Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2021

Menopause and brain fog

On the subject of brain fog, the menopause wiped out my memory and I found it difficult to remember basic and key things at work and home! Thankfully I’m now...

On the subject of brain fog, the menopause wiped out my memory and I found it di...

Hidden

•3 years ago

3 Replies

Retinal thinning anyone? A sign of NPSLE?

Something funny to start the day! ☺️ A sign from an actual Texas restaurant that always has hilarious postings. Don’t you love when you have something wrong...

Something funny to start the day! ☺️ A sign from an actual Texas restaurant that...

Jmiller623

•3 years ago

21 Replies

Study seeking UK lupus patients for virtual interviews

***We no longer require volunteers for these virtual interviews. Thank you so much to everyone who has emailed me to volunteer, we've been blown away by the...

***We no longer require volunteers for these virtual interviews. Thank you so mu...

Paul_Howard

Partner•3 years ago

4 Replies

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Raynauds? Or something else

Hi all I have noticed my toes become this colour when I am sitting or in a cold environment Doesn't happen when it's hot I am undiagnosed atm..just have...

Hi all I have noticed my toes become this colour when I am sitting or in a cold ...

lufibabe

•3 years ago

7 Replies

Protein in Urine should I be concerned?

I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to...

I have high levels of protein in my Urine, I’ve felt like I have had a urine inf...

CJT37

•3 years ago

27 Replies

Anti redness makeup.

Hi all! I'm looking into getting some makeup which is really good at concealing my red bumps. normal make up won't cover it. Can you get a foundation or...

Hi all! I'm looking into getting some makeup which is really good at concealin...

Comeonpeeps

•3 years ago

31 Replies

Wow! Just received text from local GP NHS!

Hello all. Hope you are doing OK. It said as I’m on immunosuppressants, anyone living with me is eligible for the vaccine and to send me their details to sort...

Hello all. Hope you are doing OK. It said as I’m on immunosuppressants, anyone l...

DJK99

•3 years ago

22 Replies

Mycophenolate mofetil and needle pains

Hi All, I have just changed my tablets from injection Methotrexate to Mycophenolate Mofetil, since then I have small needle stabbing pains in my hands and...

Hi All, I have just changed my tablets from injection Methotrexate to Mycophenol...

Teanau22

•3 years ago

8 Replies

ANA blood test

Should I take my levo thyroxine before the ana blood test? Should I fast?

marianna1978

•3 years ago

5 Replies

Feeling really anxious and depressed

Hi, I normally like to keep this stuff to myself but no-one knows me on here so who cares. I’m so done with everything. I am unfortunate enough to be in 18...

Hi, I normally like to keep this stuff to myself but no-one knows me on here so...

redredblue

•3 years ago

34 Replies

Good thoughts

Hi everyone, well at the moment my health is fairly good, I am suffering with my arthritic hand and neck which I'm hoping will improve with the sunnier weather...

Hi everyone, well at the moment my health is fairly good, I am suffering with my...

Bronn

•3 years ago

12 Replies

Symptoms

I start to believe I might have lupus and went undiagnosed. At the age of 19 I had under skin cyst on both legs,which were treated with lupus errhematosos...

I start to believe I might have lupus and went undiagnosed. At the age of 19 I h...

marianna1978

•3 years ago

7 Replies

Does anyone have nerves pulling in face head etc

Does anyone have nerves pulling I’m the head or neck I cannot taste much I do have fibromyalgia lupus I have seen neurologist rheumatologis

Does anyone have nerves pulling I’m the head or neck I cannot taste much I do ha...

Mystik

•3 years ago

1 Reply

Pfizer 2nd dose

Hi all, i've just had my 2nd pfizer dose this afternoon , 1st one was 29th jan , so far i've experienced no side effects, not even a sore arm unlike the first...

Hi all, i've just had my 2nd pfizer dose this afternoon , 1st one was 29th jan ,...

Londongigi

•3 years ago

13 Replies

CRP highly elevated

C reactive protein is highly sensitive. Could it be lupus? My dr is checking for auto immune on me.

C reactive protein is highly sensitive. Could it be lupus? My dr is checking for...

Sheena000

•3 years ago

4 Replies

Small lumps on neck

Hi, I noticed 2 small pea sized lumps on the side/back of my neck a few weeks ago. They are soft/rubbery, moveable and not painful. I have Sjogrens, so I am...

Hi, I noticed 2 small pea sized lumps on the side/back of my neck a few weeks ag...

Tempname

•3 years ago

8 Replies

Blood test results: investigation Lupus/Mixed Connective Tissue Disease

Hi all, Currently under investigation and received requested blood tests ahead of next appointment. My immunoglobulin M is below range and so is complement 3...

Hi all, Currently under investigation and received requested blood tests ahead ...

Michellear

•3 years ago

35 Replies

Household members & covid vaccine criteria

Hi With the new guidance from the JCVI about household members being vaccinated. I just wondered had anyone with SLE been contacted by their GP to get other...

Hi With the new guidance from the JCVI about household members being vaccinated...

Wishie

•3 years ago

17 Replies

Rheumatology Appointment

Hi - I’m in the process of being diagnosed and posted a few weeks back, my Rheumatologist has booked an appointment for me to have an ultrasound prior to...

Hi - I’m in the process of being diagnosed and posted a few weeks back, my Rheum...

Hidden

•3 years ago

2 Replies

Lupus and cancer

Oncologist was brilliant had done a lot of research into cancer with APS and Lupus. Opted for mastectomy to try and avoid having to have Chemo or...

Oncologist was brilliant had done a lot of research into cancer with APS and Lup...

Jolevans

•3 years ago

9 Replies

No ambulances were necessary 🚑 for me to complete my 5K 🏃🏽‍♀️🚶🏻‍♀️

Hello fans and supporters of all my crazy endeavors! I completed ✅ the Foot Traffic Hop Hop 5K and did not die or require medical intervention of any kind...

Hello fans and supporters of all my crazy endeavors! I completed ✅ the Foot Tra...

DRunnerchick

•3 years ago

31 Replies

Anyone had shingles since Covid Jab ??

Just wondering if anyone has been diagnosed with shingles since having their covid jab ? I had the AZ on the 30th March. Had a reaction/side effect after,...

Just wondering if anyone has been diagnosed with shingles since having their cov...

llewelyn2405

•3 years ago

22 Replies

Back pain and Ovaries - what fun

Hello everyone!!! Spring has arrived. Things are in full bloom here. Traveled down to Charlottesville, Virginia home of my medical school Alma Mater,...

Hello everyone!!! Spring has arrived. Things are in full bloom here. Traveled do...

Jmiller623

•3 years ago

13 Replies

Anyone help me with the process of ill health retirement in UK pls??

Hi all, I'm 42 yrs and work only 12 hrs a wk now due to my lupus and APS and am seriously struggling to even manage this much now!! I've thought about ill...

Hi all, I'm 42 yrs and work only 12 hrs a wk now due to my lupus and APS and am ...

Sara_A

•3 years ago

8 Replies

Toxic Hydroxichloroquin related Maculopathy

Had an appointment with Opthamologist at hospital last week, received follow up letter yesterday & the news wasn't what I had wanted to read. I was told that...

Had an appointment with Opthamologist at hospital last week, received follow up ...

Cal66

•3 years ago

31 Replies

Facial numbness

Hi I was diagnosed with MCTD but I am convinced I have Lupus. Low white blood cell count, my antibodies are off range. I am suffering from facial numbness roof...

Hi I was diagnosed with MCTD but I am convinced I have Lupus. Low white blood ce...

Angelwings1234

•3 years ago

15 Replies

Update/ small fiber antibodies test (fyi, a bit long)

Hi it’s been a while. I’ve been a little stretched thin. Lately these days have been a bit harder (extra one on one attention is needed and jealousy has been...

Hi it’s been a while. I’ve been a little stretched thin. Lately these days have ...

JennaShi

•3 years ago

2 Replies

For Misty

Red pandas practicing aggression apparently 😂. They make themselves as tall and scary as possible...epic fail but sooooo cute. I hope they make you smile xxx

Red pandas practicing aggression apparently 😂. They make themselves as tall and...

CecilyParsley

•3 years ago

22 Replies

Patient experiences of outpatient appointments needed for new educational resource

LUPUS UK has been in discussions about a possible project to create a new educational resource for lupus patients who may face difficulty with outpatient...

LUPUS UK has been in discussions about a possible project to create a new educat...

Chanpreet_Walia

LUPUS UK•3 years ago

3 Replies

Anyone had 2 nd dose of Astra Zeneca vaccine with lupus?

After the first dose I had a headache, nausea, dizziness , stomach pain and tiredness. This lasted for 5 days. I’ve just had the 2nd. Is it going to be worse?

After the first dose I had a headache, nausea, dizziness , stomach pain and tire...

Occasion99

•3 years ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2021

Menopause and brain fog

Retinal thinning anyone? A sign of NPSLE?

Study seeking UK lupus patients for virtual interviews

Raynauds? Or something else

Protein in Urine should I be concerned?

Anti redness makeup.

Wow! Just received text from local GP NHS!

Mycophenolate mofetil and needle pains

ANA blood test

Feeling really anxious and depressed

Good thoughts

Symptoms

Does anyone have nerves pulling in face head etc

Pfizer 2nd dose

CRP highly elevated

Small lumps on neck

Blood test results: investigation Lupus/Mixed Connective Tissue Disease

Household members & covid vaccine criteria

Rheumatology Appointment

Lupus and cancer

No ambulances were necessary 🚑 for me to complete my 5K 🏃🏽‍♀️🚶🏻‍♀️

Anyone had shingles since Covid Jab ??

Back pain and Ovaries - what fun

Anyone help me with the process of ill health retirement in UK pls??

Toxic Hydroxichloroquin related Maculopathy

Facial numbness

Update/ small fiber antibodies test (fyi, a bit long)

For Misty

Patient experiences of outpatient appointments needed for new educational resource

Anyone had 2 nd dose of Astra Zeneca vaccine with lupus?

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