Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,081 posts

All posts for January 2022

Awful Mornings!!!!

Hi all, I posted last night about earrings, painful ears and lupus. I now have another question. I was diagnosed a year or so ago and during this period I...

Hi all, I posted last night about earrings, painful ears and lupus. I now have ...

Ophelia1

•2 years ago

6 Replies

It’s Monthly Monday Mira 🐶

Hi folks this is the moment Mira met with Theo our new baby grandson who was born 7 weeks early - he is doing really well and is out of hospital but still Tiny...

Hi folks this is the moment Mira met with Theo our new baby grandson who was bor...

svfarmer

•2 years ago

48 Replies

SAPHNELO (anifrolumab) anyone?

Did anyone try the new drug Saphnelo? It is from Astra Zeneca and the molecule is called anifrolumab. If yes, any results? Good or bad?

Did anyone try the new drug Saphnelo? It is from Astra Zeneca and the molecule i...

Tanitani

•2 years ago

3 Replies

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Piercings

Is it common to have trouble with piercings when you have lupus? A year ago I was diagnosed with lupus, which appears to be mainly affecting my joints and...

Is it common to have trouble with piercings when you have lupus? A year ago I w...

Ophelia1

•2 years ago

9 Replies

Terrified of steriod

Hello everyone, It has been I while I posted here. I have not had steroid for more than 5years now. Although its very helpful with my inflammations but the...

Hello everyone, It has been I while I posted here. I have not had steroid for m...

ijeasike

•2 years ago

9 Replies

Remedy for dry cough

I have dry cough over a month I have had X-rays check ups blood tests etc Need to find a cure for this irritating dry cough which comes at nite 😞 Any...

I have dry cough over a month I have had X-rays check ups blood tests etc Need ...

Mystik

•2 years ago

7 Replies

Questions and update

Hi all, I just have a couple questions: 1.When you get a steroid shot in a joint, is it normal to experience the joint being swollen a little while later and...

Hi all, I just have a couple questions: 1.When you get a steroid shot in a join...

JennaShi

•2 years ago

11 Replies

LUPUS UK CEO Blog - Relaxing of COVID-19 restrictions across the UK

Hi everyone, It has been a while since I last wrote a post for my blog and I felt that the relaxing of COVID-19 restrictions across the UK this week was a good...

Hi everyone, It has been a while since I last wrote a post for my blog and I fel...

Paul_Howard

Partner•2 years ago

7 Replies

4th covid booster

Hi all... I've just been advised by my surgery that I am due 4th covid booster and have booked appointment next Tuesday. Have had no reactions to previous...

Hi all... I've just been advised by my surgery that I am due 4th covid booster a...

Hidden

•2 years ago

44 Replies

Can anyone recommend me a life private insurance.

Hello everyone, I want to ask you all if anyone knows about any good life insurance company for people with chronic illnesses?

Hello everyone, I want to ask you all if anyone knows about any good life insura...

Da_vinci

•2 years ago

2 Replies

Lupus and flying

Hi my husband has lupus and gets very hot, pulsating and swollen feet… we are going on holiday this year and will be on a 5 hour flight … he can’t stand...

Hi my husband has lupus and gets very hot, pulsating and swollen feet… we are go...

Tayzee

•2 years ago

6 Replies

COVID-19 Treatments for Higher Risk Individuals - UPDATED 25/01/2022

Hi everyone, I have updated our website article about the new COVID-19 treatments for those who are at higher risk for severe illness from COVID-19 infection....

Hi everyone, I have updated our website article about the new COVID-19 treatment...

Paul_Howard

Partner•2 years ago

7 Replies

Petition for all of us #cev in the UK - please sign and share

LUPUS UK HealthUnlocked friends: My husband and I created this petition this weekend and we need your help signing and sharing please: As the UK opens up,...

LUPUS UK HealthUnlocked friends: My husband and I created this petition this we...

ShannonB

•2 years ago

19 Replies

Where does the law stand?

I don't know if this is happening throughout the UK but in Scotland we have these antivaxers deliberately trying to take people's masks off and also spitting...

I don't know if this is happening throughout the UK but in Scotland we have thes...

CarolMcl

•2 years ago

59 Replies

Lupus & kidney infection

Hello, Sorry for a "question" first post. I don't know anyone else who has lupus in "real life" (or, if I do, I don't know it!) and I was only diagnosed in...

Hello, Sorry for a "question" first post. I don't know anyone else who has lupus...

Alrac94

•2 years ago

7 Replies

Mycophenolate

My consultant is quite keen on increasing me from 1000mg to 1500mg. Anybody had good results from increasing to this? I’m worried about hair loss, chills and...

My consultant is quite keen on increasing me from 1000mg to 1500mg. Anybody had ...

LilyMistri2

•2 years ago

34 Replies

ON BEDROOMS AND HABITS - HELP!

Hello my dear Forum Friends, Year Three of Pandemic Pandemonium! Well, I say ‘pandemonium’ to be alliterative, but really it’s awfully quiet where and how I...

Hello my dear Forum Friends, Year Three of Pandemic Pandemonium! Well, I say ‘pa...

lupusinflight

•2 years ago

77 Replies

I apologize for my last post

Hi all, I’m crawling out of my hole some more today. I realize I may not have been clear with my past and it was taken out of context. To clarify, no, my...

Hi all, I’m crawling out of my hole some more today. I realize I may not have be...

JennaShi

•2 years ago

5 Replies

Marbles in feet

Hi lovelies , hope you’re managing to keep warm 😊. Quick question .. anyone (I’m sure there is) experienced really painful bottoms of feet ? Feels like I’m...

Hi lovelies , hope you’re managing to keep warm 😊. Quick question .. anyone (I...

Tiggywoos

•2 years ago

47 Replies

Help need Filling out PIP REVIEW form

Can anyone recommend a service that helps you fill out your PIP Review form? The CAB can’t help me. Mine is tricky, as my case was won on tribunal, not the...

Can anyone recommend a service that helps you fill out your PIP Review form? The...

LilyMistri2

•2 years ago

23 Replies

Does anyone else have problems with a cough more like a bark and during the night my breathing is terrible wheezing

Hi I’ve been in hospital about 4 times due my respiratory problems does lupus affect your lungs

Hi I’ve been in hospital about 4 times due my respiratory problems does lupus af...

Liz2468

•2 years ago

9 Replies

Weaning off Prednisolone- nightmare!

As some may know from previous post I have fallen twice, bruising quite badly and haematoma in right lower leg that tracked down my leg. Phoned surgery. GP...

As some may know from previous post I have fallen twice, bruising quite badly an...

Bowenlady

•2 years ago

65 Replies

What is a flare?

I have Lupus SLE and also APS. I always wonder what people actually mean that they are having a ‘flare’ and they know they are having a flare? I feel ill all...

I have Lupus SLE and also APS. I always wonder what people actually mean that th...

Bobbydoodle

•2 years ago

20 Replies

No adrenal tumour - good news??

Hi gang, it’s been a while, I’ve been flaring and seeing lots of doctors. Last year I was investigated for a suspected adrenal tumour which has been giving me...

Hi gang, it’s been a while, I’ve been flaring and seeing lots of doctors. Last y...

MusicalFurbaby

•2 years ago

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4th covid vaccine

Hi i was diagnosed with lupus just over a year ago, im on hydroxychloroquine, ive read a few post about having a 4th covid vaccine, will I get called up to...

Hi i was diagnosed with lupus just over a year ago, im on hydroxychloroquine, iv...

MrGrey1234

•2 years ago

18 Replies

Heart palpitations on hydroxychloroquine?

Hydroxychloroquine and heart palpitations? I've been suffering with palpitations most days for quite a while and take 200mg hydroxychloroquine once daily since...

Hydroxychloroquine and heart palpitations? I've been suffering with palpitations...

Hidden

•2 years ago

9 Replies

Latest information in how people with lupus fare when they catch Covid-19?

I haven’t been here for a while so I am not up to date. Can anyone share the latest information/studies on how people with lupus cope with Covid-19 infection...

I haven’t been here for a while so I am not up to date. Can anyone share the lat...

Redfox25

•2 years ago

12 Replies

Lupus and free eye test

How come as people with SLE have to have yearly eye test, dont get it free we have to pay ??

How come as people with SLE have to have yearly eye test, dont get it free we ha...

MrGrey1234

•2 years ago

16 Replies

Lupus and teeth

Hi everyone I have Lupus SLE and I take steroid, Mychophenolate and hydroxycholorquine Has any experienced their teeth weakening. Is this a side effect ?

Hi everyone I have Lupus SLE and I take steroid, Mychophenolate and hydroxychol...

Turquoise1999

•2 years ago

19 Replies

Volunteers needed for an online focus group meeting on 18th January 2022 at 9.30 a.m.

LUPUS UK are collaborating with EPG Health in the creation of new patient education resources that will be hosted on the LUPUS UK website and made available to...

LUPUS UK are collaborating with EPG Health in the creation of new patient educat...

Alida_Bennett

Partner•2 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2022

Awful Mornings!!!!

It’s Monthly Monday Mira 🐶

SAPHNELO (anifrolumab) anyone?

Piercings

Terrified of steriod

Remedy for dry cough

Questions and update

LUPUS UK CEO Blog - Relaxing of COVID-19 restrictions across the UK

4th covid booster

Can anyone recommend me a life private insurance.

Lupus and flying

COVID-19 Treatments for Higher Risk Individuals - UPDATED 25/01/2022

Petition for all of us #cev in the UK - please sign and share

Where does the law stand?

Lupus & kidney infection

Mycophenolate

ON BEDROOMS AND HABITS - HELP!

I apologize for my last post

Marbles in feet

Help need Filling out PIP REVIEW form

Does anyone else have problems with a cough more like a bark and during the night my breathing is terrible wheezing

Weaning off Prednisolone- nightmare!

What is a flare?

No adrenal tumour - good news??

4th covid vaccine

Heart palpitations on hydroxychloroquine?

Latest information in how people with lupus fare when they catch Covid-19?

Lupus and free eye test

Lupus and teeth

Volunteers needed for an online focus group meeting on 18th January 2022 at 9.30 a.m.

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