Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for February 2021

Face to Face

Dear all I had my long awaited face to face last Thursday . I Also had my first covid jab on the same day . I have mentioned my extreme flaring recently ....

Dear all I had my long awaited face to face last Thursday . I Also had my firs...

Willow1414

•3 years ago

8 Replies

Recently diagnosed

I've recently been told I may have Lupus, waiting for confirmation from my specialist. Tbh I know very little about it. I have severe pain in both my ankles,...

I've recently been told I may have Lupus, waiting for confirmation from my speci...

Jojo978

•3 years ago

8 Replies

For cat 🐈 lovers

Hope this gives you all a laugh on a Sunday 😂💕

svfarmer

•3 years ago

11 Replies

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Confused!!! Please please help

So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out...

So I have been struggling with quite a lot of symptoms for a while (since I was ...

simit

•3 years ago

4 Replies

Disability Benefits Workshop on the History of PIP and Daily Living Component starting at 4pm today

Download the presentation slides for our Disability Benefits Workshop on the History of PIP and Daily Living Component starting at 4pm today via...

Download the presentation slides for our Disability Benefits Workshop on the His...

Chanpreet_Walia

LUPUS UK•3 years ago

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Myasthenia and Lupus?

Has anyone on here with double vision gone on to be investigated for, or diagnosed with, myasthenia gravis? I've had a Lupus diagnosis for 20 years with double...

Has anyone on here with double vision gone on to be investigated for, or diagnos...

Cathyan

•3 years ago

23 Replies

Pfizer vaccine good news(?)

https://www.theguardian.com/society/2021/feb/26/single-pfizer-jab-can-reduce-asymptomatic-covid-infections-by-75 This seems to be good news about the efficacy...

https://www.theguardian.com/society/2021/feb/26/single-pfizer-jab-can-reduce-asy...

WinterSwimmer

•3 years ago

1 Reply

Drug induced lupus - what to expect?

I’ve been lurking here for a while and feel a fraud as my diagnosis is DIL, so apologies for what must be a trivial question to those of you in it for the long...

I’ve been lurking here for a while and feel a fraud as my diagnosis is DIL, so a...

PurpleNDH

•3 years ago

1 Reply

Low sats anyone?

Good morning you lovely people. I just wanted to ask do any of you suffer with low sats? Iv had a year from hell lol. I lost 4.5 stone last year was dreadfully...

Good morning you lovely people. I just wanted to ask do any of you suffer with l...

Hidden

•3 years ago

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Thank you

Hey all! So I had my phone interview this week with the private company the NHS use to triage people who ask to move to a different rheumy. I begged the rheumy...

Hey all! So I had my phone interview this week with the private company the NHS ...

Insomniacette

•3 years ago

5 Replies

All those who have been in a flare recently, how are you doing?

I know that there have been a number of us flaring recently and I’m just wondering how you all are? I can’t remember everyone because of stupid brain fog. I...

I know that there have been a number of us flaring recently and I’m just wonder...

happytulip

•3 years ago

29 Replies

Share you experiences of belimumab (Benlysta)

Hi everyone, You may be aware that LUPUS UK is a stakeholder in the current NICE appraisal process for belimumab (Benlysta), which we hope will result in more...

Hi everyone, You may be aware that LUPUS UK is a stakeholder in the current NICE...

Paul_Howard

Partner•3 years ago

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LUPUS UK Live Virtual Seminar - "Diet & Nutrition in Lupus" - TODAY 6pm (GMT)

Hi everyone, Just a quick reminder that this evening from 6pm (GMT) we will be live with the next in our series of virtual seminars. This evening I will be...

Hi everyone, Just a quick reminder that this evening from 6pm (GMT) we will be l...

Paul_Howard

Partner•3 years ago

15 Replies

Zoe covid symptom study webinar - vaccine and efficacy in those with compromised immune systems.

Hello all! I’ve received an email today from the ‘Zoe Covid Symptom Study’ and thought it might be of interest to some people on the forum. There is a...

Hello all! I’ve received an email today from the ‘Zoe Covid Symptom Study’ and ...

Susieliz39

•3 years ago

4 Replies

Vaccine and lupus

Hello everybody! I've found an article about lupus and vaccine. Vaccines like tetano vaccine could activate lupus disease. I don't know if it could be...

Hello everybody! I've found an article about lupus and vaccine. Vaccines like te...

Pabla_1234

•3 years ago

2 Replies

COVID vaccines and immune system webinar

Hi everyone. These webinars are really informative about various aspects of COVID vaccine. They also include medical professionals who speak on the relevant...

Hi everyone. These webinars are really informative about various aspects of COV...

magSLE

•3 years ago

1 Reply

Have you had severe facial itching with SLE?

Hi, I am having severe itching on my face, neck, ears and eyebrows which is now starting into my eyelids. Waiting for ESR results and taking Telfast which is...

Hi, I am having severe itching on my face, neck, ears and eyebrows which is now...

kareng74

•3 years ago

2 Replies

Should I or shouldn't I?

Hi I am new here...I was invited by GP to have vaccine today (Oxford) and tbh I am so scared that I declined! I said I wanted time to think/research. I have...

Hi I am new here...I was invited by GP to have vaccine today (Oxford) and tbh I ...

SueW64

•3 years ago

8 Replies

Gastritis autoimmune??

Hi, I'm not sure I'm posing this question to the correct group?? I have Hypothyroidism, mild Sjogrens & have also just had gastroscopy confirming gastritis. Im...

Hi, I'm not sure I'm posing this question to the correct group?? I have Hypothyr...

Minimouse1

•3 years ago

1 Reply

Cannabis

Hi, I'm posting for my cousin who was diagnosed as having lupus. Has anyone tried cannabis, if so did it help. I'm researching this disease in the hope I may...

Hi, I'm posting for my cousin who was diagnosed as having lupus. Has anyone tri...

Geegee777

•3 years ago

8 Replies

Anyone have thyroid issues?

Anyone diagnosed with Lupus also have thyroid problems? After a recent ongoing visit to A and E due to heart rate 180 and above for 12 hours, advised I have...

Anyone diagnosed with Lupus also have thyroid problems? After a recent ongoing v...

Michellear

•3 years ago

73 Replies

My lupus warriors

Hi everyone . I am new to this group. I live in Memphis, TN and I attend college. I had lupus/ Mixed Connective Tissue disease and several other chronic...

Hi everyone . I am new to this group. I live in Memphis, TN and I attend college...

Hidden

•3 years ago

13 Replies

Reducing Lansoprazole and oesophical spasms

I have been on a ppi for probably 20 years now but have oesteoporosis and SIBO now too which can be caused by long term ppi treatment. I wanted to ask if any...

I have been on a ppi for probably 20 years now but have oesteoporosis and SIBO n...

Halfwayuphill

•3 years ago

1 Reply

Inflammation symptoms during period.

Hi there, I am newly diagnosed with Lupus. Been taking Hydroxychlorquine for 8 months and it has improved the aches on both ankles, joints, mouth ulcers,...

Hi there, I am newly diagnosed with Lupus. Been taking Hydroxychlorquine for 8 m...

Sunflowers_2020

•3 years ago

15 Replies

Just for ewe Stiff19, Whisperit and Spottyewe!

I’ve been inspired by all the crafty folk on here and as I’m at home on long term sick, I thought I’d give it a go!! This is my first attempt at felting and...

I’ve been inspired by all the crafty folk on here and as I’m at home on long te...

Susieliz39

•3 years ago

45 Replies

Daft Chickens 🐓

Had to share this with you all - just went up to clean the chickens out and there were 3 in the same nesting box - don’t know if you can see but there is a...

Had to share this with you all - just went up to clean the chickens out and ther...

svfarmer

•3 years ago

40 Replies

What a surprise!

Hello, had to share. Can’t believe it, a blue envelope has just dropped on the mat and I’ve got an appointment for my vaccine on Sunday at 4pm. So now I can...

Hello, had to share. Can’t believe it, a blue envelope has just dropped on the ...

Froggie70

•3 years ago

24 Replies

Any advice welcome please

Can anyone help with some information? I have SLE, Reynaulds and am on low dose steroids. I’ve was put in the wrong vaccine group. The GP agreed and after...

Can anyone help with some information? I have SLE, Reynaulds and am on low dose...

panther50

•3 years ago

9 Replies

Lupus life insurance is it possible!

Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better...

Hi everyone, it’s been a very long time since I’ve posted anything on this forum...

Wolf_1

•3 years ago

10 Replies

Ro positive

Hi everyone Hope you're all doing ok and keeping your spirits up somehow. Just wondering if anyone else has had this and what it means from a lay person...

Hi everyone Hope you're all doing ok and keeping your spirits up somehow. Just w...

Lioness42

•3 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2021

Face to Face

Recently diagnosed

For cat 🐈 lovers

Confused!!! Please please help

Disability Benefits Workshop on the History of PIP and Daily Living Component starting at 4pm today

Myasthenia and Lupus?

Pfizer vaccine good news(?)

Drug induced lupus - what to expect?

Low sats anyone?

Thank you

All those who have been in a flare recently, how are you doing?

Share you experiences of belimumab (Benlysta)

LUPUS UK Live Virtual Seminar - "Diet & Nutrition in Lupus" - TODAY 6pm (GMT)

Zoe covid symptom study webinar - vaccine and efficacy in those with compromised immune systems.

Vaccine and lupus

COVID vaccines and immune system webinar

Have you had severe facial itching with SLE?

Should I or shouldn't I?

Gastritis autoimmune??

Cannabis

Anyone have thyroid issues?

My lupus warriors

Reducing Lansoprazole and oesophical spasms

Inflammation symptoms during period.

Just for ewe Stiff19, Whisperit and Spottyewe!

Daft Chickens 🐓

What a surprise!

Any advice welcome please

Lupus life insurance is it possible!

Ro positive

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