Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,732 members • 28,092 posts

All posts for November 2020

Big toe Update.

Hello everyone, Just popping in again to say that yesterday i had to visit A&E as toe pain worsened and the xray dept didnt have my gp's request either. They...

Hello everyone, Just popping in again to say that yesterday i had to visit A&E a...

misty14

•3 years ago

13 Replies

Cuteness time again.

Hello everyone Here's a hedgehog getting ready for hibernation and i think we could take a leaf out of their book and do the same this winter. Be good to wake...

Hello everyone Here's a hedgehog getting ready for hibernation and i think we co...

misty14

•3 years ago

19 Replies

LUPUS UK Virtual Seminar - "Lupus & Fatigue" - Recording now available

Hi everyone, I have good news for anyone who may have missed our Live Virtual Seminar about "Lupus & Fatigue" with Dr Chris Wincup on Wednesday evening. The...

Hi everyone, I have good news for anyone who may have missed our Live Virtual Se...

Paul_Howard

Partner•3 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Long Covid? Or something from the autoimmune menu?

https://www.theguardian.com/world/2020/nov/19/long-covid-overlap-emerges-with-me-including-debate-over-treatment Thought this was interesting.

https://www.theguardian.com/world/2020/nov/19/long-covid-overlap-emerges-with-me...

PMRpro

•3 years ago

35 Replies

SORRY FOR BEING OF RADAR

Hi hope your all well sorry not posted anything on forum lately just been in a world of my own down with aches & pains feel as though my GP consultant don’t...

Hi hope your all well sorry not posted anything on forum lately just been in a w...

Sahil2005

•3 years ago

2 Replies

Confused

Hi! I have blood result, maybe someone could give an opinion? GP said it’s probably coincidental. Can it be coincidental?

Hi! I have blood result, maybe someone could give an opinion? GP said it’s proba...

Robertales

•3 years ago

12 Replies

Support LUPUS UK when you buy Christmas cards this year

Hi everyone, Please consider supporting the work of LUPUS UK and help to raise awareness of lupus this Christmas by purchasing your cards from our online......

Hi everyone, Please consider supporting the work of LUPUS UK and help to raise a...

Paul_Howard

Partner•3 years ago

4 Replies

Advice!

Hi - still not been diagnosed for definite with lupus but got this on my leg tonight. Is this a sign of lupus? Been to out of hours. He didn’t really know...

Hi - still not been diagnosed for definite with lupus but got this on my leg ton...

Daisyyellow

•3 years ago

8 Replies

Do you know someone who can take part in an adolescents (12-17 years old) SLE research study?

Acumen Healthcare is currently working with Worrell Inc., an independent research company specialising in healthcare to carry out a formative research study of...

Acumen Healthcare is currently working with Worrell Inc., an independent researc...

Chanpreet_Walia

LUPUS UK•3 years ago

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LUPUS UK Live Virtual Seminar - "Lupus & Fatigue" - 6pm (GMT) Wednesday 18th November 2020

Hi everyone, If you are able to, please join me from 6pm (GMT) this evening for the next in LUPUS UK's series of Live Virtual Seminars. This evening I will be...

Hi everyone, If you are able to, please join me from 6pm (GMT) this evening for ...

Paul_Howard

Partner•3 years ago

25 Replies

Arghhhh! I’m not imagining it!

When you haven’t had a proper diagnosis yet and a close friend asks if you think your symptoms are all psychological ..... 🙄🙄🙄

When you haven’t had a proper diagnosis yet and a close friend asks if you think...

bexsmith23

•3 years ago

19 Replies

Prednisone side effects

Hi all. I have been on planquinil and prednisone for 2 months and methotrexate for a 2 months. I have noticed that my face shape has changed, it looks more...

Hi all. I have been on planquinil and prednisone for 2 months and methotrexate f...

sthethela87

•3 years ago

8 Replies

Cytomegalovirus CMV positive- has anyone experienced this ?

Hi has anyone had a positive immune test for this virus CMV linked to autoimmune disorder or hepatitis? It’s come up in my blood tests with raised liver...

Hi has anyone had a positive immune test for this virus CMV linked to autoimmune...

Hidden

•3 years ago

19 Replies

Heart Involvement

Does anybody suffer with heart complications due to lupus I’m in the process of having tests ie heart scan and wondered if it is common with lupus

Does anybody suffer with heart complications due to lupus I’m in the process of ...

kingsnorth

•3 years ago

32 Replies

Anyone had lipoatrophy?

Hi everyone bit anxious about posting but everyone on this forum sounds so lovely and caring I thought I would give it a go 😊. In March this year I had to...

Hi everyone bit anxious about posting but everyone on this forum sounds so lovel...

Tiggywoos

•3 years ago

18 Replies

Breastfeeding

Hello, I have Lupus sle type, I am wondering if its ok to continue taking hydroxychloroquine while breadtfeeding? Can anyone who has had this experience...

Hello, I have Lupus sle type, I am wondering if its ok to continue taking hydro...

H134

•3 years ago

5 Replies

Licence revoked by DVLA - want to appeal - anyone anything similar?

I have had my driving licence revoked for 12 months and this came about due to the nighttime choking episodes that my Neuro is investigating. As a precaution,...

I have had my driving licence revoked for 12 months and this came about due to t...

Horsewhisper

•3 years ago

24 Replies

It’s Mira Monday

Hi Folks hope all have had a good week. Poor little Mira came into season this week so has been permanently sat on my lap as she is very clingy which suits me...

Hi Folks hope all have had a good week. Poor little Mira came into season this w...

svfarmer

•3 years ago

42 Replies

Do you know if someone with Lupus can have the COVID vaccine?

I heard that some immune diseases can’t have the vaccine?

Unggoy

•3 years ago

4 Replies

Need toe advice

Hello.everyone Just popping in again to ask some advice about my big toe. Suddenly i've got a new swelling on my MPJ joint . It started with a sudden bruise...

Hello.everyone Just popping in again to ask some advice about my big toe. Sudden...

misty14

•3 years ago

42 Replies

More cuteness

I had to post this, it made me smile. I hope you like it 😍

CecilyParsley

•3 years ago

12 Replies

Ill health retirement

Has anyone got experience of applying for ill health retirement from the civil service? I’m struggling to stay in work and occupational health has indicated I...

Has anyone got experience of applying for ill health retirement from the civil s...

Pickzie

•3 years ago

2 Replies

Lupus and frozen shoulder?

After three months of excruciating pain I have finally gotten an MRI and diagnosis of frozen shoulder. No known reason I would have this. Is it common with...

After three months of excruciating pain I have finally gotten an MRI and diagnos...

ShannonB

•3 years ago

16 Replies

Mrs Cropley’s Creations - Terry’s Chocolate Orange Hot Chocolate

Hello everyone, here’s an indulgent chocolate drink to enjoy on this wet and rainy evening! Following on from last week’s Costa Coffee copy - and in true...

Hello everyone, here’s an indulgent chocolate drink to enjoy on this wet and rai...

Horsewhisper

•3 years ago

27 Replies

Hydroxychloroquine and sickness

I am on 200mg of Hydroxy a day since March and has in the last month I am feeling so sick all day and have been up being sick through the night. I contacted my...

I am on 200mg of Hydroxy a day since March and has in the last month I am feelin...

Montysmum1

•3 years ago

6 Replies

Friday the 13th appointment. What could go wrong?

Finally a face to face appointment at the Skin Clinic not my usual doctor but hey what can you expect during these odd times, I was seen by a Registrar rather...

Finally a face to face appointment at the Skin Clinic not my usual doctor but he...

Boudica1

•3 years ago

6 Replies

Tingling skin

Hi all, can I have views on this please? I suffer with a sharp, tingling on the skin on my arms. I used to describe it as an itch but it’s very sharp almost...

Hi all, can I have views on this please? I suffer with a sharp, tingling on the...

Hetty56

•3 years ago

6 Replies

Baracinitib (Jak) or abatacept for lupus/rheumatoid arthritis?

Hi! Has anyone used the one of the above to treat their lupus/rheumatoid arthritis? What were your side effects if you had any? Would you recommend it? Do...

Hi! Has anyone used the one of the above to treat their lupus/rheumatoid arthr...

Sandy1212

•3 years ago

4 Replies

Confused about ANA results

I just had a scary phone call from my GP l feel so anxious because he said my ANA is >1/1600 he didn't explain it to me but said he would refer me to a...

I just had a scary phone call from my GP l feel so anxious because he said my AN...

Hidden

•3 years ago

27 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2020

Big toe Update.

Cuteness time again.

LUPUS UK Virtual Seminar - "Lupus & Fatigue" - Recording now available

Long Covid? Or something from the autoimmune menu?

SORRY FOR BEING OF RADAR

Confused

Support LUPUS UK when you buy Christmas cards this year

Advice!

Do you know someone who can take part in an adolescents (12-17 years old) SLE research study?

LUPUS UK Live Virtual Seminar - "Lupus & Fatigue" - 6pm (GMT) Wednesday 18th November 2020

Arghhhh! I’m not imagining it!

Prednisone side effects

Cytomegalovirus CMV positive- has anyone experienced this ?

Heart Involvement

Anyone had lipoatrophy?

Breastfeeding

Licence revoked by DVLA - want to appeal - anyone anything similar?

It’s Mira Monday

Do you know if someone with Lupus can have the COVID vaccine?

Need toe advice

More cuteness

Ill health retirement

Lupus and frozen shoulder?

Mrs Cropley’s Creations - Terry’s Chocolate Orange Hot Chocolate

Hydroxychloroquine and sickness

Friday the 13th appointment. What could go wrong?

More questions and answers

Tingling skin

Baracinitib (Jak) or abatacept for lupus/rheumatoid arthritis?

Confused about ANA results

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