Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,688 members • 28,070 posts

All posts for May 2020

Tarrah.

Lisa6161

•4 years ago

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A unexpected gift...

Since lockdown started I seem to have had very little post - and now don't check my postbox every day. Imagine my surprise then, when I lifted the lid...

Since lockdown started I seem to have had very little post - and now don't chec...

WinterSwimmer

•4 years ago

7 Replies

Shielding

Hi I am shielding as I’m sure many of you are and it’s challenging hope you are all well. I wanted to ask I am 23 and a nurse with lupus. I was wondering if...

Hi I am shielding as I’m sure many of you are and it’s challenging hope you are ...

JaneI_1

•4 years ago

18 Replies

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Absolute mess - oh and no one cares and I am invisible

How in the UK, with national health service, Human Rights and the Equality and Diability Act 2010, is it allowed for someone to be completely abandoned and...

How in the UK, with national health service, Human Rights and the Equality and D...

Ceri-NorthWales

•4 years ago

52 Replies

Weight gain

Hi all, I have been on Hydroxychloroquine for over a year now and I’m have been told I will be for life. I seem to be experiencing weight gain. Before the...

Hi all, I have been on Hydroxychloroquine for over a year now and I’m have been ...

Becky1995

•4 years ago

3 Replies

For all the wildlife-lovers - Mrs Duckie and her babies!

Morning everyone, sorry about the picture quality, the bottom 2 pics were taken from inside the house through the window, hence a black splodge on the second...

Morning everyone, sorry about the picture quality, the bottom 2 pics were taken ...

Horsewhisper

•4 years ago

7 Replies

The full published report from the COVID-19 Global Rheumatology Alliance out now.

Characteristics associated with hospitalisation for COVID-19 in people with rheumatic disease - fully published report on the data collected by the Global...

Characteristics associated with hospitalisation for COVID-19 in people with rheu...

Cathyan

•4 years ago

48 Replies

Cute puppies 🐶

Well the puppies are all off to their new homes next week - it’s going to be a very emotional day - Thank goodness we are keeping little Mira 🐶

Well the puppies are all off to their new homes next week - it’s going to be a v...

svfarmer

•4 years ago

21 Replies

Advise required - doctors won’t

My Lymph glands have been up for 9 months in my neck and throat Previously had Graves’ disease doctor taken my bloods (which checked my white cells, thyroid...

My Lymph glands have been up for 9 months in my neck and throat Previously had ...

RebeccaD1231

•4 years ago

19 Replies

Is Collagen beneficial in SLE?

hello, I understand that Lupus can attack Collagen in the body. I was wondering if taking a Collagen supplement might make my SLE worse or indeed better. ?...

hello, I understand that Lupus can attack Collagen in the body. I was wondering ...

patientpat

•4 years ago

23 Replies

APS & Polymyalgia Rheumatica

Hi everyone, I am 57 and have suffered from APS since I was 29. Last October I suffered from Polymyalgia Rheumatica and I was placed on steroids. This...

Hi everyone, I am 57 and have suffered from APS since I was 29. Last October I s...

Hidden

•4 years ago

3 Replies

Persistent blinding headache

I have had a blinding headache for two weeks, my sleep is not too good, because I sleep and still wake up with a banging head. Called my Gp, and was spoken to...

I have had a blinding headache for two weeks, my sleep is not too good, because ...

ijeasike

•4 years ago

12 Replies

Arthritis?

I have the type of Lupus that only effects the skin, discoid lupus erythematosus. I understand lupus effects everyone differently, but as far as I understand,...

I have the type of Lupus that only effects the skin, discoid lupus erythematosus...

Biloxi

•4 years ago

2 Replies

Confused (yet again)

Hi all Had a very interesting chat with one of the Rheumatology nurses at my hospital today. Apparently my monthly blood monitoring can now move to six...

Hi all Had a very interesting chat with one of the Rheumatology nurses at my ho...

Froggie70

•4 years ago

7 Replies

All Lupus Symptoms with negative CTD scan

Hey, sorry if this comes across as insensitive as I can imagine this is an intense and stressful time for everyone. I wanted to know if you think that I might...

Hey, sorry if this comes across as insensitive as I can imagine this is an inten...

danny101

•4 years ago

8 Replies

LUPUS EUROPE - Living with Lupus Survey - CLOSING SUNDAY

Hi everyone, Chanpreet kindly posted about this survey a couple of weeks ago -...

Hi everyone, Chanpreet kindly posted about this survey a couple of weeks ago -.....

Paul_Howard

Partner•4 years ago

2 Replies

Scottish Government Announcement

Well shielding was briefly discussed today , in two weeks time they will elaborate more. From what the First Minister was saying, they will no longer have a...

Well shielding was briefly discussed today , in two weeks time they will elabora...

CarolMcl

•4 years ago

41 Replies

Question for anyone shielding in Scotland

Hello Has anyone in Scotland received an official shielding letter where the only medication they take is Methotrexate and they have no other comorbidites?...

Hello Has anyone in Scotland received an official shielding letter where the on...

Froggie70

•4 years ago

11 Replies

Car

So most of you would have been here through my learning to drive journey and getting my new car. Well today I only went and got a new used car on finance from...

So most of you would have been here through my learning to drive journey and get...

LouLamb

•4 years ago

26 Replies

No blood tests

Hello My last set of methotrexate monitoring bloods were done on 8th March. Everything looked normal except for raised ESR and CRP and this is normal for me...

Hello My last set of methotrexate monitoring bloods were done on 8th March. E...

Froggie70

•4 years ago

20 Replies

Zentiva hydroxychloroquine

Hi 🤗 I’ve sent my GP practice the info from this site about how to type up my prescription so I can get the zentiva brand but they seem to not be able to do...

Hi 🤗 I’ve sent my GP practice the info from this site about how to type up my ...

Littlemisssunshine87

•4 years ago

7 Replies

Hydroxychloroquine and covid

As I have been taking hydroxychloroquine for at least 5 yrs now,if I got covid 19, would it make me more likely to get seriously ill

As I have been taking hydroxychloroquine for at least 5 yrs now,if I got covid ...

smellie

•4 years ago

11 Replies

treating CIDP ?

treating CIDP ? new therapy ?

DRizard

•4 years ago

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Pinprick dots of blood, underneath my skin.

Hi , years ago when I was diagnosed with lupus, I had some pinprick dots on my arms. I also have vasculitis, and was told that was the cause. 15 years on and I...

Hi , years ago when I was diagnosed with lupus, I had some pinprick dots on my a...

Lisa6161

•4 years ago

9 Replies

Physiotherapy for Lupus

Hi everyone, I am been using a walking stick since February 2020. Initially, I thought the walking stick would improve my mobility and in the last few months,...

Hi everyone, I am been using a walking stick since February 2020. Initially, I ...

SLE-Warrior

•4 years ago

3 Replies

Bad migraines

Hello everyone, I hope you are all staying safe and well. Just wondering if anyone is suffering from very bad migraines, I am getting them on an average of 2 a...

Hello everyone, I hope you are all staying safe and well. Just wondering if anyo...

Doey1962

•4 years ago

12 Replies

Help, what is this?

Hi guys, I’m still on my road to diagnoses but I get the lumps on usually just my back and I’m wondering if anyone else has anything like this? They aren’t...

Hi guys, I’m still on my road to diagnoses but I get the lumps on usually just m...

Cass3r

•4 years ago

7 Replies

Hydroxychloroquine Covid trial stopped.

Hi. I have just heard on the News that the trial of Hydroxychloriquine has been halted. The scientists had some hope that it could help in recovery or even...

Hi. I have just heard on the News that the trial of Hydroxychloriquine has been...

bones-bones

•4 years ago

14 Replies

BACK BY POPULAR DEMAND ... another dog / cat analogy

If you cant tell the difference between a cat and dog through the fog then dont bother. All you need do is whistle and call out come on fido and you will find...

If you cant tell the difference between a cat and dog through the fog then dont ...

jimbo1605

•4 years ago

1 Reply

Worried about latest decision made by new consultant

Hi I have been taken off hydroxy I was on 200mg daily. Recent optician appointment show macular degeneration in both eyes. Went to see hospital and told to...

Hi I have been taken off hydroxy I was on 200mg daily. Recent optician appointme...

lilliebetfairies

•4 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2020

Tarrah.

A unexpected gift...

Shielding

Absolute mess - oh and no one cares and I am invisible

Weight gain

For all the wildlife-lovers - Mrs Duckie and her babies!

The full published report from the COVID-19 Global Rheumatology Alliance out now.

Cute puppies 🐶

Advise required - doctors won’t

Is Collagen beneficial in SLE?

APS & Polymyalgia Rheumatica

Persistent blinding headache

Arthritis?

Confused (yet again)

All Lupus Symptoms with negative CTD scan

LUPUS EUROPE - Living with Lupus Survey - CLOSING SUNDAY

Scottish Government Announcement

Question for anyone shielding in Scotland

Car

No blood tests

Zentiva hydroxychloroquine

Hydroxychloroquine and covid

treating CIDP ?

Pinprick dots of blood, underneath my skin.

Physiotherapy for Lupus

Bad migraines

Help, what is this?

Hydroxychloroquine Covid trial stopped.

BACK BY POPULAR DEMAND ... another dog / cat analogy

Worried about latest decision made by new consultant

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