Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2022

Easter Greetings from Gigi

Wishing everyone a Happy Easter! Healing hugs.

Pumpkin2009

•2 years ago

6 Replies

Interested in finding out about how hereditary Lupus is

Hello, sorry if I sound ignorant on this subject, but I don’t know where to ask. My ex husband has Lupus and I wanted to know what the chances are that our...

Hello, sorry if I sound ignorant on this subject, but I don’t know where to ask....

Perun1

•2 years ago

11 Replies

Polymyalgia rheumatica

I have been getting a lot of pain in my arms and can't lift them very well my Dr thinks I might have PMR waiting on blood test results not too pleased with...

I have been getting a lot of pain in my arms and can't lift them very well my D...

daniel55

•2 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Was wondering about anemia?

I just had blood work taken by my rheumatologist, and it shows that I am getting anemic again. This happens every 6 months or so. I had all kinds of tests to...

I just had blood work taken by my rheumatologist, and it shows that I am getting...

Willow7733

•2 years ago

5 Replies

Itching/hives with Lupus?

Hi All! Anyone else get hives, itching and itchy rashes with Lupus? I never had these before Lupus but I have them now! If so what has helped you? I've tried...

Hi All! Anyone else get hives, itching and itchy rashes with Lupus? I never had ...

roseissick

•2 years ago

9 Replies

Research project in conjunction with Alder Hey Children's Hospital

We have been asked to publicise a research project by a student undertaking a master's research degree in child health with the University of Liverpool, linked...

We have been asked to publicise a research project by a student undertaking a ma...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Crying, pain & optimism

Morning, I’m having a hellish time. Have SLE & secondary fibromyalgia. Was on duloxetine 60mg twice daily for fibromyalgia pain. Now stopped. I found I had no...

Morning, I’m having a hellish time. Have SLE & secondary fibromyalgia. Was on du...

Greentomatoes

•2 years ago

21 Replies

What medication do people find most helps their lupus ? Can no longer take HCQ

I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage...

I've given it a good try with the HCQ, no doubt it works as well, but for me wit...

LottieLou96

•2 years ago

33 Replies

Operation

Due to have elective surgery in summer My surgeon said today that he would like me to stop my azathiroprine 2 weeks before - ok but I’m also on aspirin 75 mg...

Due to have elective surgery in summer My surgeon said today that he would like...

Littlemiss_v

•2 years ago

15 Replies

Red hot pain

Took this picture as to me it looks like pain radiating out from my hip joint! The centre being the joint and petals red waves of pain that disperse into the...

Took this picture as to me it looks like pain radiating out from my hip joint! T...

Hidden

•2 years ago

10 Replies

Staphylococcus aureus

What started as thrush turned into this. Anyone else had occurrences of the above and can I expect the joy of this burning pain more often? I read it can...

What started as thrush turned into this. Anyone else had occurrences of the abo...

dg70

•2 years ago

2 Replies

Burning Feet waking me up

The last few nights I’ve had really bad pains and burning in my feet, currently seeing a podiatrist whose decided to refer me to musculoskeletal dept for...

The last few nights I’ve had really bad pains and burning in my feet, currently ...

Leenie0811

•2 years ago

24 Replies

More daft signs to make you smile.

Hi fellow Lupies hoping you are all keeping as well as can be. Here are some more signs to hopefully bring a smile to your lovely faces. Wonderful signs in...

Hi fellow Lupies hoping you are all keeping as well as can be. Here are some mor...

Spotty-ewe

•2 years ago

34 Replies

Kind of wondering…

Since the past four years, I have been having trouble with my hemoglobin. I am always becoming severely anemic. When I was in the hospital last year, they...

Since the past four years, I have been having trouble with my hemoglobin. I am a...

Willow7733

•2 years ago

3 Replies

High temperature

Hi - just wondered if anyone suffers with a very high temperature during a flare up and how long does it usually last? Not sure whether my 3 day high...

Hi - just wondered if anyone suffers with a very high temperature during a flare...

Sarahze

•2 years ago

6 Replies

Malar rash diagnosis/confirmation

I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to...

I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Rayna...

DottyLotty999

•2 years ago

1 Reply

It’s Mira,s Birthday 2 today 🎂🐶

As promised her is an extra pic of Mira on her Birthday - she’s a tiny girl with a huge personality 😂 we love her dearly. Thankyou everyone for your continued...

As promised her is an extra pic of Mira on her Birthday - she’s a tiny girl with...

svfarmer

•2 years ago

33 Replies

Shortness of breath and wheezing

UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely...

UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results a...

MusicalFurbaby

•2 years ago

41 Replies

Diagnosis

I have read heard Lupus can be hard to diagnose, I have heard of it before and read information and often wondered if I have this condition. I am 51 with...

I have read heard Lupus can be hard to diagnose, I have heard of it before and r...

LDloveslattecoffe

•2 years ago

2 Replies

Evusheild, Petition for funding the preventative COVID 19 antibody for immunocompromised

Hi everyone, this antibody injection is for those who have not benefitted from Covid vaccines. The government is not willing to fund so here is the petition....

Hi everyone, this antibody injection is for those who have not benefitted from C...

Paprika60

•2 years ago

12 Replies

Has anyone had cauterisation of their tear ducts?

Would be interested to hear from anyone who has had their tear ducts cauterised. My ophthalmologist is proposing this as a more permanent treatment for my dry...

Would be interested to hear from anyone who has had their tear ducts cauterised....

gemim

•2 years ago

28 Replies

Updates and more stuff

Hi everyone, I hope you're all doing well these days. It's surely pollen season lol but the flowers are beautiful. I find myself being drawn to the plant...

Hi everyone, I hope you're all doing well these days. It's surely pollen season...

JennaShi

•2 years ago

2 Replies

Loss of Appetite and nausea

So I get this on occasion mostly a loss of appetite and feel like I can't eat properly. I may just snack on small things here and there. I can drink with no...

So I get this on occasion mostly a loss of appetite and feel like I can't eat pr...

Danielle2419

•2 years ago

7 Replies

I'm not use to venting - but when doctors say it's all in your head!

I would like to say I try to be an optimist but it has been hard lately..... Lately I'm just sooo cold, worn, in pain, arthralgias, fatigue, raynaud's, with...

I would like to say I try to be an optimist but it has been hard lately..... Lat...

LottieLou96

•2 years ago

22 Replies

Summer is coming! LUPUS FRIENDS We DON’T get protected from our God of Sun 🌞 DON’T expose yourself too much outside.

Hi everyone! This is Mei. I have joined the group since 2015. I haven’t been updated anything much because I’m still battling with my complications Lupus for...

Hi everyone! This is Mei. I have joined the group since 2015. I haven’t been upd...

Mei4u2c

•2 years ago

Be the first to reply

Lupus fatigue and brain fog

Hello. I have difficulty getting out of the bed because leg pain. Get easily fatigue, have difficulty in focusing and forget most of the things. Get usually...

Hello. I have difficulty getting out of the bed because leg pain. Get easily fat...

Tenisca

•2 years ago

8 Replies

Esophageal thrush

I would be grateful for any information,I had an endoscope and was diagnosed with esophageal thrush I am on warfarin and all of the medication is...

I would be grateful for any information,I had an endoscope and was diagnosed wit...

charlie007

•2 years ago

5 Replies

Dental Implant Surgery

I would be grateful to hear from anybody with experience in having a dental implant surgery with Lupus condition. I have to have two implants done in near...

I would be grateful to hear from anybody with experience in having a dental impl...

Paprika60

•2 years ago

36 Replies

Surgery Risks?

Hi everyone. Just joined this site yesterday after a recent UCTD diagnosis. Last year, before my diagnosis, I was referred for gallbladder removal. This week,...

Hi everyone. Just joined this site yesterday after a recent UCTD diagnosis. Last...

RMC17

•2 years ago

17 Replies

Advice with Prednisolone Taper

Hi all, I'd like some opinions on steroid tapering. I was diagnosed with SLE last March and was put on 10mg prednisolone which I wasn't given a tapering plan...

Hi all, I'd like some opinions on steroid tapering. I was diagnosed with SLE l...

CPower

•2 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2022

Easter Greetings from Gigi

Interested in finding out about how hereditary Lupus is

Polymyalgia rheumatica

Was wondering about anemia?

Itching/hives with Lupus?

Research project in conjunction with Alder Hey Children's Hospital

Crying, pain & optimism

What medication do people find most helps their lupus ? Can no longer take HCQ

Operation

Red hot pain

Staphylococcus aureus

Burning Feet waking me up

More daft signs to make you smile.

Kind of wondering…

High temperature

Malar rash diagnosis/confirmation

It’s Mira,s Birthday 2 today 🎂🐶

Shortness of breath and wheezing

Diagnosis

Evusheild, Petition for funding the preventative COVID 19 antibody for immunocompromised

Has anyone had cauterisation of their tear ducts?

Updates and more stuff

Loss of Appetite and nausea

I'm not use to venting - but when doctors say it's all in your head!

Summer is coming! LUPUS FRIENDS We DON’T get protected from our God of Sun 🌞 DON’T expose yourself too much outside.

Lupus fatigue and brain fog

Esophageal thrush

Dental Implant Surgery

Surgery Risks?

Advice with Prednisolone Taper

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive