Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2020

HOME HAIRCUTS ANYONE ?

Pooh Bear (the Wife) picked up a scissors (when it starts like this you know its going to end badly) : because she is as blind as a bat with catarrachs because...

Pooh Bear (the Wife) picked up a scissors (when it starts like this you know its...

jimbo1605

•4 years ago

5 Replies

LUPUS AND COVID19 PART 2, podcast for people with lupus with Dr Anca Askanase of Columbia Medical Centre New York

https://soundcloud.com/bmjpodcasts/lupus-immunity-and-covid-19-part-2 This podcast discusses immunity and lupus and the different drugs that people with lupus...

https://soundcloud.com/bmjpodcasts/lupus-immunity-and-covid-19-part-2 This podca...

Milliecox

•4 years ago

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Shielding, strict social distancing and social distancing

Is anyone else confused with these? The government state shielding and social distancing. Yet in the flow diagram from Leeds hospital there is a strict social...

Is anyone else confused with these? The government state shielding and social di...

TEDDYM

•4 years ago

5 Replies

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Flock of Herdies

I now have a small flock of Herdies, 2 traditional like the Herdwick grazing in the photo above, and 2 wanting to be a little more flamboyant. Although they...

I now have a small flock of Herdies, 2 traditional like the Herdwick grazing in ...

Spotty-ewe

•4 years ago

38 Replies

Aspirin as a blood thinner

Does anyone take long term aspirin as a blood thinner? Any experiences? Thanks.

Does anyone take long term aspirin as a blood thinner? Any experiences? Thanks. ...

LilyMistri2

•4 years ago

16 Replies

New member!

Hi everyone, I have only just read about this website in the Lupus Uk magazine and thought I would join.

Hi everyone, I have only just read about this website in the Lupus Uk magazine a...

Lottie89

•4 years ago

9 Replies

Can this be another symptom related to lupus?

Hi all, I posted some photos of pink prick rash on my feet and legs yesterday. This morning I now also have swollen eye lids. It’s all very frightening....

Hi all, I posted some photos of pink prick rash on my feet and legs yesterday. T...

Gagbuni

•4 years ago

4 Replies

Join us in ONE HOUR (7.30pm GMT+1) for the World Lupus Day Virtual Quiz on YouTube Live

Hi everyone, In one hour (at 7.30pm GMT+1) I will be hosting a virtual quiz on YouTube Live to raise awareness and funds. I would love it if lots of...

Hi everyone, In one hour (at 7.30pm GMT+1) I will be hosting a virtual quiz on Y...

Paul_Howard

Partner•4 years ago

11 Replies

MUSINGS ON SUBCUTANEOUS IMMUNOGLOBULINS ON A RAINY DAY

Hello on this rainy World Lupus Day, mes amies. I love it when the weather chimes in with my symptoms. I am the rain today. I have had an ongoing roller...

Hello on this rainy World Lupus Day, mes amies. I love it when the weather chime...

lupusinflight

•4 years ago

16 Replies

Petechia?

Me again. Just adding another photo. Thanks.

Gagbuni

•4 years ago

4 Replies

Does this look like petechia?

G’day. I’m under investigation for an autoimmune condition and was hoping I could call on your expertises to find out if the attached photo is petechia. Thanks...

G’day. I’m under investigation for an autoimmune condition and was hoping I coul...

Gagbuni

•4 years ago

6 Replies

Lovely granary loaf with pumpkin seeds

One of the positives of lockdown is my homemade bread 😋

CecilyParsley

•4 years ago

15 Replies

Join us in ONE HOUR (3pm GMT+1) for a World Lupus Day Pilates Session

Hi everyone, Starting in one hour (3pm GMT+1) Mandy Springham is going to run a Pilates session specifically for the lupus community on Zoom. Mandy is a...

Hi everyone, Starting in one hour (3pm GMT+1) Mandy Springham is going to run a ...

Paul_Howard

Partner•4 years ago

6 Replies

Growing puppies

Here is a picture of Bea and her puppies- as you can see they are getting enormous- well the boys are , little Mira is still a tiny weeny one . Happy Lupus...

Here is a picture of Bea and her puppies- as you can see they are getting enormo...

svfarmer

•4 years ago

5 Replies

Lupus UK quiz reaches Nannerch north Wales

I am so grateful that the whole village has agreed to participate in the quiz at 730pm today. Best wishes Kevin

I am so grateful that the whole village has agreed to participate in the quiz at...

Kevin53

•4 years ago

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Today is World Lupus Day! What better time to join the charity?!

Hi everyone, Today is World Lupus Day! If you're taking part in any of our activities or have planned your own, please let us know! If you are not currently a...

Hi everyone, Today is World Lupus Day! If you're taking part in any of our acti...

Paul_Howard

Partner•4 years ago

8 Replies

Hives and lupus?

Hey all Hope you’re all keeping safe and calm in these times. I was just wondering if anyone else suffered with hives? Especially as the weather gets......

Hey all Hope you’re all keeping safe and calm in these times. I was just wonde...

Cazza_dow

•4 years ago

9 Replies

Cartilage inflammation

Hi I would just like a little advice please... I was diagnosed with discoid Lupus 2 years ago . I’ve had cartilage inflammation in my chest wall since I was 18...

Hi I would just like a little advice please... I was diagnosed with discoid Lupu...

Lou-876

•4 years ago

6 Replies

Blood test

Hi, hope you all keeping well. I’m due to have my blood test done. Usually I go to the hospital to have it done. But now with all the covid 19, not sure if it...

Hi, hope you all keeping well. I’m due to have my blood test done. Usually I go ...

Sezvic

•4 years ago

6 Replies

Help with 9 year old just diagnosed with ‘probable’ lupus

My daughter has just been diagnosed with a multi connective tissue disease most probably SLE. She has been started on hydroxychloroquine and NSAIDs. She is...

My daughter has just been diagnosed with a multi connective tissue disease most ...

Singing_fairy

•4 years ago

17 Replies

Lump on top of foot

I’ve developed a pea-sized lump that’s solid but seems to move under the skin, right on top of my foot near the middle joint. My feet are very painful, always,...

I’ve developed a pea-sized lump that’s solid but seems to move under the skin, r...

ShannonB

•4 years ago

5 Replies

Flown the coop!

I couldn’t believe my eyes yesterday morning when I checked the nest and found it empty. 😳 I panicked and looked everywhere for signs of attack, dead chicks...

I couldn’t believe my eyes yesterday morning when I checked the nest and found i...

Spotty-ewe

•4 years ago

42 Replies

For our first responders ❤️

This is a lily in my yard that bloomed during our peak here in CA. It reminded me of the incredible beauty and sacrifice of our nurses. Like us, they are...

This is a lily in my yard that bloomed during our peak here in CA. It reminded m...

katidid

•4 years ago

2 Replies

Happy VE Day

Makes you realise how easy lockdown is compared to the sacrifices of that generation .... Bianco is still sitting, no sign of the duckling yet but I suspect...

Makes you realise how easy lockdown is compared to the sacrifices of that genera...

Ieuann133

•4 years ago

1 Reply

Struggling to get a diagnosis/misdiagnosed? Bloods/tests not matching how you feel? Strange symptoms the doctors don't understand?

https://academic.oup.com/rheumap/advance-article/doi/10.1093/rap/rkaa006/5758274?guestAccessKey=53a637f4-4fef-4e5a-8d84-f7c6b80ea6f5 Hope everyone is as well...

https://academic.oup.com/rheumap/advance-article/doi/10.1093/rap/rkaa006/5758274...

MelanieSloan

•4 years ago

33 Replies

Being on hydroxychloroquine for SLE makes no difference to severity of Coronavirus infection - Covid-19 Global Rheum Alliance report

This has just been released. https://ard.bmj.com/content/early/2020/05/07/annrheumdis-2020-217690 Sadly no protection for us being on hydroxychloroquine it...

This has just been released. https://ard.bmj.com/content/early/2020/05/07/annrh...

Cathyan

•4 years ago

17 Replies

Nature gives us a laugh😊😊🦝🦝

I just had to post a little laugh here. He is a clean clever creature, and we have had many of them.... Tip of the day from Rickie the Racoon.... Love, and...

I just had to post a little laugh here. He is a clean clever creature, and we ha...

thestorm

•4 years ago

12 Replies

Baby wipes and skin

Anyone experienced a reaction with baby wipes or is it just that my skin is really sensitive during to my lupus profundus. I have raised red marks a scaling on...

Anyone experienced a reaction with baby wipes or is it just that my skin is real...

Montysmum1

•4 years ago

18 Replies

Would be grateful if anyone has experienced any of this could give me some advice x

Hi there hope you are all managing well. I am mum to a 20 year old diagnosed at 18 with lupus, raynaulds, livedo and a few others.. she manages relatively...

Hi there hope you are all managing well. I am mum to a 20 year old diagnosed at ...

Ambennett

•4 years ago

7 Replies

Good morning

I recently read that the government across England and Wales are increasing the list of vulnerable people that need to shield . Maybe this time lupus will be...

I recently read that the government across England and Wales are increasing the ...

Harry19

•4 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2020

HOME HAIRCUTS ANYONE ?

LUPUS AND COVID19 PART 2, podcast for people with lupus with Dr Anca Askanase of Columbia Medical Centre New York

Shielding, strict social distancing and social distancing

Flock of Herdies

Aspirin as a blood thinner

New member!

Can this be another symptom related to lupus?

Join us in ONE HOUR (7.30pm GMT+1) for the World Lupus Day Virtual Quiz on YouTube Live

MUSINGS ON SUBCUTANEOUS IMMUNOGLOBULINS ON A RAINY DAY

Petechia?

Does this look like petechia?

Lovely granary loaf with pumpkin seeds

Join us in ONE HOUR (3pm GMT+1) for a World Lupus Day Pilates Session

Growing puppies

Lupus UK quiz reaches Nannerch north Wales

Today is World Lupus Day! What better time to join the charity?!

Hives and lupus?

Cartilage inflammation

Blood test

Help with 9 year old just diagnosed with ‘probable’ lupus

Lump on top of foot

Flown the coop!

For our first responders ❤️

Happy VE Day

Struggling to get a diagnosis/misdiagnosed? Bloods/tests not matching how you feel? Strange symptoms the doctors don't understand?

Being on hydroxychloroquine for SLE makes no difference to severity of Coronavirus infection - Covid-19 Global Rheum Alliance report

Nature gives us a laugh😊😊🦝🦝

Baby wipes and skin

Would be grateful if anyone has experienced any of this could give me some advice x

Good morning

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