Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2020

Struggling to continue to work

I returned to work last month after being furloughed all of the shielding period. I am still working from home. Since lockdown/shielding, my role has been...

I returned to work last month after being furloughed all of the shielding period...

eescvc

•4 years ago

4 Replies

Chronic crippling fatigue

Hi everyone Chronic fatigue- any techniques to help combat this ? Since I had GBS in January it’s still an issue. Waiting for 1st Rheumatology appointment-...

Hi everyone Chronic fatigue- any techniques to help combat this ? Since I had ...

Hidden

•4 years ago

19 Replies

Rhumatology appointment

Morning all hope everyone is well I've been quiet for a while as I've been back at work and college starts next week 😊. I'm now happily single and less...

Morning all hope everyone is well I've been quiet for a while as I've been back ...

Kat-

•4 years ago

12 Replies

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Needing advice on hydroxycholiquine

I’m in a quandary... diagnosed with lupus sle in May the year. Had a lot symptoms with joint pain in my wrists and GI issues awaiting polops biopsy results....

I’m in a quandary... diagnosed with lupus sle in May the year. Had a lot symptom...

TillyO

•4 years ago

8 Replies

It’s Mira Monday 🐶

Morning everybody well Mira the Minx has been a very good girl this week I thought I would take her to a coffee shop as haven’t attempted this before, she sat...

Morning everybody well Mira the Minx has been a very good girl this week I thoug...

svfarmer

•4 years ago

28 Replies

Financial cost of Lupus

When I read posts from newly diagnosed lupus warriors on here I think about the things I wish I had known early on. One thing in particular is how much it...

When I read posts from newly diagnosed lupus warriors on here I think about the ...

Cathyan

•4 years ago

9 Replies

Trying to understand malar rash and photosensitivity.

I am trying to undertand what's happening when I get a malar rash and feel rotten after being outside. Yesterday, 9.00 am went outside (without any protection)...

I am trying to undertand what's happening when I get a malar rash and feel rotte...

RosieA

•4 years ago

18 Replies

Just got diagnosed with Lupus nephritis

Hi there. Summary: Just recently got diagnosed with Lupus nephritis after a biopsy. My life has changed. I'm constantly tired. And my body just feels...

Hi there. Summary: Just recently got diagnosed with Lupus nephritis after a biop...

Panda895

•4 years ago

4 Replies

Volunteers needed to review a lay summary of a research grant proposal

Hi everyone, We've been contacted by a team of researchers based at King's College London who are proposing a research study to investigate the role two...

Hi everyone, We've been contacted by a team of researchers based at King's Colle...

Paul_Howard

Partner•4 years ago

7 Replies

Supplements

Hi All, Does anyone take supplements alongside their usual prescribed medication? I have SLE, vasculitis in the legs and rheumatoid arthritis. Always...

Hi All, Does anyone take supplements alongside their usual prescribed medicatio...

chapatti

•4 years ago

15 Replies

Hair loss

For 30 years I’ve had mild hair loss due to lupus and all the drugs I take. I accepted that. When I developed severe depression, I suffered more hair loss...

For 30 years I’ve had mild hair loss due to lupus and all the drugs I take. I a...

LilyMistri2

•4 years ago

3 Replies

Ranitidine, Prednisolone and Omeprazole

I was taking Ranitidine Once a day every night for 30 years! Then I was told to change to 20mg Omeprazole at night and in the morning, because it is no longer...

I was taking Ranitidine Once a day every night for 30 years! Then I was told to ...

LilyMistri2

•4 years ago

10 Replies

Tendon problems along with joint stiffness when flaring

Pooh bear (the wife) is currently a hobbling bear cant walk in extreme pain whilst having the symptoms of a flare. She has tendon problems up her leg into her...

Pooh bear (the wife) is currently a hobbling bear cant walk in extreme pain whil...

jimbo1605

•4 years ago

2 Replies

Does this sound like Lupus?

Sorry to post random questions, but I would be interested to hear opinions from those who know more about it than me! I had some blood tests done back in early...

Sorry to post random questions, but I would be interested to hear opinions from ...

TennisCat90

•4 years ago

17 Replies

Thought I’d bring some laughs

Kind of crawled into a hole for a while but am back and thought I’d bring some laughter. My daughter was trying to get all the layers pinned down and she...

Kind of crawled into a hole for a while but am back and thought I’d bring some l...

JennaShi

•4 years ago

6 Replies

Photosensitivity, malar rash and fatique!

After discussion with both GP and specialist rhuemy nurse I am left a little confused. My diagnosis is a shifting picture but over the last few months I have...

After discussion with both GP and specialist rhuemy nurse I am left a little con...

RosieA

•4 years ago

33 Replies

Taking Probiotics for lupus?

Hi! I was wondering if anyone was taking probiotics and if it had an effect on their lupus? And what probiotic would you recommend? Supplement or like a...

Hi! I was wondering if anyone was taking probiotics and if it had an effect on t...

Sandy1212

•4 years ago

8 Replies

Does anyone else get a lot of muscle tension?

Hi everyone. I'm new to the forum, I have Lupus, diagnosed in 2015, but likely had it for nearly twenty years before this(!) I wanted to ask if anyone else...

Hi everyone. I'm new to the forum, I have Lupus, diagnosed in 2015, but likely h...

Choccy8

•4 years ago

7 Replies

Carrying on the cuteness

Hello everyone, Just thought I'd post this week's cute pic of a leopard making sure her cub is sheltered. Hope you like it. Keep well as possible and safe....

Hello everyone, Just thought I'd post this week's cute pic of a leopard making ...

misty14

•4 years ago

54 Replies

Struggling to manage symptoms and life - advice please after returning to work.

First week back in the classroom, part time in New role after taking 3 years out whilst being under diagnosed. Determined to get life back - joined a spa so I...

First week back in the classroom, part time in New role after taking 3 years out...

F1zz

•4 years ago

5 Replies

Stop taking meds.

What’s the worst that can happen if I stop taking my medicine? I dont know if its because I was under quarantine for almost 3 months or what. But Im done. Im...

What’s the worst that can happen if I stop taking my medicine? I dont know if it...

Jaylowdancer

•4 years ago

18 Replies

Three interviewees needed for end of school project

Hi everyone, This is a follow-up post from two weeks ago regarding a survey for an end of year school project. Adaia Flotats (the researcher) has asked if one...

Hi everyone, This is a follow-up post from two weeks ago regarding a survey for ...

Chanpreet_Walia

LUPUS UK•4 years ago

1 Reply

Blood clots and urticarial vasculitis syndrome

Hello everyone. I hope you are all feeling as well as can be. I wondered if anyone could tell me whether they have suffered blood clotting as part of lupus/...

Hello everyone. I hope you are all feeling as well as can be. I wondered if anyo...

Hoofprints

•4 years ago

10 Replies

Mira Minx Monday 🐶

Good morning everybody hope all are as well as could be . Well Mira certainly has been a little minx again as managed to get stuck under the decking area...

Good morning everybody hope all are as well as could be . Well Mira certainly ha...

svfarmer

•4 years ago

22 Replies

Totally tee'd off with phone consultations and how A&E are (not) working.

How many of us here and with other long term health problems are tee'd off with the way we are being treated? I know I am. Little to no access to consultants...

How many of us here and with other long term health problems are tee'd off with ...

Boudica1

•4 years ago

19 Replies

Azathioprine

I have yellow under eyelids and corner of my eyes it doesn’t look as dark as jaundice. Does anyone experience this on azathioprine

I have yellow under eyelids and corner of my eyes it doesn’t look as dark as jau...

JaneI_1

•4 years ago

5 Replies

Hibernation mode, painful hands and fuzzy eyesight.

Well as you can guess by the heading this is a bit of me at the moment. Probably not helping myself as I've been trying to do some embroidery at the moment in...

Well as you can guess by the heading this is a bit of me at the moment. Probably...

Boudica1

•4 years ago

1 Reply

E Ink screens and VAT relief

Does anyone know if we can get VAT relief when buying an E Ink device if we are sensitive to the UV of normal screens? I can’t afford the E Ink monitor from...

Does anyone know if we can get VAT relief when buying an E Ink device if we are ...

Cathyan

•4 years ago

4 Replies

Calcium

Hi all. Not wanting to complain as some of you seem to be suffering so much more than me. I was put on steroids 3 years ago during a flare . Already on...

Hi all. Not wanting to complain as some of you seem to be suffering so much more...

Potatoheat

•4 years ago

6 Replies

Visit from Red

Made me smile ☺ Being laid up for a few days and have missed any visits from our resident Reds. Spotted little red this morning quickly got outside and knelt...

Made me smile ☺ Being laid up for a few days and have missed any visits from ou...

Maddymay65

•4 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2020

Struggling to continue to work

Chronic crippling fatigue

Rhumatology appointment

Needing advice on hydroxycholiquine

It’s Mira Monday 🐶

Financial cost of Lupus

Trying to understand malar rash and photosensitivity.

Just got diagnosed with Lupus nephritis

Volunteers needed to review a lay summary of a research grant proposal

Supplements

Hair loss

Ranitidine, Prednisolone and Omeprazole

Tendon problems along with joint stiffness when flaring

Does this sound like Lupus?

Thought I’d bring some laughs

Photosensitivity, malar rash and fatique!

Taking Probiotics for lupus?

Does anyone else get a lot of muscle tension?

Carrying on the cuteness

Struggling to manage symptoms and life - advice please after returning to work.

Stop taking meds.

Three interviewees needed for end of school project

Blood clots and urticarial vasculitis syndrome

Mira Minx Monday 🐶

Totally tee'd off with phone consultations and how A&E are (not) working.

Azathioprine

Hibernation mode, painful hands and fuzzy eyesight.

E Ink screens and VAT relief

Calcium

Visit from Red

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