Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2021

A warning about SAMe supplement

Hi, hope everyone is having a good day. I'm just posting this as a cautionary tale for anyone thinking of trying SAMe as a supplement. It's sometimes...

Hi, hope everyone is having a good day. I'm just posting this as a cautionary ta...

•3 years ago

Give your views to Cabinet office consultation on disability - https://disabilityunit.citizenspace.com/cabinet-office/ukdisabilitysurvey/

Chance to contribute to a consultation on disability from cabinet office - also sent in some papers and other information which they accepted - survey is...

Chance to contribute to a consultation on disability from cabinet office - also ...

•3 years ago

Lupus & COVID-19 Vaccination - UPDATED 03/02/2021

Hi everyone, We have updated our information and guidance about lupus and COVID19 vaccination: www.lupusuk.org.uk/covid19-vaccination The latest update...

Hi everyone, We have updated our information and guidance about lupus and COVID...

Partner•3 years ago

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Has anyone had a lupus flare after having the Covid vaccine?

I am due to have my vaccination (Pfizer) on Saturday and am worried in case it triggers a flare, should I follow my usual regime of taking 25mg prednisolone...

I am due to have my vaccination (Pfizer) on Saturday and am worried in case it t...

•3 years ago

BBC interviewing me on lupus (and other related diseases) and the pandemic - what do YOU all think it's important to include please?

Hello, some of you may have seen that we've published research on medical relationships, misdiagnoses etc, and recently on COVID, including the impact on our...

Hello, some of you may have seen that we've published research on medical relati...

•3 years ago

Swollen ankles both sides

Not sure if this is part of lupus, but my ankles are getting a lot worse . I have a phone appointment with Rheumatology this Thursday , just think most things...

Not sure if this is part of lupus, but my ankles are getting a lot worse . I ha...

•3 years ago

Hi guys. I spoke to my consultant today and he dismissed my light sensitivity as not being part of lupus. Said uncommon?

I guess I'm questioning this. As he only really seems concerned with joints.

I guess I'm questioning this. As he only really seems concerned with joints.

•3 years ago

COVID vaccine

Hi I am due to get vaccine soon but was wondering do we still have to shield after the first, I’m working from home but getting pressured to return to office

Hi I am due to get vaccine soon but was wondering do we still have to shield af...

•3 years ago

Low platelets, ITP and SLE

I read somewhere that if you have a low platelet count, mine is 38/40 , not to have the Pheizer jab. Does anyone have any knowledge of this. I am currently...

I read somewhere that if you have a low platelet count, mine is 38/40 , not to ...

•3 years ago

Lupus /vaccine

Hi everyone just asking with the covid vaccine with lupus would u be in catergory 4 or 6 thank you

Hi everyone just asking with the covid vaccine with lupus would u be in catergor...

•3 years ago

Lupus - how can I help myself?

Hello I’m new to this and am only just accepting my lupus after 2 years diagnosis! Can anyone recommend any great self help guides/books please. My lupus is...

Hello I’m new to this and am only just accepting my lupus after 2 years diagnosi...

•3 years ago

Secondhand Smoke and Lupus

Anyone else find that exposure to second hand smoke makes their overall Lupus symptoms worse? (As well as significantly effecting breathing) My mum and...

Anyone else find that exposure to second hand smoke makes their overall Lupus sy...

•3 years ago

Quick Question to anyone previously shielding, over 70 and in Scotland

Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as...

Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping ...

•3 years ago

Feeling upset with rheumy

Hi everyone. I'm feeling like my rheumy is just ignoring my pleas when I'm telling him about my pain and fatigue. Had some bloods done last week. I had to...

Hi everyone. I'm feeling like my rheumy is just ignoring my pleas when I'm telli...

•3 years ago

Hyperactive without steroids

Do any other lupus sufferers have what you might describe as the opposite of brain fog; ie thoughts going far too fast and far too many of them at the same...

Do any other lupus sufferers have what you might describe as the opposite of bra...

•3 years ago

Covid 19 injection with lupus

Hello everyone, I feel like I am being pressured by my doctors to have the covid 19 injection. I have said no at the moment as I feel I do not have enough...

Hello everyone, I feel like I am being pressured by my doctors to have the covi...

•3 years ago

Managing Brain Fog

Hi everyone, happy Monday! I know for a lot of us SLE folk Mondays can be particularly challenging as the week resets, so just sending positivity out to all....

Hi everyone, happy Monday! I know for a lot of us SLE folk Mondays can be parti...

•3 years ago

Vaccine

Feeling apprehensive now about having the jab when I get the notice. I had covid back in march/,April. Reading some of your reactions. I have the flu jab each...

Feeling apprehensive now about having the jab when I get the notice. I had covid...

•3 years ago

ANA 1:80 titre positive?

Could anyone advise me if an ANA of 1:80 titre is considered positive for Lupus?

Could anyone advise me if an ANA of 1:80 titre is considered positive for Lupus?...

•3 years ago

Post covid symptoms

Hi all. glad I found this site and can read others stories. I’m undiagnosed but believe I have Lupus, it’s a battle! Waiting to see a recommended...

Hi all. glad I found this site and can read others stories. I’m undiagnosed but...

•3 years ago

Covid positive with signs and symptoms any treatment by doctor ?

Goodmorning all . Please has anyone had covid signs and symptoms with a positive test ?( chest cough , sneezing , feeling generally unwell etc ) What...

Goodmorning all . Please has anyone had covid signs and symptoms with a positiv...

•3 years ago

1st time out of the home an important day.

Hi everyone, hope you're all keeping well. Well I actually left my home Saturday the 1st time since last March. I felt extremely anxious and had fluttering in...

Hi everyone, hope you're all keeping well. Well I actually left my home Saturday...

•3 years ago

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