Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2020

Switching from mycophenolate or azathioprine

Hi All, Last year November I was diagnosed with Lupus and my Rheumatologist doctor is really good and he took care of my lupus symptoms very good and now...

Hi All, Last year November I was diagnosed with Lupus and my Rheumatologist do...

FEEL-THE-BLUE

•4 years ago

4 Replies

Borderline ANA

Hello, I have been ill on and off for several years. Tiredness, rash on face and chest, aches and pains all over, hair loss. Everytime I recover I just want to...

Hello, I have been ill on and off for several years. Tiredness, rash on face and...

BonnyB

•4 years ago

9 Replies

Lupus and the heart/lungs

Lupus and the heart/lungs ? What are people’s experiences I’m struggling to walk for more than 20 mins cough breathless etc ? Any advice

Lupus and the heart/lungs ? What are people’s experiences I’m struggling to walk...

Ginge1234

•4 years ago

18 Replies

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Vote for LUPUS UK in Ecclesiastical's 12 Days of Giving Competition

Nominations for the Ecclesiastical 12 Days of Giving Competition have now open! Please help LUPUS UK (Charity number: 1051610) win a grant of £1,000 from...

Nominations for the Ecclesiastical 12 Days of Giving Competition have now open! ...

Chanpreet_Walia

LUPUS UK•4 years ago

19 Replies

3 little piggies.

Hello everyone Some gloucester old spot piglets have been born at a farm park in Surrey . Thought this would be cute and uplifting for us. We could all do with...

Hello everyone Some gloucester old spot piglets have been born at a farm park in...

misty14

•4 years ago

32 Replies

Feeling cold

Hello all, I am still undergoing investigation into SLE, I have been diagnosed with discoid lupus and scarring alopecia and I’m currently under the care of a...

Hello all, I am still undergoing investigation into SLE, I have been diagnosed ...

Angelx01x

•4 years ago

21 Replies

All the symptoms and finally someone fighting my corner.....I hope.

I'm new here but been suffering since a young girl. Constant chest infections, joint pains and swelling, eye ulcers, nasal perforation, trigenimal neuralgia,...

I'm new here but been suffering since a young girl. Constant chest infections, ...

Bex777

•4 years ago

2 Replies

Squeeeeeze

A great glider possum, just to make you all smile.yes t is real 😍

CecilyParsley

•4 years ago

15 Replies

Covid vaccine is it a live vaccine?

With the news talking about covid vaccine. Is it a live vaccine? Will sle people be able to have it? Thank you and keep safe xx

With the news talking about covid vaccine. Is it a live vaccine? Will sle people...

TEDDYM

•4 years ago

4 Replies

How do you cope or manage loss of hair?

Hi, for quite a long time now my hair has been falling out. It isn’t coming out in clumps just here & there. I’m sure that being menopausal doesn’t help...

Hi, for quite a long time now my hair has been falling out. It isn’t coming out ...

MoominMomma

•4 years ago

5 Replies

CBT for chronic lupus pain?

I’m having the worst flare I’ve ever had and it’s been uncontrolled for nearly three years. It’s getting worse not better and I have extreme joint pain at...

I’m having the worst flare I’ve ever had and it’s been uncontrolled for nearly t...

ShannonB

•4 years ago

7 Replies

any tips for hair thinning/hair loss from Lupus?

Hi everyone, i'm back with more inquiries haha. So my hair is NOT the way it use to be, im south asian so i do have naturally thick and full hair but my hair...

Hi everyone, i'm back with more inquiries haha. So my hair is NOT the way it u...

aimenkhattak27

•4 years ago

3 Replies

Welsh Govt said: "Our approach to supporting people...will continue to be focused on providing care and support as close to home as possible

Long Covid making the news again...in Wales and Scotland: https://www.bbc.co.uk/news/uk-wales-54888774 https://www.bbc.co.uk/news/uk-scotland-54893317 xxx

Long Covid making the news again...in Wales and Scotland: https://www.bbc.co.uk/...

eekt

•4 years ago

20 Replies

Consultants Appointment

Hi, After countless blood test and being unwell for sometime I have now been diagnosed with Lupus by my GP. I’ve felt very overwhelmed since the diagnosis as...

Hi, After countless blood test and being unwell for sometime I have now been dia...

Sarabel

•4 years ago

4 Replies

Different pains and back issues

Hi everyone, I was wondering if anyone has these issues and what they do to help themselves... recently I have been having a lot of lower back pain when I’m...

Hi everyone, I was wondering if anyone has these issues and what they do to help...

Leenie0811

•4 years ago

2 Replies

Skin Cleanser

Up until now I have been cleansing my skin with Simple products but over this month my skin has been playing up so I wondered if there is something else that I...

Up until now I have been cleansing my skin with Simple products but over this mo...

SecondLife

•4 years ago

21 Replies

Undiagnosed

Is it rosacea ? Is it not 🙈

Scots-lass

•4 years ago

Be the first to reply

How to get Healthy and beautiful skin and hair with Lupus?

Hello beautiful ladies... Am really curious to know ur skin and hair routine that keeps u all so fresh and radient... Especially those who have managed their...

Hello beautiful ladies... Am really curious to know ur skin and hair routine tha...

Putloo

•4 years ago

2 Replies

covid vaccine

Hope at last of a vaccine thanks to Germany. Fingers crossed it is suitable for us.

Hope at last of a vaccine thanks to Germany. Fingers crossed it is suitable for...

suzannah16

•4 years ago

15 Replies

Free UCL virtual event about Sjögren and lupus

UCL Rheumatology is hosting a FREE virtual interactive event about personalised medicine in Sjögren´s syndrome and stratifying young lupus patients by heart...

UCL Rheumatology is hosting a FREE virtual interactive event about personalised ...

Chanpreet_Walia

LUPUS UK•4 years ago

10 Replies

It’s Mira Monday

Good morning folks firstly big hugs to all who are shielding as we enter the next lockdown- hopefully this picture will make you smile- I heard all this noise...

Good morning folks firstly big hugs to all who are shielding as we enter the nex...

svfarmer

•4 years ago

21 Replies

Anyone on Pain Patches ?

Hello everyone , good morning . Please wondering if anyone is on pain patches aside all the Hydroxychlroquine and the other medications ? Been on...

Hello everyone , good morning . Please wondering if anyone is on pain patches as...

Akuamama1956

•4 years ago

7 Replies

Mrs Cropley’s Cyber Drive-Thru - homemade hot drink creations!

Hello everyone, no Costa or Starbucks for our family due to shielding, so thought I’d get creative and make our own! This afternoon we have “The Purple One”...

Hello everyone, no Costa or Starbucks for our family due to shielding, so though...

Horsewhisper

•4 years ago

26 Replies

Back to square one

I just needed to vent so please forgive me if this is self indulgent. After a really difficult few months my breathing improved and the gastro problems...

I just needed to vent so please forgive me if this is self indulgent. After a re...

CecilyParsley

•4 years ago

96 Replies

To make you all smile in a world that feels broken

Apparently baby owls sleep face down because their heads are so heavy ❤️❤️❤️❤️

CecilyParsley

•4 years ago

25 Replies

Excessive mucus, sinus and everything else! 😭

Hi everyone not been on here for a while. Too busy trying to stay alive after my working week! ( that's how I feel). I work 4 days a week 30 hours in total....

Hi everyone not been on here for a while. Too busy trying to stay alive after my...

heda123

•4 years ago

9 Replies

Cuteness time again

Hello everyone In view of our month lockdown I think this pic shows us that we must keep our loved ones as close as possible to help us thru this. Keep as...

Hello everyone In view of our month lockdown I think this pic shows us that we ...

misty14

•4 years ago

29 Replies

Has anyone developed Autoimmune Hepatitis?

Hi everyone, I was quite upset and shocked to receive a call from the Rheumatologist nurse today after the 2nd wave of blood tests yesterday. The consultant...

Hi everyone, I was quite upset and shocked to receive a call from the Rheumatolo...

Hidden

•4 years ago

11 Replies

Lupus & Coronavirus (COVID-19) - UPDATED 05/11/2020

We've just published an update to our information and guidance about lupus and COVID-19. https://www.lupusuk.org.uk/coronavirus/ Those who live in England who...

We've just published an update to our information and guidance about lupus and C...

Paul_Howard

Partner•4 years ago

6 Replies

Methotrexate Advice

I’m due to start Methotrexate - 10mg once a week. I’ve also been given Folic Acid 5mg. The nurse quickly said take Folic acid 2 days before methotrexate....

I’m due to start Methotrexate - 10mg once a week. I’ve also been given Folic Aci...

DPJ66

•4 years ago

47 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2020

Switching from mycophenolate or azathioprine

Borderline ANA

Lupus and the heart/lungs

Vote for LUPUS UK in Ecclesiastical's 12 Days of Giving Competition

3 little piggies.

Feeling cold

All the symptoms and finally someone fighting my corner.....I hope.

Squeeeeeze

Covid vaccine is it a live vaccine?

How do you cope or manage loss of hair?

CBT for chronic lupus pain?

any tips for hair thinning/hair loss from Lupus?

Welsh Govt said: "Our approach to supporting people...will continue to be focused on providing care and support as close to home as possible

Consultants Appointment

Different pains and back issues

Skin Cleanser

Undiagnosed

How to get Healthy and beautiful skin and hair with Lupus?

covid vaccine

Free UCL virtual event about Sjögren and lupus

It’s Mira Monday

Anyone on Pain Patches ?

Mrs Cropley’s Cyber Drive-Thru - homemade hot drink creations!

Back to square one

To make you all smile in a world that feels broken

Excessive mucus, sinus and everything else! 😭

Cuteness time again

Has anyone developed Autoimmune Hepatitis?

Lupus & Coronavirus (COVID-19) - UPDATED 05/11/2020

Methotrexate Advice

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