wishing you all the best I had my pip report back and was o...

Geeforce99

•1 year ago

13 Replies

Im loosing hope

Lupus is dealing with me

1shz

•1 year ago

2 Replies

Do you live in Aberdeen or the surrounding area? Join our initial coffee and chat group online on Wednesday 14th December at 7p.m.

Do you live in Aberdeen or the surrounding area? We are looking to start a coffee and chat group and are holding an initial meeting online on Wednesday 14th...

Do you live in Aberdeen or the surrounding area? We are looking to start a coffe...

Alida_Bennett

Partner•1 year ago

4 Replies

Neuropsychiatric lupus (NPSLE) or neuro-lupus: What is your preferred terminology?

Hi everyone, LUPUS UK has funded a research study looking at neurological and mental health symptoms in people with lupus. Many of you may have already...

Hi everyone, LUPUS UK has funded a research study looking at neurological and m...

Paul_Howard

Partner•1 year ago

42 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2022

Finding a support group

Pembrokeshire Lupus Support Group - last two meetings of the year

South Wales Lupus Support Groups and Campaign

Relative has Rash 3weeks now back ache & urinating lots- kidneys? Help

Knitted friends

SLE Lupus, Diet and exercise to keep weight off

Does Multiple Positive ANA Tests Usually Mean Autoimmune Disease?

Lupus or Mixed Connective Tissue disease? 🤔

Merry Christmas from Bea & Mira 🐶🐶

Malar rash skincare

Confusing antibody test results

Harrogate Christmas Coffee & Chat - Sunday 18th December

Can anyone relate

Painful lump on the sole of the foot - any experiences.

Cutie kids

Alternative to immunosuppression drugs

Raynards foot moisturiser

Thank you!

What can I do? Help please?

Issues Working from Home

Extreme ragged breakage

Hair loss

Wobbly leg!

Hydroxychloroquine side affects

? Local Group

Medication ingredient changes?

outrage at pip assessment

Im loosing hope

Do you live in Aberdeen or the surrounding area? Join our initial coffee and chat group online on Wednesday 14th December at 7p.m.

Neuropsychiatric lupus (NPSLE) or neuro-lupus: What is your preferred terminology?

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