Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for August 2022

hydroxychloroquine and Raynaud's

Hi all For those with lupus taking hydroxyc. who also have Raynaud's as a symptom: has being on hydroxychloroquine helped with the Raynaud's? If so, to what...

Hi all For those with lupus taking hydroxyc. who also have Raynaud's as a sympt...

Brychni

•2 years ago

8 Replies

HELP old lady!

Why isn’t there a guide for folk that fall victim to this problem …..why do we have to go through the symptoms with no advice or support …. Spent my whole...

Why isn’t there a guide for folk that fall victim to this problem …..why do we h...

provence2022

•2 years ago

8 Replies

Double cutie

Hello everyone Just thought i'd pop in to show you a fun pic this time. Thought it was about time we had one!. These two giraffes have to do the splits...

Hello everyone Just thought i'd pop in to show you a fun pic this time. Thoug...

misty14

•2 years ago

43 Replies

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LDN for Lupus

Hello everyone, I hope this words finds you well. I have SLE, and throughout this summer I have been feeling tiredness, high blood pressure, headaches and...

Hello everyone, I hope this words finds you well. I have SLE, and throughout th...

Da_vinci

•2 years ago

18 Replies

dry eyes

Hi everyone, I have lupus sle and have such dry eyes which I have different eye drops I have. my question. I have had plugs put into tear ducts to help...

Hi everyone, I have lupus sle and have such dry eyes which I have different ey...

SufferingMike21

•2 years ago

26 Replies

taking hydroxychloroquine with a visual impairment

hello, I recently started taking hydroxychloroquine about a month ago due to my joint pain. I am visually impaired and my rheumatologist educated me on the...

hello, I recently started taking hydroxychloroquine about a month ago due to m...

AnimalLover115

•2 years ago

8 Replies

brown nails

my fingernails have gone brown and are splitting. Could this be due to stopping medication. I’ve been on hydroxychloroquine for years and methotrexate for...

my fingernails have gone brown and are splitting. Could this be due to stopping ...

BK47

•2 years ago

3 Replies

does this look like raynauds?

This is after turning my AC back on during a heat wave and neglecting to throw on a pair of socks and brief exposure to the cold floors. My feet are aching...

This is after turning my AC back on during a heat wave and neglecting to throw ...

thisismyusername13

•2 years ago

5 Replies

Experiences with Hydroxychloroquine?

Hello, I’m Mac and I’ve just been diagnosed with Lupus (mild disease progression). I’ve been given hydroxychloroquine to take for 6 months - I’ve never taken...

Hello, I’m Mac and I’ve just been diagnosed with Lupus (mild disease progressio...

Tinylittlemac

•2 years ago

29 Replies

Hydroxy eye screening, should I still go now I'm not taking it?

Hi everyone. Looking for some advice here, sorry for the long read. I took hydroxychloroquine for around five years, before stopping it around 18 months ago....

Hi everyone. Looking for some advice here, sorry for the long read. I took hyd...

Choccy8

•2 years ago

20 Replies

Methotrexate and Blood tests?

I’m currently trialing methotrexate as an alternative to mycophenolate (which I have taken for years but has stopped being effective in managing my lupus.)...

I’m currently trialing methotrexate as an alternative to mycophenolate (which I ...

ShannonB

•2 years ago

14 Replies

a smile blooming

I thought this would raise a smile or two, the colour contrast caught my eye whist resting in the shade recently. Wishing you all a pain free weekend.

I thought this would raise a smile or two, the colour contrast caught my eye whi...

Hidden

•2 years ago

10 Replies

Harrogate Lupus Group Meeting - 10.30am Saturday 3rd September 2022

Join our Harrogate Lupus Support Group from 10.30am to 1pm on Saturday 3rd September at Woodlands Church Hall (Whetherby Road). The...

Join our Harrogate Lupus Support Group from 10.30am to 1pm on Saturday 3rd Septe...

Paul_Howard

Partner•2 years ago

Be the first to reply

can some one please help me is this lupus

hi can anyone help give me advice I have cramp in both legs and temple pain like migraine with eyesight problems and random pains in arms and back and feel...

hi can anyone help give me advice I have cramp in both legs and temple pain like...

Geeforce99

•2 years ago

3 Replies

Frustrating Lupus

Hi everyone, I have been reading lots of posts Lupus related, reading patients stories and symptoms to see if there is anything I missed to see.My Lupus has...

Hi everyone, I have been reading lots of posts Lupus related, reading patients s...

Da_vinci

•2 years ago

2 Replies

New lupus medication in Phase 2 trials

https://www.medicalnewstoday.com/articles/lupus-pill-in-phase-2-trials-may-prevent-symptoms-reverse-damage?utm_source=Sailthru%20Email&utm_medium=Email&utm_camp

https://www.medicalnewstoday.com/articles/lupus-pill-in-phase-2-trials-may-preve...

PMRpro

•2 years ago

21 Replies

Weird lupus flare including burning when I pee and sore throat

Hey everyone! Sorry for my gross symptoms but I’ve thought for a few days now that I’ve got a water infection and at the same time a sore throat so I’ve been...

Hey everyone! Sorry for my gross symptoms but I’ve thought for a few days now ...

_bunty_

•2 years ago

14 Replies

nhs transport

hi, I’ve been using nhs transport for my rheumatologist appointment to Manchester from Lancaster for a number of years , I need to go twice next week for a...

hi, I’ve been using nhs transport for my rheumatologist appointment to Mancheste...

Melaxx

•2 years ago

8 Replies

prednisolone breathing issues

hi and good day to everyone. Can anyone advise if it’s normal to have breathing issues after taking pred for only a week and four days are these common side...

hi and good day to everyone. Can anyone advise if it’s normal to have breathing ...

Geeforce99

•2 years ago

4 Replies

WOW😯: Just Discovered an impressive U.K. Incontinence website

following on from our Harry19’s recent post’s v helpful discussion: https://healthunlocked.com/lupusuk/posts/148320633/embarrassing-question i’ve found this...

following on from our Harry19’s recent post’s v helpful discussion: https://he...

Barnclown

•2 years ago

10 Replies

Advice office mouse keyboard etc

Hi everyone! Hope you're all ok. I plan to try and expense some ergonomic office equipment, and will ask rheumy for a letter. As of the last month or so my...

Hi everyone! Hope you're all ok. I plan to try and expense some ergonomic offic...

JodieBells

•2 years ago

11 Replies

Coffee & Chat meeting in Sutton, Surrey on Saturday 3rd September 2022 at 10.30 a.m.

We are holding an initial coffee and chat meeting at Costa Coffee, at 176 High Street, Sutton, Surrey SNL 1NL at 10;30 a.m. Everyone is welcome to come and...

We are holding an initial coffee and chat meeting at Costa Coffee, at 176 High S...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Heading to A and E !? - unsure how to convince them to help me ...

My main problems at the moment is the progressive SOB,palpitations, nausea , itching and pain.. I have no idea if they will listen but I have ran out of...

My main problems at the moment is the progressive SOB,palpitations, nausea , itc...

LottieLou96

•2 years ago

29 Replies

Skin problems

Apologies …skin lesions on fingers DONT HEAL,

provence2022

•2 years ago

3 Replies

Skin problems

Has anyone a solution very tender fingertips with sores that do heal…..have Lupus. Will they improve? Started Mycophenolate 4 weeks ago and Hydrochoroquine...

Has anyone a solution very tender fingertips with sores that do heal…..have Lupu...

provence2022

•2 years ago

10 Replies

Resilience at an all-time low

Hi peeps, sorry to post about this AGAIN (sorry-not-sorry), I just need to vent about how sick I am. I’ve now been off work for 5 months with persistent...

Hi peeps, sorry to post about this AGAIN (sorry-not-sorry), I just need to vent ...

MusicalFurbaby

•2 years ago

8 Replies

hip hip o dam I’ve eaten a chocolate bar

to everyone struggling to lose a few pounds if gained due to meds, or to protect your joints or to keep a healthy bmi, I think this will make you smile.

to everyone struggling to lose a few pounds if gained due to meds, or to protect...

Hidden

•2 years ago

10 Replies

Endometriosis & Lupus

I have been experiencing really bad lower back pain one week before my menstrual cycle and also during ovulation for two or so years now . I also have severe...

I have been experiencing really bad lower back pain one week before my menstrual...

Zoekat

•2 years ago

2 Replies

waiting follow up with rheumatologist

I’m stuck waiting for what feels like forever to see the rheumatologist after he sent me for lab work and vascular studies. I was originally sent to the...

I’m stuck waiting for what feels like forever to see the rheumatologist after he...

thisismyusername13

•2 years ago

3 Replies

Apologies for not responding/being quiet lately..

It may be an infection,maybe just the change of weather but I do not feel great. So sorry for the lack of replies lately. I do keep umming and ahhing...

It may be an infection,maybe just the change of weather but I do not feel grea...

LottieLou96

•2 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2022

hydroxychloroquine and Raynaud's

HELP old lady!

Double cutie

LDN for Lupus

dry eyes

taking hydroxychloroquine with a visual impairment

brown nails

does this look like raynauds?

Experiences with Hydroxychloroquine?

Hydroxy eye screening, should I still go now I'm not taking it?

Methotrexate and Blood tests?

a smile blooming

Harrogate Lupus Group Meeting - 10.30am Saturday 3rd September 2022

can some one please help me is this lupus

Frustrating Lupus

New lupus medication in Phase 2 trials

Weird lupus flare including burning when I pee and sore throat

nhs transport

prednisolone breathing issues

WOW😯: Just Discovered an impressive U.K. Incontinence website

Advice office mouse keyboard etc

Coffee & Chat meeting in Sutton, Surrey on Saturday 3rd September 2022 at 10.30 a.m.

Heading to A and E !? - unsure how to convince them to help me ...

Skin problems

Skin problems

Resilience at an all-time low

hip hip o dam I’ve eaten a chocolate bar

Endometriosis & Lupus

waiting follow up with rheumatologist

Apologies for not responding/being quiet lately..

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2022

hydroxychloroquine and Raynaud's

HELP old lady!

﻿Double cutie

LDN for Lupus

﻿dry eyes

taking hydroxychloroquine with a visual impairment

brown nails

does this look like raynauds?

Experiences with Hydroxychloroquine?

﻿Hydroxy eye screening, should I still go now I'm not taking it?

Methotrexate and Blood tests?

a smile blooming

Harrogate Lupus Group Meeting - 10.30am Saturday 3rd September 2022

can some one please help me is this lupus

Frustrating Lupus

New lupus medication in Phase 2 trials

Weird lupus flare including burning when I pee and sore throat

nhs transport

prednisolone breathing issues

WOW😯: Just Discovered an impressive U.K. Incontinence website

﻿Advice office mouse keyboard etc

Coffee & Chat meeting in Sutton, Surrey on Saturday 3rd September 2022 at 10.30 a.m.

﻿Heading to A and E !? - unsure how to convince them to help me ...

Skin problems

Skin problems

Resilience at an all-time low

hip hip o dam I’ve eaten a chocolate bar

Endometriosis & Lupus

waiting follow up with rheumatologist

﻿﻿Apologies for not responding/being quiet lately..

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Double cutie

dry eyes

Hydroxy eye screening, should I still go now I'm not taking it?

Advice office mouse keyboard etc

Heading to A and E !? - unsure how to convince them to help me ...

Apologies for not responding/being quiet lately..