Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2022

Hello everyone

hi, I am currently going through the motions after my diagnosis with lupus and i am finding it hard to get people to understand my condition, its been 15...

hi, I am currently going through the motions after my diagnosis with lupus and ...

BikerDanny

•2 years ago

6 Replies

patient Digital Portal letters

Good morning fellow spoonies! l don't know where else to turn so I'm hoping someone here might be able to help. I usually get my appointment letters...

Good morning fellow spoonies! l don't know where else to turn so I'm hoping s...

BookishVibes

•2 years ago

Be the first to reply

newby

hi all I’m new on here and trying to find out how to get in touch with local groups or individuals Thanks

hi all I’m new on here and trying to find out how to get in touch with local gro...

Kontiki

•2 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Please take part in this patient survey from the University of Cambridge if you haven't already!

Please take part in the rheumatology patient survey from the University of Cambridge and patient groups. The survey asks about your medical relationships,...

Please take part in the rheumatology patient survey from the University of Cambr...

Chanpreet_Walia

LUPUS UK•2 years ago

3 Replies

More Medicine..

Hi just tested positive for covid,feeling horrendous,Dr wants to give me antibiotics and Antiviral's any one else had these ,Feeling scared…TIA..

Hi just tested positive for covid,feeling horrendous,Dr wants to give me antibio...

Kriss53

•2 years ago

11 Replies

Appointment tomorrow

I go for my first face to face appointment with this new rheumatologist tomorrow. A little nervous. I haven’t had good luck with rheumatologists in the past....

I go for my first face to face appointment with this new rheumatologist tomorrow...

Willow7733

•2 years ago

14 Replies

Hydroxychloroquine and Covid

Hi I don't message on here much but I do read all your posts. I was diagnosed with Discoid lupus years ago. I had two hip replacements before I was 50...

Hi I don't message on here much but I do read all your posts. I was diagno...

carrie67

•2 years ago

20 Replies

SLE/STATIN

Hi everyone, My cholesterol has been consistently high for few years now , my previous GP was worried about the side effects and refused to put me on it. Now...

Hi everyone, My cholesterol has been consistently high for few years now , my p...

Squrriel88

•2 years ago

29 Replies

Wedding pic ❤️

Hi folks as promised here is a photo of our Wedding , we had just the best day and didn’t want it to end, Bea & Mira were ring girls and were so well behaved ,...

Hi folks as promised here is a photo of our Wedding , we had just the best day a...

svfarmer

•2 years ago

91 Replies

Immune system with SLE

My daughter has SLE and her doctor lowers her immunity with the drug (Micofit/ Mycophenolas Mofetil ) The second doctor claims that we should raise the...

My daughter has SLE and her doctor lowers her immunity with the drug (Micofit/ M...

Agnieszka81

•2 years ago

2 Replies

ANA Confusion - do I keep pushing?

Hello all, I’m a 32 yr old female, I have quite a complex medical history including Hashimoto's disease, Gilbert’s syndrome, multiple fibroadenomas, PCOS,...

Hello all, I’m a 32 yr old female, I have quite a complex medical history incl...

Chaucer89

•2 years ago

6 Replies

Rant! Disabled Badge Renewal

Why are disabled people constantly put under pressure by the government, when they have enough on their plate with their bad health!!! My PIP Review result...

Why are disabled people constantly put under pressure by the government, when th...

LilyMistri2

•2 years ago

33 Replies

working with lupus- help and advice please

hello lovely people , advice please I’m trying to do a part time job with lupus / lupus nephritis, bit b12 deficiency, tender kidneys, muscle and joint...

hello lovely people , advice please I’m trying to do a part time job with lup...

Bellissimo

•2 years ago

21 Replies

Is one telangiactasia worth mentioning??

Me again! With yet another skin-related question… Whilst waiting on my next rheumatology date, and for a dermatology appointment which will be in the...

Me again! With yet another skin-related question… Whilst waiting on my next rh...

Winter_night

•2 years ago

9 Replies

A mountain of tiredness,a moderate amount of regret and a tidal wave of aches and pains

The weekend just gone was one of new heights for me, albeit now a regret.. I hadn't socialised in person for years, maybe four or five, long before COVID...

The weekend just gone was one of new heights for me, albeit now a regret.. I h...

LottieLou96

•2 years ago

7 Replies

Undiagonosed for 3.5 years, could it be lupus???

Hi all, I've been suffering with debilitating symptoms for the past and three and a half years, which are upper abdominal pain,extreme nausea and...

Hi all, I've been suffering with debilitating symptoms for the past and thre...

Rnew1999

•2 years ago

4 Replies

Borderline Lupus

My Rheumatologist recently asked for me to have some bloods done, one of which was for Lupus. It has since come back as ‘Borderline’ I don’t have a date yet to...

My Rheumatologist recently asked for me to have some bloods done, one of which w...

Leylah14

•2 years ago

12 Replies

butterfly rash treatment

Good morning. The butterfly on my face is getting worse, Im covering up from head to toe, I use factor 50 when I do go out. I have a big hat, sunglasses,...

Good morning. The butterfly on my face is getting worse, Im covering up from h...

Sarahb_70

•2 years ago

10 Replies

Molecular pathway by which stress affects lupus may be discovered

Another interesting reading 😉 https://www.global.hokudai.ac.jp/blog/molecular-pathway-by-which-stress-affects-lupus-discovered/

Another interesting reading 😉 https://www.global.hokudai.ac.jp/blog/molecular-p...

Naladog

•2 years ago

1 Reply

Research suggesting NAD+ helps reverse autoimmunity

Hi everyone. Came across these articles today and thought they might be of interest. The first is the easy-to-read version!...

Hi everyone. Came across these articles today and thought they might be of inter...

Choccy8

•2 years ago

7 Replies

North Wales Lupus Group Summer Meeting - Saturday 30th July 2022 at 1 p.m. - Flintshire, CH7 6BQ

Do you live in the North Wales Area? We are holding the summer meeting of our North Wales Lupus Group on Saturday 30th July from 1 p.m. at the Edith Bankes...

Do you live in the North Wales Area? We are holding the summer meeting of our ...

Alida_Bennett

Partner•2 years ago

1 Reply

Rheumatology patient survey from the University of Cambridge and patient groups

Please take part in the rheumatology patient survey from the University of Cambridge and patient groups. The survey asks about your medical relationships,...

Please take part in the rheumatology patient survey from the University of Cambr...

Chanpreet_Walia

LUPUS UK•2 years ago

7 Replies

Thank you

Hi everyone thanks for all your advice and reassurance I'm seeing my doctor on Thursday so will ask him more questions about the procedure he has recommended...

Hi everyone thanks for all your advice and reassurance I'm seeing my doctor on T...

Parsonsterrier

•2 years ago

Be the first to reply

Transfer of care 😯

Hello all! Well, the Wizard has held his last appointment with me and is moving to another state (out of academic med and back into private practice). He...

Hello all! Well, the Wizard has held his last appointment with me and is moving ...

DRunnerchick

•2 years ago

4 Replies

So exhausted AGAIN!!! Give me a break seriously!

I don't really know why I'm writing this post as I'm pretty sure if I look back I've probably written at least 1 if not more about being soo tired and...

I don't really know why I'm writing this post as I'm pretty sure if I look back ...

Sara_A

•2 years ago

28 Replies

Disappointed

Hi I've just found out I have severe anemia which is preventing me from having a long awaited operation I have been given iron and folic acid tablets. My GP...

Hi I've just found out I have severe anemia which is preventing me from having a...

Parsonsterrier

•2 years ago

7 Replies

Wild meadow 🐶🐶💕

Hi folks just had to share this pic with you - Bea and Mira in front of our wild meadow, it looks fantastic , more and more flowers are coming up every day and...

Hi folks just had to share this pic with you - Bea and Mira in front of our wild...

svfarmer

•2 years ago

36 Replies

Caught COVID abroad?

I am immunosuppressed after treatment with rituximab and cannot produce antibodies against COVID. I would like to fly home to visit family. Have any of you...

I am immunosuppressed after treatment with rituximab and cannot produce antibodi...

Tonkotsu

•2 years ago

6 Replies

Prolia

I have been advised to start with Prolia injections. I have osteoarthritist, rheumatoid arthritis, chronic kidney disease and lupus. Is there anyone who can...

I have been advised to start with Prolia injections. I have osteoarthritist, rh...

lowraind

•2 years ago

Be the first to reply

has anybody had blood test results with 35% elevated urea level?

has anybody had blood test results with 35% elevated urea level and the doctors said to ignore it. The Creatinine & EGFR that matters. thank you for sharing...

has anybody had blood test results with 35% elevated urea level and the doctors ...

catherine1712

•2 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2022

Hello everyone

patient Digital Portal letters

newby

Please take part in this patient survey from the University of Cambridge if you haven't already!

More Medicine..

Appointment tomorrow

Hydroxychloroquine and Covid

SLE/STATIN

Wedding pic ❤️

Immune system with SLE

ANA Confusion - do I keep pushing?

Rant! Disabled Badge Renewal

working with lupus- help and advice please

Is one telangiactasia worth mentioning??

A mountain of tiredness,a moderate amount of regret and a tidal wave of aches and pains

Undiagonosed for 3.5 years, could it be lupus???

Borderline Lupus

butterfly rash treatment

Molecular pathway by which stress affects lupus may be discovered

Research suggesting NAD+ helps reverse autoimmunity

North Wales Lupus Group Summer Meeting - Saturday 30th July 2022 at 1 p.m. - Flintshire, CH7 6BQ

Rheumatology patient survey from the University of Cambridge and patient groups

Thank you

Transfer of care 😯

So exhausted AGAIN!!! Give me a break seriously!

Disappointed

Wild meadow 🐶🐶💕

Caught COVID abroad?

Prolia

has anybody had blood test results with 35% elevated urea level?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2022

﻿Hello everyone

﻿patient Digital Portal letters

newby

Please take part in this patient survey from the University of Cambridge if you haven't already!

More Medicine..

Appointment tomorrow

﻿Hydroxychloroquine and Covid

SLE/STATIN

Wedding pic ❤️

﻿Immune system with SLE

ANA Confusion - do I keep pushing?

Rant! Disabled Badge Renewal

working with lupus- help and advice please

Is one telangiactasia worth mentioning??

﻿A mountain of tiredness,a moderate amount of regret and a tidal wave of aches and pains

﻿Undiagonosed for 3.5 years, could it be lupus???

Borderline Lupus

butterfly rash treatment

Molecular pathway by which stress affects lupus may be discovered

Research suggesting NAD+ helps reverse autoimmunity

North Wales Lupus Group Summer Meeting - Saturday 30th July 2022 at 1 p.m. - Flintshire, CH7 6BQ

Rheumatology patient survey from the University of Cambridge and patient groups

Thank you

Transfer of care 😯

So exhausted AGAIN!!! Give me a break seriously!

Disappointed

Wild meadow 🐶🐶💕

Caught COVID abroad?

Prolia

has anybody had blood test results with 35% elevated urea level?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Hello everyone

patient Digital Portal letters

Hydroxychloroquine and Covid

Immune system with SLE

A mountain of tiredness,a moderate amount of regret and a tidal wave of aches and pains

Undiagonosed for 3.5 years, could it be lupus???