Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2020

Loneliness

I’m not sure I can cope with this situation any longer, during covid ,lupus flared up , the appointments were only by phone just prescribed cortisone, I did...

I’m not sure I can cope with this situation any longer, during covid ,lupus flar...

Melaxx

•4 years ago

10 Replies

Flu jab reaction

Hi.I had my flu jab a week ago ,next day started having gastric issues,loss of appetite,generally feeling unwell.Then yesterday started chest infection,i have...

Hi.I had my flu jab a week ago ,next day started having gastric issues,loss of a...

mousey1

•4 years ago

2 Replies

Recommend a lupus specialist.

Hi everyone. I haven't posted in a while....just haven't been in the right head space and didn't want to come on here and lay my self distructive self...

Hi everyone. I haven't posted in a while....just haven't been in the right head ...

Hidden

•4 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Left rib pain

Hello, I hope you are all keeping as well as can be. Its only my second time posting here, lupus is still very new to me. For the last 2 weeks I have had pain...

Hello, I hope you are all keeping as well as can be. Its only my second time pos...

Kmp35

•4 years ago

17 Replies

New Chickens 🐔

Hi folks just a quick pic of our new chickens - theve got to stay inside for 24 hours - we got 10 in the end - my other half turned Beas whelping box into a...

Hi folks just a quick pic of our new chickens - theve got to stay inside for 24 ...

svfarmer

•4 years ago

10 Replies

Liver Function

Just had routine bloods done as on methotrexate. My GP has just called to say there’s an issue with my liver blood results and to hold off from taking my MTHX...

Just had routine bloods done as on methotrexate. My GP has just called to say th...

Sin123

•4 years ago

6 Replies

Constant migraines!

Does anyone else have constant migraines please? I have suffered migraines since I was 18 (I am now in my 60’s). These were about 3 times a year. But for...

Does anyone else have constant migraines please? I have suffered migraines sinc...

Bakbre

•4 years ago

9 Replies

Keeping the cuteness going

Hello everyone, here's this week's cuteness pic. Hope you like it and are keeping as well and safe as possible. MistyX

Hello everyone, here's this week's cuteness pic. Hope you like it and are keepin...

misty14

•4 years ago

27 Replies

Update from appointment

Evening all, A little update from my post the other day I was so anxious about seeing this new rheumatologist! I took my notes which he scanned over (not sure...

Evening all, A little update from my post the other day I was so anxious about ...

Leenie0811

•4 years ago

24 Replies

Updates rather promising

I think I may finally be moving forward with potentially getting closer to figuring out the main issue or one of them. Got the genetics test results back but...

I think I may finally be moving forward with potentially getting closer to figur...

JennaShi

•4 years ago

13 Replies

LUPUS UK Community Forum Research Papers - Lupus Awareness Month

As part of Lupus Awareness Month, we would like to highlight two important patient-focused research papers led superbly by Melanie Sloan and funded by LUPUS...

As part of Lupus Awareness Month, we would like to highlight two important patie...

Chanpreet_Walia

LUPUS UK•4 years ago

5 Replies

LUPUS UK Virtual Patient Education Events

Join LUPUS UK each month between October 2020 to April 2021 for a series of interactive, virtual patient education events with leading experts to discuss the...

Join LUPUS UK each month between October 2020 to April 2021 for a series of inte...

Chanpreet_Walia

LUPUS UK•4 years ago

2 Replies

Constant engaged advice line

I’m just wondering if anybody else has or is having problems accessing the rheumatology advice line at Leeds chapel Allerton ?? I’ve tried so my times ,...

I’m just wondering if anybody else has or is having problems accessing the rheum...

Willow1414

•4 years ago

21 Replies

Frustrating Rheumatology appointment

Just had my first long awaited hospital appointment and now feel totally deflated and frustrated after a patronising consultation . Ever get the feeling they...

Just had my first long awaited hospital appointment and now feel totally deflate...

Kirbycreates

•4 years ago

19 Replies

ACT It Out - App to help adults who any different or unusual appearance live a fulfilling life

Researchers from the Centre for Appearance Research at UWE Bristol are looking for people with lupus who are experiencing psychological / social difficulties...

Researchers from the Centre for Appearance Research at UWE Bristol are looking f...

Chanpreet_Walia

LUPUS UK•4 years ago

Be the first to reply

PIP refusal a joke

Hi Recently I had a telephone consultation for PIP assessment then got a reply refusing my claim. It appears that everything the GP confirmed was ignored and...

Hi Recently I had a telephone consultation for PIP assessment then got a reply r...

MandaM

•4 years ago

12 Replies

Gastritis

Has anyone found that since having Lupus that they now have stomach problems. I first developed gastritis a few years ago when my GP gave me statins....

Has anyone found that since having Lupus that they now have stomach problems. I...

SecondLife

•4 years ago

31 Replies

Initial consultation done - what expect now ??

Hi 👋 so I had initial appointment by telephone with the Rheumatologist. He was very pleasant. So he took brief history and then asked specific questions...

Hi 👋 so I had initial appointment by telephone with the Rheumatologist. He was ...

Hidden

•4 years ago

3 Replies

Hair Loss

Having lost my hair once to methotrexate and regained it following change of dosage I’m now losing it again due to stress (or call it Covid-19!) It’s now...

Having lost my hair once to methotrexate and regained it following change of dos...

Sin123

•4 years ago

6 Replies

Work COVID and Lupus

Hi I was wondering how you all are managing leaving the house. I am currently struggling to do so for fear of COVID. In a normal winter I am catching any virus...

Hi I was wondering how you all are managing leaving the house. I am currently st...

lilliebetfairies

•4 years ago

7 Replies

Hydroxychloroquine 300mg tablet

Hi everyone Just wondering have you been able to access this new 300 mg hcq tablet from Blackrock pharmaceuticals ok?. Keep safe and well. MistyX

Hi everyone Just wondering have you been able to access this new 300 mg hcq tabl...

misty14

•4 years ago

34 Replies

It’s Mira Monday

Good morning everyone- we have a super cute picture of Mira today in her new PJ,s , both her and her mum get very cold at night so they have matching suits...

Good morning everyone- we have a super cute picture of Mira today in her new PJ,...

svfarmer

•4 years ago

23 Replies

Pain after eating

for months now have had a lot of pain under my ribs on my right side going round to my back and up to my shoulder blade sometimes lasts for hours ogd negative...

for months now have had a lot of pain under my ribs on my right side going round...

daniel55

•4 years ago

12 Replies

Burning mouth

I am writing for the first time on behalf of my mum, 83, who has started experiencing burning in her mouth, mostly on her tongue and palate! She also has...

I am writing for the first time on behalf of my mum, 83, who has started experie...

AdrianaB

•4 years ago

19 Replies

Dull aches in lower legs?

Hi does anyone have an issue with dull aches in their calve muscles as well as random dull intermittent pains in their hands and feet? If so have you found a...

Hi does anyone have an issue with dull aches in their calve muscles as well as r...

JennaShi

•4 years ago

5 Replies

Good wishes for our Stormy Sunshine

The Storm has asked me to tell everybody here that she sends her love, peace and blessings to you all and is thinking of you while she battles with her health....

The Storm has asked me to tell everybody here that she sends her love, peace and...

Spotty-ewe

•4 years ago

60 Replies

Breathless

Hi everyone, I hope that you are all keeping safe and coping as well as you can with this dreadful pandemic and chronic ill health? I have a question that may...

Hi everyone, I hope that you are all keeping safe and coping as well as you can ...

CecilyParsley

•4 years ago

32 Replies

Vitamin D slide

A summary

Kevin53

•4 years ago

13 Replies

Vitamin D

https://docs.google.com/document/d/10peHD1jG-xAGj5Lzu6f43RB7cv5QeePasw05AGZrjKg/edit Best wishes Kevin

https://docs.google.com/document/d/10peHD1jG-xAGj5Lzu6f43RB7cv5QeePasw05AGZrjKg/...

Kevin53

•4 years ago

Be the first to reply

Vitamin D

https://docs.google.com/document/d/10peHD1jG-xAGj5Lzu6f43RB7cv5QeePasw05AGZrjKg/edit Best wishes Kevin

https://docs.google.com/document/d/10peHD1jG-xAGj5Lzu6f43RB7cv5QeePasw05AGZrjKg/...

Kevin53

•4 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2020

Loneliness

Flu jab reaction

Recommend a lupus specialist.

Left rib pain

New Chickens 🐔

Liver Function

Constant migraines!

Keeping the cuteness going

Update from appointment

Updates rather promising

LUPUS UK Community Forum Research Papers - Lupus Awareness Month

LUPUS UK Virtual Patient Education Events

Constant engaged advice line

Frustrating Rheumatology appointment

ACT It Out - App to help adults who any different or unusual appearance live a fulfilling life

PIP refusal a joke

Gastritis

Initial consultation done - what expect now ??

Hair Loss

Work COVID and Lupus

Hydroxychloroquine 300mg tablet

It’s Mira Monday

Pain after eating

Burning mouth

Dull aches in lower legs?

Good wishes for our Stormy Sunshine

Breathless

Vitamin D slide

Vitamin D

Vitamin D

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive