Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,831 members • 28,169 posts

All posts for June 2021

Discoid lupus & RA

Hi all, hope you’re all doing okay? I’ve had DLE alongside my RA for about 4 years (RA 12 yrs).. it’s currently hot here in the UK. Does anyone feel generally...

Hi all, hope you’re all doing okay? I’ve had DLE alongside my RA for about 4 yea...

RachelD1972

•3 years ago

11 Replies

Say hello to my little friend

Rescued this little guy in hopes to help rehabilitate him. We call him blanka and he’s a bit under weight and is used to being force fed. But he’s a very...

Rescued this little guy in hopes to help rehabilitate him. We call him blanka an...

JennaShi

•3 years ago

15 Replies

confused and anxious

After several phone calls to my GP and Rheumatology department, I had a phone call from one of the registrars from the Rheumatology department this morning....

After several phone calls to my GP and Rheumatology department, I had a phone ca...

April2018

•3 years ago

6 Replies

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Funny pic

Hope this makes you all smile ready for a lovely weekend 🥰

svfarmer

•3 years ago

29 Replies

ANA negative but tested positive for LA and smooth muscle antibodies

Hi all, After 5 years of going back and forth to rheumy with joint and muscle pain, loss of hair leading to patches of baldness and a discoid looking rash...

Hi all, After 5 years of going back and forth to rheumy with joint and muscle p...

Anothermember11

•3 years ago

13 Replies

Another frivolous sign

This sign was hanging on the door of a seaside shop selling fishing tackle etc. I’d prefer to see the small fry netted until they calmed down myself. 😆...

This sign was hanging on the door of a seaside shop selling fishing tackle etc. ...

Spotty-ewe

•3 years ago

34 Replies

Adrenal insufficiency

Hi has anyone else with lupus been diagnosed with Adrenal Insufficiency? I understand it can be the result of long term steroid medication.

Hi has anyone else with lupus been diagnosed with Adrenal Insufficiency? I under...

Doey1962

•3 years ago

19 Replies

Anyone

Has anyone with sle lupus had microblading or lip fillers

avionne

•3 years ago

11 Replies

Lupus & covid 19 vaccine

I’m new on here and I was just wondering if there was anyone that has SLE and has had their covid vaccine? I was suppose to have mine a while back and I’ve...

I’m new on here and I was just wondering if there was anyone that has SLE and ha...

AngelNS

•3 years ago

42 Replies

I'm new here....

Hello, I am new to HealthUnlocked but when I found out there was a forum available to speak with other people who have been given the diagnosis of Lupus I just...

Hello, I am new to HealthUnlocked but when I found out there was a forum availab...

SamRigs

•3 years ago

11 Replies

Update to previous post

Thank you to all for your replies. I have an appt next week with Dr Gordon (thank you whisperit) Hoping for some clarification at least x

Thank you to all for your replies. I have an appt next week with Dr Gordon (than...

Bonnielacey

•3 years ago

1 Reply

Lupus & Epidermolysis bullosa acquisita (EBA)

This is the blisters on my toe, still can’t wear shoes, I have been barefoot 100% of the time for over 4 years, due to skin issues!

This is the blisters on my toe, still can’t wear shoes, I have been barefoot 100...

Tiras

•3 years ago

15 Replies

Lupus & Epidermolysis bullosa acquisita (EBA)

I have not posted in a while, had a lot of things medical going on. Just a question, has anyone else with Lupus been diagnosed with Epidermolysis bullosa...

I have not posted in a while, had a lot of things medical going on. Just a quest...

Tiras

•3 years ago

3 Replies

Plica syndrome

Has anyone got some, hopefully good outcome, tips or knowledge on managing this?

Has anyone got some, hopefully good outcome, tips or knowledge on managing this?...

Cowsaresweet

•3 years ago

Be the first to reply

Finally reached the end of searching and although it’s bittersweet, it’s time to move forward, plus other updates.

Hi all, I got the results back from my two tests and they were both negative. One was the neuropathy panel from Washington University (TS-HDS and FGR3 i think...

Hi all, I got the results back from my two tests and they were both negative. On...

JennaShi

•3 years ago

9 Replies

Hi everyone

Well I thought nothing could be worse to experience than 2020. How wrong was I ☹️ I am 4 weeks post ostomy operation, after my hubby found me unconscious on...

Well I thought nothing could be worse to experience than 2020. How wrong was I ☹...

Bronn

•3 years ago

7 Replies

Protopic tacrolimus ointment

Hi everyone Ive been prescribed this for my lupus rash on my face. Has anyone ever tried this before? It seems a pretty strong ointment, cant drink alcohol...

Hi everyone Ive been prescribed this for my lupus rash on my face. Has anyone e...

Shann07

•3 years ago

12 Replies

Hi, just wondered if anybody had felt the need to go down the private route? I feel like my Dr and Rheumatologist aren't taking me seriously

Auto immune disease/ probably lupus

Bonnielacey

•3 years ago

31 Replies

Being humble

Yesterday, I saw my rheumatologist. An appointment that I had moaned about because I had found out face to face clinics were open by accident. Moaned at the...

Yesterday, I saw my rheumatologist. An appointment that I had moaned about beca...

Hamptons

•3 years ago

6 Replies

Mychophenolate and Amoxicillin

Hi, A few days ago, my dentist prescribed me amoxicillin for my painful tooth. I was reading online about it. I read an article saying it is not recommended...

Hi, A few days ago, my dentist prescribed me amoxicillin for my painful tooth....

Turquoise1999

•3 years ago

7 Replies

Eyes

Hi all not posted in a while. Bloods came back negative for autoimmune but still have many symptoms ongoing. My eyes are still bad woke up with a mass swelling...

Hi all not posted in a while. Bloods came back negative for autoimmune but still...

Stellawillow

•3 years ago

3 Replies

ANA question

Hello, I hope you don't mind me butting in, but I'm trying to understand my ANA test result and this seemed like the best place to ask! I was just wondering if...

Hello, I hope you don't mind me butting in, but I'm trying to understand my ANA ...

josee94

•3 years ago

7 Replies

High levels B12

I remember seeing posts on here about high B12 levels . Did any of you lovely people get to the bottom of it and find out if it was an absorption problem and a...

I remember seeing posts on here about high B12 levels . Did any of you lovely pe...

Tiggywoos

•3 years ago

8 Replies

Our Wendy39 participates in this broadcast on COVID, long term patients etc in Wales

I think it’s a BRILLIANT piece...starring several experienced, deeply thoughtful, very articulate fellow patients + medics involved in care...I love the...

I think it’s a BRILLIANT piece...starring several experienced, deeply thoughtful...

Barnclown

•3 years ago

16 Replies

Does immunosupressants help lupus rash

Hi everyone Im starting Azathioprine to help control my lupus flare symptoms. I have a lupus rash on my face this past few months, Ive tried all the ecezema...

Hi everyone Im starting Azathioprine to help control my lupus flare symptoms. I...

Shann07

•3 years ago

2 Replies

Fairy garden

Here is my first attempt at a fairy garden for my grandchildren. Lord knows why it’s gone in sideways as I didn’t photograph it that way.

Here is my first attempt at a fairy garden for my grandchildren. Lord knows why ...

Bowenlady

•3 years ago

26 Replies

Have you ever been treated with belimumab (Benlysta)? Please share your experiences!

Have you ever been treated with belimumab (Benlysta)? If you have, we'd like to hear from you. NICE is currently appraising the use of this medicine within NHS...

Have you ever been treated with belimumab (Benlysta)? If you have, we'd like to ...

Paul_Howard

Partner•3 years ago

1 Reply

Worrying symptoms

Hi everyone, my first post. Diagnosed with SLE about 7 years ago, and had Previously also been diagnosed with Hashimotos Thyroiditis :o( . I was referred to...

Hi everyone, my first post. Diagnosed with SLE about 7 years ago, and had Previo...

soozie1964

•3 years ago

3 Replies

Best work advice or job roles when managing flare ups?

I work primarily on a computer screen. I am constantly typing or having to use my hands with mouse etc. I can't keep up with work demand when having flare ups...

I work primarily on a computer screen. I am constantly typing or having to use m...

MsTMP

•3 years ago

5 Replies

Sun screen products

Me again , you can tell it's that time of year with all the posts about rashes ! So I love Solbari products from Australia, hats and clothing etc , but have...

Me again , you can tell it's that time of year with all the posts about rashes !...

Sevenstar

•3 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2021

Discoid lupus & RA

Say hello to my little friend

confused and anxious

Funny pic

ANA negative but tested positive for LA and smooth muscle antibodies

Another frivolous sign

Adrenal insufficiency

Anyone

Lupus & covid 19 vaccine

I'm new here....

Update to previous post

Lupus & Epidermolysis bullosa acquisita (EBA)

Lupus & Epidermolysis bullosa acquisita (EBA)

Plica syndrome

Finally reached the end of searching and although it’s bittersweet, it’s time to move forward, plus other updates.

Hi everyone

Protopic tacrolimus ointment

Hi, just wondered if anybody had felt the need to go down the private route? I feel like my Dr and Rheumatologist aren't taking me seriously

Being humble

Mychophenolate and Amoxicillin

Eyes

ANA question

High levels B12

Our Wendy39 participates in this broadcast on COVID, long term patients etc in Wales

Does immunosupressants help lupus rash

Fairy garden

Have you ever been treated with belimumab (Benlysta)? Please share your experiences!

Worrying symptoms

Best work advice or job roles when managing flare ups?

Sun screen products

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