Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,692 members • 28,072 posts

All posts for October 2020

Anyone else confused? Extra precautions?

What does this mean for a lupus patient who is a teacher?

F1zz

•3 years ago

20 Replies

Has anyone experience of chemical sensitivity

Hi everyone, I am wondering if any one has experience chemical insensitivity. My chemical sensitivity is off the Richter scale. I cant tolerate anything...

Hi everyone, I am wondering if any one has experience chemical insensitivity. M...

field

•3 years ago

15 Replies

Blood test abbreviation meanings

Hi all Hope you’re all as well as possible and coping in these strange times. I was diagnosed with SLE 3 years ago. I had my 6 monthly rheumy consultation...

Hi all Hope you’re all as well as possible and coping in these strange times. ...

Wishie

•3 years ago

4 Replies

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Taking Steroids before my first Rheumatology appointment?

Hello, I am being investigated for autoimmune disorders including lupus. I have a strong family history, rashes, history of low wbc, unexplained fever, G6PD...

Hello, I am being investigated for autoimmune disorders including lupus. I have ...

ALJ780

•3 years ago

10 Replies

LUPUS UK HealthUnlocked Community Research Paper - NOW PUBLISHED

Hi everyone, I'm really pleased to announce that an important research paper produced collaboratively with this online community has been published! A great...

Hi everyone, I'm really pleased to announce that an important research paper pro...

Paul_Howard

Partner•3 years ago

8 Replies

My struggle with Lupus

Hello my Name is BeverleySamson and I have had Lupus a long time now in the early days of having lupus I spent most of my time in bed feeling sick and confused...

Hello my Name is BeverleySamson and I have had Lupus a long time now in the earl...

Sussex12

•3 years ago

11 Replies

Potassium

Just had blood test saying my potassium is very high now got to have another blood test any one else have this an no why

Just had blood test saying my potassium is very high now got to have another blo...

Shellys22

•3 years ago

7 Replies

Blood Test Advice

Hello, I am completely new to all of this. I was being investigated for what the Doctor thought was severe Eczema but my ANA, Anti-TIF Gamma, PMS cl 75 and LDH...

Hello, I am completely new to all of this. I was being investigated for what the...

Phive03

•3 years ago

7 Replies

Azathioprine: not sure

Hi I've just, well for the past week, started azathioprine at 75mg. Thankfully, so far, no GI issues but it does make me drowsy and I've lost my appetite. In...

Hi I've just, well for the past week, started azathioprine at 75mg. Thankfully,...

Amakura

•3 years ago

11 Replies

Cute chick

Hello everyone This week's cute pic is an owl chick who got caught in a rainstorm at the Scottish Owl centre in West Lothian!. He'll have to learn to take a...

Hello everyone This week's cute pic is an owl chick who got caught in a rainsto...

misty14

•3 years ago

36 Replies

Using AVISE Lupus Monitor for Diagnosis

Hi there, 21F, Sister had lupus, lost her to suicide, been feeling on and off terrible for a good two years, but this year it got worse in the beginning and...

Hi there, 21F, Sister had lupus, lost her to suicide, been feeling on and off t...

zabrtoothtiger

•3 years ago

3 Replies

Can anybody relate? How long did it take to be diagnosed?

Hello! I started with chronic fatigue back in June, no other symptoms other than headaches and pain behind my eye. These flare ups kept happening and by July...

Hello! I started with chronic fatigue back in June, no other symptoms other than...

Hidden

•3 years ago

18 Replies

Hydroxychloroquine sleep loss

Been on Hydrxy for 7 months now. Last 2 I seem to have developed insomnia and notice that im shedding more hair than normal. Are the two linked ??

Been on Hydrxy for 7 months now. Last 2 I seem to have developed insomnia and no...

Montysmum1

•3 years ago

6 Replies

Blood Test - High liver count

I’m not sure if anyone can offer an insight to the information I have. Routine blood test for my lupus sle and the liver count was 100 rather than being the...

I’m not sure if anyone can offer an insight to the information I have. Routine ...

Sin123

•3 years ago

15 Replies

Newly diagnosed with Lupus this year in February. Had IVF and want to get pregnant. I am really desperate, can someone share and advice me.

Hi there, I am newly diagnosed with Lupus this year in February. Had IVF egg collection last September and have 2 eggs saved. Can someone share their...

Hi there, I am newly diagnosed with Lupus this year in February. Had IVF egg col...

Sunflowers_2020

•3 years ago

12 Replies

Face pain

Hi all! Just wondering if anyone has had these symptoms and if so have any clue as to what it might be. I started with toothache in my front tooth this...

Hi all! Just wondering if anyone has had these symptoms and if so have any clue...

Susieliz39

•3 years ago

9 Replies

Lupus and Northistetone 5mg tablets

Hello all, Maybe more aimed at ladies unless some gentlemen have knowledge of this medication? Has anybody used this medication? I have heavy periods and...

Hello all, Maybe more aimed at ladies unless some gentlemen have knowledge of t...

BeeHoneyB

•3 years ago

9 Replies

CHANGED IN MEDICATION - IMURAN

Hi, Had to come off Methotrexate as the side effect were so bad. Now on Imuran but skin burning and rash has started again and is spreading rapidly. Has...

Hi, Had to come off Methotrexate as the side effect were so bad. Now on Imuran ...

Haired

•3 years ago

12 Replies

Lupus & COVID-19 - Live Virtual Seminar - 6pm (GMT) Thursday 29th October 2020

Hi everyone, This Thursday, as part of Lupus Awareness Month, we will be launching our new six-month series of virtual seminars. Join us at 6pm (GMT) on...

Hi everyone, This Thursday, as part of Lupus Awareness Month, we will be launchi...

Paul_Howard

Partner•3 years ago

4 Replies

Help

Has any one suffered with vibrations in body all over body and burning and stinging. Been off hydroxy for 11 days now as rheumatologist thought it my be side...

Has any one suffered with vibrations in body all over body and burning and sting...

Lottie12345

•3 years ago

6 Replies

Amazing likeness

Hi all, I hope that you are all as well as you can be. I am resting after my massive asthma attack yesterday and I thought you might like to see my new phone...

Hi all, I hope that you are all as well as you can be. I am resting after my mas...

CecilyParsley

•3 years ago

48 Replies

Problem with my eyes

Hi All For the past week I keep having episodes of burning in my eyes, like smoke or some other noxious irritant. Just wondered whether it could be to do with...

Hi All For the past week I keep having episodes of burning in my eyes, like smok...

babssara

•3 years ago

17 Replies

Do medication side effects get worse if you aren't taking care of yourself?

Just wondering if this can happen as there are exams this week so I am low on sleep right now and have had caffeine today. I am on Plaquenil and a few...

Just wondering if this can happen as there are exams this week so I am low on sl...

nellie_4132

•3 years ago

2 Replies

LUPUS UK Webinar - Understanding drug development in lupus - Recording now available

Hi everyone, If you missed our live webinar on Monday 12th October, we have now uploaded the recording, which you can watch below:......

Hi everyone, If you missed our live webinar on Monday 12th October, we have now ...

Paul_Howard

Partner•3 years ago

3 Replies

It’s Mira Monday 🐶🐓🐶🐔

Morning everybody Elvis and his Girls are settling in well and Mira and Bea spend every opportunity up near the chooks and are absolutely fascinated by them...

Morning everybody Elvis and his Girls are settling in well and Mira and Bea spen...

svfarmer

•3 years ago

8 Replies

Errors among diagnosed lupus patients

Hello everyone, Do you know if this type of test is currently done for the diagnosis of lupus, please?...

Hello everyone, Do you know if this type of test is currently done for the diag...

Naladog

•3 years ago

4 Replies

Supplements and sulking...

Hi everyone... well 9 weeks into taking hydroxychoroquine I’m still having massive problems with my knees, so now on yet another course of steroids. I gave up...

Hi everyone... well 9 weeks into taking hydroxychoroquine I’m still having massi...

Allydee

•3 years ago

13 Replies

New Chickens 🐔

Elvis Pricilla Lisa Marie Elvis’s Backing group Cissy, Myrna, Sylvia, Estelle Elvis’s Girlfriends: Ginger Linda Barbara Thought this would make everyone...

Elvis Pricilla Lisa Marie Elvis’s Backing group Cissy, Myrna, Sylvia, Estelle ...

svfarmer

•3 years ago

16 Replies

Has anyone with Lupus had Covid?

I was just wondering how unwell people were if they contracted Covid. I’ve had a few scares as I have asthma and when it gets bad and I contact the Dr they...

I was just wondering how unwell people were if they contracted Covid. I’ve had a...

Jolevans

•3 years ago

20 Replies

Very tender neck pain

Hi everyone, I’m still in the process of being diagnosed with Lupus but my consultant is thinking it definitely is some sort of connective tissue problem. This...

Hi everyone, I’m still in the process of being diagnosed with Lupus but my consu...

Daisyyellow

•3 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2020

Anyone else confused? Extra precautions?

Has anyone experience of chemical sensitivity

Blood test abbreviation meanings

Taking Steroids before my first Rheumatology appointment?

LUPUS UK HealthUnlocked Community Research Paper - NOW PUBLISHED

My struggle with Lupus

Potassium

Blood Test Advice

Azathioprine: not sure

Cute chick

Using AVISE Lupus Monitor for Diagnosis

Can anybody relate? How long did it take to be diagnosed?

Hydroxychloroquine sleep loss

Blood Test - High liver count

Newly diagnosed with Lupus this year in February. Had IVF and want to get pregnant. I am really desperate, can someone share and advice me.

Face pain

Lupus and Northistetone 5mg tablets

CHANGED IN MEDICATION - IMURAN

Lupus & COVID-19 - Live Virtual Seminar - 6pm (GMT) Thursday 29th October 2020

Help

Amazing likeness

Problem with my eyes

Do medication side effects get worse if you aren't taking care of yourself?

LUPUS UK Webinar - Understanding drug development in lupus - Recording now available

It’s Mira Monday 🐶🐓🐶🐔

Errors among diagnosed lupus patients

Supplements and sulking...

New Chickens 🐔

Has anyone with Lupus had Covid?

Very tender neck pain

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