Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2021

Sun factor protection cream

I have been prescribed the above for several years for lupus , if I don’t use it or reapply I get the dreaded hot face butterfly rash , and in turn feel quite...

I have been prescribed the above for several years for lupus , if I don’t use it...

Willow1414

•2 years ago

20 Replies

Lupus and healthy living

I just want to introduce myself to other users on this site My name is jacqueline. I have been living with lupus and other immune disorders since my early...

I just want to introduce myself to other users on this site My name is jacqueli...

Jaci121

•2 years ago

6 Replies

Focus group research on PIP and WCA assessments

Chronic Illness Inclusion wants to hear your experiences of both the Work Capability Assessment (WCA) AND Personal Independence Payments (PIP) assessments....

Chronic Illness Inclusion wants to hear your experiences of both the Work Capabi...

Chanpreet_Walia

LUPUS UK•2 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Dusting off the paint brushes

Hi fellow Lupies, I hope you are all keeping as well as can be expected. 🙏🏻 I came across some old daler boards I’d bought literally decades ago and never...

Hi fellow Lupies, I hope you are all keeping as well as can be expected. 🙏🏻 I...

Spotty-ewe

•2 years ago

85 Replies

Lupus and Anxiety

Hi, Been off work for 3months with anxiety. I have lupus profundus which mainly affects my skin. Had a few flare ups doing the lockdown in 2020 which I worked...

Hi, Been off work for 3months with anxiety. I have lupus profundus which mainly ...

Montysmum1

•2 years ago

12 Replies

Stop the world I want to get off!

Thursday 11 November 2021, woke up to the my worst nightmare scenario. My beautiful 46 year old son who has just moved to Penang on the 7 Sept to start a new...

Thursday 11 November 2021, woke up to the my worst nightmare scenario. My beauti...

Chantev

•2 years ago

41 Replies

Opinions on Hemp creams.

Hello everyone, I've recently decided to purchase some compression gloves for my hands and this cream called Hemp Active cream by 5kind popped up on my screen....

Hello everyone, I've recently decided to purchase some compression gloves for my...

Bunnzillah

•2 years ago

2 Replies

In case you need something to make you smile 😀

😂

Tiggywoos

•2 years ago

13 Replies

Cutie Pups time.

Hello everyone Just had to show you these cute labrador puppies born in Sussex to a very clever mum. They are special because its the first time a mix of...

Hello everyone Just had to show you these cute labrador puppies born in Sussex t...

misty14

•2 years ago

57 Replies

A doctor has finally listened - but has suggested something other than lupus

Some of you may remember a few weeks ago my post about numerous GP/Rheum not listening, this is an update in my journey. Following the instructions of the GP...

Some of you may remember a few weeks ago my post about numerous GP/Rheum not lis...

SadGirlRaceClub

•2 years ago

8 Replies

How did you know whether working was no longer plausible?

Hi, The past couple of years my flares have become increasingly severe and increasingly frequent. This combined with unavoidable stress from my home life (most...

Hi, The past couple of years my flares have become increasingly severe and incre...

eescvc

•2 years ago

7 Replies

3rd vaccine and booster the same dose

Not sure what everyone thinks about the above . Anyway . Got the letter to say I should have the 3rd vaccine, and to book online, unfortunately I could not...

Not sure what everyone thinks about the above . Anyway . Got the letter to say ...

Willow1414

•2 years ago

7 Replies

Pfizer Booster

Hi everyone. How are you all? Finally got an appointment in for my booster and flu jags (not the third dose but tbh I’m just glad I’ve got any appointment...

Hi everyone. How are you all? Finally got an appointment in for my booster a...

Froggie70

•2 years ago

40 Replies

crazy plants

I grew these wallflowers from seed in the summer for next spring but the crazy things have been in flower since August

I grew these wallflowers from seed in the summer for next spring but the crazy t...

suzannah16

•2 years ago

5 Replies

garden flowers, cat's whiskers?

not sure if this is the same plant that Titters had as cat's whiskers.

suzannah16

•2 years ago

9 Replies

How quickly did it take depo-medrone steroid injection to work for your Lupus swelling?

I had a depo-medrone systemic injection for my lupus swelling. I was advised it should take effect 1-2 days, unless I misunderstood. I would be so grateful to...

I had a depo-medrone systemic injection for my lupus swelling. I was advised it ...

Joanna098

•2 years ago

3 Replies

Slow to get a rheumy appointment

My husband started feeling unwell in January this year. He ended up having a month off work. He is 53. Meanwhile the GP did various tests and a chest X Ray, he...

My husband started feeling unwell in January this year. He ended up having a mon...

Broseley

•2 years ago

13 Replies

Looking for help please

I'm looking for some help please. I have been referred to a rheumatologist but the waiting list is at least 6 months long. In the meantime my Othopedic...

I'm looking for some help please. I have been referred to a rheumatologist but ...

shellydreamer

•2 years ago

5 Replies

Low kidney function

Just sitting by the fireplace, doing nothing. My feet are swollen & red this morning. Doctors tell me my feet are swelling due to low kidney function? They...

Just sitting by the fireplace, doing nothing. My feet are swollen & red this mor...

Tiras

•2 years ago

19 Replies

Belimumab (Benlysta) has been approved for the treatment of SLE by NICE

Hi everyone, We are pleased to report that, following their recent appraisal, NICE has recommended belimumab (Benlysta) as an option to be added to standard...

Hi everyone, We are pleased to report that, following their recent appraisal, NI...

Paul_Howard

Partner•2 years ago

5 Replies

Hunting heron

Checking out the local fish ponds from neighbouring house for an easy snack!

Hidden

•2 years ago

17 Replies

3rd Primary dose

I'm on day 3 of side effects from 3rd primary dose and go today diagnosed pleurisy as a result of the vaccination. I'm still getting high fevers followed by...

I'm on day 3 of side effects from 3rd primary dose and go today diagnosed pleuri...

Dogportraitartist

•2 years ago

11 Replies

For those who need it today ❤️

I thought you might like this. We all need a bit of positivity these days xxx

CecilyParsley

•2 years ago

25 Replies

Foot Update

First, thank you to all who have offered support. I saw my GP yesterday. He actually examined and touched my foot. Unfortunately, had no answers and since now...

First, thank you to all who have offered support. I saw my GP yesterday. He actu...

Pumpkin2009

•2 years ago

4 Replies

Brain MRI

What do the NICE guidelines say about timeframe for reporting on brain MRI

Feduplots

•2 years ago

1 Reply

Funny post 🤣

Had to share this as it made me laugh / hope people are having a good week

svfarmer

•2 years ago

39 Replies

Seizures and Lupus related?

I’m 20 F and I was diagnosed almost a year ago with lupus, but I can’t figure out if these episodes I’ve been having are related to lupus. For almost two...

I’m 20 F and I was diagnosed almost a year ago with lupus, but I can’t figure ou...

arpurce

•2 years ago

31 Replies

Volunteer needed for NICE Scientific Advice projects - deadline of 19th November

Hi everyone, I have received a request from NICE. They are currently seeking adults with lived experience who have moderate to severe systemic lupus...

Hi everyone, I have received a request from NICE. They are currently seeking adu...

Paul_Howard

Partner•2 years ago

1 Reply

Immunity after 3rd covid jab

After my 3rd covid jab (first two were AZ, third was Pfizer), within 2-3 weeks I’ve developed shingles followed by labyrinthitis causing dizziness! I’m feeling...

After my 3rd covid jab (first two were AZ, third was Pfizer), within 2-3 weeks I...

ferhana

•2 years ago

9 Replies

Consultant Rheumatologist

Hi everyone. Bit of a daft question coming but does anyone know if you are able to see a consultant out with your own health board area? My previous...

Hi everyone. Bit of a daft question coming but does anyone know if you are able...

Froggie70

•2 years ago

35 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2021

Sun factor protection cream

Lupus and healthy living

Focus group research on PIP and WCA assessments

Dusting off the paint brushes

Lupus and Anxiety

Stop the world I want to get off!

Opinions on Hemp creams.

In case you need something to make you smile 😀

Cutie Pups time.

A doctor has finally listened - but has suggested something other than lupus

How did you know whether working was no longer plausible?

3rd vaccine and booster the same dose

Pfizer Booster

crazy plants

garden flowers, cat's whiskers?

How quickly did it take depo-medrone steroid injection to work for your Lupus swelling?

Slow to get a rheumy appointment

Looking for help please

Low kidney function

Belimumab (Benlysta) has been approved for the treatment of SLE by NICE

Hunting heron

3rd Primary dose

For those who need it today ❤️

Foot Update

Brain MRI

Funny post 🤣

Seizures and Lupus related?

Volunteer needed for NICE Scientific Advice projects - deadline of 19th November

Immunity after 3rd covid jab

Consultant Rheumatologist

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive