Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,072 posts

All posts for April 2021

Spoons

Here’s a pretty spoon but my favourite spoon is with my hubby of course 😄

Hidden

•3 years ago

12 Replies

Advice on juvenile SLE onset & hereditary

Hi everyone, I was diagnosed with SLE back in 2017 when I was 30 years old. It was like being struck by lightning, I was super healthy and suddenly......

Hi everyone, I was diagnosed with SLE back in 2017 when I was 30 years old. It w...

bhuebhek

•3 years ago

28 Replies

Question abou blood test

Has anyone here have a test for CHROMOGRANIN A, LC/MS/MS my level was 158. Normal is less than 3. I have had lung issues blood clots and chest pain. Went to...

Has anyone here have a test for CHROMOGRANIN A, LC/MS/MS my level was 158. Norm...

Nvrenfhorses2

•3 years ago

6 Replies

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Is this how it feels?

Last year I tested positive for Covid 19. This hit me with a super force, it has been a 7 month battle and the dark times were more frightening than I wish to...

Last year I tested positive for Covid 19. This hit me with a super force, it has...

Gingernotwhinger

•3 years ago

23 Replies

Is this how it feels?

Last year I tested positive for Covid 19. This hit me with a super force, it has been a 7 month battle and the dark times were more frightening than I wish to...

Last year I tested positive for Covid 19. This hit me with a super force, it has...

Gingernotwhinger

•3 years ago

4 Replies

Confused, is it me or the system?

As some of you may remember I had a Slash Biopsy 7 and a half weeks ago and was told that the results will be bad in 4 weeks, wellllll 7 weeks later I still...

As some of you may remember I had a Slash Biopsy 7 and a half weeks ago and was ...

Boudica1

•3 years ago

10 Replies

What UV hat with UV protection shield do you recommend?

What UV hat with UV protection shield do you recommend for a sever Lupus patient (46 years old woman). Housbound for years.

What UV hat with UV protection shield do you recommend for a sever Lupus patient...

thordurtryggvason

•3 years ago

3 Replies

Dr. Coimbra

Have anyone heard of Dr. Coimbra Protocol? I think I will give it a try

Eliss70

•3 years ago

4 Replies

I keep putting methotrexate off and would love some advice

My rheumy prescribed methotrexate last summer. I decided not to start while my children were at home for summer holidays as was worried about feeling...

My rheumy prescribed methotrexate last summer. I decided not to start while my c...

puffyface

•3 years ago

25 Replies

ANA Positive 1:80 Nucleolar pattern 2013 and ongoing pain. The last 5 weeks I can barely walk.

I paid privately for another ANA test and awaiting the results which should be with me today. I have Hashimotos, B12 Deficiency with positive Gastric Parietal...

I paid privately for another ANA test and awaiting the results which should be w...

angelharley

•3 years ago

28 Replies

Burning like sensation on legs & excessively hot & itchy all over

So today I developed this sensation on both thighs. The sensation feels like my skin is burning & tingles quite bad. I also have been excessively hot & itchy...

So today I developed this sensation on both thighs. The sensation feels like my ...

Simply_Kea

•3 years ago

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Query

Hi lovely people has anyone heard from Lou? She has not posted for a while or answered the chat messages so I am concerned

Hi lovely people has anyone heard from Lou? She has not posted for a while or an...

CecilyParsley

•3 years ago

15 Replies

Diagnosis?

Hello all, Firstly apologies if I am in completely the wrong place. I was diagnosed with fibromyalgia around four years ago; but I’m concerned it’s something...

Hello all, Firstly apologies if I am in completely the wrong place. I was diagno...

ChelleFeegan

•3 years ago

3 Replies

Discolouration on bridge of nose and swollen eyes. Does the cold make your malar rash worse ?

So finally my rash seems to have calmed down although I still have it on my nose a bit it’s nowhere near as flared. But I’ve noticed I have this weird...

So finally my rash seems to have calmed down although I still have it on my nose...

Penelope-Pipin

•3 years ago

8 Replies

Blue Badge Assessment

Have my blue badge assessment tomorrow. I have lupus SLE . Can anyone give me any advice tips etc Thanks in advance

Have my blue badge assessment tomorrow. I have lupus SLE . Can anyone give me a...

Sallmell

•3 years ago

10 Replies

Case studies needed on lack of access to rheumatology due to the COVID-19 pandemic

Has the COVID-19 pandemic affected your access to rheumatology and the monitoring of tests? If 'yes', we would like to hear from you. LUPUS UK is looking for...

Has the COVID-19 pandemic affected your access to rheumatology and the monitorin...

Chanpreet_Walia

LUPUS UK•3 years ago

2 Replies

Blisters

Hi, Does anyone else get intermittent blisters which always appear in the same places and leave scars? After being passed between dermatology & rheumatology...

Hi, Does anyone else get intermittent blisters which always appear in the same p...

pattypatchwork

•3 years ago

27 Replies

Weak Legs

Hi everyone, Hope you're all doing well. I just want to ask and possible gain some advice. I have had lupus for 9 years. Recently over couple of years I have...

Hi everyone, Hope you're all doing well. I just want to ask and possible gain so...

Danielle2419

•3 years ago

2 Replies

Lupus spoon

Not sure if this is permitted, please remove if not. I plan to donate £5 from every spoon bought

Not sure if this is permitted, please remove if not. I plan to donate £5 from ev...

LesJames

•3 years ago

16 Replies

I want one 😍

A miniature donkey 😍😍😍😍😍😍

CecilyParsley

•3 years ago

34 Replies

Just an update....

I bought myself a lovely new oil burner. I've got lots of essential oils and am trying different ways to relax. I have been watching video clips today of Yoga...

I bought myself a lovely new oil burner. I've got lots of essential oils and am ...

Bronn

•3 years ago

12 Replies

Telogen Effluvium

Hey Guys My hair started thinning and falling out back in October 2020. In Nov I was told I have Telogen Effluvium. It’s now April and my hair is still...

Hey Guys My hair started thinning and falling out back in October 2020. In Nov ...

NicolaKidd

•3 years ago

2 Replies

Fatigue

What can i do to ease the fatigue lupus causes

Concentric

•3 years ago

7 Replies

Is nausea a symptom?

Hi all, I hope you are well. I don't have any diagnosis yet bit have been getting various symptoms for well over a decade. Initial tests were for MS and...

Hi all, I hope you are well. I don't have any diagnosis yet bit have been gett...

lorraine1863

•3 years ago

7 Replies

Sooo cute 😍

Hello everyone. I hope that you are all as well as you can be? I thought you might like these photos of a baby Quoll, a marsupial native to Australia . So...

Hello everyone. I hope that you are all as well as you can be? I thought you mig...

CecilyParsley

•3 years ago

29 Replies

Lupus, Sjogrens or something else?

Last December my blood test showed positive ANA titre 1:1000 with dsDNA and histone antibodies which are typical for Lupus. I went to see rheumatologist who...

Last December my blood test showed positive ANA titre 1:1000 with dsDNA and hist...

Nasty_Tony

•3 years ago

16 Replies

Cutie pics time

Hello everyone Just have to post this daredevil kid goat called Brandy. He's decided to try to be 'Eddie the Kidd' leaping over a line of chickens on a farm in...

Hello everyone Just have to post this daredevil kid goat called Brandy. He's dec...

misty14

•3 years ago

20 Replies

A HISTORY OF LUPUS THROUGH THE AGES

Hello friends, I am curious if any of you have stumbled upon this video made by Professor Arnaud of the Autoimmune Disease Centre in Strasbourg? I am quite...

Hello friends, I am curious if any of you have stumbled upon this video made by...

lupusinflight

•3 years ago

11 Replies

Nerve compression or sciatica

Hi! Has anyone had sciatica or nerve compression and any helpful solutions to deal with it? I have it on the right side from the lower back to the side of the...

Hi! Has anyone had sciatica or nerve compression and any helpful solutions to de...

Pumpkin2009

•3 years ago

21 Replies

What is Lupus?

Hello all you lovely fellow Lupies. A friend in America sent me this link which has short videos from Lupus organisations from UK and USA. They are very...

Hello all you lovely fellow Lupies. A friend in America sent me this link whic...

Spotty-ewe

•3 years ago

38 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2021

Spoons

Advice on juvenile SLE onset & hereditary

Question abou blood test

Is this how it feels?

Is this how it feels?

Confused, is it me or the system?

What UV hat with UV protection shield do you recommend?

Dr. Coimbra

I keep putting methotrexate off and would love some advice

ANA Positive 1:80 Nucleolar pattern 2013 and ongoing pain. The last 5 weeks I can barely walk.

Burning like sensation on legs & excessively hot & itchy all over

Query

Diagnosis?

Discolouration on bridge of nose and swollen eyes. Does the cold make your malar rash worse ?

Blue Badge Assessment

Case studies needed on lack of access to rheumatology due to the COVID-19 pandemic

Blisters

Weak Legs

Lupus spoon

I want one 😍

Just an update....

Telogen Effluvium

Fatigue

Is nausea a symptom?

Sooo cute 😍

Lupus, Sjogrens or something else?

Cutie pics time

A HISTORY OF LUPUS THROUGH THE AGES

Nerve compression or sciatica

What is Lupus?

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