Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for April 2022

So happy!

I have 9 days off starting today! So happy because I am so exhausted. Yay!

Willow7733

•2 years ago

14 Replies

Blood Pressure tablets

I have raised blood pressure. Prof. Graham Hughes recommended Bendroflumethiazide 2.5mg tablets. These have been very good. However my blood pressure has...

I have raised blood pressure. Prof. Graham Hughes recommended Bendroflumethiazi...

Gunner01

•2 years ago

6 Replies

Pip

Just remember they are not your friend They try and confuse you always remember your worst days

Just remember they are not your friend They try and confuse you always remember...

spaghettie

•2 years ago

12 Replies

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Does anyone else with SLE have leaky heart valves?

Hello everyone, I got a scare on Wednesday when I went for a routine echocardiogram (prior to bunion surgery next week as I said I had a leaky heart valve...

Hello everyone, I got a scare on Wednesday when I went for a routine echocardiog...

Whitemagnum

•2 years ago

17 Replies

Would you like to share your experience of living with lupus to contribute to a spoken theatre piece?

We have been contacted by a student studying for an MA in acting at the Rose Bruford College. The student was diagnosed with lupus in 2018, during her first...

We have been contacted by a student studying for an MA in acting at the Rose Bru...

Alida_Bennett

Partner•2 years ago

1 Reply

Concerned about a flare

Hello, I hope it's okay for me to post - I know that no one can really give me an answer, but I'm still reasonably new to this and unsure about when to seek...

Hello, I hope it's okay for me to post - I know that no one can really give me a...

Alrac94

•2 years ago

4 Replies

Researchers find a genetic cause of lupus

Hi everyone, I'm really pleased to share the news that researchers have identified a genetic cause of lupus. This is the first time a TLR7 mutation has been...

Hi everyone, I'm really pleased to share the news that researchers have identifi...

Paul_Howard

Partner•2 years ago

23 Replies

Closer to a diagnosis/ treatment!

Hi, I’ve posted previously about my many symptoms & disappointing medical apts. Last week for the first time in 7 years a rheumatologist finally said, I think...

Hi, I’ve posted previously about my many symptoms & disappointing medical apts. ...

Frenchfancy

•2 years ago

9 Replies

Social prescribing

I am a nurse practitioner in GP land in the UK. Social prescribing was new to us in primary care, a new service just as the pandemic broke, and the service...

I am a nurse practitioner in GP land in the UK. Social prescribing was new to us...

Aurorae

•2 years ago

3 Replies

Metal allergies and Autoimmunity

Hi lupis, I hope you are doing great🙂. I wanted to share with you that I have had a contact allergy test, and I have been found to be allergic to the metals:...

Hi lupis, I hope you are doing great🙂. I wanted to share with you that I have h...

Naladog

•2 years ago

6 Replies

Negative ANA Test

My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on...

My ANA was negative but asking biopsy was positive for interface dermatitis ????...

nicole3828

•2 years ago

3 Replies

Rutuximab

Hiya Everyone. Haven’t been really well for the past few months.My Lupus (SLE) really flared up. Went to my doctor today and he recommended me to start...

Hiya Everyone. Haven’t been really well for the past few months.My Lupus (SLE) r...

Turquoise1999

•2 years ago

11 Replies

Cuties are Back!.

Hello Everyone I hope you all had a happy and healthy as possible Easter. I'm in a lot of pain so had to take a break but 'cuties ' are hopefully back with a...

Hello Everyone I hope you all had a happy and healthy as possible Easter. I'm in...

misty14

•2 years ago

68 Replies

Is this the start of a flare??

I am new to my diagnosis, but not new to this feeling (I have felt like this several times over the years when I overdo things). This week was so stressful...

I am new to my diagnosis, but not new to this feeling (I have felt like this sev...

Willow7733

•2 years ago

12 Replies

Hello!

Hello. I'm happy to be a part of the community.

biem

•2 years ago

12 Replies

Painful arms and shoulders

I have very painful upper arms and shoulders very stiff when I wake up in the morning can't lift my arms up I feel exhausted all the time my legs really ache...

I have very painful upper arms and shoulders very stiff when I wake up in the m...

daniel55

•2 years ago

23 Replies

Please Help

Long story so apologies. Diagnosed with lupus 2009 after birth of my son who was delivered by c section. 2011 chronic inflammation of Crp and esr with a...

Long story so apologies. Diagnosed with lupus 2009 after birth of my son who was...

Budrick

•2 years ago

2 Replies

Lupus “Fatigue”

Hey everyone, So I’ve been on hydroxychloroquine for about 6 months now, while I feel it may have helped with my reducing my rash, joint pain, I have been...

Hey everyone, So I’ve been on hydroxychloroquine for about 6 months now, while ...

Penelope-Pipin

•2 years ago

37 Replies

Lupus Profundus

Hi I was diagnosed with Profundus about 10 years ago and I am on hydroxychloroquine. Lately if I have a fall or twist an ankle etc it takes months to...

Hi I was diagnosed with Profundus about 10 years ago and I am on hydroxychloroq...

Montysmum1

•2 years ago

6 Replies

More of an update of sorts ;(

Hello lupies! I've been #laying low, for the last wee while, with my current predicament. And well I seem to be making things even worse - even though I'm as...

Hello lupies! I've been #laying low, for the last wee while, with my current pr...

LottieLou96

•2 years ago

11 Replies

Sore gsbds

Hi I have SLE osteo arthritis and other medical ast issues but over the few days not only do all my limbs hurt and my mouth is so dire I also have really sore...

Hi I have SLE osteo arthritis and other medical ast issues but over the few day...

retiredwales

•2 years ago

1 Reply

we all have days like this

Today I’m trying deep breathing exercises to disperse hip pain (RA)and if it doesn’t work I can take pain relief later. The hip pain seems much worse than...

Today I’m trying deep breathing exercises to disperse hip pain (RA)and if it doe...

Hidden

•2 years ago

24 Replies

How do you get diagnosed with lupus?

I have the majority of symptoms associated with lupus as well the genetic history even having several student drs suggest it as a possible cause. However even...

I have the majority of symptoms associated with lupus as well the genetic histor...

TJ2097

•2 years ago

9 Replies

Quality of Altruist Sunscreen?

Hi all, I have Subacute Cutaneous Lupus, ?SLE . Has anyone heard of or used Altruist Sunscreen which is endorsed by DR Andrew Birnie, an English Consultant...

Hi all, I have Subacute Cutaneous Lupus, ?SLE . Has anyone heard of or used Alt...

Mozart52

•2 years ago

6 Replies

What is going on??

Help. Don’t know who to contact if anyone. Could be I’m a Jessie! On Wednesday of last week my left foot started swelling (I have Lupus, Sjogrens and...

Help. Don’t know who to contact if anyone. Could be I’m a Jessie! On Wednesday o...

Bowenlady

•2 years ago

84 Replies

Unexplained symptoms

Hi all, I was diagnosed with lupus and RA 12 months ago and recently I've been really unwell with stomach issues Dr's believed it was my gallbladder due to...

Hi all, I was diagnosed with lupus and RA 12 months ago and recently I've been r...

Zeberdee1

•2 years ago

16 Replies

Strange new symptoms or new illness

My diagnosis is Stills Disease which manifests as RA, I’ve had it since late teens now 60. Just one major episode and been drug free since mid 20s apart from...

My diagnosis is Stills Disease which manifests as RA, I’ve had it since late tee...

Hidden

•2 years ago

17 Replies

Hoppy Easter

Hoppy Easter you wonderful people. I hope your days are filled with sunshine, daffodils and copious amounts of chocolate 🥚🐣🐥🍫💐❤️ Xxx

Hoppy Easter you wonderful people. I hope your days are filled with sunshine, da...

CecilyParsley

•2 years ago

29 Replies

Joint stiffness and pain

I would like to know what you do to help with joint stiffness. Exercise and movement worse than a few years ago. I would like to prevent worsening and if...

I would like to know what you do to help with joint stiffness. Exercise and mo...

Cate2262

•2 years ago

6 Replies

Easter Greetings from Pumpkin

Wishes for a Happy Easter from Pumpkin! Healing hugs.

Pumpkin2009

•2 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2022

So happy!

Blood Pressure tablets

Pip

Does anyone else with SLE have leaky heart valves?

Would you like to share your experience of living with lupus to contribute to a spoken theatre piece?

Concerned about a flare

Researchers find a genetic cause of lupus

Closer to a diagnosis/ treatment!

Social prescribing

Metal allergies and Autoimmunity

Negative ANA Test

Rutuximab

Cuties are Back!.

Is this the start of a flare??

Hello!

Painful arms and shoulders

Please Help

Lupus “Fatigue”

Lupus Profundus

More of an update of sorts ;(

Sore gsbds

we all have days like this

How do you get diagnosed with lupus?

Quality of Altruist Sunscreen?

What is going on??

Unexplained symptoms

Strange new symptoms or new illness

Hoppy Easter

Joint stiffness and pain

Easter Greetings from Pumpkin

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