Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for September 2022

Prednisolone

I’m trying to control a flare with increasing levels of Prednisolone ( under supervision of consultant). I’ve just had an appointment and the suggestion was...

I’m trying to control a flare with increasing levels of Prednisolone ( under sup...

Marley

•2 years ago

12 Replies

Constantly Feeling Extremely Hot or Extremely Cold

Hi everyone, I have been struggling with finding a comfortable temperature for a couple of years now, but over the last few months it has gotten really bad. I...

Hi everyone, I have been struggling with finding a comfortable temperature for ...

Hidden

•2 years ago

25 Replies

psoriasis

hi. Can anyone tell me if psoriasis is an add on to Conective tissue disease , or something on its own , I’ve now started with it on my scalp , two years...

hi. Can anyone tell me if psoriasis is an add on to Conective tissue disease ,...

whatsit

•2 years ago

5 Replies

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Hrt and lupus

has anyone here had hrt? What were you advised about it?

Fluffypip

•2 years ago

32 Replies

can you have a lupus flare with normal bloods

hi guys I feel horrific I have been told my Iron is low alongside that I’ve got sores in my nose pains in joints and chest I just wondered can you have normal...

hi guys I feel horrific I have been told my Iron is low alongside that I’ve got...

Sammymoat1986

•2 years ago

15 Replies

Update - New Glasses and Rhuemy appt

Hi All, Thought i let every know that I got my new distance glasses on Sat at Specsavers. So , when I put it on whoa! huge difference in focus compared to...

Hi All, Thought i let every know that I got my new distance glasses on Sat at S...

KnitSewPurl

•2 years ago

3 Replies

Symptom Patterns and Symptoms Coming and Going

Hi everyone, I have a few questions concerning symptoms. I have noticed that over the past few weeks, rather than experiencing flare-ups that last for weeks...

Hi everyone, I have a few questions concerning symptoms. I have noticed that o...

Hidden

•2 years ago

5 Replies

My body is playing silly B's again but I'm not laughing.

Hi everyone hope you are keeping as well as you can, off for my covid jab this weekend. I've had a whirlwind week and a half after having a funny turn in the...

Hi everyone hope you are keeping as well as you can, off for my covid jab this w...

Boudica1

•2 years ago

7 Replies

Do you live in the Leeds area? Join us for our first Leeds Coffee & Chat on Saturday 15th October at 11 a.m.

Join us for our first Leeds LUPUS UK Coffee & Chat Meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds LS1 2HL on Saturday 15th...

Join us for our first Leeds LUPUS UK Coffee & Chat Meeting at Starbucks (Leeds C...

Alida_Bennett

Partner•2 years ago

3 Replies

Join us for a Mini Information Day and Wellness Event this #LupusAwarenessMonth on Saturday, 8th October!

We will be having a special guest lecture from Dr Arvind Kaul and a chair yoga session and lecture by yoga instructor Komal Dadlani. Hosted by our Enfield...

We will be having a special guest lecture from Dr Arvind Kaul and a chair yoga s...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Iron Deficiency

Hi everyone, I’d like to start off by saying that I haven’t been tested for Lupus, nor have I raised concerns about it with my doctor. I have the following...

Hi everyone, I’d like to start off by saying that I haven’t been tested for Lup...

Angie8712

•2 years ago

21 Replies

diagnosed with fibromyalgia but not convinced

hello, I’m writing on behalf of my daughter 19. She has had aching joints for many years, with inflammation on knees. Her auntie has lupus. Over recent years...

hello, I’m writing on behalf of my daughter 19. She has had aching joints for ma...

Claudette1

•2 years ago

13 Replies

A Pair of Cuties

Hello everyone Just wanted to tell you all this love story between two otters. After being alone for a decade, Badger the otter fell in love with this one...

Hello everyone Just wanted to tell you all this love story between two otters. ...

misty14

•2 years ago

18 Replies

Can stag 2 kidney disease be unrelated to Lupus.

hi saw my specialist this week and have received my blood and urine results which indicate stage 2 kidney disease. Can kidney problems be unassociated to...

hi saw my specialist this week and have received my blood and urine results whic...

frog

•2 years ago

9 Replies

Help - my teeth are moving!

Hi lovely people A strange one to help your week-end along! The row of teeth in my bottom jaw have started to move. This has happened a few times in the...

Hi lovely people A strange one to help your week-end along! The row of teeth i...

MEGS53

•2 years ago

10 Replies

HCQS for joint pain vs eye problem

Hi everyone- has anyone gone through the dilemma of stopping HCQS due to increasing eye problems- eye ache/hyper photo sensitivity vs compromising on finger...

Hi everyone- has anyone gone through the dilemma of stopping HCQS due to increas...

NY22

•2 years ago

Be the first to reply

Advice about Symptoms

Hi This is my first post so im sorry if this has been asked before, I am in my 50s and all my adult life I have had various ailments which have always tested...

Hi This is my first post so im sorry if this has been asked before, I am in my...

Shir66

•2 years ago

5 Replies

lymph node swelling

I was wondering if anyone gets swollen lymph nodes at all? My ones under the armpit seem to swell and become very tender every now and then. I have seen it...

I was wondering if anyone gets swollen lymph nodes at all? My ones under the ar...

Tinkerjack1912

•2 years ago

22 Replies

HCQ, Eye problem and eosinophillia

hello I have been diagnosed with lupus since 2004. Currently, i am using HCQ aand ahve been prescribed low dose steroids and blood thinners. I am facing few...

hello I have been diagnosed with lupus since 2004. Currently, i am using HCQ aa...

happine

•2 years ago

2 Replies

Persistent Low Grade Fevers and Fevers During Physical Activity

Hi! I have started keeping track of my body temperature, and for the past 3 weeks have been running low-grade fevers pretty often (and not feeling well during...

Hi! I have started keeping track of my body temperature, and for the past 3 week...

Hidden

•2 years ago

21 Replies

Have you experienced problems having a prescription for Zentiva hydroxychloroquine filled?

Over the past week or so we have had quite a few enquiries from people reporting that they cannot get Zentiva hydroxychloroquine from their pharmacy. A few...

Over the past week or so we have had quite a few enquiries from people reporting...

Alida_Bennett

Partner•2 years ago

16 Replies

Positive ANA (1:1280, Homogenous) Very Symptomatic, All Other Antibodies Negative

Hi everyone! I am starting on year 3 of trying to figure out what my diagnosis is, but year 6 of symptoms. My ANA has been 640, 1280, and then greater than...

Hi everyone! I am starting on year 3 of trying to figure out what my diagnosis i...

Hidden

•2 years ago

10 Replies

On cancer urgent pathway

Hi i have sle lupus,fibromyalgia;raynaunds,rheumatoid arthritis,brain injury etc etc Due to bowel and cycle bkeed changes plus other sytpoms gp refer me...

Hi i have sle lupus,fibromyalgia;raynaunds,rheumatoid arthritis,brain injury etc...

soul22

•2 years ago

24 Replies

Rituximab and Flu Vaccination

Hi, I am due my next Rituximab infusion tomorrow. I was wondering how long after infusion do I have to wait before taking Flu Vaccination ? Many thanks,...

Hi, I am due my next Rituximab infusion tomorrow. I was wondering how long aft...

Haired

•2 years ago

7 Replies

Hydroxychloroquine affecting hormones??

Hello everyone, I can’t seem to find any information about this online so I was wondering if any of you wise souls can help. Ever since I’ve started...

Hello everyone, I can’t seem to find any information about this online so I wa...

Tinylittlemac

•2 years ago

5 Replies

ZENTIVE Hydroxychloroquine

Hi everyone, I've hust been told by my pharmacist at Boots that Zentiva brand of Hydroxy has been discontinued. Can anyone tell me if they have had the same...

Hi everyone, I've hust been told by my pharmacist at Boots that Zentiva brand of...

Biddy47

•2 years ago

17 Replies

Would you like to help cheer on our amazing runners at the London Marathon or Royal Parks Half?

Our runners need you!! Please contact alida@lupusuk.org.uk if you would like to join us at our cheer stands supporting our runners in the London Marathon on...

Our runners need you!! Please contact alida@lupusuk.org.uk if you would like to...

Alida_Bennett

Partner•2 years ago

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Benlysta Side Effects

I had my first Benlysta Infusion last Tuesday and a few days later I began having fevers at night and early in the mornings. I also have crushing pain in my...

I had my first Benlysta Infusion last Tuesday and a few days later I began havin...

purejoy

•2 years ago

4 Replies

Brain Lesions and Double/Blurred Vision

Hello! I have been dealing with Lupus for over 20 years now but I’ve been slowly getting worse the last few years. Please tell me that you have these...

Hello! I have been dealing with Lupus for over 20 years now but I’ve been slow...

BeaGriff

•2 years ago

3 Replies

scalloped tongue

I put a post on here earlier in the week about dark line around lips I’ve now got a really sore pie crust tongue it’s killing I’m back at the doctors this week...

I put a post on here earlier in the week about dark line around lips I’ve now go...

Sammymoat1986

•2 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2022

Prednisolone

Constantly Feeling Extremely Hot or Extremely Cold

psoriasis

Hrt and lupus

can you have a lupus flare with normal bloods

Update - New Glasses and Rhuemy appt

Symptom Patterns and Symptoms Coming and Going

My body is playing silly B's again but I'm not laughing.

Do you live in the Leeds area? Join us for our first Leeds Coffee & Chat on Saturday 15th October at 11 a.m.

Join us for a Mini Information Day and Wellness Event this #LupusAwarenessMonth on Saturday, 8th October!

Iron Deficiency

diagnosed with fibromyalgia but not convinced

A Pair of Cuties

Can stag 2 kidney disease be unrelated to Lupus.

Help - my teeth are moving!

HCQS for joint pain vs eye problem

Advice about Symptoms

lymph node swelling

HCQ, Eye problem and eosinophillia

Persistent Low Grade Fevers and Fevers During Physical Activity

Have you experienced problems having a prescription for Zentiva hydroxychloroquine filled?

Positive ANA (1:1280, Homogenous) Very Symptomatic, All Other Antibodies Negative

On cancer urgent pathway

Rituximab and Flu Vaccination

Hydroxychloroquine affecting hormones??

ZENTIVE Hydroxychloroquine

Would you like to help cheer on our amazing runners at the London Marathon or Royal Parks Half?

Benlysta Side Effects

Brain Lesions and Double/Blurred Vision

scalloped tongue

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