Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2021

Look what I found!

What a gem of a find at Argos! A duvet which is 7.5 one half and 4.5 the other half. At the moment I have the 7.5 over my top half of me and the 4.5 over the...

What a gem of a find at Argos! A duvet which is 7.5 one half and 4.5 the other h...

smudge1980

•3 years ago

7 Replies

Feeling lost can anyone help?

Hi lovely people Recently got diagnosed with UCTD and tested positive for pm-scl 75 (scleroderma) Private consultant felt needed to be slotted into NHS so...

Hi lovely people Recently got diagnosed with UCTD and tested positive for pm-scl...

Tiggywoos

•3 years ago

32 Replies

Lupus And Overlapping Illnesses

For Hidden in regard to overlapping illnesses and CTD presentations. I really liked this figure that I also posted on FB. Such a good representation of what...

For Hidden in regard to overlapping illnesses and CTD presentations. I really li...

Jmiller623

•3 years ago

45 Replies

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Dental issues

I am experiencing receding gums in my opinion occurring during a flare. Dentist says there is no remedy. Am I right this could be lupus related issues

I am experiencing receding gums in my opinion occurring during a flare. Dentist ...

Jamaica21

•3 years ago

16 Replies

Help for dry mouth!

Any helpful tips for dry mouth? My mouth is excessively dry at night especially and disturbs my sleep often. What can I do to reduce this? TIA for any tips!

Any helpful tips for dry mouth? My mouth is excessively dry at night especially ...

RS0309

•3 years ago

19 Replies

Endoscopy diagnosis

Hi everyone! After 3 weeks from my endoscopy, I recieved a letter from the hospital with my biopsy results. It says I have chronic oesophagitis and gastritis....

Hi everyone! After 3 weeks from my endoscopy, I recieved a letter from the hospi...

lufibabe

•3 years ago

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My meds make me feel worse

I dont know if this happens to anyone else but my meds actually make me feel tierd and have dry eyes amongst many other things. Before meds i feel great just...

I dont know if this happens to anyone else but my meds actually make me feel tie...

Hidden

•3 years ago

35 Replies

Mouth sores

Does anyone get mouth sores every now and then? I’d there any remedy for this please?

Does anyone get mouth sores every now and then? I’d there any remedy for this pl...

Jonnyred

•3 years ago

14 Replies

Side effects hydroxychloroquine

Hello everyone, I've had my kidney biopsy and ended up with a small bleed slightly sore but getting there I've got a call next week with consultant 😩. I've...

Hello everyone, I've had my kidney biopsy and ended up with a small bleed slight...

Zeberdee1

•3 years ago

8 Replies

Illnesses that primarily affect women don't get as much research money or attention

I have been saying this for ages. https://www.theguardian.com/society/2021/jun/13/why-are-women-more-prone-to-long-covid

I have been saying this for ages. https://www.theguardian.com/society/2021/jun/1...

WinterSwimmer

•3 years ago

15 Replies

Wisdom tooth

Having my wisdom teeth out Friday !!!! Not looking forward to it at all !!!! Any aftercare advice xx

Having my wisdom teeth out Friday !!!! Not looking forward to it at all !!!! Any...

Harry19

•3 years ago

13 Replies

Is this Lupus or an Epidermolysis bullosa acquisita (EBA) issue?

Not sure if this is from Lupus or Epidermolysis bullosa acquisita (EBA) either way it’s an autoimmune disease. This place came up next to a scar from a...

Not sure if this is from Lupus or Epidermolysis bullosa acquisita (EBA) either ...

Tiras

•3 years ago

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Blood results

I've had some recent blood results .. Borderline positive dsDNA and positive Ro60 antibody. Not sure exactly what this means, I've got a face to face...

I've had some recent blood results .. Borderline positive dsDNA and positive Ro...

Orange9

•3 years ago

3 Replies

Water cooling tip

To be clear in my earlier tip of a large cold water bottle between the legs …… this should be done sitting as it makes walking difficult 🤣😂😅

To be clear in my earlier tip of a large cold water bottle between the legs …… t...

Hidden

•3 years ago

2 Replies

Creams to prevent insect bites/stings

Hello, I have been on this site for a year or so, but this is my first post. I get really bad reactions to bites and stings. I have lupus and RA. I wondered if...

Hello, I have been on this site for a year or so, but this is my first post. I g...

heatherose

•3 years ago

10 Replies

Hypersensitive vaccination site?

Hi everyone, relative newbie here! I have APS and was diagnosed with lupus at the beginning of April. I had my first Pfizer vaccine beginning of May. About a...

Hi everyone, relative newbie here! I have APS and was diagnosed with lupus at th...

Vixxy_p

•3 years ago

2 Replies

Facial Pain

Hi All, Just wondering if anyone else gets this. Whenever I have bad/stressful news that involves a bit of crying I find my face gets massively inflamed and my...

Hi All, Just wondering if anyone else gets this. Whenever I have bad/stressful n...

Insomniacette

•3 years ago

21 Replies

RAIRDA launches survey for patients in Wales

Hi everyone, The Rare AutoImmune Rheumatic Disease Alliance (RAIRDA) has launched a survey for patients living in Wales. The findings from this survey will...

Hi everyone, The Rare AutoImmune Rheumatic Disease Alliance (RAIRDA) has launche...

Paul_Howard

Partner•3 years ago

11 Replies

SLE - Astra Zeneca - Blood shot eyes

Hello, I'm wondering if anyone else has experienced blood shot eyes after having the Astra Zeneca vaccination? It has happened to me twice, after the first...

Hello, I'm wondering if anyone else has experienced blood shot eyes after havin...

HRHDeeDee

•3 years ago

12 Replies

So very true

Someone sent this to me and I thought I would share it with you all. Chronic ill health takes so much from us but we are still us, still fighting and...

Someone sent this to me and I thought I would share it with you all. Chronic ill...

CecilyParsley

•3 years ago

12 Replies

Plant based diet

I've just been watching an ER Dr on utube who has lupus, she is talking about the benefits of a plant based diet. Has anyone out there tried a plant based...

I've just been watching an ER Dr on utube who has lupus, she is talking about t...

Villagelife

•3 years ago

39 Replies

Meet Cathode and Rémy Vicarini !

Yesterday a friend sent me this amazing story about Cathode and then this morning I read Misty's post Dog Patrol and had to share this story. This cat is...

Yesterday a friend sent me this amazing story about Cathode and then this mor...

Pumpkin2009

•3 years ago

3 Replies

Have a lovely day

Hoping that you are all having a relaxing day. Stay safe in the sun ☀️

CecilyParsley

•3 years ago

7 Replies

UPDATE - lupus & covid vaccine

First off I want to say thank you so much to each and every one of the people who took the time to reply and explain their own experiences it really has helped...

First off I want to say thank you so much to each and every one of the people wh...

AngelNS

•3 years ago

2 Replies

Long Covid and autoimmune disease article

Excellent article on the guardian website this morning about research into why more women than men suffer long covid, and about its links with autoimmune...

Excellent article on the guardian website this morning about research into why m...

Cathyan

•3 years ago

4 Replies

Implant (Nexplanon)

Hi Everyone, hope your all enjoying the sunshine. I have a question can you have the implant in your arm ( contraceptive) if taking hydroxychloroquine?

Hi Everyone, hope your all enjoying the sunshine. I have a question can you have...

H134

•3 years ago

2 Replies

Lupus Flare first in 5 years 😩

Hi everyone. The flare happened 3 weeks ago😟 I was devastated that this happened. The only indication I had was leg swelling but given I am working from home...

Hi everyone. The flare happened 3 weeks ago😟 I was devastated that this happene...

445600

•3 years ago

2 Replies

Awesome colours

Who wouldn’t smile at these colours! 😃

Hidden

•3 years ago

11 Replies

A new pain scale (funny post!)

Saw this on one of the Facebook groups I’m in. I’ve always been an art fan and like things that allow me to have a sense of humour about how I’m feeling....

Saw this on one of the Facebook groups I’m in. I’ve always been an art fan and l...

TeaandToast94

•3 years ago

10 Replies

Dog Patrol

Hello everyone Just thought id post this funnier pic proving a dog really is still 'man's best friend'. He's Brodie and being such a good navigator for his...

Hello everyone Just thought id post this funnier pic proving a dog really is sti...

misty14

•3 years ago

28 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2021

Look what I found!

Feeling lost can anyone help?

Lupus And Overlapping Illnesses

Dental issues

Help for dry mouth!

Endoscopy diagnosis

My meds make me feel worse

Mouth sores

Side effects hydroxychloroquine

Illnesses that primarily affect women don't get as much research money or attention

Wisdom tooth

Is this Lupus or an Epidermolysis bullosa acquisita (EBA) issue?

Blood results

Water cooling tip

Creams to prevent insect bites/stings

Hypersensitive vaccination site?

Facial Pain

RAIRDA launches survey for patients in Wales

SLE - Astra Zeneca - Blood shot eyes

So very true

Plant based diet

Meet Cathode and Rémy Vicarini !

Have a lovely day

UPDATE - lupus & covid vaccine

Long Covid and autoimmune disease article

Implant (Nexplanon)

Lupus Flare first in 5 years 😩

Awesome colours

A new pain scale (funny post!)

Dog Patrol

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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