Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2020

Anyone attend RL hospital

Hi to everyone just a question has anyone attended Liverpool royal of late? I have finally got discharged from the rhuemy I wasn’t very happy with and he’s...

Hi to everyone just a question has anyone attended Liverpool royal of late? I ha...

•4 years ago

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NEW LUPUS UK community study to sign up for! - RECRUITMENT NOW CLOSED

Thanks to an overwhelming response from people volunteering for this research study, it is now closed to new entrants. Don't worry if you missed the cut-off...

Thanks to an overwhelming response from people volunteering for this research st...

Partner•4 years ago

A Bit of Light Relief for people with Raynaud's or with bad circulation.

A friend, who like me is a retired teacher and a fellow Raynaud’s sufferer, was telling me of her recent visit to the supermarket. She wanted a few items from...

A friend, who like me is a retired teacher and a fellow Raynaud’s sufferer, was ...

•4 years ago

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Any experience?

Hello Two weeks ago , my Rheumatologist add Mycophenolate to my drugs. Wanted to ask if anyone here is taking some and for how long have you been taking it?...

Hello Two weeks ago , my Rheumatologist add Mycophenolate to my drugs. Wanted ...

•4 years ago

Knee pain

Hi all currently waiting on my rheumatology appointment and recently had my cardiology appointment. They gave a working diagnosis of pericarditis which makes...

Hi all currently waiting on my rheumatology appointment and recently had my card...

•4 years ago

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Diagnosis

Hi I recently visited my rheumatologist for fibromyalgia and while I was with him he noticed my red rash on my cheeks that I’ve literally had years. He sent me...

Hi I recently visited my rheumatologist for fibromyalgia and while I was with hi...

•4 years ago

Can you help. Autoimmune urticaria? Makes me feel like I’m burning alive .

No one has ever explained or give reason for my burning skin rashes until last Friday. Apparently this is what I have caused by an autoimmune response....

No one has ever explained or give reason for my burning skin rashes until last F...

•4 years ago

Advice for difficult Dr appt

Hi, I've had supposed fibromyalgia and CFS for 3+ years, but over the last few months I've developed a facial rash, very dry eyes and my hair is falling out as...

Hi, I've had supposed fibromyalgia and CFS for 3+ years, but over the last few m...

•4 years ago

Best technic to avoid sun.?

Hi my SLE friends Plz suggest me the most effective way of protecting myself from sun. Actually I belong to India, which, if you are aware has very hot and...

Hi my SLE friends Plz suggest me the most effective way of protecting myself fr...

•4 years ago

Thestorm here adding in regards to my late Saturday post 🧡

I wrote a new post Saturday evening, called," update on what I am learning about the Heart"🧡 and about all that was going on with my symptoms, medications,...

I wrote a new post Saturday evening, called," update on what I am learning about...

•4 years ago

Advice for my 11yr old daughter.

Hi I posted recently with concern about my daughter possibly having boarderline lupus. She is still under "investigation" But just today this has happened to...

Hi I posted recently with concern about my daughter possibly having boarderline ...

PurpleButterfly81

•4 years ago

I don’t believe it

I don’t believe it 😂😂😂🙇‍♀️

I don’t believe it 😂😂😂🙇‍♀️

•4 years ago

How to avoid flares??

Hi friends, my lupus with nephritis is a year old. No flares since I have started with the medication. Am going to start my job very soon. So, Want to seek...

Hi friends, my lupus with nephritis is a year old. No flares since I have starte...

•4 years ago

Raynauds

Is there any specifics for a diagnosis of raynauds. Any info will be greatly appreciated!

Is there any specifics for a diagnosis of raynauds. Any info will be greatly app...

•4 years ago

Thestormy sunshine here, Update on learning about the Heart🧡

So, with all my learning, and still ongoing discoveries about the heart and Lupus,I post this. Our heart is the gatekeeper of all our lives, inhabiting our...

So, with all my learning, and still ongoing discoveries about the heart and Lupu...

•4 years ago

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