Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,876 members • 28,217 posts

All posts for May 2020

Hydroxychloroquine

Hi All, I haven’t posted on here for ages . Hope people are keeping as well as they can be, both physically and mentally during lockdown. I was finally...

Hi All, I haven’t posted on here for ages . Hope people are keeping as well as t...

Seren65

•4 years ago

19 Replies

Our GP is out of their mind!!!!

Hi everyone. I need help. I purchase my 'plaqunil' overseas as UK stopped manufacturing it quite sometime back. I do not respond well the the replacement...

Hi everyone. I need help. I purchase my 'plaqunil' overseas as UK stopped manufa...

LalSD

•4 years ago

21 Replies

LUPUS UK 29th Annual General Meeting - CEO's Report

Hi everyone, Today is LUPUS UK's Annual General Meeting. Thank you to all our members who voted and/or submitted questions in advance. Unfortunately it is not...

Hi everyone, Today is LUPUS UK's Annual General Meeting. Thank you to all our me...

Paul_Howard

Partner•4 years ago

1 Reply

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Covid

Hope everyone is ok, I’m just wondering those who are shielding how do you pass the day . I walk which my doc said was ok as I never see or meet anyone when...

Hope everyone is ok, I’m just wondering those who are shielding how do you pass ...

biddy75

•4 years ago

2 Replies

Rain🌦🌧⛈

Today came the rains, the heavens opened up and poured on us. So, as going outside was not an option, I was inspired by so many of you with artistic ways, I...

Today came the rains, the heavens opened up and poured on us. So, as going outsi...

thestorm

•4 years ago

16 Replies

Anyone needed a tradesman during lockdown?

Hello Has anyone needed the services of a tradesman during lockdown? Unfortunately the lock on our back door is jamming and today it got stuck so we need...

Hello Has anyone needed the services of a tradesman during lockdown? Unfortu...

Froggie70

•4 years ago

30 Replies

I think everyone is in need of a little puppy update 😃

Managed to get this lovely pic of Bea,s puppies- they are 5 weeks today - We have the 2 boys up front and tiny little Mira at the back . Hope everyone is...

Managed to get this lovely pic of Bea,s puppies- they are 5 weeks today - We hav...

svfarmer

•4 years ago

22 Replies

Skin Biopsy

Hi, had a punch skin biopsy done on my arm few months ago and it says “direct immunoflourescence shows granular deposition of IgM at the dermo-epidermal...

Hi, had a punch skin biopsy done on my arm few months ago and it says “direct im...

Benne09

•4 years ago

8 Replies

I'm sure it's obvious but.....

I cannot see what I am typing. This app is portrait style, and my post is hidden behind my keyboard on my iPad. What am I doing wrong?

I cannot see what I am typing. This app is portrait style, and my post is hidden...

Lisa6161

•4 years ago

5 Replies

Blast from the past lol...

Hi everyone, I used to use this site about 6/7 years ago. I'm not so bad, and coping with the lockdown ok. Looking forward to seeing if my old chums are still...

Hi everyone, I used to use this site about 6/7 years ago. I'm not so bad, and co...

Lisa6161

•4 years ago

18 Replies

Shielding

Anyone in Northern Ireland have any updated communication on shielding

biddy75

•4 years ago

4 Replies

Lip tremors

Hello Have not been on this for a while now. Just wondering if anyone could relate. So I was gardening a few weeks ago and after it I got tremors in my hand...

Hello Have not been on this for a while now. Just wondering if anyone could rel...

Natz36

•4 years ago

34 Replies

Anti body test

New reports this morning of a 100% accurate anti body test. Wonder if this may be an option out of shielding for some of us, but expect because we are...

New reports this morning of a 100% accurate anti body test. Wonder if this may b...

SashaT64

•4 years ago

17 Replies

Just to Funny:)💖

Hi all, just a laugh a friend shared with me, and I had to share it with all of you. Here's to not letting our panties get all in a bunch. Life is sweet, enjoy...

Hi all, just a laugh a friend shared with me, and I had to share it with all of ...

thestorm

•4 years ago

6 Replies

Severe heat intolerance

Hi there, I hope you are all doing well. Just was wondering if anyone could give me any advice on really severe heat intolerance and immediate bright red...

Hi there, I hope you are all doing well. Just was wondering if anyone could gi...

Ambennett

•4 years ago

20 Replies

Quinoric

Got new meds from the GP and dermatology. Quinoric 200mg a day. Tablet tastes so foul. I take it with milk to get rid of the bitterness. The million dollar...

Got new meds from the GP and dermatology. Quinoric 200mg a day. Tablet tastes so...

Montysmum1

•4 years ago

18 Replies

Lung Function Tests - What To Expect?

Hi all, hope you're all doing ok in this very long lockdown that seems to have become our new 'normal'. To my surprise on Monday, I received a letter from...

Hi all, hope you're all doing ok in this very long lockdown that seems to have b...

Ceri-NorthWales

•4 years ago

59 Replies

‘Living with Lupus in 2020’ Survey – LUPUS EUROPE

LUPUS EUROPE is launching its big “Living with Lupus in 2020” research survey to help gather key facts that will help them drive the agenda towards better...

LUPUS EUROPE is launching its big “Living with Lupus in 2020” research survey to...

Chanpreet_Walia

LUPUS UK•4 years ago

12 Replies

UK Azathioprine Supply (UPDATED 13/05/2020)

We have continued to receive some reports from people with lupus who are unable to fulfil their prescription for azathioprine. We have just published an update...

We have continued to receive some reports from people with lupus who are unable ...

Paul_Howard

Partner•4 years ago

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Podcast about immunity for lupus patients and the effects of COVID-19 Part 2

Dr Sara Booth has shared part 2 of her podcast on lupus, immunity and COVID-19. Dr Booth talks to Dr Anca D Askanase, MD, MPH Director, Columbia University...

Dr Sara Booth has shared part 2 of her podcast on lupus, immunity and COVID-19. ...

Chanpreet_Walia

LUPUS UK•4 years ago

7 Replies

Pins and needles

I’ve been having pins and needles feeling for about two months now , it’s mainly my back and stomach sometimes my chest and neck . It’s severe when I’m in the...

I’ve been having pins and needles feeling for about two months now , it’s mainly...

Fabu89

•4 years ago

1 Reply

MMF and Myforctic

Anyone else had bad side effects with these tablets? Was first put on MMF late summer 2018 after the lupus came back with a bang, within a few days I'd noticed...

Anyone else had bad side effects with these tablets? Was first put on MMF late s...

Hidden

•4 years ago

1 Reply

Bitten cheek won't heal

This is minor given the current situation we are all facing but it's quite painful and I'm concerned about infection. Thanks for reading! On Saturday I bit my...

This is minor given the current situation we are all facing but it's quite painf...

Redfox25

•4 years ago

2 Replies

DFS Pattern

Anybody have any experience with DFS pattern and what it means. I got a second ana test done and it came back as 1:640 densely fine speckled, are their any...

Anybody have any experience with DFS pattern and what it means. I got a second a...

SethHov

•4 years ago

1 Reply

Our Masked Friends come calling🦝💛🦝

Hi all, I wanted to share our fostering of the most entertaining rascals mother nature ever created. Here is some of the "gang", who patter our door steps,...

Hi all, I wanted to share our fostering of the most entertaining rascals mother...

thestorm

•4 years ago

11 Replies

Thinners and weight

Has anyone found weight gain a side effect of taking blood thinners? I’m on dalteparin. Thanks!

Has anyone found weight gain a side effect of taking blood thinners? I’m on dalt...

LilyMistri2

•4 years ago

2 Replies

Shielding and Sick Pay

Hi As per per government advice, I have been shielding. They are currently paying me statutory sick pay and refused to put on the furlough scheme. An an...

Hi As per per government advice, I have been shielding. They are currently pay...

Tjay93

•4 years ago

7 Replies

Today I feel worthless.

Having just watched the BBC’s Q&A before the daily update I can now say I feel worthless, expendable, disposable. Whatever word you want to use, I feel it....

Having just watched the BBC’s Q&A before the daily update I can now say I feel w...

Froggie70

•4 years ago

38 Replies

Don't for get those Torches.

Dear All, Today as, I hope most are now aware, marks the Two Hundredth Anniversary of, the Birth Of Florence Nightingale. At 8:30, half an hour after the NHS...

Dear All, Today as, I hope most are now aware, marks the Two Hundredth Anniversa...

AndrewT

•4 years ago

1 Reply

Medical certificate for shielding

Good afternoon ladies and gents. Today I’ve received a lovely text from my ward manager asking me to get a medical certificate from my GP for the 12 weeks I’ve...

Good afternoon ladies and gents. Today I’ve received a lovely text from my ward ...

Sezvic

•4 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2020

Hydroxychloroquine

Our GP is out of their mind!!!!

LUPUS UK 29th Annual General Meeting - CEO's Report

Covid

Rain🌦🌧⛈

Anyone needed a tradesman during lockdown?

I think everyone is in need of a little puppy update 😃

Skin Biopsy

I'm sure it's obvious but.....

Blast from the past lol...

Shielding

Lip tremors

Anti body test

Just to Funny:)💖

Severe heat intolerance

Quinoric

Lung Function Tests - What To Expect?

‘Living with Lupus in 2020’ Survey – LUPUS EUROPE

UK Azathioprine Supply (UPDATED 13/05/2020)

Podcast about immunity for lupus patients and the effects of COVID-19 Part 2

Pins and needles

MMF and Myforctic

Bitten cheek won't heal

DFS Pattern

Our Masked Friends come calling🦝💛🦝

Thinners and weight

Shielding and Sick Pay

Today I feel worthless.

Don't for get those Torches.

Medical certificate for shielding

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