Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,717 members • 28,083 posts

All posts for June 2020

Memory loss

Evening all so today I've been feeling so much better well enough to take my daughter to McDonald 😊. Driving home I couldn't for the life of me remember where...

Evening all so today I've been feeling so much better well enough to take my dau...

Kat-

•4 years ago

6 Replies

Phone consultation 🤷🏻‍♀️

I have raynauds and tissues inflammation in my hands , at the moment I have it really badly , I’m on naproxen ,hydrochloroquine , 5 mg predispone . A night...

I have raynauds and tissues inflammation in my hands , at the moment I have it r...

Melaxx

•4 years ago

5 Replies

Lupus - spine and sides hurt

Evening everyone I was diagnosed with DLE and a few other issues in January this year. Over the past two weeks I always feel like I have a sore throat and...

Evening everyone I was diagnosed with DLE and a few other issues in January thi...

NicolaKidd

•4 years ago

12 Replies

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Red Kite in the garden! So excited!

For the peeps who enjoy wildlife posts - Spotty, Stiff, DKJ99, KrazyKat, svfarmer, Happy Tulip, Misty, Leuann, MEG, Cecile Parsley (sorry if I have forgotten...

For the peeps who enjoy wildlife posts - Spotty, Stiff, DKJ99, KrazyKat, svfarme...

Horsewhisper

•4 years ago

51 Replies

Rituxamab Infusion

Hi. I had my first Rituximab infusion yesterday. Was very breathless last night and had the most awful chills. One minute I was changing my pjs as they were...

Hi. I had my first Rituximab infusion yesterday. Was very breathless last night...

SammyJ

•4 years ago

12 Replies

Diagnosis

I was wondering if I have Lupus and hoping some of you kind people might be able to help me. I'm going to do a really brief summary of my health life, that...

I was wondering if I have Lupus and hoping some of you kind people might be able...

Treesl

•4 years ago

21 Replies

Confused about hydroxychloroquine

Hi, Can any one clear my confusion up as to whether hydroxychloroquine is an immunosuppressant and if we are classed as high risk? When I was prescribed the...

Hi, Can any one clear my confusion up as to whether hydroxychloroquine is an imm...

pattypatchwork

•4 years ago

8 Replies

Diet for lupus

Has anyone found a particular diet that helps with their lupus. I am dairy and red meat intolerant. I am trying to find the best diet to give me as much energy...

Has anyone found a particular diet that helps with their lupus. I am dairy and r...

Panda91

•4 years ago

8 Replies

Hair loss

I was wondering whether anyone knows any good hair products to help prevent hair loss? I have noticed my hair is falling out more than ever and seems to be...

I was wondering whether anyone knows any good hair products to help prevent hair...

Panda91

•4 years ago

4 Replies

Urgent help needed please

Hello. Writing from acute medical ward after admission Saturday afternoon following a severe reaction to taking codeine (a single 30mg dose). It's a big ask,...

Hello. Writing from acute medical ward after admission Saturday afternoon follow...

Hoofprints

•4 years ago

8 Replies

Ulcers and sores

I have lupus, I have suffered with reoccurring ulcers, I have sore in my nose and ears. I react to a lot of medicine. So it's difficult to get proper medicine....

I have lupus, I have suffered with reoccurring ulcers, I have sore in my nose an...

blessing40

•4 years ago

4 Replies

One more piece to the puzzle

Hi all! Unfortunately, I didn’t order a c3 test and am regretting it now. Attached is a picture of the results of the blood work I ordered. Caught my...

Hi all! Unfortunately, I didn’t order a c3 test and am regretting it now. Atta...

JennaShi

•4 years ago

14 Replies

Feel like im moaning

Since my last visit to scleroderma clinic I as a female have been taken off viagra 3td to a 38 hr sustained release tidilafil (viagra) but lost a lot of weight...

Since my last visit to scleroderma clinic I as a female have been taken off viag...

leighlfc

•4 years ago

5 Replies

COUCH TO 5K a little positivity!

Hi everyone! Hope all is as well as can be. It’s been a long time since I’ve been on here. Long story short, I was diagnosed with SLE at 13yrs old I have...

Hi everyone! Hope all is as well as can be. It’s been a long time since I’ve b...

nikki25

•4 years ago

16 Replies

It’s Mira Monday 🐶🐶🐶

Good morning - hope everyone is doing ok - it’s Mira Monday again. These Monday’s are coming around so fast every week . This Monday’s picture is Mira on her...

Good morning - hope everyone is doing ok - it’s Mira Monday again. These Monday’...

svfarmer

•4 years ago

19 Replies

Rheumatologist who is caring Edinburgh or Glasgow please?

Hi Can anyone recommend a caring Rheumatologist that listens in Edinburgh or Glasgow, or nearby? Many thanks

Hi Can anyone recommend a caring Rheumatologist that listens in Edinburgh or Gla...

mistygrey

•4 years ago

2 Replies

Blood Pressure and Heat, SLE and more.😕

Hi everyone, As we take on another season of heat everywhere, I complain about the heat each year, and I am sorry. I hope you all are doing the best you can...

Hi everyone, As we take on another season of heat everywhere, I complain about t...

thestorm

•4 years ago

57 Replies

Should I be mad or am I over reacting

My partner and I live together mostly at mine weekdays his at the weekend if we're not working. He went to work Thursday morning knowing I was having a really...

My partner and I live together mostly at mine weekdays his at the weekend if we'...

Kat-

•4 years ago

20 Replies

Prednisone relief

Hello all, I hope you're well. Just a quick, and maybe a TMI question... I have recently been put on prednisone, for the forseable my GP said, until the...

Hello all, I hope you're well. Just a quick, and maybe a TMI question... I hav...

cdow

•4 years ago

4 Replies

Love craft love Christmas

My project is almost finished 😊 I am craft daft and Christmas crazy so when I found my Christmas decorations that I no longer put up cause the so delicate I...

My project is almost finished 😊 I am craft daft and Christmas crazy so when I f...

Kat-

•4 years ago

3 Replies

Hi, is anyone else suffering from a similar rash, on shoulders, back & chest very painful,itchy & hot to touch. it.Any advice welcome. 😊

Skin rashes

sandra4

•4 years ago

4 Replies

Morning tea with Bianco!

For all you duck lovers out there, here is Bianco. She often joins me when I sit at the table! Costs me a fortune in disinfectant each day but she is worth it!...

For all you duck lovers out there, here is Bianco. She often joins me when I sit...

Ieuann133

•4 years ago

3 Replies

Subacute cutaneous lupus prescriptions

Earlier this year I was diagnosed but this week was the first real hospital appointment (albeit a telephone consultation due to co-vid !). I have been...

Earlier this year I was diagnosed but this week was the first real hospital appo...

Raven_claw

•4 years ago

6 Replies

Methotrexate, risk level and teaching

Hello I received a letter very early on due to taking methotrexate (20mg, 40 yrs old) . At the time I was told that my medication was flagged and to maintain...

Hello I received a letter very early on due to taking methotrexate (20mg, 40 yr...

Shoulders1

•4 years ago

11 Replies

Weather or not

So for the past week I've struggled with exhaustion on a scale I've never experienced before. Yesterday and today the pain in my whole boss is unreal now I...

So for the past week I've struggled with exhaustion on a scale I've never experi...

Kat-

•4 years ago

51 Replies

My mate Monte!

Over the past 12 weeks, Monte has become my shadow in the garden. If I am in the garden, she will be no further than 5 metres away sitting and watching the...

Over the past 12 weeks, Monte has become my shadow in the garden. If I am in the...

Ieuann133

•4 years ago

7 Replies

Hla b27 and Lupus?

Hi my doctor checked my blood for HLA B-27 however it came back negative. Does anyone know what this means? I was diagnosed with lupus a couple weeks ago, is...

Hi my doctor checked my blood for HLA B-27 however it came back negative. Does a...

aimenkhattak27

•4 years ago

1 Reply

PIP - How are they allowed to get away with this!?

Just had mandatory reconsideration letter through. Yet again 0 points! So many lies! More than last time! How are they allowed to get away with this and what...

Just had mandatory reconsideration letter through. Yet again 0 points! So many l...

Ceri-NorthWales

•4 years ago

16 Replies

Back to work face mask wearing

Well hope your all good back to work Wednesday just nipped down to work today to get my nhs card updated work at DR surgery I was surprised no one had a face...

Well hope your all good back to work Wednesday just nipped down to work today to...

Ruby3333

•4 years ago

8 Replies

Hi I have lupus nephritis but have no more prednisolone, anyone?

I recently got diangosed with lupus nephritis, due to contracting Hepatitis C in September, which I am now cured from. I saw a doctor privately who was able...

I recently got diangosed with lupus nephritis, due to contracting Hepatitis C in...

biowarrior

•4 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2020

Memory loss

Phone consultation 🤷🏻‍♀️

Lupus - spine and sides hurt

Red Kite in the garden! So excited!

Rituxamab Infusion

Diagnosis

Confused about hydroxychloroquine

Diet for lupus

Hair loss

Urgent help needed please

Ulcers and sores

One more piece to the puzzle

Feel like im moaning

COUCH TO 5K a little positivity!

It’s Mira Monday 🐶🐶🐶

Rheumatologist who is caring Edinburgh or Glasgow please?

Blood Pressure and Heat, SLE and more.😕

Should I be mad or am I over reacting

Prednisone relief

Love craft love Christmas

Hi, is anyone else suffering from a similar rash, on shoulders, back & chest very painful,itchy & hot to touch. it.Any advice welcome. 😊

Morning tea with Bianco!

Subacute cutaneous lupus prescriptions

Methotrexate, risk level and teaching

Weather or not

My mate Monte!

Hla b27 and Lupus?

PIP - How are they allowed to get away with this!?

Back to work face mask wearing

Hi I have lupus nephritis but have no more prednisolone, anyone?

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