Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2020

Zentiva / Hydroxychloroquine update.

Following Paul's reply I contacted Zentiva and their reply was that they have stocks of Hydroxychloroquine so there should be no supply issues and I assume...

Following Paul's reply I contacted Zentiva and their reply was that they have st...

Orchidlily

•4 years ago

2 Replies

Bad nails

Does anyone have problems with their nails? The white part of the nails are getting bigger where the nail is not attached to my finger. The nails are also very...

Does anyone have problems with their nails? The white part of the nails are gett...

Jolevans

•4 years ago

14 Replies

Keep in touch with your GP and the NHS

Please keep in touch with your GP and your Consultant for help with Lupus. Also help your self, family and friends with other conditions. Yesterday a cancer...

Please keep in touch with your GP and your Consultant for help with Lupus. Also...

Kevin53

•4 years ago

4 Replies

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Once again, lost without diagnosis (Raynauds, chilblains, fatigue and aches all questioned)

Hello all, I hope you’re keeping well, and safe I just wanted to ask a few questions and to see if this is a similar experience, I’m just feeling so lost with...

Hello all, I hope you’re keeping well, and safe I just wanted to ask a few ques...

Cazza_dow

•4 years ago

25 Replies

Neck pain with lupus?

Hi everyone, I was diagnosed with lupus at the beginning of this year. I just wondered if anyone else gets a really painful and stiff neck as part of their...

Hi everyone, I was diagnosed with lupus at the beginning of this year. I just wo...

Aeam487

•4 years ago

35 Replies

Vitamin D

Does anyone take Vitamin D as a treatment for Lupus and if so do you find it helpful? I was told today there is no alternative for me other than...

Does anyone take Vitamin D as a treatment for Lupus and if so do you find it hel...

Pxs75

•4 years ago

37 Replies

Zentiva brand Hydroxychloroquine

I have been told by my pharmacy that Zentiva no longer manufacture Hydroxychloroquine. Can anyone confirm or refute this as I am very sceptical. it seems to be...

I have been told by my pharmacy that Zentiva no longer manufacture Hydroxychloro...

Orchidlily

•4 years ago

25 Replies

Sjogren's Syndrome Specialist

I hope that someone in the community could point me in the direction of a rheumatologist in the Liverpool area with an interest in Sjogren's? Like so many...

I hope that someone in the community could point me in the direction of a rheuma...

jasmine804

•4 years ago

8 Replies

Occupational health

Feeling apprehensive this morning as I’ve bitten the bullet and opened a conversation with work about being able to sustain working full time with keeping...

Feeling apprehensive this morning as I’ve bitten the bullet and opened a convers...

Pickzie

•4 years ago

16 Replies

Tapering steroids

Hi I’m new here, I was diagnosed with lupus in January. I’m on prednisolene & hydroxychloroquine. My steroids have been tapered from 7.5mg down to 5mg and now...

Hi I’m new here, I was diagnosed with lupus in January. I’m on prednisolene & hy...

Soul_girl

•4 years ago

60 Replies

Flaring and fed up

Good morning all. I'm on my fourth day of a horrid flare and feeling massively sorry for myself so sorry for the self indulgent post. My legs have gone -...

Good morning all. I'm on my fourth day of a horrid flare and feeling massively s...

Apricot100

•4 years ago

16 Replies

It’s Mira Monday 🐶

Good morning everybody- we have today a very relaxed Mira and as you can see her Schnauzer beard is coming on a treat - she is such a little character and...

Good morning everybody- we have today a very relaxed Mira and as you can see her...

svfarmer

•4 years ago

29 Replies

Puppy post

You guys have been posting lovely pictures so I thought I’d share one too. Meet Maxine/ Mad max, she was hit by a car before animal services picked her up and...

You guys have been posting lovely pictures so I thought I’d share one too. Meet ...

JennaShi

•4 years ago

35 Replies

Here's another threesome.

Hi everyone This time it's an otter's birthday party!. Hope you all like it and you have a good week. MistyX

Hi everyone This time it's an otter's birthday party!. Hope you all like it and...

misty14

•4 years ago

12 Replies

Newly diagnosed and stuggling at work

Hi guys, this form is amazing! I got diagnosed a month ago after a long time of thinking it was all in my head. I have just started hydroxychloroquine and the...

Hi guys, this form is amazing! I got diagnosed a month ago after a long time of ...

RioR70

•4 years ago

11 Replies

Hi one and all

Phew! I don't know about you all but I am absolutely struggling with this heat 🔥 I am asthmatic and struggling to breathe at times. I've had my pump increased...

Phew! I don't know about you all but I am absolutely struggling with this heat �...

Bronn

•4 years ago

1 Reply

Excruciatingly tired!

Does anyone have fatigue that’s so bad you fall asleep mid conversation or have to fight sleep constantly? My eyes are rolling and desperate to go to sleep I...

Does anyone have fatigue that’s so bad you fall asleep mid conversation or have ...

Hidden

•4 years ago

10 Replies

Brain MRI

Hi Everyone Just a quick question - just wondered how long after a brain MRI , do people tend to get their results? Thanks Just a quick update : Both my...

Hi Everyone Just a quick question - just wondered how long after a brain MRI , ...

Seren65

•4 years ago

5 Replies

A cheeky rash!

After several incidents of having a photosensitive rash on my cheeks, I sent photos to my rhuematologist. I have just recieved a letter from the Rhuemy stating...

After several incidents of having a photosensitive rash on my cheeks, I sent pho...

RosieA

•4 years ago

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Lupus and Spleen

Hi I was finally diagnosed with Lupus after a few years, Lupus has affected my spleen so bad it's not really even there any more, I get really bad blisters on...

Hi I was finally diagnosed with Lupus after a few years, Lupus has affected my s...

MadLadyLisa

•4 years ago

2 Replies

Lupus and Rashes

My question is does anyone have little water blisters on there hands that are really soar and very irritating I have Lupus and have not found any one who has...

My question is does anyone have little water blisters on there hands that are re...

MadLadyLisa

•4 years ago

12 Replies

Appointment update

Hello👋 , We’re on our way back home from the appointment. It surprisingly went very well and didn’t have to show her any of my labs or do any convincing,...

Hello👋 , We’re on our way back home from the appointment. It surprisingly went...

JennaShi

•4 years ago

14 Replies

Immunosuppressants and antibiotics.

I'm sure my Rheumatology consultant told me if I ever take antibiotics I have to stop taking my mycophenolate as they both make eachother less effective. I've...

I'm sure my Rheumatology consultant told me if I ever take antibiotics I have to...

eescvc

•4 years ago

11 Replies

Then there were three!.

Hello everyone Hope your coping in this heat and thundery weather. Just thought I'd post this pic , triple cuteness?.!. Keep as safe and well as possible....

Hello everyone Hope your coping in this heat and thundery weather. Just thought ...

misty14

•4 years ago

10 Replies

Tiny flame of hope

Hello, it’s me again. I wanted to share something somewhat encouraging even though it doesn’t count. There was one test that my Rheumatologist didn’t post and...

Hello, it’s me again. I wanted to share something somewhat encouraging even tho...

JennaShi

•4 years ago

Be the first to reply

Itchy ears

Morning everybody I have Lupus SLE and along with nasal scabs and blood blisters in my mouth I have the most incredibly itchy ear canals that drives me insane...

Morning everybody I have Lupus SLE and along with nasal scabs and blood blisters...

svfarmer

•4 years ago

15 Replies

South Asian heritage volunteer needed for LUPUS UK-Funded Research Project

***A big thank you to those who volunteered last week to be Research Partners in a LUPUS UK-funded research project within the South Asian community. The...

***A big thank you to those who volunteered last week to be Research Partners in...

Paul_Howard

Partner•4 years ago

5 Replies

Persistence Paid Off

Hello fellow loopies. Got my first dose of IVIG for cranial and autonomic neuropathy over the last 2 days. No side effects so far. Not even a headache... I’ll...

Hello fellow loopies. Got my first dose of IVIG for cranial and autonomic neurop...

Jmiller623

•4 years ago

18 Replies

Sjogrens Syndrome

Hi I was wondering if anyone with Sjogrens Syndrome have had Neuropathic symptoms. I am on Mepacrine for over 2 yrs now with no problems. Really helped...

Hi I was wondering if anyone with Sjogrens Syndrome have had Neuropathic symptom...

Haired

•4 years ago

21 Replies

LUPUS EUROPE survey about hydroxychloroquine and it's availability during the pandemic

LUPUS EUROPE has launched an online survey about hydroxychloroquine and it's availability during the pandemic. For each UK response, #LUPUS UK will receive €1...

LUPUS EUROPE has launched an online survey about hydroxychloroquine and it's ava...

Chanpreet_Walia

LUPUS UK•4 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2020

Zentiva / Hydroxychloroquine update.

Bad nails

Keep in touch with your GP and the NHS

Once again, lost without diagnosis (Raynauds, chilblains, fatigue and aches all questioned)

Neck pain with lupus?

Vitamin D

Zentiva brand Hydroxychloroquine

Sjogren's Syndrome Specialist

Occupational health

Tapering steroids

Flaring and fed up

It’s Mira Monday 🐶

Puppy post

Here's another threesome.

Newly diagnosed and stuggling at work

Hi one and all

Excruciatingly tired!

Brain MRI

A cheeky rash!

Lupus and Spleen

Lupus and Rashes

Appointment update

Immunosuppressants and antibiotics.

Then there were three!.

Tiny flame of hope

Itchy ears

South Asian heritage volunteer needed for LUPUS UK-Funded Research Project

Persistence Paid Off

Sjogrens Syndrome

LUPUS EUROPE survey about hydroxychloroquine and it's availability during the pandemic

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