Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2022

shielding

sorry if I am repeating something and sorry for all the questions. Can I ask what we.should be doing re shielding. I am on 5mg of prednisolone usually but...

sorry if I am repeating something and sorry for all the questions. Can I ask wh...

cakerbaker

•2 years ago

10 Replies

Please help me with medication advice

Hi everyone I'm hoping someone out there can help. Can you please tell me if the medications prescribed are meant to completely fix our symptoms or reduce...

Hi everyone I'm hoping someone out there can help. Can you please tell me if...

SLS2103

•2 years ago

9 Replies

What do you think?

Hi. I joined this group because I really need help and advice on how to deal with my health issue and the fact I feel I am not being taken seriously....

Hi. I joined this group because I really need help and advice on how to deal wit...

Iwantaboat

•2 years ago

9 Replies

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Plaquenil and baseline eye check

HI all, l started Plaquenil a few weeks ago, and l am going to Specsavers for an eye test today. It has suddenly occurred to me that a high st optician...

HI all, l started Plaquenil a few weeks ago, and l am going to Specsavers fo...

Blue_feather

•2 years ago

34 Replies

First Flare

Am into the third week of a flare…..nausea, no appetite lethargy +++ pain behind sternum ……have Raynauds…. Was diagnosed beg of April….on Mycolophenate 200...

Am into the third week of a flare…..nausea, no appetite lethargy +++ pain behind...

provence2022

•2 years ago

6 Replies

Two Cuties

Hello everyone Just popping up again to show you all these two cute harvest mice. They were photographed braving the brambles to get to the blackberries to...

Hello everyone Just popping up again to show you all these two cute harvest m...

misty14

•2 years ago

57 Replies

Effect of prednisolone on blood results

Hi, hope you're all doing well! Since getting covid in March of last year I have had a whole bunch of symptoms like fatigue and joint pain and fevers, also...

Hi, hope you're all doing well! Since getting covid in March of last year I ha...

aqt1

•2 years ago

1 Reply

A lifetime…and still no diagnosis.

I’m new to this forum, so please forgive me for bleating, at 69; often think I’m lucky to have made it thus far. In brief, a childhood of more severe...

I’m new to this forum, so please forgive me for bleating, at 69; often think I’m...

BlueMoon65

•2 years ago

38 Replies

face cream

hello Please any cream recommendation for lupus butterfly 🦋 rashes? ps: am black African

hello Please any cream recommendation for lupus butterfly 🦋 rashes? ps: am ...

Saralife

•2 years ago

5 Replies

please help. Desperate.

Before I start, this is definitely going to be a long winded one but stay with me here if you can 😂 I’m absolutely desperate for some kind of answers, advice,...

Before I start, this is definitely going to be a long winded one but stay with m...

AshB66

•2 years ago

26 Replies

tips on raising c3 compliment

Well, had my first low c3 compliment result; found out today. Could be a couple things but Rheumy thinks it could be Lupus activity. It was only two below the...

Well, had my first low c3 compliment result; found out today. Could be a couple ...

JennaShi

•2 years ago

9 Replies

vitamins for sle

hello. I was wondering are there any worthwhile vitamins to take for lupus sle! I take vitamin d and folic acid. Is there anything else this group has found...

hello. I was wondering are there any worthwhile vitamins to take for lupus sle!...

MonicaT

•2 years ago

12 Replies

Gabapentin

Is anyone on Gabapentin, especially for nerve pain? How has it been? I have been prescribed a low dosage of Gabapentin to help with nerve pain but this is a...

Is anyone on Gabapentin, especially for nerve pain? How has it been? I have been...

Hidden

•2 years ago

17 Replies

life /pension insurances

Hi, do you know any pension/life insurance policies who takes people with lupus , I’ve tried but I was turned down by ‘legal and general ‘ thank you 😊

Hi, do you know any pension/life insurance policies who takes people with lupus ...

Melaxx

•2 years ago

1 Reply

full time job and SLE

Good morning My name is Nina and I am suffering with Lupus since 2003. Recently, for the last year, I am struggling with my job. I would like to ask you how...

Good morning My name is Nina and I am suffering with Lupus since 2003. Recentl...

CREATIA6_

•2 years ago

12 Replies

lupus and hemangioma on spine

Has anyone else here with lupus been diagnosed with other a hemangioma on their spine? I’ve been trying to manage back pain for as long as I can...

Has anyone else here with lupus been diagnosed with other a hemangioma on their ...

SWinNorfolk

•2 years ago

5 Replies

Low mood with UCTD

Hi folks, I experience low mood /depression and wondered if others with similar diagnosis experience the same. I cannot seem to shake it this year. It's not...

Hi folks, I experience low mood /depression and wondered if others with similar...

redmaggie

•2 years ago

12 Replies

West Midlands Lupus Group Drop-in Session. Thurs, 13th Oct from 2-4pm

Our West Midlands Lupus Group are holding a drop-in session this Thursday, 13th October, from 2pm to 4pm! The drop-in session includes a video and chat...

Our West Midlands Lupus Group are holding a drop-in session this Thursday, 13th ...

Chanpreet_Walia

LUPUS UK•2 years ago

Be the first to reply

Plaquenil - Hair loss

Hi All, Is anyone here had/have serious hair loss due to plaquenil side effect? I found out that my hair loss is from the drug and not because of the lupus...

Hi All, Is anyone here had/have serious hair loss due to plaquenil side effect...

Mo144

•2 years ago

3 Replies

Do you live in the Darlington Area? Join us for our first Darlington Coffee & Chat on Monday 17th October at 10.30.

Join us for our first Darlington LUPUS UK Coffee & Chat Meeting at The Dolphin Centre (First floor café), Horse Market, Darlington DL1 5RP on Monday 17th...

Join us for our first Darlington LUPUS UK Coffee & Chat Meeting at The Dolphin C...

Alida_Bennett

Partner•2 years ago

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Covid and Flu injections at same time

Hi, has anyone with lupus had both flu and Covid injections at same time recently ? How was side effect’s ?

Hi, has anyone with lupus had both flu and Covid injections at same time recentl...

Geeforce99

•2 years ago

25 Replies

Chronic foot pain

Hello, I was diagnosed with probable SLE about 6 years ago (in my late 40s). This diagnosis was based on chronic bilateral foot pain. The pain is in the...

Hello, I was diagnosed with probable SLE about 6 years ago (in my late 40s). ...

tuppenceworth

•2 years ago

10 Replies

Help - right hand, ring finger

Hi there I'm not sure how to manage this but I'm experiencing a problem with my right hand, ring finger. This digit, literally, went into some sort of spasm...

Hi there I'm not sure how to manage this but I'm experiencing a problem with my...

Amakura

•2 years ago

13 Replies

Shakiness

i have aps and lupus and have days when I feel shaky all over. My lips quiver also. Has anyone else experienced this?

i have aps and lupus and have days when I feel shaky all over. My lips quiver al...

loretta1106

•2 years ago

1 Reply

Hydroxychloroquine and mood

Hello everyone, I was wondering if anyone here has had a similar experience to me. I’ve been on hydroxychloroquine for a month and my mood has really been...

Hello everyone, I was wondering if anyone here has had a similar experience to ...

Tinylittlemac

•2 years ago

5 Replies

Cought covid second time now

Hi i was just wanting to know if any one has had covid twice? So i cought covid in june 2022 first time i was really poorly, ive had a really chesty cough and...

Hi i was just wanting to know if any one has had covid twice? So i cought covid ...

Danimccrea

•2 years ago

5 Replies

Looking for some advice on Rheumatology referrals...

My partner got diagnosed with Lupus a year ago. It was difficult to get a diagnosis and to get in front of the right people. Eventually we got a letter...

My partner got diagnosed with Lupus a year ago. It was difficult to get a diagno...

andy_ashton

•2 years ago

9 Replies

Methotrexate

Hi everyone,my Rheumatologist suggested I could try stopping methotrexate after 20 years…anyone else tried stopping after such a long time,I’d love to come off...

Hi everyone,my Rheumatologist suggested I could try stopping methotrexate after ...

Kriss53

•2 years ago

3 Replies

lupus/Sjorgens

I have a rare lupus , lupus tumidus and Sjorgens - still trying g to get meds right as also suffer from facial paniculitus - consultant changed meds this week...

I have a rare lupus , lupus tumidus and Sjorgens - still trying g to get meds r...

Dressgirl52

•2 years ago

6 Replies

Lupus??

Hi All you lovely people I was diagnosed with lupus in February 2020. I also have developed skin lupus. I have been feeling awful recently and am awaiting a...

Hi All you lovely people I was diagnosed with lupus in February 2020. I also h...

cakerbaker

•2 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2022

shielding

Please help me with medication advice

What do you think?

Plaquenil and baseline eye check

First Flare

Two Cuties

Effect of prednisolone on blood results

A lifetime…and still no diagnosis.

face cream

please help. Desperate.

tips on raising c3 compliment

vitamins for sle

Gabapentin

life /pension insurances

full time job and SLE

lupus and hemangioma on spine

Low mood with UCTD

West Midlands Lupus Group Drop-in Session. Thurs, 13th Oct from 2-4pm

Plaquenil - Hair loss

Do you live in the Darlington Area? Join us for our first Darlington Coffee & Chat on Monday 17th October at 10.30.

Covid and Flu injections at same time

Chronic foot pain

Help - right hand, ring finger

Shakiness

Hydroxychloroquine and mood

Cought covid second time now

Looking for some advice on Rheumatology referrals...

Methotrexate

lupus/Sjorgens

Lupus??

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2022

﻿shielding

﻿Please help me with medication advice

What do you think?

Plaquenil and baseline eye check

First Flare

﻿Two Cuties

Effect of prednisolone on blood results

A lifetime…and still no diagnosis.

face cream

please help. Desperate.

tips on raising c3 compliment

﻿vitamins for sle

Gabapentin

life /pension insurances

full time job and SLE

lupus and hemangioma on spine

Low mood with UCTD

West Midlands Lupus Group Drop-in Session. Thurs, 13th Oct from 2-4pm

Plaquenil - Hair loss

Do you live in the Darlington Area? Join us for our first Darlington Coffee & Chat on Monday 17th October at 10.30.

Covid and Flu injections at same time

Chronic foot pain

Help - right hand, ring finger

Shakiness

Hydroxychloroquine and mood

Cought covid second time now

Looking for some advice on Rheumatology referrals...

Methotrexate

lupus/Sjorgens

Lupus??

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

shielding

Please help me with medication advice

Two Cuties

vitamins for sle