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LUPUS UK

31,744 members • 28,102 posts

All posts for June 2020

Mira Update 🐶🐶🐶

I just had to share this picture of Mira in her cooling vest - was taking a picture of her and she stuck her tongue 👅 out and she looked so cute - hope...

I just had to share this picture of Mira in her cooling vest - was taking a pict...

svfarmer

•4 years ago

8 Replies

A couple of volunteers needed

***Thank you so much for the fantastic response. I have more volunteers than I needed helping with this now. I'm sure further opportunities will become...

***Thank you so much for the fantastic response. I have more volunteers than I n...

Paul_Howard

Partner•4 years ago

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Thank you

Hello all, I thought I say thank you to all who has shared our concern and pain caused by Lupus, in the last two months (related to access to our regular...

Hello all, I thought I say thank you to all who has shared our concern and pain ...

LalSD

•4 years ago

2 Replies

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Heat

Hello everyone. Do hope your coping with this sudden heat!. I think this cow in Cambridge had the best idea and we ought to do the same!. Ha!. 😊 Keep as...

Hello everyone. Do hope your coping with this sudden heat!. I think this cow in...

misty14

•4 years ago

31 Replies

Thyroid results interpretation?

Could anyone please help interpret these before I contact my rheumy and GP? I got these done after last discussion with rheumy when she seemed to be doubting...

Could anyone please help interpret these before I contact my rheumy and GP? I g...

SashaT64

•4 years ago

7 Replies

Hi

Hi I’m new to this site. For the last few months I have developed an itchy rash after being in the sun. Then for the next few days I feel fluey, have enlarged...

Hi I’m new to this site. For the last few months I have developed an itchy rash ...

Hidden

•4 years ago

3 Replies

Azathioprine

I am mid flare and feeling dreadful I failed on plaquinin due to a skin reaction 😓 so much treatment was stopped in early March . I was due to be seen to...

I am mid flare and feeling dreadful I failed on plaquinin due to a skin reacti...

Harry19

•4 years ago

8 Replies

Hello

Hi there my name is Marie, I'm sixty years young and live in Glasgow. I have had fibromyalgia for over 10 years, recently I have developed other symptoms which...

Hi there my name is Marie, I'm sixty years young and live in Glasgow. I have had...

meecee1

•4 years ago

7 Replies

Over the border referral s

Just wondering how successful has anyone else been able to get to a lupus centre across the border . After 3 years of asking I am done with with I feel like...

Just wondering how successful has anyone else been able to get to a lupus centre...

Loopyloo43

•4 years ago

8 Replies

Gutted

Well I should have known the wonderful Urology telephone consultation was too good to be true. Today I received a letter from the Urologist. The caring,...

Well I should have known the wonderful Urology telephone consultation was too go...

CecilyParsley

•4 years ago

57 Replies

Lupus and Coronavirus (COVID-19) - UPDATED 23/06/2020

Hi everyone, We've just published an update to our information and guidance about lupus and COVID-19. Please have a careful read of the full article at...

Hi everyone, We've just published an update to our information and guidance abou...

Paul_Howard

Partner•4 years ago

7 Replies

Jaw and cheekbone pain due to prednisolone?

I’m on 40mg on prednisolone due to having a bad flare. I do usually get jaw pain but only when im eating and it’s not all the time but i noticed today that...

I’m on 40mg on prednisolone due to having a bad flare. I do usually get jaw pain...

Sandy1212

•4 years ago

12 Replies

Rare case of renal limited lupus nephritis class IV

Hello members I have a query. Healthcare practitioners in my country are confused regarding the diagnosis of my renal disease. In 2012, after kind biopsy, the...

Hello members I have a query. Healthcare practitioners in my country are confus...

Drakula

•4 years ago

3 Replies

RAIRDA Report - Chronic Crisis: The Impact of COVID-19 on people with rare autoimmune rheumatic diseases

Hi everyone, Today, RAIRDA has published their report based on the responses to our online survey conducted in April/May this year – thank you so much to...

Hi everyone, Today, RAIRDA has published their report based on the responses to ...

Paul_Howard

Partner•4 years ago

10 Replies

It’s Mira Monday 😁🐶

Good morning everybody- it’s Mira Monday with a difference today - It’s Mira,s brother Jasper, the new owner sent us this picture which is adorable and thought...

Good morning everybody- it’s Mira Monday with a difference today - It’s Mira,s b...

svfarmer

•4 years ago

9 Replies

Lupus nephritis, Presnisolone, Cyclophasimide

Please read .

Drakula

•4 years ago

3 Replies

Still waiting for referral.

Hi all. I'm 26, from Scotland. I've had symptoms of SLE/autoimmune symptoms for months and months now. They are distinctive Malar rash, joint pain, muscle...

Hi all. I'm 26, from Scotland. I've had symptoms of SLE/autoimmune symptoms for...

RhiannonT

•4 years ago

14 Replies

My Friend, My Dad, MY HERO

Now yr gone my heart still aches, I’ll always Love you dad, my best mate. I miss you loads, I wish you was here. I feel your presence, I need you to appear,...

Now yr gone my heart still aches, I’ll always Love you dad, my best mate. I miss...

Teanna

•4 years ago

12 Replies

Bone pain coping mechanisms tips please

coping with bone pain.Hi everyone, I don't have a diagnosis yet, waiting for 1st Rheumatology appointment as requested by neurologist, delayed due to Covid....

coping with bone pain.Hi everyone, I don't have a diagnosis yet, waiting for 1st...

Hidden

•4 years ago

11 Replies

More photos of rash

Hi! heres another photo of my rash! the one from my last post was last night so thats the most recent but the rash doesnt always look like that, sometimes its...

Hi! heres another photo of my rash! the one from my last post was last night so...

aimenkhattak27

•4 years ago

1 Reply

Update on diagnosis with ANA + symptoms only!

hi guys, i posted a week ago on here about how i was confused about my lupus diagnosis since my doctor diagnosed me on symptoms and positive ANA alone and...

hi guys, i posted a week ago on here about how i was confused about my lupus d...

aimenkhattak27

•4 years ago

6 Replies

Update regarding eye

Hi Doctor requested I send a picture of my eye and says it’s mild blepharitis . So I need to use my eye drops I was previously prescribed and just look after...

Hi Doctor requested I send a picture of my eye and says it’s mild blepharitis ....

Natz36

•4 years ago

2 Replies

Red bumps related to Lupus?

Hello, ill attach a few pics, but i have red bumps on tops of hands and now on my palms that feel like sharp needles when i squeeze my hands. I have been...

Hello, ill attach a few pics, but i have red bumps on tops of hands and now on m...

jrcollier15

•4 years ago

4 Replies

Lupus diagnosis

Hello I've been suffering with a long and multiplying list of seemingly random symptoms for a good few years now, and I'm desperate to find out what's going on...

Hello I've been suffering with a long and multiplying list of seemingly random s...

BlackInk

•4 years ago

8 Replies

Continuous colds

Hi, I'm waiting to see a rheumatologist and have been reading up on lupus. I suffer with constant and what seems like continuous colds, could this have...

Hi, I'm waiting to see a rheumatologist and have been reading up on lupus. I suf...

Dartsnerd

•4 years ago

11 Replies

Latest figures from Covid-19 Global Rheumatology Alliance

Updated figures from the Covid-19 Global Rheumatology Alliance - they now have over 1000 cases documented. https://rheum-covid.org/updates/combined-data.html...

Updated figures from the Covid-19 Global Rheumatology Alliance - they now have o...

Cathyan

•4 years ago

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Diagnosis of lupus COVID-19

Good morning everyone I was wondering if somebody could help me. I was in the process of being diagnosed before COVID-19 and since then everything has come to...

Good morning everyone I was wondering if somebody could help me. I was in the pr...

ibrar132

•4 years ago

2 Replies

So Happy :)

Thought I would share this photo of Storm with everyone, as he got groomed properly today, and he is so happy. Isolating has affected so many things. He is...

Thought I would share this photo of Storm with everyone, as he got groomed prope...

thestorm

•4 years ago

10 Replies

Eye swelling

Hi Hope everyone is okay . Haven’t been on much due to constant worry and feeling scared . Still have no rheumatologist appointment and probably won’t now...

Hi Hope everyone is okay . Haven’t been on much due to constant worry and feeli...

Natz36

•4 years ago

7 Replies

Covid vaccines

Has anything been said about whether the covid vaccines are going to be live vaccines? If I’ve understood this correctly, live vaccines are not suitable for...

Has anything been said about whether the covid vaccines are going to be live vac...

Jumper99

•4 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2020

Mira Update 🐶🐶🐶

A couple of volunteers needed

Thank you

Heat

Thyroid results interpretation?

Hi

Azathioprine

Hello

Over the border referral s

Gutted

Lupus and Coronavirus (COVID-19) - UPDATED 23/06/2020

Jaw and cheekbone pain due to prednisolone?

Rare case of renal limited lupus nephritis class IV

RAIRDA Report - Chronic Crisis: The Impact of COVID-19 on people with rare autoimmune rheumatic diseases

It’s Mira Monday 😁🐶

Lupus nephritis, Presnisolone, Cyclophasimide

Still waiting for referral.

My Friend, My Dad, MY HERO

Bone pain coping mechanisms tips please

More photos of rash

Update on diagnosis with ANA + symptoms only!

Update regarding eye

Red bumps related to Lupus?

Lupus diagnosis

Continuous colds

Latest figures from Covid-19 Global Rheumatology Alliance

Diagnosis of lupus COVID-19

So Happy :)

Eye swelling

Covid vaccines

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