Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2020

SSC with lungs fibrosis

Hello everyone, Hope all doing well. 8yrs ago I was diagnosed with SLE and Rheumatoid arthritis and have been on med for the same but 2 weeks ago my new...

Hello everyone, Hope all doing well. 8yrs ago I was diagnosed with SLE and Rheum...

Jkan

•4 years ago

2 Replies

Cardiff Lupus Group Virtual Coffee Meeting - 2pm Saturday 10th October 2020

Hi everyone, Our Cardiff Lupus Group are having a virtual coffee meeting from 2pm on Saturday 10th October 2020. If you'd like to join, please email Dalila...

Hi everyone, Our Cardiff Lupus Group are having a virtual coffee meeting from 2p...

Paul_Howard

Partner•4 years ago

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Has anyone had a Microdermabrasian/Dermaplanning facial whilst having Lupus?

Hey Warriors, I booked to get a Microdermabrasian facial and when I was filling out the questionnaire it said that those with certain illness such as...

Hey Warriors, I booked to get a Microdermabrasian facial and when I was filling ...

MsTMP

•4 years ago

3 Replies

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LUPUS UK Webinar - 5pm (BST) Monday 12th October 2020 - Understanding drug development in lupus

Hi everyone, I'm pleased to announce that we've been working on providing a range of virtual education events which will be taking place over the next six...

Hi everyone, I'm pleased to announce that we've been working on providing a rang...

Paul_Howard

Partner•4 years ago

4 Replies

Hydroxychloroquine side effects?

Hiya, I was fortunate enough to have an actual live, in-person new patient rheumatology appointment on Monday and have a provisional MCTD/overlap diagnosis. I...

Hiya, I was fortunate enough to have an actual live, in-person new patient rheum...

TennisCat90

•4 years ago

12 Replies

Rash

Please do you think this is a lupus rash , my lupus tests are negative at the moment although I do have Hughes . I don't have the typical butterfly rash . It...

Please do you think this is a lupus rash , my lupus tests are negative at the mo...

Sevenstar

•4 years ago

7 Replies

Cutie from Countryfile

Hello friends This week's cutie pic is special as its a late born 6 day old Exmoor Pony. For Countryfile watchers it's extra special as he was born on Adam...

Hello friends This week's cutie pic is special as its a late born 6 day old Exm...

misty14

•4 years ago

18 Replies

Red on look out

Such a cheeky lad M x

Maddymay65

•4 years ago

4 Replies

Return of Red 😊

Having an off day but fair cheered up by the return of our larger Red squirrel who has visited a lot recentlg but been udive to the camera, Visited today all...

Having an off day but fair cheered up by the return of our larger Red squirrel ...

Maddymay65

•4 years ago

1 Reply

Lupus flu jab

Hi I’ve had lupus for many years and have been on hydroxychloroquine for ten years , i went to have my annual flu jab yesterday at my local chemist and was...

Hi I’ve had lupus for many years and have been on hydroxychloroquine for ten yea...

Gtkoi

•4 years ago

5 Replies

Flu jab????

Hi, I have Lupus SLE and usually don't have a flu jab, as in the past it has always caused flare ups, but due to covid I'm wondering whether to have one this...

Hi, I have Lupus SLE and usually don't have a flu jab, as in the past it has alw...

Jackpot67

•4 years ago

2 Replies

MRI interpretation help

Hi again, I had a Shoulder MRI in 2017 that showed a mild rotator cuff tear and some calcifications. My Rheumatologist sent me for another(Aug 2020 attached)...

Hi again, I had a Shoulder MRI in 2017 that showed a mild rotator cuff tear and...

patmackfin

•4 years ago

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I’m not sure if I should be at work

I have a concern about my work. I am a career at a residential home and I only just got back to work as I was shielding. They now have 2 residents who have...

I have a concern about my work. I am a career at a residential home and I only j...

Mmafox

•4 years ago

3 Replies

SLE

Hi everyone I've just joined the group. My GP is convinced I have SLE lupus. I've had an MRI, Ultrasound and many blood tests this year. I finally have a phone...

Hi everyone I've just joined the group. My GP is convinced I have SLE lupus. I'v...

Fisher50

•4 years ago

2 Replies

Western General Hospital Edinburgh, Rhumatology?

Hi 👋 looking for any recommendations on Rhumatology consultant at this hospital? I’m Currently at Gartnavel and feeling not getting much help at appointments...

Hi 👋 looking for any recommendations on Rhumatology consultant at this hospital...

Gizmok9

•4 years ago

7 Replies

Appt update, not as well as I’d hoped

Well.. so my new neuro muscular specialist has come to the conclusion that I have small fiber neuropathy (not new information) as well as being under the...

Well.. so my new neuro muscular specialist has come to the conclusion that I hav...

JennaShi

•4 years ago

2 Replies

Steroids and increased vulnerability??

Hi - I started hydroxychoroquine 7 weeks ago and also been on 1000mg of naproxen. My energy levels improved in the mornings but my knee joints didn’t and also...

Hi - I started hydroxychoroquine 7 weeks ago and also been on 1000mg of naproxen...

Allydee

•4 years ago

9 Replies

Help with understanding bloods

Hi, Rheumatology have done all the relevant bloods and these have come back below as My Cytoplasmic Abs Smooth muscle abs wax weak positive Smth M Ab titre...

Hi, Rheumatology have done all the relevant bloods and these have come back bel...

Alisbabas

•4 years ago

12 Replies

Bone broth

Hi all, Hope everyone is is keeping well. I think it was on this forum that I’d read about bone broth. I did buy some and I found it has helped but was...

Hi all, Hope everyone is is keeping well. I think it was on this forum that I’d ...

Josiah150767

•4 years ago

11 Replies

Shingles vaccination

Due to have flu vaccination this week can I have the shingles vaccine as well as I have just reached the age of 70?

Due to have flu vaccination this week can I have the shingles vaccine as well as...

Mags18

•4 years ago

8 Replies

It’s Mira Monday 🐶

Good morning everyone- thank goodness it’s stopped raining as we’ve had rain all weekend. Here is the last picture of Mira before she was groomed which was...

Good morning everyone- thank goodness it’s stopped raining as we’ve had rain all...

svfarmer

•4 years ago

37 Replies

sundays pic for happytulip

surprisingly sunny here today after last nights storms. Mandy wasn't too keen on getting her feet wet. our roads don't have drains as we are rural so the roads...

surprisingly sunny here today after last nights storms. Mandy wasn't too keen on...

suzannah16

•4 years ago

9 Replies

New here so be gentle with me!

Hi just joined as have been diagnosed with Lupus in last few weeks, after 2 years of back and forth to gp. Eventually spoke to a consultant (couldn't see him...

Hi just joined as have been diagnosed with Lupus in last few weeks, after 2 year...

welshmaiden59

•4 years ago

7 Replies

Too much candy

Has anyone ever hurt real bad and they're right side and kidney area after eating huge amounts of candy chocolate peanut butter M&M's to be exact LOL ! I ate...

Has anyone ever hurt real bad and they're right side and kidney area after eatin...

rockinr_56

•4 years ago

13 Replies

Almost 2 year-long cold

Hi All! I have had this cold for almost 2 years and i mention it to my rheumys but they always say ‘oh it’s probably just a cold’ or don’t acknowledge it...

Hi All! I have had this cold for almost 2 years and i mention it to my rheumys...

Sandy1212

•4 years ago

8 Replies

Hyrdroxychloroquine

Hi all. So after a lot of tests and some back and forths of seriously low white blood cells, my consultant has decided to take me off Mychophenalate and put me...

Hi all. So after a lot of tests and some back and forths of seriously low white ...

awareness75

•4 years ago

51 Replies

for happytulip

yesterday was lovely today it's pouring down, 3 inches of rain forecast. won't send you a picture of the rain ugh so sending my mandy instead

yesterday was lovely today it's pouring down, 3 inches of rain forecast. won't s...

suzannah16

•4 years ago

13 Replies

A Needed Dose of Kindness

Hi lovlies! It’s been awhile since I’ve posted. Honestly, it’s been incredibly hard to live in the US right now. Not just as someone with a chronic illness,...

Hi lovlies! It’s been awhile since I’ve posted. Honestly, it’s been incredibly h...

katidid

•4 years ago

17 Replies

For everyone feeling in need of a smile 🦔🦔🦔🦔

These are soo cute. Have a happy weekend everyone xx

CecilyParsley

•4 years ago

12 Replies

Gastric pain, anyone else???

Hi 👋🏻 Thank you to everyone has helped me so far, I’ve found this group so supportive and chatting to some if you really helped me feel prepared for my...

Hi 👋🏻 Thank you to everyone has helped me so far, I’ve found this group so su...

SWinNorfolk

•4 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2020

SSC with lungs fibrosis

Cardiff Lupus Group Virtual Coffee Meeting - 2pm Saturday 10th October 2020

Has anyone had a Microdermabrasian/Dermaplanning facial whilst having Lupus?

LUPUS UK Webinar - 5pm (BST) Monday 12th October 2020 - Understanding drug development in lupus

Hydroxychloroquine side effects?

Rash

Cutie from Countryfile

Red on look out

Return of Red 😊

Lupus flu jab

Flu jab????

MRI interpretation help

I’m not sure if I should be at work

SLE

Western General Hospital Edinburgh, Rhumatology?

Appt update, not as well as I’d hoped

Steroids and increased vulnerability??

Help with understanding bloods

Bone broth

Shingles vaccination

It’s Mira Monday 🐶

sundays pic for happytulip

New here so be gentle with me!

Too much candy

Almost 2 year-long cold

Hyrdroxychloroquine

for happytulip

A Needed Dose of Kindness

For everyone feeling in need of a smile 🦔🦔🦔🦔

Gastric pain, anyone else???

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