Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,832 members • 28,171 posts

All posts for December 2020

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What does it mean if I am described as a pleasant gentleman in correspondence to my GP ?

What does it mean if I am described as a pleasant gentleman in correspondence to...

Askmy

•3 years ago

30 Replies

Hydroxy or steroids?

Can I ask you for some advice please. I started hydroxychloroquine last week, had 5 days with a really upset tummy ( the nurse warned me about this)...

Can I ask you for some advice please. I started hydroxychloroquine last week, h...

BonnyB

•3 years ago

13 Replies

For Stiff schnauzer topper

My partner made it last Christmas 🎄

svfarmer

•3 years ago

7 Replies

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A Message and update from Stormy

I thought I’d pass on Stormy’s update and response to everybody’s lovely and informative messages to her. Thanks to all who responded to my post.👍🏻👍🏻...

I thought I’d pass on Stormy’s update and response to everybody’s lovely and inf...

Spotty-ewe

•3 years ago

33 Replies

Newly diagnosed

Hello. In the process of being diagnosed with likely lupus nephritis,having a tough time time getting my head around it

Hello. In the process of being diagnosed with likely lupus nephritis,having a to...

Lupuslost

•3 years ago

18 Replies

Free self-management platform to help track and manage your skin conditions (Skinlync)

Atiqah and Yigit, graduates from the University of Cambridge, have created a self-management platform to help track and manage your skin conditions called...

Atiqah and Yigit, graduates from the University of Cambridge, have created a se...

Chanpreet_Walia

LUPUS UK•3 years ago

2 Replies

LUPUS UK & Idorsia Webinar - Getting Involved in Lupus Clinical Trials - Recording Now Available

Hi everyone, We're aware that due to last-minute technical problems, many people were unfortunately unable to join our live webinar on 10th December 2020. The...

Hi everyone, We're aware that due to last-minute technical problems, many people...

Paul_Howard

Partner•3 years ago

2 Replies

No check ups

Hi, just wondering if anyone else has had problems with their check up appointments? Waited 18 months and consultant didn't ring! Now trying to find out when...

Hi, just wondering if anyone else has had problems with their check up appointme...

Muff20

•3 years ago

13 Replies

Has anyone with Lupus ever experienced a sharp pain in the upper left abdominal area?

Has anyone with Lupus ever experienced a sharp pain in the upper left abdominal area? I've had this pain for three days now and doctor reckons it's obstruction...

Has anyone with Lupus ever experienced a sharp pain in the upper left abdominal ...

Ash2394

•3 years ago

2 Replies

The impact of the COVID-19 pandemic - LISTEN Study Research Paper - NOW PUBLISHED

Hi everyone, I'm really pleased to announce that an important research paper produced collaboratively with this online community has been published! The paper...

Hi everyone, I'm really pleased to announce that an important research paper pro...

Paul_Howard

Partner•3 years ago

3 Replies

New dates available (Feb 2021) for UK adolescents (12-17 years old) SLE research study.

Acumen Healthcare is currently working with Worrell Inc., an independent research company specialising in healthcare to carry out a formative research study of...

Acumen Healthcare is currently working with Worrell Inc., an independent researc...

Chanpreet_Walia

LUPUS UK•3 years ago

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Hello

Hello everyone, just want to introduce myself. My name is Sallyann, diagnosed in March with SLE lupus after over 4 years of anxiety. Learning to live with...

Hello everyone, just want to introduce myself. My name is Sallyann, diagnosed i...

Sassysall74

•3 years ago

18 Replies

LUPUS UK Live Virtual Seminar - "Managing a Lupus Flare" - 6pm (GMT) Tuesday 15th December 2020

Hi everyone, Our next Live Virtual Seminar is taking place from 6pm (GMT) on Tuesday 15th December 2020. We've got Dr Bridget Griffiths as our guest speaker...

Hi everyone, Our next Live Virtual Seminar is taking place from 6pm (GMT) on Tue...

Paul_Howard

Partner•3 years ago

1 Reply

Survey on COVID vaccine for patients with autoimmune diseases and their families

The French National Reference Center for Auto-Immune Diseases has launched a survey about the expectations and potential concerns related to the COVID vaccine...

The French National Reference Center for Auto-Immune Diseases has launched a sur...

Chanpreet_Walia

LUPUS UK•3 years ago

12 Replies

News from the Stormy Sunshine

I received an e-mail from Stormy yesterday and wanted to let all those who are thinking of her know how she is getting on. To save trying to explain her...

I received an e-mail from Stormy yesterday and wanted to let all those who are t...

Spotty-ewe

•3 years ago

25 Replies

RITUXAN ANY ADVICE/ COMMENTS ON SIDE EFFECTS

Hi, Anyone got advice on RITUXAN Infusion / Injections. I have Lupus and Sjogrens not have any success with medications. Medication sensitive last two meds...

Hi, Anyone got advice on RITUXAN Infusion / Injections. I have Lupus and Sjogre...

Haired

•3 years ago

2 Replies

It’s Mira Monday 🐶🐶🎄🎅🐶🐶

Hi Folks Monday has come round very quickly again - hope everyone,s Christmas 🎄 preparations are going well. Today we have a picture of Mira on one of her...

Hi Folks Monday has come round very quickly again - hope everyone,s Christmas 🎄...

svfarmer

•3 years ago

15 Replies

Mrs Cropley goes off piste with a drinking chocolate pudding!

Evening everyone! How about this for a very naughty, mega chocolatey, creamy-drinkie-delight?! I got the inspiration from a homemade chocolate torte that I...

Evening everyone! How about this for a very naughty, mega chocolatey, creamy-dri...

Horsewhisper

•3 years ago

21 Replies

Long Covid. Interesting Article

"The Covid-19 patients had more antibodies that had turned on them than people with lupus, an autoimmune disease caused by similar wayward antibodies."...

"The Covid-19 patients had more antibodies that had turned on them than people w...

WinterSwimmer

•3 years ago

3 Replies

Has anyone experienced mastitis (breast inflammation) as a symptom of lupus?

Hi, I would greatly appreciate hearing from anyone who has experienced mastitis (breast inflammation) as a symptom of lupus. I have other symptoms that seem to...

Hi, I would greatly appreciate hearing from anyone who has experienced mastitis ...

Spicer21

•3 years ago

12 Replies

Is it my spleen?

Hello everyone, Hope you are all well or as well as one can be. I thought I ask if anyone experienced this strange pain. I have this pain on the upper part...

Hello everyone, Hope you are all well or as well as one can be. I thought I ask ...

LalSD

•3 years ago

18 Replies

In despair

Since coming home from work to shield in March this year my health has had a rapid decline. I've gone from managing daily activity, working 6 hrs for 5 days to...

Since coming home from work to shield in March this year my health has had a rap...

MandaM

•3 years ago

13 Replies

Reocurring iron deficiency.

Hi I have a question of reocurring iron deficiency. 4 months ago I finished 3 months of treatment for iron deficiency. The symptoms are starting to reocurr....

Hi I have a question of reocurring iron deficiency. 4 months ago I finished 3 mo...

Hidden

•3 years ago

4 Replies

Is there anyone on here that's bengali?

Hi I'm new here. I was wondering how many bengali women are here? As I dont know anyone else from there that has lupus and would love to pick their minds?...

Hi I'm new here. I was wondering how many bengali women are here? As I dont kno...

Afsana21

•3 years ago

Be the first to reply

Christmas cards, you can be festive and support Lupus UK

Help support the charity Lupus UK. There's still time to put in an order to Lupus UK shop. They have a lovely selection of Christmas cards...

Help support the charity Lupus UK. There's still time to put in an order to Lupu...

fabwheelie

•3 years ago

3 Replies

Lack of motivation

Hi Everyone I hope we are taking care of ourselves and doing well. I have been in a weird space for a while. I have tried get out of it has been hard. I...

Hi Everyone I hope we are taking care of ourselves and doing well. I have bee...

SLE-Warrior

•3 years ago

5 Replies

Genetic clue to severe Covid: “It is part of the system that makes your immune cells more angry, and more inflammatory”...sound like lupus ?

Covid research will help with SLE and autoimmunity, without a shadow of a doubt! :) 'Two other recent studies published in the journal Science have also...

Covid research will help with SLE and autoimmunity, without a shadow of a doubt!...

eekt

•3 years ago

8 Replies

Cuteness Overload

Hello everyone. I think you'll love this weeks adorable pic. Hoping your christmas prep is going well. Nice to have something glittery , colourful and...

Hello everyone. I think you'll love this weeks adorable pic. Hoping your chris...

misty14

•3 years ago

30 Replies

Being told symptoms are not due to Lupus

Hi, I was diagnosed with Lupus in 2015 after nearly 20 years of being told I had M.E,/C.F.S. I am currently taking Prednisolone and Hydroxychloroquine, have...

Hi, I was diagnosed with Lupus in 2015 after nearly 20 years of being told I had...

Choccy8

•3 years ago

18 Replies

Sjorgens and reflux

Hi there! Hope you are all keeping safe and gearing up for this unusual Christmas! It has been a while since I posted! Recently I am always very cold and...

Hi there! Hope you are all keeping safe and gearing up for this unusual Christma...

Thereisalight

•3 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2020

Code words

Hydroxy or steroids?

For Stiff schnauzer topper

A Message and update from Stormy

Newly diagnosed

Free self-management platform to help track and manage your skin conditions (Skinlync)

LUPUS UK & Idorsia Webinar - Getting Involved in Lupus Clinical Trials - Recording Now Available

No check ups

Has anyone with Lupus ever experienced a sharp pain in the upper left abdominal area?

The impact of the COVID-19 pandemic - LISTEN Study Research Paper - NOW PUBLISHED

New dates available (Feb 2021) for UK adolescents (12-17 years old) SLE research study.

Hello

LUPUS UK Live Virtual Seminar - "Managing a Lupus Flare" - 6pm (GMT) Tuesday 15th December 2020

Survey on COVID vaccine for patients with autoimmune diseases and their families

News from the Stormy Sunshine

RITUXAN ANY ADVICE/ COMMENTS ON SIDE EFFECTS

It’s Mira Monday 🐶🐶🎄🎅🐶🐶

Mrs Cropley goes off piste with a drinking chocolate pudding!

Long Covid. Interesting Article

Has anyone experienced mastitis (breast inflammation) as a symptom of lupus?

Is it my spleen?

In despair

Reocurring iron deficiency.

Is there anyone on here that's bengali?

Christmas cards, you can be festive and support Lupus UK

Lack of motivation

Genetic clue to severe Covid: “It is part of the system that makes your immune cells more angry, and more inflammatory”...sound like lupus ?

Cuteness Overload

Being told symptoms are not due to Lupus

Sjorgens and reflux

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