Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for July 2022

dermatologist recommendation

Hello all I read your very informative posts regularly and wondered if anyone could recommend a private dermatologist. I have Lupus sle/ sjorgrens...

Hello all I read your very informative posts regularly and wondered if anyone ...

Bikeriderlondon

•2 years ago

5 Replies

sore feet possible peripheral neuropathy.

just seen the rheumatologist who very kindly fitted me in this week. Now getting tested for peripheral neuropathy. She thinks it most likely. Various drugs...

just seen the rheumatologist who very kindly fitted me in this week. Now gettin...

dg70

•2 years ago

12 Replies

Can anyone pls share experience with dandruff treatment?

I have been diagnosed with lupus SLE for almost 8 years and it flare many times and now it’s finally in remission. However, my hair is still falling a lot and...

I have been diagnosed with lupus SLE for almost 8 years and it flare many times ...

Kim_21

•2 years ago

15 Replies

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Methotrexate

Hi everyone For those on methotrexate, how long did it take for them to start working? Thanks,Sarah

Hi everyone For those on methotrexate, how long did it take for them to start...

SLS2103

•2 years ago

7 Replies

embarrassing question

hi all sorry to ask embarrassing question . In wales we have small bins collected fortnightly . I’m struggling with incontinence . This means I’m putting...

hi all sorry to ask embarrassing question . In wales we have small bins colle...

Harry19

•2 years ago

35 Replies

finger pads

has anyone experienced an odd sensation in their finger pads ? Feels bit like I’ve burnt them on oven . I do have raynauds but this feels different . Tips of...

has anyone experienced an odd sensation in their finger pads ? Feels bit like I’...

Tiggywoos

•2 years ago

16 Replies

My eyes keep going blurry, sometimes one and then the other

Does anyone know if this condition effects the eyes. My sight is fine but I keep having trouble with blurs in one eye and the next day it will be the other...

Does anyone know if this condition effects the eyes. My sight is fine but I keep...

MJVFF

•2 years ago

14 Replies

swollen lymph nodes…

Hi, has anyone experienced swollen lymph glands under their right arm, right side of neck snd right groin? Xx

Hi, has anyone experienced swollen lymph glands under their right arm, right sid...

Soe1

•2 years ago

22 Replies

Steroids v Rituximab - any advice/opinions?

so I’ve not been on here for a very long time while I’ve been going round the houses with different consultants. I’m now in the position where I’m getting bad...

so I’ve not been on here for a very long time while I’ve been going round the ho...

Mifford

•2 years ago

12 Replies

Nottingham University Researchers undertaking work aiming to create personalised long-term monitoring plans for those on immunosuppressants

THE RESEARCHERS NOW HAVE ALL THE VOLUNTEERS THEY NEED FOR THIS STUDY - THANK YOU. People with inflammatory conditions treated with immune suppressing...

THE RESEARCHERS NOW HAVE ALL THE VOLUNTEERS THEY NEED FOR THIS STUDY - THANK YOU...

Alida_Bennett

Partner•2 years ago

2 Replies

HCQ: do we need to pay more attention to serious ocular side effects!👆

Many lupus sufferers are prescribed Hydroxychloroquine to manage their lupus and a common side effect most often reported is gastrointestinal disturbances eg...

Many lupus sufferers are prescribed Hydroxychloroquine to manage their lupus and...

Betty909090

•2 years ago

15 Replies

Lupus on T.V.

Thanks for heads up on Virgin River and Lupus. Check out the U.S.series 'House' with Huw Laurie. Almost every series had at least one mention of Lupus....

Thanks for heads up on Virgin River and Lupus. Check out the U.S.series 'House...

Cwmtaf

•2 years ago

4 Replies

Lupus diagnosis on Netflix series Virgin River

Hey all. Hoping you are all doing as well as possible. Just needed to share that Lupus came up in one of my favourite Netflix series - Virgin River. It’s the...

Hey all. Hoping you are all doing as well as possible. Just needed to share tha...

DJK99

•2 years ago

13 Replies

New to UCTD

Hello there, can anyone advise on hydroxychloroquine? I've recently been diagnosed with UCTD at a London hospital (I already have erythromelalgia and...

Hello there, can anyone advise on hydroxychloroquine? I've recently been diagn...

redmaggie

•2 years ago

7 Replies

Skin pigmentation

Hi everyone Over the past couple of years or so, I've developed three different types of skin pigmentation: 1) hyperpigmentation - darker patches of skin...

Hi everyone Over the past couple of years or so, I've developed three different...

Amakura

•2 years ago

19 Replies

memory problems

hi all I’m 40yo male I have lupus sle, aps and dilated aortic valve which see surgeons about next month Does anyone have any issues with memory and...

hi all I’m 40yo male I have lupus sle, aps and dilated aortic valve which se...

Dave136

•2 years ago

20 Replies

PIP review application

Hi, Does anyone know how long the pip review applications are taking at the moment. I sent my form back in the middle of June and it’s for Lupus and...

Hi, Does anyone know how long the pip review applications are taking at the mom...

JanJan63

•2 years ago

5 Replies

Weekly yoga session on Zoom for all LUPUS UK supporters

Join @komi_yogi for a hatha yoga session this Wednesday from 7-8pm! Komal hosts weekly yoga sessions via Zoom for all LUPUS UK supporters. Send her a message...

Join @komi_yogi for a hatha yoga session this Wednesday from 7-8pm! Komal hosts ...

Alida_Bennett

Partner•2 years ago

2 Replies

Assist with research discussions by sharing your day to day experience of living with lupus

Liberating Research (a healthcare market research organisation) are looking to invite people living with lupus in the UK to assist with some research...

Liberating Research (a healthcare market research organisation) are looking to i...

Alida_Bennett

Partner•2 years ago

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Lupus & COVID-19 Vaccinations - UPDATED 25/07/2022

Hi everyone, We have updated our information and guidance about COVID-19 vaccines and lupus - https://www.lupusuk.org.uk/covid19-vaccination/ This update...

Hi everyone, We have updated our information and guidance about COVID-19 vaccin...

Paul_Howard

Partner•2 years ago

14 Replies

Fighting the world order chronic illness shouldn't be treated like this...

It is great that so many of you have learnt the hard way to keep as much documentation as possible. 😉 They have lost my documentation many a times ,...

It is great that so many of you have learnt the hard way to keep as much docume...

LottieLou96

•2 years ago

5 Replies

Work and Lupus, MCTD recovering from covid

Hello, Has anyone else experienced Covid with Lupus and MCTD and tried going back to work too early after testing negative for Covid then signed off by GP,...

Hello, Has anyone else experienced Covid with Lupus and MCTD and tried going bac...

Geeforce99

•2 years ago

2 Replies

knee replacement

I m scared to have my surgery because I have Lupus fibromyalgia osteoporosis arthritis Sjogens disease anemia high blood pressureThyroid I had a hip...

I m scared to have my surgery because I have Lupus fibromyalgia osteoporosis art...

Mystik

•2 years ago

13 Replies

pain control

hi what is the best pain control for Mctd ?

Sandrakee

•2 years ago

2 Replies

Beautycutie

Hello everyone Hope you've all recovered from the heatwave. What a scorcher it was!. This week's pic is a beautiful swan carrying her cutie little...

Hello everyone Hope you've all recovered from the heatwave. What a scorcher ...

misty14

•2 years ago

46 Replies

sensitive feet?

Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a...

Does anyone else have really sensitive feet.?It's happened this last year. It ...

dg70

•2 years ago

16 Replies

Change of medication

Hi everyone how are you all? Hope you’re well. Apologies for not being on the site for a while, work has been super busy. Just wanted to ask a quick question...

Hi everyone how are you all? Hope you’re well. Apologies for not being on the s...

Froggie70

•2 years ago

24 Replies

Covid 19 and lupus

I have lupus and connective tissue disease , I had Covid last week and only tested negative this Wednesday then went back to work, now I have been signed off...

I have lupus and connective tissue disease , I had Covid last week and only test...

Geeforce99

•2 years ago

8 Replies

Transient Ischaematic Attack (TIA) or Lupus?

Last Saturday I temporarily lost vision in my left eye for about 5 to 10 minutes. Whilst having breakfast, my left eye felt like it had one of those spots...

Last Saturday I temporarily lost vision in my left eye for about 5 to 10 minutes...

SurferGuy

•2 years ago

29 Replies

Spring Booster Covid-19 Vaccine for Weakened Immune

Hi everyone, hope you are all keeping well. I haven't been here for a while due to the issues I was having with my eye sight and headaches. I started...

Hi everyone, hope you are all keeping well. I haven't been here for a while d...

Peacor

•2 years ago

27 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2022

dermatologist recommendation

sore feet possible peripheral neuropathy.

Can anyone pls share experience with dandruff treatment?

Methotrexate

embarrassing question

finger pads

My eyes keep going blurry, sometimes one and then the other

swollen lymph nodes…

Steroids v Rituximab - any advice/opinions?

Nottingham University Researchers undertaking work aiming to create personalised long-term monitoring plans for those on immunosuppressants

HCQ: do we need to pay more attention to serious ocular side effects!👆

Lupus on T.V.

Lupus diagnosis on Netflix series Virgin River

New to UCTD

Skin pigmentation

memory problems

PIP review application

Weekly yoga session on Zoom for all LUPUS UK supporters

Assist with research discussions by sharing your day to day experience of living with lupus

Lupus & COVID-19 Vaccinations - UPDATED 25/07/2022

Fighting the world order chronic illness shouldn't be treated like this...

Work and Lupus, MCTD recovering from covid

knee replacement

pain control

Beautycutie

sensitive feet?

Change of medication

Covid 19 and lupus

Transient Ischaematic Attack (TIA) or Lupus?

Spring Booster Covid-19 Vaccine for Weakened Immune

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2022

dermatologist recommendation

﻿sore feet possible peripheral neuropathy.

Can anyone pls share experience with dandruff treatment?

﻿Methotrexate

embarrassing question

finger pads

My eyes keep going blurry, sometimes one and then the other

swollen lymph nodes…

Steroids v Rituximab - any advice/opinions?

Nottingham University Researchers undertaking work aiming to create personalised long-term monitoring plans for those on immunosuppressants

HCQ: do we need to pay more attention to serious ocular side effects!👆

﻿Lupus on T.V.

Lupus diagnosis on Netflix series Virgin River

New to UCTD

Skin pigmentation

memory problems

PIP review application

Weekly yoga session on Zoom for all LUPUS UK supporters

Assist with research discussions by sharing your day to day experience of living with lupus

Lupus & COVID-19 Vaccinations - UPDATED 25/07/2022

﻿Fighting the world order chronic illness shouldn't be treated like this...

Work and Lupus, MCTD recovering from covid

knee replacement

pain control

﻿Beautycutie

﻿sensitive feet?

Change of medication

Covid 19 and lupus

Transient Ischaematic Attack (TIA) or Lupus?

Spring Booster Covid-19 Vaccine for Weakened Immune

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

sore feet possible peripheral neuropathy.

Methotrexate

Lupus on T.V.

Fighting the world order chronic illness shouldn't be treated like this...

Beautycutie

sensitive feet?