Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2021

Back is driving me crazy.v

I've really had enough of this and now it seems like I'm starting to get spots starting to creep up on the thighs that looks suspiciously like the way it...

I've really had enough of this and now it seems like I'm starting to get spots s...

Boudica1

•3 years ago

10 Replies

Does anyone know of a legal way around car tints for medical reasons?

Hey, So I due to get my new car next month & I suffer something terrible when I am in the sun, even the slightest of sunny days causes great pain whether...

Hey, So I due to get my new car next month & I suffer something terrible when I...

Simply_Kea

•3 years ago

11 Replies

Returning to work

Hi, now that shielding is ending on march 31st, i was just wondering if anyone is returning to work without receiving their 2nd vaccine jab . I thought we were...

Hi, now that shielding is ending on march 31st, i was just wondering if anyone i...

Londongigi

•3 years ago

2 Replies

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Struggling with diagnosis/changed to Fibromyalgia

We’ve talked about this a bit on here, but anyone who’s struggling with treatment, diagnosis or had your diagnosis changed. Please complete the survey Paul...

We’ve talked about this a bit on here, but anyone who’s struggling with treatmen...

panther50

•3 years ago

1 Reply

Steroid injection and Covid vaccine

Hi , important info for anyone who has had a Intra muscular steroid injection and is booked for covid vaccine soon. I finally received a intramuscular...

Hi , important info for anyone who has had a Intra muscular steroid injection an...

Maddymay65

•3 years ago

Be the first to reply

"A Year Since Lockdown" Online Survey - NOW CLOSED

***THIS SURVEY IS NOW CLOSED*** Thank you so much to everyone who took the time to complete it and share your views and experiences. ...

***THIS SURVEY IS NOW CLOSED*** Thank you so much to everyone who took the time ...

Paul_Howard

Partner•3 years ago

4 Replies

The man with super antibodies against COVID-19...

John Hollis got infected with COVID-19 but did not get ill. Are there more like him? As Prof Hughes observed lupus sufferers are less likely to get the flu...

John Hollis got infected with COVID-19 but did not get ill. Are there more like ...

Hidden

•3 years ago

16 Replies

arm protection when cooking

I have noticed in the last few months that when I cook my arms are getting scalded from the steam. I bought some long oven mitts to cover my arms but find I...

I have noticed in the last few months that when I cook my arms are getting scald...

suzannah16

•3 years ago

3 Replies

I am new to this and I was wondering...

Is it still possible to have a flare even on 400mg of Plaquenil?? My rash on my face has spread to a spot on my forehead. And my joints are very stiff in the...

Is it still possible to have a flare even on 400mg of Plaquenil?? My rash on my ...

Willow7733

•3 years ago

4 Replies

Related lupus SLE

I have been diagnosed with lupus SLE recently. I’m just wondering if anyone have a problem in swallowing food. It feels like food stuck in my throat all the...

I have been diagnosed with lupus SLE recently. I’m just wondering if anyone have...

Green85

•3 years ago

8 Replies

How do you keep going?!

Diagnosed Aug 2018 Lupus (SLE) Nephritis (stage 4 KD) and then Dec 2020 diagnosed with Scleroderma. I’ve had Raynauds since 2017. I currently work 40 hours a...

Diagnosed Aug 2018 Lupus (SLE) Nephritis (stage 4 KD) and then Dec 2020 diagnose...

Purple_Labyrint

•3 years ago

5 Replies

Update on my rheumy appointment this morning. What a shocker!

Hi guys. Firstly thank you so much for your wonderful lovely responses. You all gave me that bit of extra umpff to do it this morning. It's not all good but...

Hi guys. Firstly thank you so much for your wonderful lovely responses. You all ...

Hidden

•3 years ago

80 Replies

I need som advice on changing consultant?

I have been having a bad flare the past 2 weeks. My consultant is anti steroids and very un empathetic. I have had to make phone calls to my gp, nurse and...

I have been having a bad flare the past 2 weeks. My consultant is anti steroids ...

Maddymay65

•3 years ago

9 Replies

Rheumy telephone appointment tomorrow 🥺😲😟

Just writing to say that tomorrow after waiting a year and a day and my GP asking over and over I have finally been given a telephone appointment at 11am with...

Just writing to say that tomorrow after waiting a year and a day and my GP askin...

Hidden

•3 years ago

21 Replies

For Kjsfm Pip zoom meeting

Hi kjsfm the above photo should tell you how to view the meeting . Xx

svfarmer

•3 years ago

4 Replies

Could this be lupus or is it something else?

I've been back and forth to the doctor's since 2019 regarding a potential auto-immune condition, but up to now, there has been no conclusion. This morning I...

I've been back and forth to the doctor's since 2019 regarding a potential auto-i...

Harpssss

•3 years ago

2 Replies

PIP Award Lupus SLE

Good morning folks I’ve been receiving PIP for the last 4 years when I had to give up my job because of my Lupus- every 2 years I’ve had the dreaded PIP forms...

Good morning folks I’ve been receiving PIP for the last 4 years when I had to gi...

svfarmer

•3 years ago

45 Replies

Better!

How are you feeling today? Happy to listen no matter what !

Hidden

•3 years ago

3 Replies

Rituximab

Hello ☺️ I’m going to be starting rituximab very soon after I’ve had my second vaccine this week. Anyone that’s been on this how have you been? What’s it like?...

Hello ☺️ I’m going to be starting rituximab very soon after I’ve had my second v...

Nessa173

•3 years ago

4 Replies

Depleted blood level

Thank you everyone for the support and suggestions, I feel humbled, grateful and loved. My next question is, can lupus cause blood levels to be low? Can that...

Thank you everyone for the support and suggestions, I feel humbled, grateful and...

overdrive67

•3 years ago

3 Replies

Anyone had side effects of Oxford Vaccine?

Hi Has anyone else had side effects of Oxford injection? I had the Oxford injection on Wednesday and my upper arm area is swollen and red, worried in case it...

Hi Has anyone else had side effects of Oxford injection? I had the Oxford injec...

Cal66

•3 years ago

7 Replies

RITUXIMAB INFUSION FOR LUPUS AND SJOGRENS

Hi all, Just wondering if anyone found Rituximab good for symptoms of Lupus and skin Lupus And Sjogrens. I had 2 Infusions last month. I was taken off...

Hi all, Just wondering if anyone found Rituximab good for symptoms of Lupus an...

Haired

•3 years ago

4 Replies

Our CEO Paul Howard

A year ago today lockdown 1 began and it was Paul’s birthday. A week later Paul became CEO of Lupus UK. What a year to pick up the baton! I am proud of the way...

A year ago today lockdown 1 began and it was Paul’s birthday. A week later Paul ...

Kevin53

•3 years ago

80 Replies

Just wondering...

Morning all. I was just wondering does anyone experience bone pain? I don’t mean pain in the joints, I have that...a lot 🙈. I mean actual painful bones? My...

Morning all. I was just wondering does anyone experience bone pain? I don’t mea...

Angelx01x

•3 years ago

18 Replies

Covid jab yes or no?

I am still awaiting an appointment for the co vivid jab. I am in the 55 years age bracket and have had lupus for over16 years. On the fence 50/50 actually...

I am still awaiting an appointment for the co vivid jab. I am in the 55 years ag...

sabine

•3 years ago

18 Replies

A moderately interesting article on Long Covid as compared to other long-term illnesses

https://www.vox.com/22298751/long-term-side-effects-covid-19-hauler-symptoms

Choccy8

•3 years ago

4 Replies

Joint Pain is getting worse

Hi Everyone, Just a quick question from me today, has anyone seen their joint pain really take a turn for the worst and not understand why? I’m currently...

Hi Everyone, Just a quick question from me today, has anyone seen their joint p...

Leenie0811

•3 years ago

13 Replies

"A Year Since Lockdown" Online Survey - NOW CLOSED

***THIS SURVEY IS NOW CLOSED*** Thank you so much to everyone who took the time to complete it and share your views and experiences. It is one year...

***THIS SURVEY IS NOW CLOSED*** Thank you so much to everyone who took the time ...

Paul_Howard

Partner•3 years ago

27 Replies

Breathing issues

Hi I have had SLE for 5 years now and feel like im deteriorating. Take Hydroxychloroquine. Seem to be in a constant flare with joint pain, fatigue is awfuland...

Hi I have had SLE for 5 years now and feel like im deteriorating. Take Hydroxych...

Hhood

•3 years ago

16 Replies

Rheumy Appointment!

Wish me luck Think I may need it!!

daisydayz

•3 years ago

33 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2021

Back is driving me crazy.v

Does anyone know of a legal way around car tints for medical reasons?

Returning to work

Struggling with diagnosis/changed to Fibromyalgia

Steroid injection and Covid vaccine

"A Year Since Lockdown" Online Survey - NOW CLOSED

The man with super antibodies against COVID-19...

arm protection when cooking

I am new to this and I was wondering...

Related lupus SLE

How do you keep going?!

Update on my rheumy appointment this morning. What a shocker!

I need som advice on changing consultant?

Rheumy telephone appointment tomorrow 🥺😲😟

For Kjsfm Pip zoom meeting

Could this be lupus or is it something else?

PIP Award Lupus SLE

Better!

Rituximab

Depleted blood level

Anyone had side effects of Oxford Vaccine?

RITUXIMAB INFUSION FOR LUPUS AND SJOGRENS

Our CEO Paul Howard

Just wondering...

Covid jab yes or no?

A moderately interesting article on Long Covid as compared to other long-term illnesses

Joint Pain is getting worse

"A Year Since Lockdown" Online Survey - NOW CLOSED

Breathing issues

Rheumy Appointment!

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