Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,695 members • 28,073 posts

All posts for October 2021

help! Fragmin dosed based on a certain weight but I'm losing weight! should I worry?

Hi everyone, I'm noticing that I am losing weight (so far 3kg/6lb), and that got me wondering how it might affect the effectiveness of my Fragmin, given that...

Hi everyone, I'm noticing that I am losing weight (so far 3kg/6lb), and that got...

rokis

•2 years ago

2 Replies

'Cutie Hootie'

Hello everyone Just thought id share these cute owlets. Lovely to see one youngster on the end determined not to look at the camera!. Maybe showing some...

Hello everyone Just thought id share these cute owlets. Lovely to see one youngs...

misty14

•2 years ago

28 Replies

New research: Researchers can find signs of whether a person is on the way to developing the disease Lupus -- or is already ill

Hi lupis, I share with you one of the latest research that seems to bring some light to the early prevention and diagnosis of lupus. Hopefully very soon this...

Hi lupis, I share with you one of the latest research that seems to bring some l...

Naladog

•2 years ago

6 Replies

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Rituximab

Hi, I had all the bloods done and mri scan and the rheumatologist is going to start me on this fusion in the next few weeks. Anyone on this drug? What’s your...

Hi, I had all the bloods done and mri scan and the rheumatologist is going to st...

Melaxx

•2 years ago

12 Replies

If this isn't lupus, I don't know what is

So I am so upset with the medical industry because they say well we did " a blood test on you ( only the ANA. ) And it came back negative, now this is just...

So I am so upset with the medical industry because they say well we did " a bloo...

LupyJes

•2 years ago

33 Replies

Survey for a trial on stopping immune-suppressing medication in patients with a history of lupus affecting their kidneys

Please take part in this short and anonymous survey for a trial on stopping immune suppressing medication in patients with a history of lupus affecting their...

Please take part in this short and anonymous survey for a trial on stopping immu...

Chanpreet_Walia

LUPUS UK•2 years ago

1 Reply

Methotrexate and Covid jab

Hello, everyone. After numerous phone calls and a couple of refusals I have FINALLY got an appointment for a third Covid jab next Wednesday. 😀🤞. It’s a...

Hello, everyone. After numerous phone calls and a couple of refusals I have FIN...

Barbara17

•2 years ago

12 Replies

Lupus Rash??

I'm hoping people can help. I've struggled for years with joint pain and inflammation, bowel issues, extreme fatigue, foggy/forgetfulness and headaches. I...

I'm hoping people can help. I've struggled for years with joint pain and inflamm...

nicola21

•2 years ago

8 Replies

children below 12 years of age with lupus are eligible for Covid vaccine?

My 10 year old girl have lupus can she have covid vaccine , does vaccine available for this age group, she is in MMF, aspirin, hydrocloroquine, steroids 5 mg,...

My 10 year old girl have lupus can she have covid vaccine , does vaccine availab...

Radha2krishna

•2 years ago

5 Replies

son' have a Rush allergies from hospital no idea what it's ..

Urine results ok the blood results no return from hospital i hope ok. He it's ok just the skin it's looking no good we are taking Piriton no changes at the...

Urine results ok the blood results no return from hospital i hope ok. He it's ok...

Szymon9

•2 years ago

1 Reply

super health squad to manage my illnesses? is it worth it?

hi everyone - I suffer from APS and I'm currently being tested for lupus. These past few months have been tough so I decided to interrupt my studies for a bit...

hi everyone - I suffer from APS and I'm currently being tested for lupus. These...

rokis

•2 years ago

5 Replies

A cutie celebration

Hello everyone Just thought id share with you , that this weekend our lovely baby hedgehog, Miss Tiggy came for tea looking twice the size!. She's been...

Hello everyone Just thought id share with you , that this weekend our lovely ba...

misty14

•2 years ago

33 Replies

3rd covid jab ,not a booster jab.

I had a letter last week from the nhs telling me to go for my third covid jab ,not a covid booster jab a thid jab ,and the reason for this is because i take...

I had a letter last week from the nhs telling me to go for my third covid jab ,n...

TIMJB1

•2 years ago

13 Replies

my fight against brain fog and lack of concentration

the wretched brain fog and short attention span put an end to my love of reading but I have finally finished crocheting a hat and scarf. a few rows a day and...

the wretched brain fog and short attention span put an end to my love of reading...

suzannah16

•2 years ago

20 Replies

I wondered if anyone, like me, has received a text and letter recommending a “3rd” vaccine but can’t find anyone who knows how to get it?

My specialist nurse told me it’s my Gp’s responsiblity. My Gp said it’s nothing to do with them. My letter says don’t call 119, book through your Gp or...

My specialist nurse told me it’s my Gp’s responsiblity. My Gp said it’s nothing ...

peppa

•2 years ago

32 Replies

Ear pain???

Does anyone get any ear pain?? Should I be concerned? The last week I had really intense jaw pain and with it came ear pain but once the jaw pain reduced...

Does anyone get any ear pain?? Should I be concerned? The last week I had reall...

ZA31

•2 years ago

11 Replies

3rd primary jab. Light at the end of the tunnel???

Story so far———here on the forum we are told we should have the 3rd primary jab if we have been on Prednisolone for 4 weeks or more at 10mg. That’s me! Phone...

Story so far———here on the forum we are told we should have the 3rd primary jab ...

Bowenlady

•2 years ago

12 Replies

Fatigue getting me down

Evening everyone, With the change in weather it appears the fatigue has taken its toll, no amount of sleep is good enough these days. Thursday night I got 9...

Evening everyone, With the change in weather it appears the fatigue has taken i...

Leenie0811

•2 years ago

26 Replies

For anyone who needs a little smile today 😊

Hi lovelies I know this isn’t a cat forum but couldn’t resist posting this pic! Sending you all lots of healing hugs 🤗 😻😽xxx

Hi lovelies I know this isn’t a cat forum but couldn’t resist posting this pic!...

Tiggywoos

•2 years ago

20 Replies

Anaemia problems ?

Pooh bear (the wife) has been having a very rough time of it recently. Surgery to rebuild her hip following too many steroids, breathing problems and sepsis...

Pooh bear (the wife) has been having a very rough time of it recently. Surgery t...

jimbo1605

•2 years ago

4 Replies

Does anyone know what the difference is between steroid injections and prednisolone tablets?

I was taking a short course of prednisolone, but my rheum suggested I stop that and have a steroid injection instead (one that goes into muscle I think). She...

I was taking a short course of prednisolone, but my rheum suggested I stop that ...

AFrances

•2 years ago

5 Replies

support groups Glasgow

Hi anyone aware of support groups either Ayrshire or Glasgow area thank you

Katrina999666

•2 years ago

4 Replies

Anyone else have soft brittle bones?

Once again I’ve been out of commission for a while. I was working in the garden the latter part of July, and my right femur about 4 inches (10 centimeters)...

Once again I’ve been out of commission for a while. I was working in the garden ...

Tiras

•2 years ago

9 Replies

Is this normal

I recently was given Clarithromycin 500mg for 7 days and Prednisolone 40mg for 3 days for an over the phone diagnosis of a chest/sinus infection. It's the 1st...

I recently was given Clarithromycin 500mg for 7 days and Prednisolone 40mg for 3...

smudge1980

•2 years ago

10 Replies

Happiness

Look at this, not a care in the world. Not even my dog I admit but thought you would all like to see her.

Look at this, not a care in the world. Not even my dog I admit but thought you w...

Hidden

•3 years ago

10 Replies

More ?diagnosises more testing - no light at the end of the tunnel just yet.

Hey everyone! Sooo lots has happened since last coming online. Seen rheumatology who was happy to discharge me based on bloods returning back to normal. Then...

Hey everyone! Sooo lots has happened since last coming online. Seen rheumatolog...

BabyOleg

•3 years ago

16 Replies

Ouch ! catch up

Hi all , firstly thanks to all who responded to my original post …. V supportive . I have seen specialist , who gave me a letter that I had not received from...

Hi all , firstly thanks to all who responded to my original post …. V supportive...

SarahLou2

•3 years ago

7 Replies

Vasculitis? Second opinion?

Most of my Lupus symptoms have reduced with medication. I am left with fatigue, migraines and ongoing issues with swelling, pain and discoloration around my...

Most of my Lupus symptoms have reduced with medication. I am left with fatigue, ...

Cowsaresweet

•3 years ago

3 Replies

Muscle spasms

Hi I'm just wondering if anyone suffers from muscle spasms in the neck and chest, these course the so much pain for days, I can't sleep or eat, the doctors out...

Hi I'm just wondering if anyone suffers from muscle spasms in the neck and chest...

Doey1962

•3 years ago

5 Replies

Tails from the riverbank

You may recall the Tale (tail) of the small cat that arrived in our garden and stayed. Well a kind lady called Ann who seems to run everything cat in our area...

You may recall the Tale (tail) of the small cat that arrived in our garden and s...

jimbo1605

•3 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2021

help! Fragmin dosed based on a certain weight but I'm losing weight! should I worry?

'Cutie Hootie'

New research: Researchers can find signs of whether a person is on the way to developing the disease Lupus -- or is already ill

Rituximab

If this isn't lupus, I don't know what is

Survey for a trial on stopping immune-suppressing medication in patients with a history of lupus affecting their kidneys

Methotrexate and Covid jab

Lupus Rash??

children below 12 years of age with lupus are eligible for Covid vaccine?

son' have a Rush allergies from hospital no idea what it's ..

super health squad to manage my illnesses? is it worth it?

A cutie celebration

3rd covid jab ,not a booster jab.

my fight against brain fog and lack of concentration

I wondered if anyone, like me, has received a text and letter recommending a “3rd” vaccine but can’t find anyone who knows how to get it?

Ear pain???

3rd primary jab. Light at the end of the tunnel???

Fatigue getting me down

For anyone who needs a little smile today 😊

Anaemia problems ?

Does anyone know what the difference is between steroid injections and prednisolone tablets?

support groups Glasgow

Anyone else have soft brittle bones?

Is this normal

Happiness

More ?diagnosises more testing - no light at the end of the tunnel just yet.

Ouch ! catch up

Vasculitis? Second opinion?

Muscle spasms

Tails from the riverbank

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