Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2021

Medication question....

I am new to lupus. I noticed today with my Plaquenil, they are giving me folic acid pills. Is that something to do with lupus treatment?

I am new to lupus. I noticed today with my Plaquenil, they are giving me folic a...

Willow7733

•3 years ago

4 Replies

Seeking a volunteer to be interviewed about lupus and COVID-19 vaccination for BBC News Website - NOW CLOSED

***Thank you so much to those who volunteered for this interview. It has now been completed and we await the publication of the story.*** Hi everyone,...

***Thank you so much to those who volunteered for this interview. It has now bee...

Paul_Howard

Partner•3 years ago

1 Reply

Fluoxetine

Hi been on fluoxetine for nearly 6 weeks, still getting morning anxiety and sweating at night with palpitations, could this be normal, Need some advice 🤔

Hi been on fluoxetine for nearly 6 weeks, still getting morning anxiety and sw...

Kimba50

•3 years ago

1 Reply

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They said the world was closed today

I saw this elsewhere and had to share it. “They said the world was closed today So I went to have a look, I found it with the shutters down And the phone was...

I saw this elsewhere and had to share it. “They said the world was closed toda...

MoominMomma

•3 years ago

4 Replies

Burning and tingling through out body and chest/lung area?

Hello, I may have asked this before, sorry, or it may have been my Lyme group, I have horrible burning sensations and all over bone and muscle pain when I’m...

Hello, I may have asked this before, sorry, or it may have been my Lyme group, ...

Nvrenfhorses2

•3 years ago

2 Replies

PMR site

Sorry to sound really dim but what is the PMR site? And where do I find it?

megx3

•3 years ago

1 Reply

Cute coupling

Hello everyone Hope your coping with this cold, grey weather. This weeks pic is of another friendship between a shire horse and a shetland pony, We had one a...

Hello everyone Hope your coping with this cold, grey weather. This weeks pic i...

misty14

•3 years ago

33 Replies

Covid vaccine taken

Hi All, I work in the NHS and had my Covid vaccine yesterday. The only side effects am experiencing now is a sore arm.

Hi All, I work in the NHS and had my Covid vaccine yesterday. The only side ef...

Jesse040501

•3 years ago

4 Replies

New diagnosis...

Hi! I am currently in the hospital (3 weeks now) for blood clots in my lungs, left leg, and near my heart. I was just seen this week by a rheumatologist, and...

Hi! I am currently in the hospital (3 weeks now) for blood clots in my lungs, le...

Willow7733

•3 years ago

46 Replies

Vaccine

Hi I work in the NHS and have had SLE lupus nephritis since 2015. I'm on steroids and hydroxy I'm very confused about which vaccine to have as I have read so...

Hi I work in the NHS and have had SLE lupus nephritis since 2015. I'm on steroi...

ajanjua

•3 years ago

13 Replies

Interesting TV

The diagnosis detectives BBC. What a fantastic team of Dr's all working together, giving answers and relief to so many. I particularly found the story of...

The diagnosis detectives BBC. What a fantastic team of Dr's all working together...

BonnyB

•3 years ago

6 Replies

Covid vaccine risks and side effects: the German take from Deutsche Welle

Nothing is yet known about possible long-term effects of the individual vaccines. Only the long-term studies that accompany the vaccinations worldwide and will...

Nothing is yet known about possible long-term effects of the individual vaccines...

eekt

•3 years ago

10 Replies

Lupus SLE on steroids, but in group 9 for COVID vaccination?

Hoping someone here can help me. I’m feeling really fed up! I’ve had SLE for 10 years, I’m on a v low dose of prednisone (& have been for 10 years)....

Hoping someone here can help me. I’m feeling really fed up! I’ve had SLE for 10 ...

panther50

•3 years ago

23 Replies

Oxford vaccine

So it's just said that we shouldn't have the Oxford vaccine because it is a synthetic live vaccine. My lupus specialist said they weren't live. Which is right,...

So it's just said that we shouldn't have the Oxford vaccine because it is a synt...

Hunnibunni

•3 years ago

44 Replies

When will MXT kick in

Happy new year everyone. I wonder if I could have advice on methotrexate. I was started on MXT 15mg in March last year. I was weaned off prednisolone in July...

Happy new year everyone. I wonder if I could have advice on methotrexate. I was ...

Mmafox

•3 years ago

7 Replies

covid patch

just seen an article online about a welsh company developing a patch for covid which will administer the vaccine and also be able to tell whether you are...

just seen an article online about a welsh company developing a patch for covid w...

suzannah16

•3 years ago

7 Replies

DLE (lupus)

I am on mycophenolate and steroids. I spoke to my drs and they checked my records and said that because of my age I am still 7th in the order for the covid...

I am on mycophenolate and steroids. I spoke to my drs and they checked my record...

Jadelee28

•3 years ago

19 Replies

SLE - to sheild or not to sheild

Good morning all This may not be the same for most people with SLE taking the same meds as me ; as we all know lupus has many faces, but this advise...

Good morning all This may not be the same for most people with SLE taking the s...

Nickymck

•3 years ago

Be the first to reply

New member

Hi I’m new here I’ve had SLE for a few years now it has been inactive for the last two years then back in March I went into the worst flare I’ve had yet. I’ve...

Hi I’m new here I’ve had SLE for a few years now it has been inactive for the la...

Minamoo1

•3 years ago

22 Replies

Why me? Thoughts

Hi all, Not having a good evening here. I am so upset, frustrated and don't know what else. I got a consultant call like 20 minutes ago. I rang up this...

Hi all, Not having a good evening here. I am so upset, frustrated and don't kno...

LouLamb

•3 years ago

43 Replies

Feeling Niave!!

Ok..so I haven't been diagnosed with lupus, or any another autoimmune disease as I've said in previous posts.. Another round of blood tests results were back...

Ok..so I haven't been diagnosed with lupus, or any another autoimmune disease as...

SallyB777

•3 years ago

1 Reply

Lupus and Coronavirus (COVID-19) - UPDATED 05/01/2021

Hi everyone, We have updated our information and guidance about lupus and COVID-19: https://www.lupusuk.org.uk/coronavirus/. If you are in the "clinically...

Hi everyone, We have updated our information and guidance about lupus and COVID-...

Paul_Howard

Partner•3 years ago

2 Replies

Hey my first post

Hey is there anyone similar age to me with lupus that I could chat with Im 18 and is in the process of being tested for lupus

Hey is there anyone similar age to me with lupus that I could chat with Im 18 an...

SkylerFay

•3 years ago

2 Replies

Share your experiences of the COVID-19 pandemic for online UK-based research study

Researchers conducting a COVID-19 UK-based online research survey are looking for people with rheumatological diseases to report their experiences with...

Researchers conducting a COVID-19 UK-based online research survey are looking f...

Chanpreet_Walia

LUPUS UK•3 years ago

12 Replies

Lupus & COVID-19 Vaccination - UPDATED 05/01/2021

Hi everyone and Happy New Year! I hope that you have been keeping well and had a peaceful time over the festive period. We have updated our article with...

Hi everyone and Happy New Year! I hope that you have been keeping well and had a...

Paul_Howard

Partner•3 years ago

6 Replies

Subs

How do I pay my subscription online for 2021

SamSophie

•3 years ago

5 Replies

Looking down over Bassenthwaite lake

And another one x

Maddymay65

•3 years ago

3 Replies

Getting some fresh air... Ling Fell

Took a slow walk up Ling Fell before lockdown, to get some fresh air, such stunning views, but very cold and icy. thought I would share a photo, Happy New year...

Took a slow walk up Ling Fell before lockdown, to get some fresh air, such stunn...

Maddymay65

•3 years ago

5 Replies

Shielding letter.......

Shielding letter Hi, last year when people shielded, where exactly did the letter come from? Did it come from the NHS or from doctors? Lupus UK told people...

Shielding letter Hi, last year when people shielded, where exactly did the lett...

steve61

•3 years ago

43 Replies

Swollen ankles

Hi. All happy new year I have lupus sle and suffer the odd flare up. Evrn though I have it midly I am suffering right now. Can any of you help me with what...

Hi. All happy new year I have lupus sle and suffer the odd flare up. Evrn thoug...

ulllass

•3 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2021

Medication question....

Seeking a volunteer to be interviewed about lupus and COVID-19 vaccination for BBC News Website - NOW CLOSED

Fluoxetine

They said the world was closed today

Burning and tingling through out body and chest/lung area?

PMR site

Cute coupling

Covid vaccine taken

New diagnosis...

Vaccine

Interesting TV

Covid vaccine risks and side effects: the German take from Deutsche Welle

Lupus SLE on steroids, but in group 9 for COVID vaccination?

Oxford vaccine

When will MXT kick in

covid patch

DLE (lupus)

SLE - to sheild or not to sheild

New member

Why me? Thoughts

Feeling Niave!!

Lupus and Coronavirus (COVID-19) - UPDATED 05/01/2021

Hey my first post

Share your experiences of the COVID-19 pandemic for online UK-based research study

Lupus & COVID-19 Vaccination - UPDATED 05/01/2021

Subs

Looking down over Bassenthwaite lake

Getting some fresh air... Ling Fell

Shielding letter.......

Swollen ankles

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