Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2021

Cute Chicken

Hello everyone Hopefully to keep the smiles going this week ive found a great story about a chook. For those of you who keep them i think you'll specially like...

Hello everyone Hopefully to keep the smiles going this week ive found a great st...

misty14

•3 years ago

27 Replies

On the road to recovery

Dr consultation and very nice caring paramedic visit too. The bleeding has finally stopped completely. I am anemic and have hemorrhoids. The Dr has given me...

Dr consultation and very nice caring paramedic visit too. The bleeding has fina...

Bronn

•3 years ago

6 Replies

Shielding is lonely

Hi all, Just wondering if anyone else is struggling feeling lonely and isolated whilst shielding? I’m in my 20s and very lucky I do not live alone but my...

Hi all, Just wondering if anyone else is struggling feeling lonely and isolated ...

TheJBird

•3 years ago

26 Replies

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Has anyone else had or know about this embarrassing problem?

This is somewhat embarrassing but i wonder if anyone can help/advise or has had similar experiences? i have LUPUS SLE and PA and am on Biologics,...

This is somewhat embarrassing but i wonder if anyone can help/advise or has had ...

yellowmarie

•3 years ago

5 Replies

Lactose intolerant and need to come off soluble steroids without discomfort

Because of lactose intolerance,I was prescribed 5mg soluble prednisolone tablets. This is the smallest amount available in soluble version. I now have to come...

Because of lactose intolerance,I was prescribed 5mg soluble prednisolone tablets...

JCZW

•3 years ago

8 Replies

It’s all new to me!

I was diagnosed with Lupus in August 2020 after many years of various conditions. I am currently taking 5mg of soluble Prednisolone and 200mg of...

I was diagnosed with Lupus in August 2020 after many years of various conditions...

JCZW

•3 years ago

8 Replies

Funny frog 🐸

Thought this pic may all give you a laugh 😂- have a good weekend everyone ❤️

svfarmer

•3 years ago

21 Replies

Hypothetical question : Which vaccine would you prefer if you were to be given a choice (which you won’t be !) ? And why ?

Which vaccine would prefer if you were given the choice (which you won’t be!)And why ?

Which vaccine would prefer if you were given the choice (which you won’t be!)And...

bones-bones

•3 years ago

5 Replies

Some better new

Hi all, I had a face to face appointment at Guys hospital today. I haven't seen the consultant there for 13 months. I've come aways very pleased. His given my...

Hi all, I had a face to face appointment at Guys hospital today. I haven't seen...

LouLamb

•3 years ago

25 Replies

Totally wigged out by my brain.

I hope you're all staying safe out there. Has anybody with SLE had experiences of freaky diagnoses from neurology departments - only to have things return to...

I hope you're all staying safe out there. Has anybody with SLE had experiences ...

Freckle1000

•3 years ago

16 Replies

Please support LUPUS UK with membership in 2021

Hi everyone, If you are not currently a member of LUPUS UK, please consider joining for 2021. For £10 a year you will receive our magazine three times a year,...

Hi everyone, If you are not currently a member of LUPUS UK, please consider join...

Paul_Howard

Partner•3 years ago

6 Replies

Second to last!!

Need to vent: So I just looked up how my area CA is doing the vaccination groups. Like many, I expected to higher up the list because of my autoimmune...

Need to vent: So I just looked up how my area CA is doing the vaccination group...

katidid

•3 years ago

14 Replies

Apologies for the pic !

Dear all lovely people on here😊 Sorry for the toe pic on a grey Thursday afternoon . Anyone had experience of a hard lump on side of foot ? Doesn’t hurt . I...

Dear all lovely people on here😊 Sorry for the toe pic on a grey Thursday aftern...

Tiggywoos

•3 years ago

8 Replies

Phew!! That wasn't so bad lol.

Consultation with GP and Paramedic done this morning. GP says from my symptoms I am very likely to be anemic due to how much blood I've lost and have an...

Consultation with GP and Paramedic done this morning. GP says from my symptoms I...

Bronn

•3 years ago

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Rivaroxaban

Has anyone experienced a negative reaction taking Rivaroxaban with SLE or Sjogrens

Has anyone experienced a negative reaction taking Rivaroxaban with SLE or Sjogre...

Margaret1940

•3 years ago

4 Replies

Lupus symptoms?

Hello all Hoping the members in this forum can help with this. Over the past 6 months I have been experiencing chest pains (the past 5 or 6 weeks they have...

Hello all Hoping the members in this forum can help with this. Over the past 6 m...

Uk1011

•3 years ago

35 Replies

Blood test

I have been taking microphenalate for 10 weeks been having regular blood test last Friday I had tests, following Tuesday had a call from my doctor saying my...

I have been taking microphenalate for 10 weeks been having regular blood test ...

daffodill2

•3 years ago

3 Replies

Covid vaccine and mycopenolate mofetil

I take 1500mg of this drug and need to know will it prevent the vaccine from working correctly to keep me safe. 🤔 I have telephone consultation with rheumy...

I take 1500mg of this drug and need to know will it prevent the vaccine from wor...

Bronn

•3 years ago

36 Replies

Gabapentin thanks

Thank you so so much to everyone that replied to my last call for advise/help. I really do appreciate it. I will try hard to phone gp tomorrow, but the...

Thank you so so much to everyone that replied to my last call for advise/help. I...

Bronn

•3 years ago

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Covid

Hello everyone. I would like to thank you all for your support when I messaged about our son who is an ambulance driver and contracted Covid. He had a rough...

Hello everyone. I would like to thank you all for your support when I messaged a...

just-typing

•3 years ago

34 Replies

Advice

Hi All, wondering if anyone has had negative test for Covid . As l have but feeling ill doc said chest infection . Can lupus or medicationmass results

Hi All, wondering if anyone has had negative test for Covid . As l have but feel...

Blue67_

•3 years ago

2 Replies

can the INR clinic refuse to treat me?

Hi all, can anyone advise me here? I am on warfarin and when the first lockdown happened I was allowed to have my INR done at home but as soon as lockdown...

Hi all, can anyone advise me here? I am on warfarin and when the first lockdown...

suzannah16

•3 years ago

8 Replies

Gabapentin

Hi everyone, hope you're all as well as can be. Phew it's been a while. I've bee poorly for months now, 1st flue.... Headache, earache runny nose, vomiting and...

Hi everyone, hope you're all as well as can be. Phew it's been a while. I've bee...

Bronn

•3 years ago

21 Replies

Whirlwind

The last couple weeks have been a whirlwind. The last two weekends we have been on respit for our foster child and boy, she has a lot of energy! Thankfully,...

The last couple weeks have been a whirlwind. The last two weekends we have been...

JennaShi

•3 years ago

4 Replies

Lupus & COVID-19 Vaccination - UPDATED 12/01/2021

Hi everyone We've updated our information and guidance about lupus and COVID-19 vaccination - https://www.lupusuk.org.uk/covid19-vaccination/ In the past week...

Hi everyone We've updated our information and guidance about lupus and COVID-19 ...

Paul_Howard

Partner•3 years ago

34 Replies

Lupus rash

Hi all, Has anyone ever had lupus rash on their trunk? I've had a rash on my trunk twice now, just wrapped around one side. The first time I sent pictures to...

Hi all, Has anyone ever had lupus rash on their trunk? I've had a rash on my tr...

Aurali

•3 years ago

26 Replies

To make you smile

I thought this beautiful image might give everyone a smile. I adore squirrels. Please stay safe and warm xxx

I thought this beautiful image might give everyone a smile. I adore squirrels. P...

CecilyParsley

•3 years ago

32 Replies

Impact of COVID-19 on patients with JSLE Online Survey

Researchers are looking for UK residents with a diagnosis of Juvenile Systemic Lupus Erythematosus (JSLE) to complete an online survey about COVID-19 and the...

Researchers are looking for UK residents with a diagnosis of Juvenile Systemic L...

Chanpreet_Walia

LUPUS UK•3 years ago

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Blockers

Has anybody taken beater blockers for anxiety ? Doctor suggested I take them

daffodill2

•3 years ago

7 Replies

Adolescent SLE research study – POSTPONED.

Due to the current coronavirus pandemic and national lockdown, researchers have postponed their adolescent research study which, was to take place next month...

Due to the current coronavirus pandemic and national lockdown, researchers have ...

Chanpreet_Walia

LUPUS UK•3 years ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2021

Cute Chicken

On the road to recovery

Shielding is lonely

Has anyone else had or know about this embarrassing problem?

Lactose intolerant and need to come off soluble steroids without discomfort

It’s all new to me!

Funny frog 🐸

Hypothetical question : Which vaccine would you prefer if you were to be given a choice (which you won’t be !) ? And why ?

Some better new

Totally wigged out by my brain.

Please support LUPUS UK with membership in 2021

Second to last!!

Apologies for the pic !

Phew!! That wasn't so bad lol.

Rivaroxaban

Lupus symptoms?

Blood test

Covid vaccine and mycopenolate mofetil

Gabapentin thanks

Covid

Advice

can the INR clinic refuse to treat me?

Gabapentin

Whirlwind

Lupus & COVID-19 Vaccination - UPDATED 12/01/2021

Lupus rash

To make you smile

Impact of COVID-19 on patients with JSLE Online Survey

Blockers

Adolescent SLE research study – POSTPONED.

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