Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,724 members • 28,084 posts

All posts for June 2021

Tingling/Burning sensation from feet up to calves & hands up to arms-can anyone relate to this & provide advice on how to alleviate please?

Hi I’m Beth, I’m 24 and have just recently been diagnosed with undifferentiated connective tissue disease. I’m struggling to manage flare ups at the moment, as...

Hi I’m Beth, I’m 24 and have just recently been diagnosed with undifferentiated ...

BettyBops

•3 years ago

6 Replies

Breathless

Hi guys I just wanted to say how amazing this forum is for seeing how everyone else is feeling and what there going threw I feel heartly sorry for the people...

Hi guys I just wanted to say how amazing this forum is for seeing how everyone e...

Sammymoat1986

•3 years ago

5 Replies

Next instalment of Fairy Garden

Just a little lightness you may like. My grandchildren Layla (7 going on 13 in her head) Dexter (3) had their first go of doing a mini fairy garden. The...

Just a little lightness you may like. My grandchildren Layla (7 going on 13 in h...

Bowenlady

•3 years ago

17 Replies

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Level of protection from the P

With reduced immunity due to methotrexate, how much protection does the covid vaccine give?

With reduced immunity due to methotrexate, how much protection does the covid va...

TEDDYM

•3 years ago

4 Replies

can Blood work change??

I've had 2bloodtests done, first shows Lupus and the second shows APS and rheumatoid arthritis... (I have many more symptoms that are relevant to lupus than...

I've had 2bloodtests done, first shows Lupus and the second shows APS and rheuma...

Mfuhrer

•3 years ago

2 Replies

Hair thining and breaking

Hi Since beind diagnosed with lupus in april and taking the meds my hair is so brittle and falls out loads (i defo think its mycro) I did notice a bold patch...

Hi Since beind diagnosed with lupus in april and taking the meds my hair is so ...

Hidden

•3 years ago

1 Reply

Drained today

I went for my bloods today at 10.50, ran massively late as a big deliberation over which colour blood bottles they would need. I have a vein I call “ol...

I went for my bloods today at 10.50, ran massively late as a big deliberation ov...

TeaandToast94

•3 years ago

3 Replies

New to this

Hi there, I was advised to join this group because I have questions and concerns and looking for other people’s advice/options. I got diagnosed with skin lupus...

Hi there, I was advised to join this group because I have questions and concerns...

NannyDonna

•3 years ago

13 Replies

A big Thankyou

Thankyou so much everybody for all your support - this group is really the best, such kind supporting people , it means a lot to me 😘

Thankyou so much everybody for all your support - this group is really the best,...

svfarmer

•3 years ago

9 Replies

PVC and bisoporolol and hydroxyclorochin

If someone taking bisoporolol can get hydroxychlorochin ?

Asma1364_1364

•3 years ago

1 Reply

Can anyone tell me what this is

I keep waking up with my legs like this and don’t know what it is… my knees are purple and there’s like a spiders web pattern going in each direction… the...

I keep waking up with my legs like this and don’t know what it is… my knees are ...

Leenie0811

•3 years ago

21 Replies

Factor 50

Please can anyone else tell me if they are struggling to get the above in Prescription? Sun sense I’m usually prescribed is not available from the...

Please can anyone else tell me if they are struggling to get the above in Prescr...

Willow1414

•3 years ago

13 Replies

Sauna

Thank you to all who replied to my question about sauna use. I went in the sauna for 15mins today and it felt great. I aim to try and use it once a week😊

Thank you to all who replied to my question about sauna use. I went in the sauna...

Villagelife

•3 years ago

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SunSense Ultra SPF50+ Availability

We have recently received reports about the shortage of SunSense Ultra SPF50+, a sunscreen used by many lupus patients, which is available on prescription....

We have recently received reports about the shortage of SunSense Ultra SPF50+, a...

Chanpreet_Walia

LUPUS UK•3 years ago

12 Replies

It’s Monthly Mira Monday 🐶🐶❤️

Hi Folks can’t believe it’s July this month - here’s Mira on her sun bed with her mum Bea on the ground- Bea is frightened to death of it 😂 these little fur...

Hi Folks can’t believe it’s July this month - here’s Mira on her sun bed with he...

svfarmer

•3 years ago

31 Replies

Facial Rash

Hi, I have been diagnosed with Lupus after having a biopsy done on my face due to a facial rash. Would anyone be able tell me the name of the rash please?...

Hi, I have been diagnosed with Lupus after having a biopsy done on my face due t...

barrypalmerbkp

•3 years ago

6 Replies

Swollen lymph nodes

I have had swollen lymph nodes in my neck for nearly 2 years. I got diagnosed with lupus a couple of months ago. I noticed that this can be a symptom of lupus....

I have had swollen lymph nodes in my neck for nearly 2 years. I got diagnosed wi...

Salaam123

•3 years ago

12 Replies

Lupus blood test results, antibody question?

ssDNA of 1140?

CMilhous

•3 years ago

8 Replies

Take a gander at this!.

Hello everyone Just had to share this beautiful pic of a goose keeping a very protective eye on her goslings taking their first steps. Its only what we try to...

Hello everyone Just had to share this beautiful pic of a goose keeping a very pr...

misty14

•3 years ago

65 Replies

Anyone ex-shielder just had a letter asking them to go for COVID vaccine when they’re fully vaccinated and have the NHS app confirming it?

Really odd getting a letter this morning (with my NHS number) asking me to make appointment. What a waste of money sending these out. Doesn’t anyone update...

Really odd getting a letter this morning (with my NHS number) asking me to make ...

Cathyan

•3 years ago

31 Replies

Lymphoma Questions

Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis...

Hi All, Sorry to post on such a crappy topic. So this study came out and it kind...

Insomniacette

•3 years ago

28 Replies

I feel lost

Hello everyone, I am new here, my name is Anne and I am a 50 year old female. About a year ago I started to slow down, physically and mentally, I wrote it off...

Hello everyone, I am new here, my name is Anne and I am a 50 year old female. Ab...

jaspdt

•3 years ago

15 Replies

Tested positive to covid and have lupus

I have tested positive to covid and have SLE lupus. Had anyone else been in same position as the pain is horrendous and I am really struggling 😪 Its only day...

I have tested positive to covid and have SLE lupus. Had anyone else been in sam...

Sallmell

•3 years ago

17 Replies

Sauna

Does anyone know if it safe to use saunas with lupus. I though it might improve circulation &help ease pain. I appreciate any advice, thank you.

Does anyone know if it safe to use saunas with lupus. I though it might improve ...

Villagelife

•3 years ago

24 Replies

The strongest woman I knew.

Hi Lupus community, I hope it’s ok to post this here. My mother was diagnosed with Lupus when she was pregnant with me in 1969 the doctors at the time had to...

Hi Lupus community, I hope it’s ok to post this here. My mother was diagnosed wi...

Pilon

•3 years ago

10 Replies

Geneticist consult

Today, I had an appointment with a geneticist at Cedar- Sinai and she has slapped the label of Hypermobility Spectrum Disorder on me. The reason being that I...

Today, I had an appointment with a geneticist at Cedar- Sinai and she has slappe...

JennaShi

•3 years ago

8 Replies

Urinating issues

I have Lupus (SLE) however, this question is indirectly associated with Lupus. I had cancer (prostate) had to have surgery to have it removed. They had to...

I have Lupus (SLE) however, this question is indirectly associated with Lupus. I...

Tiras

•3 years ago

16 Replies

Flare durations

what is the longest time of a flare for others

Goinglong10

•3 years ago

4 Replies

Rashes getting worse

I wrote a massive post about how are you all and where I’m at life and medically and it was deleted when I want to add my photo🤦🏼‍♀️ so if this works up...

I wrote a massive post about how are you all and where I’m at life and medically...

Buckley123

•3 years ago

2 Replies

Sle & cautacious lupus

I suffer with this & blister in the sun, see a dermatologist & they supply steroid cream have to be careful with that as it’s burnt my skin & I have scars from...

I suffer with this & blister in the sun, see a dermatologist & they supply stero...

Pegy

•3 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2021

Tingling/Burning sensation from feet up to calves & hands up to arms-can anyone relate to this & provide advice on how to alleviate please?

Breathless

Next instalment of Fairy Garden

Level of protection from the P

can Blood work change??

Hair thining and breaking

Drained today

New to this

A big Thankyou

PVC and bisoporolol and hydroxyclorochin

Can anyone tell me what this is

Factor 50

Sauna

SunSense Ultra SPF50+ Availability

It’s Monthly Mira Monday 🐶🐶❤️

Facial Rash

Swollen lymph nodes

Lupus blood test results, antibody question?

Take a gander at this!.

Anyone ex-shielder just had a letter asking them to go for COVID vaccine when they’re fully vaccinated and have the NHS app confirming it?

Lymphoma Questions

I feel lost

Tested positive to covid and have lupus

Sauna

The strongest woman I knew.

Geneticist consult

Urinating issues

Flare durations

Rashes getting worse

Sle & cautacious lupus

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