Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,732 members • 28,092 posts

All posts for January 2021

Thank you

Thankyou everyone for your advice..I’m also in contact with a nurse I know and taking all advice onboard...enjoy your sunny Monday xx 🌷💕⛄️😊

Thankyou everyone for your advice..I’m also in contact with a nurse I know and t...

Bellissimo

•3 years ago

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It’s Monthly Mira Monday 🐶🐶🐶

Hi Folks hope everyone is doing ok- for anyone who dosnt know my girl Bea had puppies right at the beginning of lockdown in April due to me shielding etc Mira...

Hi Folks hope everyone is doing ok- for anyone who dosnt know my girl Bea had pu...

svfarmer

•3 years ago

42 Replies

Chilblain lupus erthematosus

I’m 70 in the USA. Chilblain LE dx from toe biopsy. I’ve googled and apparently it’s rare. The biopsy was done to rule out microthrombi bc I’m positive for APS...

I’m 70 in the USA. Chilblain LE dx from toe biopsy. I’ve googled and apparently ...

phirestar

•3 years ago

21 Replies

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Dealing with Hair loss in 8 year old recently diagnosed with SLE

Hi all, Any guidance would be very much appreciated. My daughter was diagnosed with SLE in Oct last year. Currently being treated with prednisolone (which has...

Hi all, Any guidance would be very much appreciated. My daughter was diagnosed w...

Bollywoodmummy

•3 years ago

7 Replies

Florencian

My doctors don't think I have lupus. 1st tested years ago negative. 2nd ANA positive, 3rd ANA negative. I have a rash on my chest and all the symptoms of...

My doctors don't think I have lupus. 1st tested years ago negative. 2nd ANA pos...

Florencian

•3 years ago

21 Replies

For Stiff, Spotty, KrazyKat DJK99 and all the Creative Crafties

I’ve given it a go! With encouragement and top tips from you lovely ladies as to what pens and varnish to use, I painted a pebble! My arty-crafty daughter...

I’ve given it a go! With encouragement and top tips from you lovely ladies as to...

Horsewhisper

•3 years ago

31 Replies

Numb side of face hot to the touch?

Hey everyone, just wondering if anyone has experienced numbness in the face. My left cheek has been going numb for last couple weeks. Its not painful, just a...

Hey everyone, just wondering if anyone has experienced numbness in the face. My ...

Jodziebear

•3 years ago

2 Replies

Two cuties (part one)

Hello everyone Just thought i would post this lovely pic of two cuties that give us hope that Spring is coming. The lad is pictured at Cotswold Farm Park as...

Hello everyone Just thought i would post this lovely pic of two cuties that give...

misty14

•3 years ago

28 Replies

Covid Vaccine Ist dose

I had my vaccine last week and have had no side effects

Queenie1943

•3 years ago

9 Replies

More Waffles and Snow

Thought you might like another one of my cat Waffles, here he is balefully looking out, I would not let him out because there were 2 pheasants in the garden,...

Thought you might like another one of my cat Waffles, here he is balefully looki...

Maddymay65

•3 years ago

12 Replies

Anaphylatic Shock Episode

Hi all, I had a severe allergic reaction to a voltaren tablet this week resulting in Anaphylatic Shock ( trip to emergency dept). I have been a work in...

Hi all, I had a severe allergic reaction to a voltaren tablet this week resultin...

Maloo19

•3 years ago

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How long is safe to go without hydroxyqloroquine ? I can’t seem to get it and it’s been 2 weeks now.

Does anyone know the answer? It’s impossible to get any help or advice... it’s so hard to be ill in crazy times...

Does anyone know the answer? It’s impossible to get any help or advice... it’s s...

Mag17

•3 years ago

36 Replies

Covid Vaccine

I got called for my vaccine on Wednesday and had it last night. Glad to report no real ill effects apart from a sore arm and feeling a bit warm. I have S....

I got called for my vaccine on Wednesday and had it last night. Glad to report n...

Maddymay65

•3 years ago

34 Replies

Calling all knitters

I have been experimenting with odd bits and balls of wool to try to make a seascape/landscape wall hanging. I had in mind looking from one shore of a bay over...

I have been experimenting with odd bits and balls of wool to try to make a seasc...

Spotty-ewe

•3 years ago

63 Replies

Kidney specialist

Do any of you know a good nephrologist with some knowledge of SLE? I live in Leicestershire but am willing to travel. My lupus consultant is in Bath.

Do any of you know a good nephrologist with some knowledge of SLE? I live in Lei...

Wrexlu

•3 years ago

8 Replies

LUPUS UK Live Virtual Seminar - "Understanding Lupus Blood Tests" - 6pm (GMT) Wednesday 27th January 2021

Hi everyone, I'm pleased to announce that for the next in our series of Live Virtual Seminars I will be joined by the brilliant Dr Arvind Kaul who will be...

Hi everyone, I'm pleased to announce that for the next in our series of Live Vir...

Paul_Howard

Partner•3 years ago

11 Replies

Covid vaccine

Hi guys, anyone here had their covid vaccine? I’m an NHS worker and shielding at the moment. NHS has started to give the vaccine to the staff. I want to have...

Hi guys, anyone here had their covid vaccine? I’m an NHS worker and shielding at...

Sezvic

•3 years ago

9 Replies

Feeling of lightheaded

Just a quick question I'm on steroids and hydroxychloroquine. I am also taking antibiotics for an infection. I am constantly having spells of lightheadedness...

Just a quick question I'm on steroids and hydroxychloroquine. I am also taking ...

JCZW

•3 years ago

20 Replies

Tacrolimus

Hi, anyone on here on this drug ? Does it work on lupus ? I was prescribed tacrolimus 1 mg today by my rheumatologist, I was wondering if it works and well...

Hi, anyone on here on this drug ? Does it work on lupus ? I was prescribed tacro...

Melaxx

•3 years ago

10 Replies

Covid Vaccine

I have been worried about having the Covid vaccine, has anyone had it, any reactions? Currently taking metrotexate injections.

I have been worried about having the Covid vaccine, has anyone had it, any reac...

chewIE1988

•3 years ago

16 Replies

Re COVID-19 vaccine

Hi, I’m wondering what group I fall into regarding the COVID-19 vaccine. I am 63 and not sure if I fall into group 6 the 16-64 year olds with underlying health...

Hi, I’m wondering what group I fall into regarding the COVID-19 vaccine. I am 63...

elizabeth-57

•3 years ago

23 Replies

Shielding letter and email haven’t arrived. Have I been missed?

Hi all, hope your day is going well. So in all the previous lockdowns I have received a Shielding letter and/ or email but on this occasion neither has...

Hi all, hope your day is going well. So in all the previous lockdowns I have rec...

TheJBird

•3 years ago

18 Replies

Rheumatology recommendation

Hello lovely lupus forum ❤️ I don’t know if this is something I can post so apologies if not .. I just wondered if anyone can point me in the direction of a...

Hello lovely lupus forum ❤️ I don’t know if this is something I can post so apol...

Tiggywoos

•3 years ago

5 Replies

Immunity

Had SLE since 2010 suffered with lots of chest and urine infections because of the medication so 2 years ago I stopped taking all, my consultant wasn’t happy...

Had SLE since 2010 suffered with lots of chest and urine infections because of t...

Bessy01

•3 years ago

3 Replies

Best treatments for butterfly rash/malar rash?

I had an aggressive rash which was treated with hydrocortisone1% cream and it seemed to help. I still have a mild rash on both checks and my forehead, the...

I had an aggressive rash which was treated with hydrocortisone1% cream and it se...

GeorgieMae

•3 years ago

2 Replies

A huge thank you

Hi everyone I am back. Apparently yesterday as I tried to respond to all your wonderful comments and messages of support an algorithm picked up my repeated...

Hi everyone I am back. Apparently yesterday as I tried to respond to all your wo...

CecilyParsley

•3 years ago

3 Replies

A Message From Cecily Parsely

Cecily has just been in touch to let me know she hasn’t been able to get on the forum since she was half way through replying to everybody who left lovely...

Cecily has just been in touch to let me know she hasn’t been able to get on the ...

Spotty-ewe

•3 years ago

28 Replies

Heartbroken

Today my beautiful friend Jo lost her battle with Covid. I am heartbroken for her and her four children l Jo and I became friends in a Lupus group nine years...

Today my beautiful friend Jo lost her battle with Covid. I am heartbroken for he...

CecilyParsley

•3 years ago

78 Replies

Follow up

Hi everyone sorry not written for a while had a mad time . Last time I wrote was to say that I had a heart attack and a stent fitted . The next thing was I was...

Hi everyone sorry not written for a while had a mad time . Last time I wrote was...

Barb50

•3 years ago

13 Replies

Persistent issue

I have the same problem regularly the burning around my private area and wondered if seeing a gynaecologist could help. I have been diagnosed with SLE and MS ....

I have the same problem regularly the burning around my private area and wondere...

Jerg

•3 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2021

Thank you

It’s Monthly Mira Monday 🐶🐶🐶

Chilblain lupus erthematosus

Dealing with Hair loss in 8 year old recently diagnosed with SLE

Florencian

For Stiff, Spotty, KrazyKat DJK99 and all the Creative Crafties

Numb side of face hot to the touch?

Two cuties (part one)

Covid Vaccine Ist dose

More Waffles and Snow

Anaphylatic Shock Episode

How long is safe to go without hydroxyqloroquine ? I can’t seem to get it and it’s been 2 weeks now.

Covid Vaccine

Calling all knitters

Kidney specialist

LUPUS UK Live Virtual Seminar - "Understanding Lupus Blood Tests" - 6pm (GMT) Wednesday 27th January 2021

Covid vaccine

Feeling of lightheaded

Tacrolimus

Covid Vaccine

Re COVID-19 vaccine

Shielding letter and email haven’t arrived. Have I been missed?

Rheumatology recommendation

Immunity

Best treatments for butterfly rash/malar rash?

A huge thank you

A Message From Cecily Parsely

Heartbroken

Follow up

Persistent issue

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