Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2021

Hypochondriac or not ...... 🤔

My husband thinks I’m an hypochondriac ! I have recently broke my fibula. I have lupus SLE and fibromyalgia and APS. My pain in my leg is still really...

My husband thinks I’m an hypochondriac ! I have recently broke my fibula. I ha...

rafael

•3 years ago

24 Replies

For all cat lovers

Poem and picture

Willow1414

•3 years ago

1 Reply

The London Lupus & Rheumatology Centre

Hi everyone, I was diagnosed with Lupus in 2019. It has been a constant and ongoing battle to get my lupus under control. I am considering whether to receive...

Hi everyone, I was diagnosed with Lupus in 2019. It has been a constant and ong...

SLE-Warrior

•3 years ago

6 Replies

Want to take advantage of all our features? Just log in!

NHS COVID-19 APP

Hi, does anyone knows how this app works? I received this notification from the app earlier but I rarely use the app and Im quite clueless. I am now worried...

Hi, does anyone knows how this app works? I received this notification from the ...

Iamnotmydiagnosis

•3 years ago

4 Replies

Getting There

Well I cannot knit, crochet, sew but I have been trying unsuccessfully to make sourdough bread. I make yeasted bread three times a week, I make pizza dough,...

Well I cannot knit, crochet, sew but I have been trying unsuccessfully to make s...

CecilyParsley

•3 years ago

55 Replies

Oxford Vaccine

Wonderful news. Last night I had my first vaccine. I am over the moon. No side effects at all so far. ❤️💉

Wonderful news. Last night I had my first vaccine. I am over the moon. No side e...

CecilyParsley

•3 years ago

48 Replies

Disability Benefits Workshops

LUPUS UK is working with Chronic Creatives, a disability organisation, to present a short series of workshops about disability benefits each Saturday from 27th...

LUPUS UK is working with Chronic Creatives, a disability organisation, to presen...

Chanpreet_Walia

LUPUS UK•3 years ago

4 Replies

Group 6 vaccinations

Has anyone in group 6 had their COVID vaccination yet? You’ll be group 6 if you’re under 65, with lupus but on no meds or just on hydroxychloriquine or are you...

Has anyone in group 6 had their COVID vaccination yet? You’ll be group 6 if you’...

panther50

•3 years ago

20 Replies

ANA

Hi, My bloods came back positive for Lupus and the Dr told me it was Lupus. I have all the symptoms and have been ill for about six years. I had my 1st F2F...

Hi, My bloods came back positive for Lupus and the Dr told me it was Lupus. I ha...

Molly2012

•3 years ago

18 Replies

Surprise

Hi everyone, I had a lovely surprise on Friday. Being one of the patients in limbo for many years, no real diagnosis. I was not on the vulnerable list for...

Hi everyone, I had a lovely surprise on Friday. Being one of the patients in lim...

Muff20

•3 years ago

4 Replies

A link to somebody who truly understands us

The link below is of Miranda Hart talking about chronic illness. It came to me via Cuttysark and Misty, who are still suffering after their Pfizer vaccines,...

The link below is of Miranda Hart talking about chronic illness. It came to me ...

Spotty-ewe

•3 years ago

86 Replies

Belimumab and Pfizer Vaccine

I would like to know if there is any protocol on Belimumab and Covid vaccine. I have been offered a Belimumab therapy only a few weeks after Pfizer Vaccine...

I would like to know if there is any protocol on Belimumab and Covid vaccine. I...

Paprika60

•3 years ago

16 Replies

Anyone get rashes like these night time

Just to add to my other post this is the other rash I got as well as red patches on skin. Anyone had similar or know what it is x

Just to add to my other post this is the other rash I got as well as red patches...

Buckley123

•3 years ago

1 Reply

Post vaccine update

Its been a day since Ive received the vaccine and I have been feeling **** the whole day. Last night I was feeling feverish, woke up in the middle of the night...

Its been a day since Ive received the vaccine and I have been feeling **** the w...

Iamnotmydiagnosis

•3 years ago

7 Replies

Covid with sle and vaccine

I had covid last November and was diagnosed in 2007 with sle, discoid, Raynaulds. Also have arthritis and diverticulitis. Sailed through covid but the after...

I had covid last November and was diagnosed in 2007 with sle, discoid, Raynaulds...

amwas

•3 years ago

1 Reply

I was left off the shielding list by mistake, I am now on it, but no letter or vaccine offer after 2 weeks. Am I being impatient?

Anyone else in the same situation and not knowing where to find out or get help?

Anyone else in the same situation and not knowing where to find out or get help?...

peppa

•3 years ago

28 Replies

2nd PIP Tribunal on Wednesday

So I’ve got my second PIP Tribunal on Wednesday (because my first Tribunal was later found to have been unlawful) and have to go through it all again, as if...

So I’ve got my second PIP Tribunal on Wednesday (because my first Tribunal was l...

LilyMistri2

•3 years ago

13 Replies

Positive anti chromatin and anti histones

I was diagnosed with lupus about 3.5 years ago, after suffering for 6 years prior. My family dr was treating me for fibromyalgia with little relief, and I...

I was diagnosed with lupus about 3.5 years ago, after suffering for 6 years prio...

Jodirae

•3 years ago

2 Replies

Swelling

Hey I just wondered if anyone else has swelling in their face due to some medications? I have been googling and seen people call it “moon face” which I...

Hey I just wondered if anyone else has swelling in their face due to some medica...

Nessa173

•3 years ago

23 Replies

What does "High" mean really?

If I have antibodies flagged as "high" on a blood test which are associated with Sjogren's (Anti-SS-B), Polymyositis (Anti-Jo-1) and SLE (Ribosomal P), does...

If I have antibodies flagged as "high" on a blood test which are associated with...

MotorCityGirl

•3 years ago

11 Replies

Rashes since vaccine

Hello you lovely lot ! How are you all? I’m still plodding along no further forward with diagnosis how ever things got worse joint wise and feeling unwell...

Hello you lovely lot ! How are you all? I’m still plodding along no further for...

Buckley123

•3 years ago

28 Replies

Many thanks 💐

Grateful thanks to all who responded to my last post about choice of ways to reduce constipation. 😀 The prunes worked and are now going to be a regular...

Grateful thanks to all who responded to my last post about choice of ways to red...

Bronn

•3 years ago

14 Replies

Had my first dose of Vaccine- AstraZeneca

I got a text from my GP yesterday to book for appointment for my vaccine. I then went and had my first dose today at 1050am. It is now 1230pm and my arm stings...

I got a text from my GP yesterday to book for appointment for my vaccine. I then...

Iamnotmydiagnosis

•3 years ago

5 Replies

Oxford vaccine

Hi, i have systemic lupus and I’m currently not on any medication or treatment I’m getting the Oxford vaccination next week and I just wondered if anybody else...

Hi, i have systemic lupus and I’m currently not on any medication or treatment I...

Rufioxox

•3 years ago

70 Replies

Vaccine + SLE

Hello, I was wondering if anyone with SLE and or Lupus Nephritis taken the covid vaccine? Any thing to prepare for would be helpful

Hello, I was wondering if anyone with SLE and or Lupus Nephritis taken the covid...

HappyVibes21

•3 years ago

9 Replies

Lupus weight loss

My brother was diagnosed with Lupus in September been ill for around 15 months he’s lost 5 stone in weight now is only 6.5 stone is very weak having difficulty...

My brother was diagnosed with Lupus in September been ill for around 15 months h...

Tess1963

•3 years ago

10 Replies

Vaccine

Hi all, Today my sister and I went for for our vaccines today. Unfortunately, when we got there we found it was the Pfizer they were doing, so because of our...

Hi all, Today my sister and I went for for our vaccines today. Unfortunately, w...

Cal66

•3 years ago

7 Replies

Am I finally being listened to?

I had yet another phone appointment today with Dermatology, strange really as they can't see what's actually happening so they're working blind. Anyway for a...

I had yet another phone appointment today with Dermatology, strange really as th...

Boudica1

•3 years ago

2 Replies

Vaccine

So I got the Oxford vaccine and I’ve felt nauseous from about half hour later. Did this happen to anyone feel this..... I’ve no other symptoms Thankyou lovely...

So I got the Oxford vaccine and I’ve felt nauseous from about half hour later. D...

Bellissimo

•3 years ago

12 Replies

Neurology Telephone Appointment

Well that was strange. A Rheumatologist rang me as per my letter and his first words were Mrs Anderson dear why am I ringing you 😳I told him I was also...

Well that was strange. A Rheumatologist rang me as per my letter and his first w...

CecilyParsley

•3 years ago

26 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2021

Hypochondriac or not ...... 🤔

For all cat lovers

The London Lupus & Rheumatology Centre

NHS COVID-19 APP

Getting There

Oxford Vaccine

Disability Benefits Workshops

Group 6 vaccinations

ANA

Surprise

A link to somebody who truly understands us

Belimumab and Pfizer Vaccine

Anyone get rashes like these night time

Post vaccine update

Covid with sle and vaccine

I was left off the shielding list by mistake, I am now on it, but no letter or vaccine offer after 2 weeks. Am I being impatient?

2nd PIP Tribunal on Wednesday

Positive anti chromatin and anti histones

Swelling

What does "High" mean really?

Rashes since vaccine

Many thanks 💐

Had my first dose of Vaccine- AstraZeneca

Oxford vaccine

Vaccine + SLE

Lupus weight loss

Vaccine

Am I finally being listened to?

Vaccine

Neurology Telephone Appointment

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