Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All posts for October 2022

Mindset and symptoms

Hi everyone, I've been a bit quiet lately in general. I had a few personal problems back in June time. I then spent 4-months sort of just floating through...

Hi everyone, I've been a bit quiet lately in general. I had a few personal prob...

LouLamb

•1 year ago

7 Replies

Baby with heart block

Hi everyone, I'm new here My daughter was recently diagnosed with heart block. It seems that I could have lupus without knowing it. Has anyone else had a...

Hi everyone, I'm new here My daughter was recently diagnosed with heart block....

Ladybird_22

•1 year ago

10 Replies

Daily waking headache

apologies as I have posted this before but I thought there might be some new forum members . I’ve woken daily for last 4 years with vice like hangover...

apologies as I have posted this before but I thought there might be some new for...

Tiggywoos

•1 year ago

52 Replies

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Covid, BioNTech, Pfizer vaccine 24th oct 2022

Hello good people, thank you for all recent reply’s. I had latest covid booster monday 24th oct and tuesday early hours 2am onwards started to feel rough...

Hello good people, thank you for all recent reply’s. I had latest covid booste...

Geeforce99

•1 year ago

2 Replies

Causes of lupus

I m trying to prove the chemical benzene causes lupus SLE. How many of you worked in plastic production, worked in coal mining, worked with fuel, smoked...

I m trying to prove the chemical benzene causes lupus SLE. How many of you wor...

markb677

•2 years ago

80 Replies

Recovery from flare

Can anyone give me any idea of the recovery from a Flare …..am into 4th week now and just beginning to feel like eating, need to regain my energy etc It was so...

Can anyone give me any idea of the recovery from a Flare …..am into 4th week now...

provence2022

•2 years ago

11 Replies

Recommendations for swimming cap

Hi all. I've recently started swimming again which I really love (and makes me feel so much better). However, I struggle to find a swimming cap which doesn't...

Hi all. I've recently started swimming again which I really love (and makes me f...

Treetop33

•2 years ago

4 Replies

Zentiva

Hello peeps....well here we go again trying to get Zentiva. I can't take Quinoric and have just been given the ipca hydroxy which is the same as Quinoric....

Hello peeps....well here we go again trying to get Zentiva. I can't take Quino...

kt11

•2 years ago

28 Replies

Struggling with mental health due to Covid worries.

Help! I’m Really struggling with getting my mind back to normal life. Because I have lupus and am largely ill all the time, I worry hugely about getting Covid,...

Help! I’m Really struggling with getting my mind back to normal life. Because I ...

LilyMistri2

•2 years ago

47 Replies

Incessant itching driving me crazy

I was diagnosed with SLE and APS around 25 years ago ; although I reckon I've had both for most of my life ; I'm 74. Over the years I've had a number of...

I was diagnosed with SLE and APS around 25 years ago ; although I reckon I've ha...

jamesroybuck

•2 years ago

13 Replies

Need help to understand the process

Hi everyone, I'm new to UK and NewCastle. I'm having SLE and it is damaging my kidneys. I'm on medication for 2 years now. I just provided registration...

Hi everyone, I'm new to UK and NewCastle. I'm having SLE and it is damaging my k...

HashiniSL

•2 years ago

4 Replies

Retinal Toxcity &Hydroxychloroquine

HI Everyone ,I haven't posted in a while just been jogging along quietly taking each day as it comes. I was diagnosed with Lupus in 1999 along with sjgreons...

HI Everyone ,I haven't posted in a while just been jogging along quietly taking...

Mrsdoozer

•2 years ago

1 Reply

Is anyone on Lupus medication Azathioprine?

Hello great people, is anyone else taking Azathioprine and could you let me know your experience with using this drug for Lupus/CTD/Sjögren/Raynards ? Has it...

Hello great people, is anyone else taking Azathioprine and could you let me know...

Geeforce99

•2 years ago

12 Replies

BLUE FINGER

Morning all. I was wondering if anyone could tell me what they think could be possibly causing the base of my finger to be blue please ? I had not banged it. I...

Morning all. I was wondering if anyone could tell me what they think could be po...

llewelyn2405

•2 years ago

14 Replies

Joy at last

Hello lovely people. I have not posted for a while because honestly there was nothing positive to say. This year has been tough as well as health issues. We...

Hello lovely people. I have not posted for a while because honestly there was no...

CecilyParsley

•2 years ago

50 Replies

Thank you

I just want to say thank you to everyone for your lovely replies. You have really helped me!! Again!! Sending love 💚

I just want to say thank you to everyone for your lovely replies. You have reall...

Greentomatoes

•2 years ago

1 Reply

Learn What Participating in a Lupus Clinical Study is Like

If you have ever wondered what participating in a lupus clinical trial is like, I encourage you to attend an upcoming free 15-minute webinar that focuses on...

If you have ever wondered what participating in a lupus clinical trial is like, ...

ciscrp_official

•2 years ago

1 Reply

shortage of Zentiva brand hydroxycloroquine

Just wondering if anyone is having problems getting Zentiva hydroxychloroquine at the moment? I didn't get any hydroxy at all from my pharmacy (who are...

Just wondering if anyone is having problems getting Zentiva hydroxychloroquine a...

Larks0ng

•2 years ago

10 Replies

crying inside

Just putting this out there as I am crying inside. I have had to cancel a lovely night that was planned for my friends, their daughter & my daughter. I have...

Just putting this out there as I am crying inside. I have had to cancel a lovely...

Greentomatoes

•2 years ago

29 Replies

mouth sores

Hi all Just a quick question about mouth sores which, are apparently a feature of lupus. I have had these intermittently on the roof of my mouth for as long...

Hi all Just a quick question about mouth sores which, are apparently a feature ...

Brychni

•2 years ago

13 Replies

Covid booster

Just to reassure people - I had heard lots of horror stories about the latest Covid booster so was in 2 minds about whether to get it. In the end I went...

Just to reassure people - I had heard lots of horror stories about the latest ...

HazelW

•2 years ago

13 Replies

Symptoms, possible Lupus?

Hi, I am a 26 year old man who in mid 2020 began experiencing tingling in my hand and feet. After this intensified in October 2020, I went to my GP,...

Hi, I am a 26 year old man who in mid 2020 began experiencing tingling in my h...

ErraticAspie

•2 years ago

7 Replies

Any Equestrians?

Does anyone in the group ride horses on a regular basis? I do hunter/jumper, and after a 6 year break from riding just recently got back into it. Horses are a...

Does anyone in the group ride horses on a regular basis? I do hunter/jumper, and...

Hidden

•2 years ago

8 Replies

Help, please

Hello, lupie friends. I haven’t been on the site much over the summer as I’m sorry to say I was diagnosed with breast cancer in August. However the good news...

Hello, lupie friends. I haven’t been on the site much over the summer as I’m so...

Barbara17

•2 years ago

8 Replies

V.A.T. exemption

I have S.L.E., Chronic I.T.P., Sjogrens Syndrome and had a Splenectomy 13 years ago for ITP does anyone know if this meets the criteria for VAT exemption on...

I have S.L.E., Chronic I.T.P., Sjogrens Syndrome and had a Splenectomy 13 years ...

Orchidlily

•2 years ago

6 Replies

When should we be having our 6th booster please?

Hey all.. hoping you are all feeling as well as possible. As have you I'm sure/hope, the NHS are sending me emails and texts to suggest I get the booster....

Hey all.. hoping you are all feeling as well as possible. As have you I'm sure/...

DJK99

•2 years ago

30 Replies

LUPUS

My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams, and Mepocrim tablets. She suffers with this on her face, neck, hands and...

My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams...

Shorty09

•2 years ago

7 Replies

an image to cheer up those in pain

our garden this afternoon

Hidden

•2 years ago

31 Replies

covid

Morning everyone..I have Lupus sle, itp sjogrens, thyroid problems plus other health issues. I work full time HGV 1 lorry driver my company allows me to...

Morning everyone..I have Lupus sle, itp sjogrens, thyroid problems plus other h...

SufferingMike21

•2 years ago

10 Replies

Methotrexate - abnormal blood test

Hi everyone, Bit of a weird one, I started methotrexate a couple of months ago and over the course of my last two blood tests my white blood cell count has...

Hi everyone, Bit of a weird one, I started methotrexate a couple of months ago ...

Vespa123

•2 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2022

Mindset and symptoms

Baby with heart block

Daily waking headache

Covid, BioNTech, Pfizer vaccine 24th oct 2022

Causes of lupus

Recovery from flare

Recommendations for swimming cap

Zentiva

Struggling with mental health due to Covid worries.

Incessant itching driving me crazy

Need help to understand the process

Retinal Toxcity &Hydroxychloroquine

Is anyone on Lupus medication Azathioprine?

BLUE FINGER

Joy at last

Thank you

Learn What Participating in a Lupus Clinical Study is Like

shortage of Zentiva brand hydroxycloroquine

crying inside

mouth sores

Covid booster

Symptoms, possible Lupus?

Any Equestrians?

Help, please

V.A.T. exemption

When should we be having our 6th booster please?

LUPUS

an image to cheer up those in pain

covid

Methotrexate - abnormal blood test

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2022

Mindset and symptoms

Baby with heart block

Daily waking headache

Covid, BioNTech, Pfizer vaccine 24th oct 2022

﻿Causes of lupus

Recovery from flare

Recommendations for swimming cap

Zentiva

Struggling with mental health due to Covid worries.

Incessant itching driving me crazy

Need help to understand the process

﻿Retinal Toxcity &Hydroxychloroquine

Is anyone on Lupus medication Azathioprine?

BLUE FINGER

Joy at last

Thank you

Learn What Participating in a Lupus Clinical Study is Like

shortage of Zentiva brand hydroxycloroquine

crying inside

mouth sores

﻿Covid booster

Symptoms, possible Lupus?

Any Equestrians?

Help, please

V.A.T. exemption

When should we be having our 6th booster please?

LUPUS

an image to cheer up those in pain

﻿covid

Methotrexate - abnormal blood test

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Causes of lupus

Retinal Toxcity &Hydroxychloroquine

Covid booster

covid