Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2020

Confusing symptoms- flare up, medication change or steroid taper?!

Hi everyone, I haven’t been here for a while :-) Since I last posted I have had a diagnosis of Undifferentiated Connective Tissue Disease. I started...

Hi everyone, I haven’t been here for a while :-) Since I last posted I have had ...

•4 years ago

Mycophenolate

Hi recently diagnosed and found it all very difficult. I have been prescribed Mycophenolate but have read side effects of dangerous infections and cancer...

Hi recently diagnosed and found it all very difficult. I have been prescribed My...

•4 years ago

Phone appt with Rheumatologist yesterday

Hi everyone, I finally had the appointment yesterday and have to say it went just okay. I tried to prepare but ultimately I guess I wasn’t prepared enough...

Hi everyone, I finally had the appointment yesterday and have to say it went jus...

•4 years ago

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Hi, I have been diagnosed with sjogrens/lupus overlap which I self-manage & is annually monitored by my rheumatology & lung function specialists. I have just...

Hi, I have been diagnosed with sjogrens/lupus overlap which I self-manage & is a...

•4 years ago

Hydroxychloriquine - different brands

I am sure you can help. My hydroxychloriquine tablets have changed their colour. I am having real difficulty with the light and have rashes on every bit of...

I am sure you can help. My hydroxychloriquine tablets have changed their colour...

•4 years ago

News update on hospital treatment.

Hello everyone Hope your all adjusting to our new life post shielding!. For anyone like me waiting for an op or procedure at your local hospital in England I...

Hello everyone Hope your all adjusting to our new life post shielding!. For any...

•4 years ago

Granuloma Annulare? Mis diagnosed rash? Anyone else?

Hello, Hope you’re all well, managing symptoms and keeping safe. I was just wondering if anyone else had this experience... I’ve had all the symptoms of lupus...

Hello, Hope you’re all well, managing symptoms and keeping safe. I was just wond...

•4 years ago

9 months from SLE diagnosis and STILL no rheumatology - How do you access healthcare and rheumatology?

Hi, it's been a while since I've posted here. Diagnosed with SLE, October 11th, 2019, made redundant two weeks later on October 25th. 9 months on and STILL no...

Hi, it's been a while since I've posted here. Diagnosed with SLE, October 11th, ...

Ceri-NorthWales

•4 years ago

Changes to LUPUS UK Office & Helpline Opening Hours

Hi everyone, I'm pleased to report that we've welcomed a couple of our Staff Team Members back into the office so we have returned to pre-COVID hours for the...

Hi everyone, I'm pleased to report that we've welcomed a couple of our Staff Tea...

Partner•4 years ago

Couch to 5k COMPLETED!

Hi everyone had a great run out this morning to finish my last run of couch to 5k. I really put my all into this final run exceeding the 3miles and running...

Hi everyone had a great run out this morning to finish my last run of couch to...

•4 years ago

It’s Mira Monday 🐶

My son who has Downs Syndrome came to stay for the night at the weekend, he hasn’t met Mira properly yet because of lockdown / shielding - anyway Mira was so...

My son who has Downs Syndrome came to stay for the night at the weekend, he hasn...

•4 years ago

Strawberry mousse cake

A bit rough due to hand pain but I am pleased to have finished it. Happy Sunday everyone ❤️

A bit rough due to hand pain but I am pleased to have finished it. Happy Sunday ...

•4 years ago

Tacrolimus side effects - nausea

Hi everyone, I started Tacrolimus (Oral) Prograf last week to help tackle my nephritis. Just wondering what side effect people found and if they carry on for...

Hi everyone, I started Tacrolimus (Oral) Prograf last week to help tackle my nep...

PositivelyLupus

•4 years ago

New diagnosis

I just received my diagnosis of Lupus a few weeks ago after 4 years of uncertainty, multiple investigations including LPs, MRI scans, nerve conduction tests...

I just received my diagnosis of Lupus a few weeks ago after 4 years of uncertain...

•4 years ago

Renal biopsy reaction

Hi Everyone, I have lupus nephritis and had a renal biopsy some 12 days ago, to investigate possible increase in lupus activity. I have since developed a new,...

Hi Everyone, I have lupus nephritis and had a renal biopsy some 12 days ago, to...

•4 years ago

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