Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2021

Help with discoid lupus

Hi there i have DSL i was taking hydroxchlorquinine for a while which helped started with the praqu and then chemist gave me quinorac which i dont believe was...

Hi there i have DSL i was taking hydroxchlorquinine for a while which helped sta...

Racingmurphy-1985

•3 years ago

1 Reply

Lupus SLE and Increased Frequency to Urinate

I am over a year into my diagnosis of Lupus SLE and have noticed more recently an increased urgency and frequency to go for a wee. I can go and within 5 mins...

I am over a year into my diagnosis of Lupus SLE and have noticed more recently ...

Sallmell

•3 years ago

7 Replies

Thank you

Just want to thank each and everyone of you . Been feeling sorry for myself and feeling quite unwell. I must have asked you all a zillion questions and you...

Just want to thank each and everyone of you . Been feeling sorry for myself and ...

Harry19

•3 years ago

9 Replies

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D.O.M.S is it worse if you have lupus?

So I am still yet to be undiagnosed but, I have been in the sun majority of this week and my rash has flared up again (so phoned the Dr and he was like I can’t...

So I am still yet to be undiagnosed but, I have been in the sun majority of this...

Penelope-Pipin

•3 years ago

23 Replies

Blood picture

Recent bloods show that my compliments are low with high dsdna. Previously 680 bow 600. Can I ask if anyone else has experienced these sorts of numbers and how...

Recent bloods show that my compliments are low with high dsdna. Previously 680 b...

Harry19

•3 years ago

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Renal diet

Hi everyone, I have lupus nephritis my kidneys are slowly worsening. I have been told to lose weight but be cautious about what I’m eating. I have no idea...

Hi everyone, I have lupus nephritis my kidneys are slowly worsening. I have been...

Jolarge

•3 years ago

7 Replies

Mepacrine

Hi all.... Does anyone take mepacrine? I have been prescribed this after having really bad constant headaches on hydroxychloroquine. How do you find it? Xx

Hi all.... Does anyone take mepacrine? I have been prescribed this after having ...

Aurali

•3 years ago

12 Replies

Nice guidance

Very sad to read that Nice are not recommending Belimumab for active SLE on the nhs 🥲. Consultation closes end of this month .

Very sad to read that Nice are not recommending Belimumab for active SLE on the ...

Harry19

•3 years ago

6 Replies

Drug Reaction Rash?

Newbie here. I'm wondering if anyone else developed a body-wide rash after starting Hydroxychloroquine. I have Lupus and Sjogrens.

Newbie here. I'm wondering if anyone else developed a body-wide rash after star...

Nanosaint

•3 years ago

9 Replies

Metofill Injections (methotrexate)

Hi everyone, hope you’re all keeping safe and well. Wonder if I could pick your brains please? Just started on methotrexate injections today (Metofill 25mg)...

Hi everyone, hope you’re all keeping safe and well. Wonder if I could pick your...

Froggie70

•3 years ago

25 Replies

Pain that is not inflammatory, how did you deal with it? What did your dr recommend?

Hi all! So in general i am doing okay. Unfortunately, no matter how better I get my hands, wrists, ankle and feet are in CONSTANT pain. I type for my job,...

Hi all! So in general i am doing okay. Unfortunately, no matter how better I ge...

Sandy1212

•3 years ago

36 Replies

Watering eyes 😭

Morning everyone. Getting ready for my pcr test today before going in for my kidney biopsy Monday 😩. My question today though is does anyone suffer with...

Morning everyone. Getting ready for my pcr test today before going in for my kid...

Zeberdee1

•3 years ago

10 Replies

Functional medicine approach for lupus

I’ve been recently diagnosed with lupus. I’ve been reading a lot about how our diet can impact our health and the amount of inflammation in the body. Does any...

I’ve been recently diagnosed with lupus. I’ve been reading a lot about how our d...

Salaam123

•3 years ago

18 Replies

Nephritis

I’d it possible to have lupus nephritis with a normal creatinine ? Thanks

Harry19

•3 years ago

5 Replies

Can this be a Lupus Flare after sun exposure?

Hi All, I'm after some advice please! :-) I haven't had any skin photosensitivity symptoms or other skin involvement since I've been diagnosed with Lupus last...

Hi All, I'm after some advice please! :-) I haven't had any skin photosensitivit...

MadT

•3 years ago

4 Replies

Sun Reactions from childhood on

Following all the discussions on lupus and the sun, prompted me to wonder how many of us had indications way before we had more severe symptoms. As a child,...

Following all the discussions on lupus and the sun, prompted me to wonder how ma...

Pumpkin2009

•3 years ago

18 Replies

Belimumab

Has anyone started Belimumab x

Harry19

•3 years ago

11 Replies

High CK (Creatine Kinase)

Hey folks, Rando question... My rheumy in her letter to my GP has written that I have a high CK of over 700... I've been googling and it says all sorts of...

Hey folks, Rando question... My rheumy in her letter to my GP has written that I...

Insomniacette

•3 years ago

3 Replies

Mychrophenlate

Hi All Just a question about this drug. Ive been on iy for 5 weeks. One of my soecialist says its kicked in reason for this is my bloods are back to normal and...

Hi All Just a question about this drug. Ive been on iy for 5 weeks. One of my so...

Hidden

•3 years ago

5 Replies

My red cheeks...

Had to renew my driver’s licence and I thought I could use the picture I already had...nope. The woman said I need to get a new one. Just got off work (12hr...

Had to renew my driver’s licence and I thought I could use the picture I already...

Willow7733

•3 years ago

10 Replies

Had the Combined Clinic appointment today.

Have a headache after the Combined Clinic it was an hour and a half from start to finish and was all dermatologists, all 16 of them 😬 in groups of 2 to 5 from...

Have a headache after the Combined Clinic it was an hour and a half from start t...

Boudica1

•3 years ago

7 Replies

Can our ANA pattern change?

Hello everyone, My ANA pattern has always been homogeneous. Last week's test came back as cytoplasmic. Can the pattern of our ANA change? Thank you, Irene...

Hello everyone, My ANA pattern has always been homogeneous. Last week's test ...

Piscesdreamer

•3 years ago

4 Replies

Sun rash

Hi there , please can I ask a question to fellow Lupies that you might think is stupid ! I know I must avoid the sun , wear a sun hat with factor 50...

Hi there , please can I ask a question to fellow Lupies that you might think i...

Sevenstar

•3 years ago

51 Replies

Undiagnosed

Hello, In August last year, I came out in a rash and the rash has never ever disappeared, sometimes it settles and others (like today) it's horrendous, my...

Hello, In August last year, I came out in a rash and the rash has never ever di...

Orange9

•3 years ago

7 Replies

Late night out

I’ve been cursed with intermittent nosebleeds since childhood and on one occasion my teacher Mr Osmond had to lend me his large gents handkerchief. My Mum...

I’ve been cursed with intermittent nosebleeds since childhood and on one occasi...

Spotty-ewe

•3 years ago

27 Replies

How long does it take to get remission?

I have recently been diagnosed with Lupus and now realise I have been having low level flares for 10 years. This time my flare was major especially my joints...

I have recently been diagnosed with Lupus and now realise I have been having low...

Cowsaresweet

•3 years ago

24 Replies

Is this a mild malar rash?

Everyone was just nasty in American forums so I'm asking here. Not asking because I "decided" I have SLE. I just recently got a doc to listen to my symptoms...

Everyone was just nasty in American forums so I'm asking here. Not asking becaus...

Chaolioe

•3 years ago

15 Replies

Lupus rash, eczema

Hii everyone, I have had eczema since I was a child, it cleared up a few years ago and everything was well. I have realised it has come back especially on my...

Hii everyone, I have had eczema since I was a child, it cleared up a few years ...

Turquoise1999

•3 years ago

11 Replies

Evening high temp/ flush???

Morning all. I've been diagnosed with UCTD in November was given 400 hydroxy. I should've had my 6 month appointment by now( guessing they're behind) with...

Morning all. I've been diagnosed with UCTD in November was given 400 hydroxy. ...

BonnyB

•3 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2021

Help with discoid lupus

Lupus SLE and Increased Frequency to Urinate

Thank you

D.O.M.S is it worse if you have lupus?

Blood picture

Renal diet

Mepacrine

Nice guidance

Drug Reaction Rash?

Metofill Injections (methotrexate)

Pain that is not inflammatory, how did you deal with it? What did your dr recommend?

Watering eyes 😭

Functional medicine approach for lupus

Nephritis

Can this be a Lupus Flare after sun exposure?

Sun Reactions from childhood on

Belimumab

High CK (Creatine Kinase)

Mychrophenlate

My red cheeks...

Had the Combined Clinic appointment today.

Can our ANA pattern change?

Sun rash

Undiagnosed

Late night out

How long does it take to get remission?

Is this a mild malar rash?

Lupus rash, eczema

Evening high temp/ flush???

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