Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,691 members • 28,072 posts

All posts for September 2020

End of a long road, and the beginning of another..

I first wrote on this Lupus page 2 years ago, searching and confused, trying to figure things out on my own, having already been diagnosed with Pernicious...

I first wrote on this Lupus page 2 years ago, searching and confused, trying to ...

patmackfin

•4 years ago

3 Replies

NICE appraisal of belimumab (Benlysta) - please complete our anonymous online survey

The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (Benlysta) to produce new guidance for its use in the...

The National Institute for Health and Care Excellence (NICE) are doing an apprai...

Paul_Howard

Partner•4 years ago

1 Reply

1st Rheumy appointment

Yay Finally have my 1st Rheumy appointment for SLE ( been waiting since January) The doctor did tests in December (Said poss for SLE) then called me in and...

Yay Finally have my 1st Rheumy appointment for SLE ( been waiting since January)...

Kelda74

•4 years ago

14 Replies

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Lupus and hair loss/thinning

Hey Guys My hair started to think back in January this year, no legions though. I started taking Hydroxychloroquine Back in March but do far it’s not helped....

Hey Guys My hair started to think back in January this year, no legions though....

NicolaKidd

•4 years ago

12 Replies

Occular migraine with aura

Please keep me in your prayers and thoughts, I’m dealing with the above and just waiting for it to subside. Aura left thankfully but was so weird . Anyone have...

Please keep me in your prayers and thoughts, I’m dealing with the above and just...

JennaShi

•4 years ago

14 Replies

Full time student and Lupus: any tips?

Hi everyone I've become a full time mature student and I was wondering if anyone had any tips for studying with lupus? For instance, how do you manage both...

Hi everyone I've become a full time mature student and I was wondering if anyone...

Amakura

•4 years ago

16 Replies

Lupus and the influenza (flu) vaccine - Updated information and guidance for the 2020/21 season

Hi everyone, We've just published updated information and guidance about lupus and the flu vaccination for the 2020/21 season. This is of increased importance...

Hi everyone, We've just published updated information and guidance about lupus a...

Paul_Howard

Partner•4 years ago

29 Replies

Lupus diagnosis Incorrect???

Hi guys, i came on here back in june to talk about how i was diagnosed with SLE with only a positive ana and clinical symptoms, my rheumatologist at the time...

Hi guys, i came on here back in june to talk about how i was diagnosed with SLE...

aimenkhattak27

•4 years ago

23 Replies

Regaining my life, how??

Hey friends.. I hv been spending last 2 years of my life in regaining my strength after the execive protein loss (diagnosed with SLE nephritis-feb'19) and then...

Hey friends.. I hv been spending last 2 years of my life in regaining my strengt...

Putloo

•4 years ago

6 Replies

Extreme fatigue advice.

Hi all, Since the start my main symptom of lupus has been extreme fatigue. Along with daily joint pain and extremely painful flares 😩 I’m 25 and have been on...

Hi all, Since the start my main symptom of lupus has been extreme fatigue. Along...

Becky1995

•4 years ago

14 Replies

It’s Mira Monday 🐶

Hi everyone we have a special pic of Mira with one of her brothers, Jasper today. We met up yesterday for a dog walk with Jasper and Wooster who is Mira,s dad...

Hi everyone we have a special pic of Mira with one of her brothers, Jasper today...

svfarmer

•4 years ago

21 Replies

Mosquito bites

Does anyone else have extreme/long lasting skin reactions to insect bites? As Autumn blusters in I have an (unwelcome) reminder of warmer times thanks to some...

Does anyone else have extreme/long lasting skin reactions to insect bites? As Au...

patient165

•4 years ago

11 Replies

Just had Flu jab in car park now frozen.

Oh yes the joy of being in the Shielding group and having to have the flu vaccine outside, well at least it wasn't raining as well as cold. So now back home...

Oh yes the joy of being in the Shielding group and having to have the flu vaccin...

Boudica1

•4 years ago

21 Replies

Can lupus cause lactose intolerance?

Hi all! Pre-diagnosis, i have never had any issue with any dairy products whatsoever. Almost two years in however, i have noticed that when I have full fat...

Hi all! Pre-diagnosis, i have never had any issue with any dairy products what...

Sandy1212

•4 years ago

10 Replies

Beautiful Flowers

I received these beautiful flowers today from a friend for my Birthday on Sunday. They cheered me up, my favourite colour so I thought I would share them with...

I received these beautiful flowers today from a friend for my Birthday on Sunday...

CecilyParsley

•4 years ago

47 Replies

Chilblain Lupus (Erythromyalgia?)

Hi, I am a 69 yr old Grandma living in TN, U.S.A. After many, many months of increasing unusual symptoms, I was finally diagnosed in June 2020 with Mixed...

Hi, I am a 69 yr old Grandma living in TN, U.S.A. After many, many months of in...

GrandMAptm

•4 years ago

5 Replies

Long-COVID rehab

I would be interested to know how many people with SLE/SLE like illnesses actually get rehab or employment support without asking - I think we need to make...

I would be interested to know how many people with SLE/SLE like illnesses actual...

Milliecox

•4 years ago

17 Replies

The invisible disease

So I have been off work with really bad flare of undifferentiated connective tissue disease. Due blood results tomorrow. Soonest consultant can see me is 7th...

So I have been off work with really bad flare of undifferentiated connective tis...

Oxfordjojo

•4 years ago

8 Replies

Does anybody suffer really bad cognitive functioning and memory issues with citalopram?

I went on citalopram last summer out of desperation because I pretty much went insane over a bad physical medical issue. From the offset it did affect my...

I went on citalopram last summer out of desperation because I pretty much went i...

Ankapoo

•4 years ago

2 Replies

Hospital app

Well at least I've got a hospital app tomorrow first one in over a year,but still it's not with my consultant but with my alcohol doctor,although he's great so...

Well at least I've got a hospital app tomorrow first one in over a year,but stil...

Vsully

•4 years ago

7 Replies

Decompression surgery

Hi, Has anyone went through decompression surgery in the lower back, I’ve been referred for this procedure, just waiting now on appointment, though there is a...

Hi, Has anyone went through decompression surgery in the lower back, I’ve been r...

Jhpc

•4 years ago

20 Replies

Cuteness keeps coming.

Here's a pic I think you'll like everyone. The jet skier had quite a shock!. Hope it helps to keep spirits going as we're back to more challenging times now!....

Here's a pic I think you'll like everyone. The jet skier had quite a shock!. Ho...

misty14

•4 years ago

38 Replies

Anyone else had these symptoms advice welcome

I have had no sleep for weeks now. Really struggling and getting very down. I have rang rheumatologist nurses but not available until Monday. I have had...

I have had no sleep for weeks now. Really struggling and getting very down. I h...

Lottie12345

•4 years ago

2 Replies

Pain

Morning all,well have awoken this morning feeling in pain,my shoulders feel like I have trapped the biggest nerves going and still a lil itchy,but feet are...

Morning all,well have awoken this morning feeling in pain,my shoulders feel like...

Vsully

•4 years ago

1 Reply

Neck pains

I think a pillow with good neck support will help ease the muscle spasms.

Goer

•4 years ago

1 Reply

Sulphasalazine side effects

I take hydroxychloroquine and methotrexate for lupus and inflammatory arthritis. My rheumatologist wants me to start sulphasalazine in addition, as the current...

I take hydroxychloroquine and methotrexate for lupus and inflammatory arthritis....

Gerardina

•4 years ago

2 Replies

Good night all

Well I guess it's time for bed I think,its been along day for me as I bet it has been for all of you loving people,so for now il say good night and god...

Well I guess it's time for bed I think,its been along day for me as I bet it ha...

Vsully

•4 years ago

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Awareness month designs

Hi all, During my flares I have taken to designing more and during lockdown finally took the plunge to start up a design page on Instagram. (...

Hi all, During my flares I have taken to designing more and during lockdown fina...

Becky1995

•4 years ago

14 Replies

Kidney problems and dialysis

Hi all I have recently just joined this group, I was diagnosed with Lupus about 10 years now. However my symptoms had reduced or almost gone but now it seems...

Hi all I have recently just joined this group, I was diagnosed with Lupus about ...

Esfavour

•4 years ago

9 Replies

Itchy itchy

Morning all hope you all feeling ok,well had ok sleep but wasn't helped with this awful itch again,still itching like mad now put my cream on had my meds and...

Morning all hope you all feeling ok,well had ok sleep but wasn't helped with thi...

Vsully

•4 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2020

End of a long road, and the beginning of another..

NICE appraisal of belimumab (Benlysta) - please complete our anonymous online survey

1st Rheumy appointment

Lupus and hair loss/thinning

Occular migraine with aura

Full time student and Lupus: any tips?

Lupus and the influenza (flu) vaccine - Updated information and guidance for the 2020/21 season

Lupus diagnosis Incorrect???

Regaining my life, how??

Extreme fatigue advice.

It’s Mira Monday 🐶

Mosquito bites

Just had Flu jab in car park now frozen.

Can lupus cause lactose intolerance?

Beautiful Flowers

Chilblain Lupus (Erythromyalgia?)

Long-COVID rehab

The invisible disease

Does anybody suffer really bad cognitive functioning and memory issues with citalopram?

Hospital app

Decompression surgery

Cuteness keeps coming.

Anyone else had these symptoms advice welcome

Pain

Neck pains

Sulphasalazine side effects

Good night all

Awareness month designs

Kidney problems and dialysis

Itchy itchy

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