Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2020

Best time to take Azathioprine?

Can anyone help me with when to take Azathioprine? Is morning or evening better? Thanks 😊

Can anyone help me with when to take Azathioprine? Is morning or evening better?...

Happy43

•4 years ago

12 Replies

Dash 🌈 is Dashing 5K up a hill dressed as Butterfly, because that's what you do on World Lupus Day!!

Hi Everyone, I hope this post finds you as well as possible. It's rather hot here, a bit like the Mediterranean! I'm posting a very happy update about 7 year...

Hi Everyone, I hope this post finds you as well as possible. It's rather hot her...

happytulip

•4 years ago

21 Replies

"Flutter goes to Town".🦉🦉🦉

Hi all, today was a bitter sweet day for me. Anyone who may have read my post of Birds of a feather flock together saw our "Flutter". We went to town today,...

Hi all, today was a bitter sweet day for me. Anyone who may have read my post of...

thestorm

•4 years ago

10 Replies

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Oh the irony.

Six weeks into sheilding and finally got the first priority online shopping from Iceland still waiting to hear from the others. Hahaha. I have a GP going crazy...

Six weeks into sheilding and finally got the first priority online shopping from...

Boudica1

•4 years ago

12 Replies

Personal, protective equipment worn by Phlebotomists?

Hello has anyone had their bloods taken recently? Do you know what personal protective equipment phlebotomists are wearing at the moment?

Hello has anyone had their bloods taken recently? Do you know what personal prot...

Andfiona

•4 years ago

12 Replies

Jaw pain

Does anyone else experience pain in their jaw? My jaw momentarily dislocated at the end of last year and was painful for quite a while. A few weeks later it...

Does anyone else experience pain in their jaw? My jaw momentarily dislocated at ...

Haubrey1

•4 years ago

9 Replies

World Lupus Day Zoom Pilates Session - 3pm (GMT+1) Sunday 10th May 2020

Hi everyone, We're very pleased to bring you another interactive activity for World Lupus Day. Mandy Springham is going to run a Pilates session specifically...

Hi everyone, We're very pleased to bring you another interactive activity for Wo...

Paul_Howard

Partner•4 years ago

22 Replies

World Lupus Day Virtual Quiz - 7.30pm (GMT+1) Sunday 10th May 2020

Hi everyone, On World Lupus Day (10th May 2020) at 7.30pm (GMT+1) I will be hosting a virtual quiz on YouTube Live to raise awareness and funds. I would love...

Hi everyone, On World Lupus Day (10th May 2020) at 7.30pm (GMT+1) I will be host...

Paul_Howard

Partner•4 years ago

8 Replies

Sore Teeth

Does anyone else have trouble with sore sensitive teeth? I have lupus and Sjogren's.

Does anyone else have trouble with sore sensitive teeth? I have lupus and Sjogr...

Goer

•4 years ago

13 Replies

Crunchy knees - lupus related?

Good evening everyone. Requiring a bit of advice please since hospitals and GPs are a bit busy right now. Been diagnosed for 3 years now with CNS Lupus. I get...

Good evening everyone. Requiring a bit of advice please since hospitals and GPs...

ange726

•4 years ago

13 Replies

Need help?

What to use or eat food to relieve lupus pain? currenty drink 200 mg plaquenil and 5mg predizolone,

What to use or eat food to relieve lupus pain? currenty drink 200 mg plaquenil ...

jonildaseitaj

•4 years ago

1 Reply

One week old today!

It is exactly a week since I posted the first photo of the wee dunnocks - hatched that day I’m sure. Some of you asked me to keep you posted. So here they...

It is exactly a week since I posted the first photo of the wee dunnocks - hatche...

Spotty-ewe

•4 years ago

25 Replies

Vitamins

Can anyone recommend what vitamins help people who have SLE lupus and psoriasis

shaney2510

•4 years ago

10 Replies

Recommendations on fruit/veg peelers please 🍐🍊🍏🥕🥔🍆

I do hope you are all keeping fit and well 😘 I have an electric chopper with has been an absolute god send. Now I need help with peeling fruit and veg and...

I do hope you are all keeping fit and well 😘 I have an electric chopper with ha...

Lisalou19

•4 years ago

5 Replies

A puppy pic to cheer everyone up on a Monday

Here’s another puppy pic , Mira the little girl is on the right - she is quite petite unlike her strapping brothers. Today we put them in their play pen as...

Here’s another puppy pic , Mira the little girl is on the right - she is quite p...

svfarmer

•4 years ago

11 Replies

hairloss with medication

What is the likelihood of Azathioprine or hydroxychloroquine causing hairloss?

Tracey789

•4 years ago

9 Replies

Mattress choice

Hi all, I have fibromyalgia and lupus nephritis and just wondering if anyone can help me in choosing a mattress that will give me relief, thanks

Hi all, I have fibromyalgia and lupus nephritis and just wondering if anyone can...

hinegan

•4 years ago

6 Replies

Yet another UTI 🤒

I have felt so unwell for the past week. By Thursday evening I was spiking a temperature and shivering, living in the loo and exhausted. I was concerned about...

I have felt so unwell for the past week. By Thursday evening I was spiking a tem...

CecilyParsley

•4 years ago

17 Replies

Bianco taking a breather from sitting on her healthunlocked egg!

Hi all, a post from djk99 has prompted me to update you on our future duckling. Bianco has been fabulous up to now, she comes off her best twice a day for food...

Hi all, a post from djk99 has prompted me to update you on our future duckling. ...

Ieuann133

•4 years ago

4 Replies

Me again 🥰

Thanks for all your replies on my last time Post really appreciate you all taking the time to write back to me. I decided it would be easier to write a new...

Thanks for all your replies on my last time Post really appreciate you all takin...

Buckley123

•4 years ago

6 Replies

Frequent UTIs

This is the first time I’ve posted on here but i’m worried about my symptoms which have got worse recently. In early March of this year I was hospitalised with...

This is the first time I’ve posted on here but i’m worried about my symptoms whi...

Elsa1509

•4 years ago

16 Replies

Priority deliveries

Hi all just wanted to update you all on the priority deliveries issue I had for my dad and myself. Many of you suggested I get in contact with his social care...

Hi all just wanted to update you all on the priority deliveries issue I had for ...

Tre123

•4 years ago

17 Replies

NHS letter

Morning everybody hope you are all doing ok😊 I’ve eventually had a letter from the NHS dated 29th April saying they do not believe I’m part of the group who...

Morning everybody hope you are all doing ok😊 I’ve eventually had a letter from ...

svfarmer

•4 years ago

16 Replies

Hi

I am diagnosed with multiple autoimmune diseases. I have been taking plaquenil for about two months but could not stand the lucid dreams and night time...

I am diagnosed with multiple autoimmune diseases. I have been taking plaquenil f...

Hidden

•4 years ago

18 Replies

Lips peeling/chapped

Does anyone else have problems with their lips peeling? If so, do you have any tips or advice in dealing with it

Does anyone else have problems with their lips peeling? If so, do you have any t...

MsTMP

•4 years ago

9 Replies

Still searching

Hey guys how’s things ? Sorry I haven’t been on much feel like a fraud really I often wonder if people get annoyed with my posts I’m still searching feel like...

Hey guys how’s things ? Sorry I haven’t been on much feel like a fraud really I...

Buckley123

•4 years ago

32 Replies

HRT and Lupus

Hi, I’m going through the menopause, I just wanted to know if anyone on here takes HRT , I asked my Gp few months ago but because it wasn’t a full year without...

Hi, I’m going through the menopause, I just wanted to know if anyone on here tak...

Melaxx

•4 years ago

11 Replies

CBD balm

Has anyone tried CBD hemp oil balms for their skin. I have lupus profundus which means I get horrid red raised Mark's on my body that then do scaly and flaky....

Has anyone tried CBD hemp oil balms for their skin. I have lupus profundus which...

Montysmum1

•4 years ago

4 Replies

Confused..... still!

Hi everyone! Is anyone else confused or is it just me?! I have a lupus diagnosis and take hydroxy daily. At Christmas I had a chest infection which has...

Hi everyone! Is anyone else confused or is it just me?! I have a lupus diagnosi...

Susieliz39

•4 years ago

10 Replies

'my lupus, what you need to know'

Just come across a post from years ago about a new diagnosis and there was a link to all the lupus publications. The one referred to in the post was 'my lupus,...

Just come across a post from years ago about a new diagnosis and there was a lin...

Whippet_lady

•4 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2020

Best time to take Azathioprine?

Dash 🌈 is Dashing 5K up a hill dressed as Butterfly, because that's what you do on World Lupus Day!!

"Flutter goes to Town".🦉🦉🦉

Oh the irony.

Personal, protective equipment worn by Phlebotomists?

Jaw pain

World Lupus Day Zoom Pilates Session - 3pm (GMT+1) Sunday 10th May 2020

World Lupus Day Virtual Quiz - 7.30pm (GMT+1) Sunday 10th May 2020

Sore Teeth

Crunchy knees - lupus related?

Need help?

One week old today!

Vitamins

Recommendations on fruit/veg peelers please 🍐🍊🍏🥕🥔🍆

A puppy pic to cheer everyone up on a Monday

hairloss with medication

Mattress choice

Yet another UTI 🤒

Bianco taking a breather from sitting on her healthunlocked egg!

Me again 🥰

Frequent UTIs

Priority deliveries

NHS letter

Hi

Lips peeling/chapped

Still searching

HRT and Lupus

CBD balm

Confused..... still!

'my lupus, what you need to know'

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