Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,711 members • 28,080 posts

All posts for March 2021

Just wondering...

Does this look like a lupus rash that others have? It gets more red if I am tired or stressed and it sometimes hurts/burns. The rheumatologist that saw me in...

Does this look like a lupus rash that others have? It gets more red if I am tire...

Willow7733

•3 years ago

18 Replies

Mood changes from medication reduction

Hello, My girlfriend has pretty severe Lupus Nephritis doubled up with some other things. She’s recently reduced her Mycophenolate to 250mg a day (from 500mg...

Hello, My girlfriend has pretty severe Lupus Nephritis doubled up with some oth...

BlueDandruff

•3 years ago

3 Replies

Sero negative

Hi. Can I ask how many here are sero negative, and if it hindered your diagnosis.

Hi. Can I ask how many here are sero negative, and if it hindered your diagnosi...

donnabrain

•3 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Tool to support clinicians treating acute patients with chronic underlying conditions

https://bestpractice.bmj.com/info/the-impact-of-comorbidities-on-health-services/?utm_source=linkedin&utm_medium=social&utm_campaign=usage Just come across...

https://bestpractice.bmj.com/info/the-impact-of-comorbidities-on-health-services...

Andfiona

•3 years ago

2 Replies

Re post vivid 19 vaccine Will we be given the same

Hi everyone Thanks for all the advice, my mum now feels a little better about going on Saturday for her's.

Hi everyone Thanks for all the advice, my mum now feels a little better about g...

Cal66

•3 years ago

1 Reply

Oregano Oil + Hydroxychloroquine

Dear All, Reaching out to you experts as I’m not sure what else to do. I’m trying to find answers to a rash and swollen glands that won’t settle. I started...

Dear All, Reaching out to you experts as I’m not sure what else to do. I’m tr...

sarahsea

•3 years ago

2 Replies

Second Dose of Pfizer

Second dose of Pfizer yesterday evening. All very quick and straightforward and the centre has improved the way it processes people since February. I felt very...

Second dose of Pfizer yesterday evening. All very quick and straightforward and ...

WinterSwimmer

•3 years ago

9 Replies

Dry, dull Hair

Hello all, I know that hair problems are not that big of a deal for some of us with lupus, but I'm tired of my hair being dry, no shine and itchy at times. My...

Hello all, I know that hair problems are not that big of a deal for some of us w...

MorIlse

•3 years ago

28 Replies

INTERSTITIAL CYSTITIS/BLADDER PAIN SYNDROME (IC

Hello all, Along with JRA and LS I also suffer from IC (as above). Does anyone have any home cures, treatments to suggest or just comment on this very...

Hello all, Along with JRA and LS I also suffer from IC (as above). Does anyone ...

Hidden

•3 years ago

18 Replies

Thank you

Hello my friends .just a quick update finally getting better from all the excitement over Xmas . Slowly the blood clot has gone and the infection. But have 30...

Hello my friends .just a quick update finally getting better from all the excite...

Barb50

•3 years ago

6 Replies

Same vaccine

Hi Can anyone tell me, if when you are told to book in for your second vaccine will the place know if it the same vaccine that you have already had or does it...

Hi Can anyone tell me, if when you are told to book in for your second vaccine w...

Cal66

•3 years ago

20 Replies

Has anyone else suffered breast tenderness?

Hi just wondered if anyone else has had breast tenderness on one side and numbness and tingling in arm. Not really painful more like pins and needles. I have...

Hi just wondered if anyone else has had breast tenderness on one side and numbne...

Hidden

•3 years ago

10 Replies

Delayed reaction ?

Hi all. Hope you as well as can be expected! Has anyone had a delayed reaction to the AZ jab? As in 6 weeks? I was fine then gradually felt a flare coming on....

Hi all. Hope you as well as can be expected! Has anyone had a delayed reaction t...

Potatoheat

•3 years ago

2 Replies

Can't speak to a dr. Any ideas?

Hi you lovely people. I hope your enjoying the sun. (Even though most of us have to do it through the windows or in the shade) but nice to see some brightness...

Hi you lovely people. I hope your enjoying the sun. (Even though most of us have...

Hidden

•3 years ago

18 Replies

Negative ANA Test & New Rash (photo)

Hi! I had my first set of bloods done this week and everything came back clear. My symptoms are starting to really control my life now and movement is becoming...

Hi! I had my first set of bloods done this week and everything came back clear. ...

nim98

•3 years ago

12 Replies

Happy Spring and Easter from Gigi

Gigi wishes everyone a "Pawsome" Spring and Easter!

Pumpkin2009

•3 years ago

11 Replies

Happy Spring and Easter from Pumpkin

Pumpkin wants to wish everyone a "Purrfect" Spring and Easter!

Pumpkin2009

•3 years ago

11 Replies

Mycophenolate mofetil- CellCept

Hello, I hope all of you are safe and well! I just been prescribed Mycophenolate Mofetil on an increasing dose for next month and never taken this before. What...

Hello, I hope all of you are safe and well! I just been prescribed Mycophenolate...

MadT

•3 years ago

13 Replies

Helping me understand lupus

I am new here and am a writer working on a story where the central character learns she is sick and that she appears to show all the signs of a cancer - it...

I am new here and am a writer working on a story where the central character lea...

MoFanning

•3 years ago

31 Replies

World Lupus Federation Survey - Impact of the COVID-19 pandemic for people with lupus

Hi everyone, The World Lupus Federation has launched an online survey to examine the impact of the COVID-19 pandemic for people with lupus. This anonymous...

Hi everyone, The World Lupus Federation has launched an online survey to examine...

Paul_Howard

Partner•3 years ago

3 Replies

Lupus and date dilemma

Hi all, hope you're doing well. So, I'll do the first part in bullet points; I'm highly sensitive to the sun Been online dating for years on and off, last...

Hi all, hope you're doing well. So, I'll do the first part in bullet points; I...

Comeonpeeps

•3 years ago

44 Replies

Vaccine

I’m a discord lupus sufferer and I’m just enquiring does the vaccine have any effect if I get it done I’m actually quite frightened to get it done as I feel...

I’m a discord lupus sufferer and I’m just enquiring does the vaccine have any ef...

Beaufort10

•3 years ago

5 Replies

Man should embrace nature

Hello all you lovely nature lovers. I know you’ll agree that this is the relationship we should have with nature: one of love, trust, and respect for one...

Hello all you lovely nature lovers. I know you’ll agree that this is the relati...

Spotty-ewe

•3 years ago

37 Replies

It’s Monthly Monday Mira 🐶🐶🐶

Hi 🙋‍♀️ folks hope everyone is doing ok - this month’s picture of Mira is her looking very grown up - she’s 1 on 10th April - her anxiety is getting better...

Hi 🙋‍♀️ folks hope everyone is doing ok - this month’s picture of Mira is her l...

svfarmer

•3 years ago

47 Replies

Covid-19-vaccines-immunogenic-in-people-with-rheumatic-diseases

https://rheumatology.medicinematters.com/covid-19/vaccination/covid-19-vaccines-immunogenic-in-people-with-rheumatic-diseases/19009228?utm_source=OneSignal&utm_

https://rheumatology.medicinematters.com/covid-19/vaccination/covid-19-vaccines-...

PMRpro

•3 years ago

8 Replies

THE USE OF DAPSONE FOR SUBCUTANEOUS ISSUES

Has anyone else been prescribed the Medication DAPSONE? I initially was prescribed the usual suspect (meds)when I was first diagnosed with Panniculitus in...

Has anyone else been prescribed the Medication DAPSONE? I initially was prescrib...

Goinglong10

•3 years ago

6 Replies

Here's something different!.

Hello everyone Just thought id post this lovely pic of these Sumatran Oranguatan's who are being rehabillitated in a special centre before being released back...

Hello everyone Just thought id post this lovely pic of these Sumatran Oranguatan...

misty14

•3 years ago

45 Replies

Are you feeling safer after COVID jab?

I’m 3 weeks on from my first COVID jab-hooray! I just wondered how others who’ve had theirs (maybe the second too) were feeling now? I don’t mean side...

I’m 3 weeks on from my first COVID jab-hooray! I just wondered how others who’ve...

panther50

•3 years ago

23 Replies

Will active lupus, as well as attacking my body, be more or less likely to successfully attack a virus?

Autoimmune disease and fighting Covid

Clairedown

•3 years ago

19 Replies

Today is the day

Thought they'd forgotten me or I didn't fit the criteria with UCTD on hydroxychloriquine but i have had a text and I'm getting the vaccine today. So is my...

Thought they'd forgotten me or I didn't fit the criteria with UCTD on hydroxychl...

BonnyB

•3 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2021

Just wondering...

Mood changes from medication reduction

Sero negative

Tool to support clinicians treating acute patients with chronic underlying conditions

Re post vivid 19 vaccine Will we be given the same

Oregano Oil + Hydroxychloroquine

Second Dose of Pfizer

Dry, dull Hair

INTERSTITIAL CYSTITIS/BLADDER PAIN SYNDROME (IC

Thank you

Same vaccine

Has anyone else suffered breast tenderness?

Delayed reaction ?

Can't speak to a dr. Any ideas?

Negative ANA Test & New Rash (photo)

Happy Spring and Easter from Gigi

Happy Spring and Easter from Pumpkin

Mycophenolate mofetil- CellCept

Helping me understand lupus

World Lupus Federation Survey - Impact of the COVID-19 pandemic for people with lupus

Lupus and date dilemma

Vaccine

Man should embrace nature

It’s Monthly Monday Mira 🐶🐶🐶

Covid-19-vaccines-immunogenic-in-people-with-rheumatic-diseases

THE USE OF DAPSONE FOR SUBCUTANEOUS ISSUES

Here's something different!.

Are you feeling safer after COVID jab?

Will active lupus, as well as attacking my body, be more or less likely to successfully attack a virus?

Today is the day

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive