Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2022

Heat and / or light treatment for lupus

Hello all - I was diagnosed with lupus in 2020 and am under the care of a rheumatologist and a gastroenterologist. I know that lupus sufferers are advised...

Hello all - I was diagnosed with lupus in 2020 and am under the care of a rheuma...

•2 years ago

discoloured lips!

hi for the past few months my lips look almost blue like a thick line arounf them as if I’ve got dark lip liner on! I’m not sure if it is a side effect of...

hi for the past few months my lips look almost blue like a thick line arounf the...

•2 years ago

mycophenolate

hi everyone 😊 Does anyone on here with lupus takes Mycophenolate, I just started but when I read the side effects I’m not really sure . thank you 🙏

hi everyone 😊 Does anyone on here with lupus takes Mycophenolate, I just start...

•2 years ago

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discoloured lips??

hi there my lips seemed to of changed colour I’ve heard hydrochloroquine can change colour of your skin but I can’t work out if they are blue or if it’s just...

hi there my lips seemed to of changed colour I’ve heard hydrochloroquine can cha...

•2 years ago

Private consultant

I wonder if anyone could recommend a private ‘lupus specialist’ in Manchester. Happy to travel to other areas within reasonable distance. Many thanks.

I wonder if anyone could recommend a private ‘lupus specialist’ in Manchester. H...

•2 years ago

Lupus & COVID-19 Vaccinations - UPDATED 05/09/2022

Hi everyone, Invitations for the autumn 2022 COVID-19 booster programme are beginning to be sent today. We have updated our information and guidance with...

Hi everyone, Invitations for the autumn 2022 COVID-19 booster programme are beg...

Partner•2 years ago

sleep issues

I have been taking hydroxychloroquine now for 3 months, started with 200 mg and now at 300 mg. I still get night sweats and unable to sleep - wake up tired in...

I have been taking hydroxychloroquine now for 3 months, started with 200 mg and ...

•2 years ago

It’s Monthly Mira Monday 🐶💞

Hi Folks, as we say goodbye to the summer thought this pic was apt that a took of Mira on her sunbed a couple of weeks ago sunning herself, that girl knows how...

Hi Folks, as we say goodbye to the summer thought this pic was apt that a took o...

•2 years ago

Books on SLE

Hi. I have recently been diagnosed with Lupus and I am trying to educated myself on the condition. There are quite a few books available but I would really...

Hi. I have recently been diagnosed with Lupus and I am trying to educated mys...

•2 years ago

malar rash- even more itchy when sweating?

hi. I woke up with a malar rash august 23 and it’s been here since. It’s mild - it almost looks like I just have rosy cheeks/over my nose. I’ve had a couple...

hi. I woke up with a malar rash august 23 and it’s been here since. It’s mild - ...

thisismyusername13

•2 years ago

best products

Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first...

Hello,can I pick your brains please. recently diagnosed with sjorgrens.after...

•2 years ago

Cardiff Lupus Group Meeting - 3pm Saturday 3rd September - Bute Park

Our Cardiff Lupus Group has a face-to-face meeting from 3pm in Bute Park tomorrow (Saturday 3rd September). If you'd like any more information, please email...

Our Cardiff Lupus Group has a face-to-face meeting from 3pm in Bute Park tomorro...

Partner•2 years ago

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Autoimmune disorders increase risk of cardiovascular disease

An international research team presents the outcome of a thorough epidemiological investigation into possible links between nineteen of the most common...

An international research team presents the outcome of a thorough epidemiologic...

•2 years ago

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Provence 22

Many thanks to all the good folk that responded to my wails of distress…..hoping that after FIVE MONTHS ….there is some light at the end of the tunnel…..anyone...

Many thanks to all the good folk that responded to my wails of distress…..hoping...

•2 years ago

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