Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All posts for December 2022

Happy New Year

Hello everyoneJust want to share with you Hamza's Winner of Strictly, top life tips that a friend gave him. I felt they were perfect for us 'lupies' to start...

Hello everyoneJust want to share with you Hamza's Winner of Strictly, top life t...

misty14

•1 year ago

23 Replies

Covid and antiviral medication

Hi, I have Covid and I have been offered the antiviral medication. I just feel like I’ve had a bout of flu and am now I’m on the mend so not sure whether to go...

Hi, I have Covid and I have been offered the antiviral medication. I just feel l...

Jolevans

•1 year ago

15 Replies

Sleep and sweats.

I keep waking up at 2.30 sweating like wet through bed. And it's s cool room. My knee and ankle I elivated it all yesterday and still when I walk on it I go...

I keep waking up at 2.30 sweating like wet through bed. And it's s cool room. M...

minka

•1 year ago

13 Replies

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Belimimab and mumps

Do I cancel visiting my sister? One of my nephews has mumps, I have MCTD, SLE, Fibro, APS the list goes on. I am having Belimimab infusions as well as...

Do I cancel visiting my sister? One of my nephews has mumps, I have MCTD, SLE, ...

solo99

•1 year ago

2 Replies

Lupus Care in/around Cheshire/ Manchester

Hi, we plan to move next year to be nearer to our daughter in Wilmslow and as I have lupus I'm wondering about the hospital referral system in the region. We...

Hi, we plan to move next year to be nearer to our daughter in Wilmslow and as I ...

DebbieJ6894

•1 year ago

8 Replies

Merry Christmas everybody!

Hello beautiful people! a quick note to say Merry Christmas and a Happy New Year to everyone here. It has been another painful year and we made it. May we...

Hello beautiful people! a quick note to say Merry Christmas and a Happy New Yea...

LalSD

•1 year ago

12 Replies

Merry Christmas Beautiful People

I wish each and every one of you a peaceful , happy Christmas, as pain free as possible and with reasons to make you smile. This is the closest thing to a...

I wish each and every one of you a peaceful , happy Christmas, as pain free as p...

CecilyParsley

•1 year ago

18 Replies

Happy Cutie Christmas

Hello everyoneJust popping by to wish you all a Happy and Healthy Christmas as possible. Thought i'd show you these cute 'woolly jumpers' as their newborn...

Hello everyoneJust popping by to wish you all a Happy and Healthy Christmas as ...

misty14

•1 year ago

23 Replies

Best Wishes

Thinking of you all With all my best wishes to you all at Christmas and best wishes for the new year 🙏🕊🤗

Thinking of you all With all my best wishes to you all at Christmas and best w...

stiff19

•1 year ago

18 Replies

Pred I need a quick reply anyone

Saw rumi put on pred 15 mg a day for 2 weeks then taper off it. Should I be taking the 3 tablets 5mg at one in morning one a dinner one at tea time. I took 15...

Saw rumi put on pred 15 mg a day for 2 weeks then taper off it. Should I be taki...

minka

•1 year ago

14 Replies

Would you like to take part in a BBC Wales documentary looking at living with chronic illness?

We have been contacted by BBC Wales who are planning a year of content focusing on chronic illness/disability in 2023 – running a series of stories about...

We have been contacted by BBC Wales who are planning a year of content focusing ...

Alida_Bennett

Partner•1 year ago

4 Replies

Rash triggered by CeraVe

Hello! I posted last week as have just been diagnosed with UCTD. I had a malar rash last week (rheum is pretty sure it’s malar rash). Left my skin feeling v...

Hello! I posted last week as have just been diagnosed with UCTD. I had a malar r...

AcheyAnnie

•1 year ago

21 Replies

Need help fast! Hydroxy and fluconozole Don’t mix? What to do?

I had an endoscopy last Tuesday and yeast was found in my esophagus. I had had oral thrush 6 weeks ago and was prescribed fluconozle. Now I’m on it again but...

I had an endoscopy last Tuesday and yeast was found in my esophagus. I had had o...

MrsMarigold

•1 year ago

8 Replies

WE'RE RECRUITING - Health Information Officer

Hi everyone, Applications are now open to join the LUPUS UK staff team in the new role of Health Information Officer. If you would like to work with...

Hi everyone, Applications are now open to join the LUPUS UK staff team in the n...

Paul_Howard

Partner•1 year ago

Be the first to reply

Flu jab

Hi lupies I had the flu jab in October and ever since i've had a streaming cold and now a chest infection.The cold goes for a couple of days and then comes...

Hi lupies I had the flu jab in October and ever since i've had a streaming cold...

kt11

•1 year ago

2 Replies

I have lupus, newly diagnosed and still trying to work out what is lupus and not.

Hi, I keep getting spots around my mouth and sometimes with small what’s heads, and some are just red. I use my topical cream which takes it away for a Fred...

Hi, I keep getting spots around my mouth and sometimes with small what’s heads, ...

M0wnt

•1 year ago

4 Replies

Is it or not lupus

Not been on here in 7 years completely free of what ever and never twigged my symptoms.Started with groin ache then a left swolen testical. Nothing showing up...

Not been on here in 7 years completely free of what ever and never twigged my sy...

minka

•1 year ago

1 Reply

chilblains

I get Raynaurds and together with lupus my hands get really raw and saw like chilblains. I was advised to use cetreben handcream and take a piriton. Anyone...

I get Raynaurds and together with lupus my hands get really raw and saw like chi...

0105luppyabby

•1 year ago

11 Replies

looking to start a family

hi I am looking to start a family. I was diagnosed with lupus 5 years ago and am currently taking prednisolone, for pain relief. For those that have had a...

hi I am looking to start a family. I was diagnosed with lupus 5 years ago and...

Tjay93

•1 year ago

3 Replies

Myositis

I am nearly 62 and was diagnosed with RA one year ago and have now Been told I also have Myositis. How is it effecting others? My legs are like lead and...

I am nearly 62 and was diagnosed with RA one year ago and have now Been told I ...

cross2

•1 year ago

1 Reply

The cause of lupus SLE.

I might be wrong but this is how I think lupus SLE is caused. You have a lupus gene and are exposed to a harmful chemical then at some point in your life...

I might be wrong but this is how I think lupus SLE is caused. You have a lupus ...

markb677

•1 year ago

60 Replies

My boy

Hi everyone. I apologise for not posting much but this year has been tough and losing both my beautiful boys has hurt so much. Finlay has brought us so much...

Hi everyone. I apologise for not posting much but this year has been tough and l...

CecilyParsley

•1 year ago

60 Replies

Plaquenil: does it stop working properly during, for example, flu?

I was started on plaquenil early September. It took about 9 weeks to kick in, but when it did it was really very effective in reducing joint pains and fatigue....

I was started on plaquenil early September. It took about 9 weeks to kick in, bu...

Blue_feather

•1 year ago

6 Replies

Exposure to chickenpox. GP refuses to consider antivirals

I've just found out that I've been exposed to a child with chickenpox. When I was prescribed methotrexate l, they made it clear that any exposure should be...

I've just found out that I've been exposed to a child with chickenpox. When I wa...

SLS2103

•1 year ago

5 Replies

Brain fog triggered cold temperature

Since the real cold weather started, I have noticed my brain fog is almost constant if I get slightly colder than below 17 degree. I am fine when walking in...

Since the real cold weather started, I have noticed my brain fog is almost const...

Paprika60

•1 year ago

9 Replies

Neuropsychiatric lupus?

Hi there **If the following doesn't make sense, please let me know** Feeling poorly for a while. I posted a while ago about a muscle spasm within my hand,...

Hi there **If the following doesn't make sense, please let me know** Feeling p...

Amakura

•1 year ago

3 Replies

Update from previous post...

Hi So I visited my GP today to get discuss my latest blood results. Previously I mentioned i am being treated for MCTD on hydroxychloroquine. I started...

Hi So I visited my GP today to get discuss my latest blood results. Previously ...

Awwy

•1 year ago

2 Replies

Brain fog and lack of concentration

Does anyone with SLE lupus suffer with brain fog and trouble concentrating?

0105luppyabby

•1 year ago

14 Replies

Red marks on face

Does anyone use Elocon steroid cream, I used it on my red lupus marks a few years ago and they cleared up. I now have a couple of red marks on face, quite...

Does anyone use Elocon steroid cream, I used it on my red lupus marks a few year...

0105luppyabby

•1 year ago

Be the first to reply

Chronic nerve disorder /damage

Hi everyoneSo I have been having episodes were I feel something biting my bones in my arm and legs. It feels like the bones are going to pop out. I get a...

Hi everyoneSo I have been having episodes were I feel something biting my bones ...

ijeasike

•1 year ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2022

Happy New Year

Covid and antiviral medication

Sleep and sweats.

Belimimab and mumps

Lupus Care in/around Cheshire/ Manchester

Merry Christmas everybody!

Merry Christmas Beautiful People

Happy Cutie Christmas

Best Wishes

Pred I need a quick reply anyone

Would you like to take part in a BBC Wales documentary looking at living with chronic illness?

Rash triggered by CeraVe

Need help fast! Hydroxy and fluconozole Don’t mix? What to do?

WE'RE RECRUITING - Health Information Officer

Flu jab

I have lupus, newly diagnosed and still trying to work out what is lupus and not.

Is it or not lupus

chilblains

looking to start a family

Myositis

The cause of lupus SLE.

My boy

Plaquenil: does it stop working properly during, for example, flu?

Exposure to chickenpox. GP refuses to consider antivirals

Brain fog triggered cold temperature

Neuropsychiatric lupus?

Update from previous post...

Brain fog and lack of concentration

Red marks on face

Chronic nerve disorder /damage

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