Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2022

Waiting for blood result, orange spot on skin, like rust.

Hi. I'm waiting for some blood resort to know what happen to me since one year. The first dose got me so sick for many month that i have the feeling it's star...

Hi. I'm waiting for some blood resort to know what happen to me since one year. ...

Shadow35

•1 year ago

4 Replies

A night at the theatre in Edinburgh while supporting LUPUS UK!

We are being supported in Edinburgh with a production of "Let's Face the Music and Dance" at the Church Hill Theatre, Church Hill Place, Edinburgh EH10 4DR -...

We are being supported in Edinburgh with a production of "Let's Face the Music a...

Alida_Bennett

Partner•1 year ago

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Good Rheumatologists UK

Hi, I am intending to book a private rheumatology appointment. If anybod has an reccomendations, can they please PM me. Thanks in advance. All Best,...

Hi, I am intending to book a private rheumatology appointment. If anybod has a...

ErraticAspie

•1 year ago

4 Replies

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Tests, test and more bloody tests!

After years of managing the dreaded lupus/APS migraines really well with Maxalt, I have started to suffer with cluster headache (which nothing seems to touch!)...

After years of managing the dreaded lupus/APS migraines really well with Maxalt,...

Sher78

•1 year ago

13 Replies

University of Cambridge kidney disease study

Hope everyone is enjoying a lovely Sunday! I wanted to ask if anyone else with a current or past lupus nephritis diagnosis has been approached by the...

Hope everyone is enjoying a lovely Sunday! I wanted to ask if anyone else with ...

Jamst3r

•1 year ago

3 Replies

Migraines/autoimmune

Hi there I was just wondering if any one could share there experiences regarding severe migraine with autoimmune? Is this something that is connected? I've...

Hi there I was just wondering if any one could share there experiences regarding...

Danimccrea

•1 year ago

8 Replies

how to explain lupus to kids

I’ve been diagnosed for a few years now but always tried to hide how bad things can get from my kids. Now they are getting older 11 and 10 they are starting...

I’ve been diagnosed for a few years now but always tried to hide how bad things ...

Raven_claw

•1 year ago

6 Replies

dreadful foot pain from lupus

hi all My niece is having an awful time with pain in her left foot which is very swollen; she’s had to get crutches because she can’t even touch the ground...

hi all My niece is having an awful time with pain in her left foot which is ver...

RichDC

•1 year ago

3 Replies

dermatology recommendation

I have recently been assessed by Professor Chinoy in Manchester - he is a renowned expert in Myositis. He didn't feel that I had an autoimmune condition but...

I have recently been assessed by Professor Chinoy in Manchester - he is a renown...

missingtravel

•1 year ago

2 Replies

Chemo for Lupus

Hi all, After an escalation in neurological Lupus symptoms and despite already having biological therapy and steroid infusions, I’m now going to be having...

Hi all, After an escalation in neurological Lupus symptoms and despite alrea...

mainlyconfused

•1 year ago

14 Replies

hi m 60 yrs old

hi I have high blood pressure I have a machine omicron the cuff can any recommend which is a good blood machine and how do I reduce my blood pressure please...

hi I have high blood pressure I have a machine omicron the cuff can any recommen...

Mystik

•1 year ago

8 Replies

Methotrexate and azathioprine

Having got to see my rheumatologist after a long wait I have now been started on methotrexate as well as azathioprine prednisolone and hydroxychloroquine....

Having got to see my rheumatologist after a long wait I have now been started on...

cakerbaker

•1 year ago

4 Replies

Severe Itching

I have developed severe and sporadic itching. It's mainly on my forearms and back of neck and is worse when I get too warm. It also seems to jump about my...

I have developed severe and sporadic itching. It's mainly on my forearms and ba...

Deiniol

•1 year ago

8 Replies

New to lupus: nauseous and urgent vomiting.

Hi again, still off work with lower back and neck inflamed. Which just flares up when I am active. A new thing I have been getting is nausea and urgent...

Hi again, still off work with lower back and neck inflamed. Which just flares up...

M0wnt

•1 year ago

2 Replies

methotrexate

Hello to all I started Methotrexate on Monday, my first dose. On Wednesday afternoon my body temperature dropped to 35 and I feel cold sweats. Today I am...

Hello to all I started Methotrexate on Monday, my first dose. On Wednesday afte...

CREATIA6_

•1 year ago

2 Replies

Jonathon Otto, scam or lifesaver???

Hi, I have come across this guy online. His name is Jonathon Otto healthsecret.com Has anybody out there tried any of his programs. It all seems too good...

Hi, I have come across this guy online. His name is Jonathon Otto healthsecr...

jbkinv

•1 year ago

20 Replies

Swallowing difficulties with pouch at back of mouth

Hello , wanted to ask if any of you have been told after a barium swallow investigation that you have a pouch at the back of your mouth? I’m waiting to see...

Hello , wanted to ask if any of you have been told after a barium swallow invest...

gemim

•1 year ago

6 Replies

steroids

I have an itchy rash tapering from steroids 50 mg to 5 mg now ! My skin is on fire any tips ?

I have an itchy rash tapering from steroids 50 mg to 5 mg now ! My skin is on fi...

Sandrakee

•1 year ago

13 Replies

Dysautonomia

Hi! I know this is a lupus group, but there seems to be a wide variety of knowledge on health problems here, so I am hoping someone might be able to help me...

Hi! I know this is a lupus group, but there seems to be a wide variety of knowle...

Hidden

•2 years ago

18 Replies

15-minute anonymous survey to help better understand issues affecting adults with arthritis

Are you aged 18+ with any type of arthritis, rheumatic or musculoskeletal condition? Please take part in this 15-minute survey to help Arthur's Place, JIA...

Are you aged 18+ with any type of arthritis, rheumatic or musculoskeletal condit...

Chanpreet_Walia

LUPUS UK•2 years ago

5 Replies

Newly diagnosed lupus and exams

hey there, I have under a week ago been diagnosed with lupus and I just have questions because I have exams coming up but lupus affects my ability to do exams...

hey there, I have under a week ago been diagnosed with lupus and I just have que...

Yellowsun111

•2 years ago

4 Replies

Lupus and feeling faint

Hello, i recently got diagnosed with Lupus but for the past couple of years i have had problems with breathlessness and feeling faint. I always feel like i am...

Hello, i recently got diagnosed with Lupus but for the past couple of years i ha...

Springmilli

•2 years ago

5 Replies

SMC approve belimumab (Benlysta) for use by NHS Scotland

The Scottish Medicines Consortium (SMC) recently completed their assessment of belimumab (Benlysta) as a treatment for active auto-antibody positive...

The Scottish Medicines Consortium (SMC) recently completed their assessment of b...

Chanpreet_Walia

LUPUS UK•2 years ago

1 Reply

lupus is a super power

I found this interesting https://www.medscape.co.uk/viewarticle/lupus-gene-linked-protection-against-severe-covid-19-2022a10025lg

I found this interesting https://www.medscape.co.uk/viewarticle/lupus-gene-lin...

sookey

•2 years ago

3 Replies

Coffee & Chat Meeting in Sutton, Surrey on Saturday 12th November at 10.30

We are holding our next Coffee and Chat meeting at Costa Coffee, at 176 High Street, Sutton, Surrey SML 1NL on Saturday 12th November at 10.30 a.m. Everyone is...

We are holding our next Coffee and Chat meeting at Costa Coffee, at 176 High Str...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Lupus and Monkeypox

Hi all, I thought I'd ask as this is very topical at the moment, especially for the immunosuppressed. Does anyone have any comments on this?

Hi all, I thought I'd ask as this is very topical at the moment, especially for ...

HantsMan

•2 years ago

3 Replies

Cutie Pups

Hello everyoneJust popping in to show you these 'cutie pups' who were all found abandoned in a crate on the A249 would you believe?. They have all been taken...

Hello everyoneJust popping in to show you these 'cutie pups' who were all found ...

misty14

•2 years ago

30 Replies

Gene associated with Lupus may protect against severe COVID-19 infection

Another research. Enjoy your reading📖 https://journals.plos.org/plosgenetics/article?id=10.1371/journal.pgen.1010253 Happy weekend for everyone.🦋💜☘️

Another research. Enjoy your reading📖 https://journals.plos.org/plosgenetics/ar...

Naladog

•2 years ago

6 Replies

Asking for advice for Immunology referral...

We have an ongoing serious issue, whereby my wife cornea's are getting lacerations causing vision loss and light sensitivity from what we presume is her...

We have an ongoing serious issue, whereby my wife cornea's are getting laceratio...

andy_ashton

•2 years ago

6 Replies

Lupus and Asthma

Hi, I just wondered if anyone had experience with asthma and lupus? after having asthma for 40+ years, my respiratory consultant seems to think I don’t have...

Hi, I just wondered if anyone had experience with asthma and lupus? after havin...

LottieB36

•2 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2022

Waiting for blood result, orange spot on skin, like rust.

A night at the theatre in Edinburgh while supporting LUPUS UK!

Good Rheumatologists UK

Tests, test and more bloody tests!

University of Cambridge kidney disease study

Migraines/autoimmune

how to explain lupus to kids

dreadful foot pain from lupus

dermatology recommendation

Chemo for Lupus

hi m 60 yrs old

Methotrexate and azathioprine

Severe Itching

New to lupus: nauseous and urgent vomiting.

methotrexate

Jonathon Otto, scam or lifesaver???

Swallowing difficulties with pouch at back of mouth

steroids

Dysautonomia

15-minute anonymous survey to help better understand issues affecting adults with arthritis

Newly diagnosed lupus and exams

Lupus and feeling faint

SMC approve belimumab (Benlysta) for use by NHS Scotland

lupus is a super power

Coffee & Chat Meeting in Sutton, Surrey on Saturday 12th November at 10.30

Lupus and Monkeypox

Cutie Pups

Gene associated with Lupus may protect against severe COVID-19 infection

Asking for advice for Immunology referral...

Lupus and Asthma

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