Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,723 members • 28,084 posts

All posts for March 2020

OT

Hi all, I had my assessment for the OT a few weeks back. Last week they delivered me a perching stool and trolley. (Must say the new aids make me feel like...

Hi all, I had my assessment for the OT a few weeks back. Last week they delive...

LouLamb

•4 years ago

15 Replies

High risk letter

Received my letter today, 3 months of not going out!!! Needs must I suppose. On Monday my GP phoned me to say I wasn't getting a letter as I wasn't classified...

Received my letter today, 3 months of not going out!!! Needs must I suppose. On ...

Hidden

•4 years ago

15 Replies

Just a bit of banter in gloomy times

Just be careful because people are going crazy from being in lock down or maybe its cause am scottish Actually I've just been talking about this with the...

Just be careful because people are going crazy from being in lock down or maybe ...

Rosie_red

•4 years ago

13 Replies

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Caption Competition!

While we are all isolated I wondered if it might be fun to think of a caption for this photo my sister recently sent to me. I have one up my sleeve, but I’d...

While we are all isolated I wondered if it might be fun to think of a caption fo...

Spotty-ewe

•4 years ago

90 Replies

I wouldn’t wait 7 days my lupus brother and sisters.

Government guidelines say you have to wait seven days until the COVID 19 virus get worse in our bodies before we go to the hospital, they quote breathing...

Government guidelines say you have to wait seven days until the COVID 19 virus ...

luppychick

•4 years ago

5 Replies

Sh*t! Samples taken from a Dutch sewage plant show Covid present in the sewage March 5, weeks before cases reported! From German state TV :)

https://www.dw.com/en/coronavirus-in-sewage-foreshadowed-outbreak-in-dutch-city/a-52972980 Bring on those home testing kits! In Scotland, a kit for home bowel...

https://www.dw.com/en/coronavirus-in-sewage-foreshadowed-outbreak-in-dutch-city/...

eekt

•4 years ago

22 Replies

For those that fall within NHS Lanarkshire region

Hi Apologies I know the following information will only apply to a small number of people on our site but if you sit within the NHS Lanarkshire region of...

Hi Apologies I know the following information will only apply to a small number...

Froggie70

•4 years ago

8 Replies

A message from LUPUS UK's new CEO

Hi everyone, Many of you were already aware that I would be taking over as LUPUS UK's Chief Executive Officer - that day is today! I've written a message to...

Hi everyone, Many of you were already aware that I would be taking over as LUPUS...

Paul_Howard

Partner•4 years ago

32 Replies

Azathioprine side effects

Can anyone help I have recently commenced azathioprione for my SLE and my urine has changed colour, it’s usually fairly clear but it’s now quite luminous! Just...

Can anyone help I have recently commenced azathioprione for my SLE and my urine ...

Tinkabell555

•4 years ago

3 Replies

Shielding Letter

Hi everyone! Just a quick question, does the ‘shielding letter’ from the GP re Covid, state that you have to stay at home for 12 weeks? I have received a...

Hi everyone! Just a quick question, does the ‘shielding letter’ from the GP re ...

Shann07

•4 years ago

4 Replies

Coronavirus poem

Due to coronavirus We are told to stay Safe in our homes Not just for a day 2weeks they say Is all you need To rid your body Of this disease Now,3to 6 months...

Due to coronavirus We are told to stay Safe in our homes Not just for a day 2wee...

Forgot2mention

•4 years ago

1 Reply

Is a letter for employer required?

Hi all Looking at the information recently posted by PMRpro (thank you again) I see in the NBSR guidelines flow chart that I fall into the Moderate risk...

Hi all Looking at the information recently posted by PMRpro (thank you again) I...

Froggie70

•4 years ago

6 Replies

Vulnerability letter

Hi I hope everyone is keeping safe & as well as possible. Thanks everyone for your replies. It seems that there is a lot of confusion & no one including...

Hi I hope everyone is keeping safe & as well as possible. Thanks everyone for yo...

Cal66

•4 years ago

9 Replies

Smuggling gang

Does anybody recognise this gang? I’m sure I’ve seen them loitering in bathrooms before now! 😂😂

Does anybody recognise this gang? I’m sure I’ve seen them loitering in bathroom...

Spotty-ewe

•4 years ago

22 Replies

At Coco’s Request

There is another row of these eucalyptus behind, and more going up the dirt road. My phone camera lens isn’t wide angle enough to capture it all. I wish I...

There is another row of these eucalyptus behind, and more going up the dirt road...

Hidden

•4 years ago

66 Replies

Lupus patients less likely to get COVID 19

It appears we are less likely to get COVID 19 due to taking hydroxychloroquine. Read here in the middle of the article....

It appears we are less likely to get COVID 19 due to taking hydroxychloroquine. ...

miccika1

•4 years ago

28 Replies

Covid 19: Am I at high risk or not? A flow chart from Addenbrookes

https://healthunlocked.com/vasculitis-uk/posts/143069641/chart-to-work-out-if-you-are-high-risk?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=notification

https://healthunlocked.com/vasculitis-uk/posts/143069641/chart-to-work-out-if-yo...

PMRpro

•4 years ago

17 Replies

Hydroxycholorquine supply - reply from London Assembly

Hi all, Since there's been a lot of concern recently about the supply of hydroxycholorquine sulfate I decided to email my local London Assembly representative...

Hi all, Since there's been a lot of concern recently about the supply of hydrox...

AnnaVal

•4 years ago

4 Replies

GOOD NEWS for us from coronavirus front line

Hello all, I know this is a really worrying time for many of us so thought I’d share the positive conversation with my rheumy department this morning. I have...

Hello all, I know this is a really worrying time for many of us so thought I’d s...

Melba1

•4 years ago

39 Replies

UK Hydroxychloroquine Shortage - We need your help!

Hi everyone, We know that lots of people have had issues collecting their prescription of hydroxychloroquine and want to help us. Writing to or emailing your...

Hi everyone, We know that lots of people have had issues collecting their prescr...

Paul_Howard

Partner•4 years ago

37 Replies

Weird white feet feet! (Sorry about the picture)

Hi guys! Hope everyone is well during this time. I just wondered if anyone knew anything about what’s going on here? I know obviously what it looks like; but...

Hi guys! Hope everyone is well during this time. I just wondered if anyone knew...

kateclowe

•4 years ago

7 Replies

Down Memory Lane

Do you remember when supermarkets looked like this? Oh those were the days! 😁 Hopefully it won’t be long until we can enjoy those days again. 🙏🏻🙏🏻🤞🤞

Do you remember when supermarkets looked like this? Oh those were the days! 😁 ...

Spotty-ewe

•4 years ago

33 Replies

Ways to clean your Home Deliveries to reduce your risks (with thanks to Blearyeyed of the PMRGCAuk forum)

The original is here: https://healthunlocked.com/pmrgcauk/posts/142995125/ways-to-clean-your-home-deliveries-to-reduce-your-risks and here is what an expert on...

The original is here: https://healthunlocked.com/pmrgcauk/posts/142995125/ways-t...

PMRpro

•4 years ago

4 Replies

Inconsistent and Confusing Advice about Isolation, Social Distance and Shielding and WHY this is REALLY IMPORTANT.

This post began life as a response to another user's post. It got a bit long, so I am posting it in its own right. I would love to hear people's responses and...

This post began life as a response to another user's post. It got a bit long, so...

WinterSwimmer

•4 years ago

17 Replies

Shielding

I have Lupus and am currently on Methotrexate and Sulfasalazine I have not received a letter to say I am vulnerable but of course I am taking all the...

I have Lupus and am currently on Methotrexate and Sulfasalazine I have not rece...

lilly60

•4 years ago

3 Replies

Lupus anticoagulant

Hi. A few years ago i was tested for lupus SLE as i have majority of symptoms. Turned out it wasnt lupus SLE it was in fact lupus anticogualant. I was changed...

Hi. A few years ago i was tested for lupus SLE as i have majority of symptoms. T...

xSarahx

•4 years ago

3 Replies

SLE SCARCITY

I have SLE so i was on hydroxychloroquine 400mg and i couldn't afford it due to the increase in price in my country...so I called my doctor and he recommend...

I have SLE so i was on hydroxychloroquine 400mg and i couldn't afford it due to ...

Ruthpet

•4 years ago

1 Reply

Coronavirus in Scotland: National volunteering scheme to launch on Monday

'Scotland Cares' : 'People keen to take part can visit the ReadyScotland.org website, where they will be able to choose between an NHS scheme for retired...

'Scotland Cares' : 'People keen to take part can visit the ReadyScotland.org web...

eekt

•4 years ago

4 Replies

In Desperate Need of Healthcare, please, please help Lupus UK

Hi all, sorry to making yet another post. My story is well documented, but I cannot stress enough how I so desperately need healthcare. Please, this is a...

Hi all, sorry to making yet another post. My story is well documented, but I can...

Ceri-NorthWales

•4 years ago

150 Replies

fresh fruit and veg, are they safe to eat?

as a lot of veg and fruit are picked by hand how safe are they to eat? we can hardly disinfect or soapy wash them and who knows what conditions are like...

as a lot of veg and fruit are picked by hand how safe are they to eat? we can ha...

suzannah16

•4 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2020

OT

High risk letter

Just a bit of banter in gloomy times

Caption Competition!

I wouldn’t wait 7 days my lupus brother and sisters.

Sh*t! Samples taken from a Dutch sewage plant show Covid present in the sewage March 5, weeks before cases reported! From German state TV :)

For those that fall within NHS Lanarkshire region

A message from LUPUS UK's new CEO

Azathioprine side effects

Shielding Letter

Coronavirus poem

Is a letter for employer required?

Vulnerability letter

Smuggling gang

At Coco’s Request

Lupus patients less likely to get COVID 19

Covid 19: Am I at high risk or not? A flow chart from Addenbrookes

Hydroxycholorquine supply - reply from London Assembly

GOOD NEWS for us from coronavirus front line

UK Hydroxychloroquine Shortage - We need your help!

Weird white feet feet! (Sorry about the picture)

Down Memory Lane

Ways to clean your Home Deliveries to reduce your risks (with thanks to Blearyeyed of the PMRGCAuk forum)

Inconsistent and Confusing Advice about Isolation, Social Distance and Shielding and WHY this is REALLY IMPORTANT.

Shielding

Lupus anticoagulant

SLE SCARCITY

Coronavirus in Scotland: National volunteering scheme to launch on Monday

In Desperate Need of Healthcare, please, please help Lupus UK

fresh fruit and veg, are they safe to eat?

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