Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,829 members • 28,166 posts

All posts for February 2020

Hydroxychloroquine for DLE

I was prescribed hydroxychloroquine for discoid LE. I was on it for about 5 years with no side effects. I'm not sure how it would work with your condition, but...

I was prescribed hydroxychloroquine for discoid LE. I was on it for about 5 year...

Jynxy

•4 years ago

1 Reply

North Wales Lupus Group Cake & Chat, Sat 7th March, 11 am at Lovelies Delights in Mold, Flintshire

Join the North Wales Lupus Group at Lovelies Delights on Saturday 7th March at 11am for cake and conversation! The meeting is open to all! 🍰

Join the North Wales Lupus Group at Lovelies Delights on Saturday 7th March at 1...

Chanpreet_Walia

LUPUS UK•4 years ago

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Frustrating

Hi am new to site, was diagnosed 5weeks ago. In flare up at mo. Just feeling very frustrated. Don’t know where this is all going to end. I have lupus,Sjogrens...

Hi am new to site, was diagnosed 5weeks ago. In flare up at mo. Just feeling ver...

holayaddios

•4 years ago

6 Replies

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Brain Fog

I couldn’t Resist. I hope you’re all having a better day then yesterday🙏.

Hidden

•4 years ago

22 Replies

Burning and tingling

Guys the last 4 weeks I started getting really Lightheaded where I felt like I was going to pass out, pain in ear jaw and head, I then got tingling in my hands...

Guys the last 4 weeks I started getting really Lightheaded where I felt like I w...

Sammymoat1986

•4 years ago

2 Replies

Severe vitamin D deficiency.

Hi, has anyone been diagnosed with the above? I've been on steroids ( this is my last week) and now have a D3 deficiency. GP will be putting me on a...

Hi, has anyone been diagnosed with the above? I've been on steroids ( this is m...

Foodman500

•4 years ago

10 Replies

Methotrexate advice.

Has anyone used Methotrexate to manage their symptoms? I've been prescribed but wondered how people have found it? Thanks

Has anyone used Methotrexate to manage their symptoms? I've been prescribed but ...

Foodman500

•4 years ago

12 Replies

Chest pain

So its the second time I have been taken into hospital with chest pain. All tests clear, have fitted a reveal device which records my hearts activity. I...

So its the second time I have been taken into hospital with chest pain. All test...

Sallmell

•4 years ago

48 Replies

Anyone have any experience with elevated resting heart rate (tachycardia) due to their sle?

Hi all, After a dreadful 2019 due to having 2 blood clots on my brain due to an operation on my head and the impact of lupus causing clotting to occur, I now...

Hi all, After a dreadful 2019 due to having 2 blood clots on my brain due to an ...

Serser

•4 years ago

24 Replies

For those who feel misunderstood, unappreciated, or criticised.

I have recently had a couple of friends tell me how they have been upset by their good intentions being taken the wrong way or their kind acts being taken for...

I have recently had a couple of friends tell me how they have been upset by thei...

Spotty-ewe

•4 years ago

20 Replies

New consultant

After all these years seeing my Lupus consultant I will see a kidney consultant on Thursday for the 1st time since starting dialysis. It'll be weird seeing...

After all these years seeing my Lupus consultant I will see a kidney consultant ...

Hidden

•4 years ago

18 Replies

advice please

hiya, so a few years ago when i was 13 i was told due to my high aptt and anxiety that wasn’t reacting to any medications that i might have lupus, they did the...

hiya, so a few years ago when i was 13 i was told due to my high aptt and anxiet...

miiiy

•4 years ago

13 Replies

Hives?

Hi everyone, I posted here a while ago because I am concerned I could have lupus (my ESR, 25, and CRP, 34, have been raised for months, my liver ggt is raised...

Hi everyone, I posted here a while ago because I am concerned I could have lupu...

Hidden

•4 years ago

8 Replies

CNS Lupus

Hei, Some time since my last and maybe first post. I have a 30 year old daughter with Lupus. ( and two other grown up kids with ME ) Now there have been some...

Hei, Some time since my last and maybe first post. I have a 30 year old daughter...

spanskmargeritt

•4 years ago

14 Replies

Long and drawn out!

Can anyone tell me why a Lupus diagnosis takes so long. My wife has finally received her diagnosis after 2 years of appointments. Also, does anyone who has...

Can anyone tell me why a Lupus diagnosis takes so long. My wife has finally rece...

just-typing

•4 years ago

29 Replies

Look on the bright side,

Hi folks new to this site. Diagnosed with lupus like connective disease, constrictive pericarditis, scleritis, gout, spinal stenosis, reynards, myalgia,...

Hi folks new to this site. Diagnosed with lupus like connective disease, constri...

1clea

•4 years ago

3 Replies

An interesting quote

“Everyone you meet is fighting a battle you know nothing about. Be kind always.” Best wishes Kevin

“Everyone you meet is fighting a battle you know nothing about. Be kind always.”...

Kevin53

•4 years ago

10 Replies

Celiac

Good morning, Dose anyone suffer with vomiting and diarrhoea? I have IBS my doctor is now testing me to see if I have an intolerance to wheat and gluten. It's...

Good morning, Dose anyone suffer with vomiting and diarrhoea? I have IBS my doct...

djsema

•4 years ago

6 Replies

Facebook Group Cure the NHS - Liverpool Hospital Trusts

I have created a group page in honor of my sister who sadly died last year from complications due to Lupus. Unfortunately, there were lots of mistakes made...

I have created a group page in honor of my sister who sadly died last year from ...

Lupusrelative

•4 years ago

24 Replies

Lupus

Hi everyone, I am new to the site! Yesterday my blood test results came back and the GP advised me that they think it may be indicating that I have lupus and...

Hi everyone, I am new to the site! Yesterday my blood test results came back and...

Butterfly2020

•4 years ago

12 Replies

Awaiting diagnosis

I went to the doctors following a range of different symptoms, bloods came back showing positive ANA. Got referred to a musculoskeletal Doctor, who did some...

I went to the doctors following a range of different symptoms, bloods came back ...

tubblecakes

•4 years ago

1 Reply

Eye problems

Another question sorry! So far I’ve been diagnosed with connective tissue disease/cutaneous lupus but am awaiting several appointments at different...

Another question sorry! So far I’ve been diagnosed with connective tissue diseas...

Raven_claw

•4 years ago

6 Replies

Could I have lupus?

Hi, I'm 45. I have been going to doctors to tell them I am very tired for about 9-10 years but after basic blood tests it's put down to hormonal changes. In...

Hi, I'm 45. I have been going to doctors to tell them I am very tired for about...

Bernadette2074

•4 years ago

7 Replies

White blood cells

Does anyone else have consistently high white blood cells, mine go higher with each blood test, strange thing is I don't feel unwell. Any ideas.

Does anyone else have consistently high white blood cells, mine go higher with e...

Doey1962

•4 years ago

8 Replies

Trigeminal Neuralgia

Does anyone know if it is possible to have lupus related trigeminal neuralgia if inflammatory markers are normal.

Does anyone know if it is possible to have lupus related trigeminal neuralgia if...

Babyshoes3

•4 years ago

16 Replies

Never Ending Cough!

I will apologise now for this very long post! Any help or information would be appreciated. I have UCTD, RA & Small Fibre Neuropathy and was diagnosed...

I will apologise now for this very long post! Any help or information would be ...

Bakbre

•4 years ago

6 Replies

Diagnosis of Lupus

So hi, new to this group and in the process of possibly being diagnosed with Lupus. They have told me my bloods came back positive, but they want to repeat...

So hi, new to this group and in the process of possibly being diagnosed with Lup...

Buxton26

•4 years ago

34 Replies

Newly dx with UCTD

Hi folks, I’m knew here. I happen to stumble upon this group at 1:30am. Recently diagnosed with UCTD. So all of these new things happening to my body is mind...

Hi folks, I’m knew here. I happen to stumble upon this group at 1:30am. Recently...

Limerick

•4 years ago

23 Replies

Bleed on the brain..

Hi, I have Lupus SLE and Antiphospholipid last week I had a bleed on the brain due to my warfarin I have been on it 10 years.. they have taken me off it that...

Hi, I have Lupus SLE and Antiphospholipid last week I had a bleed on the brain d...

Rack

•4 years ago

7 Replies

Intolerances

Hi all, I’ve been on here previously asking about intolerances. Since my lupus diagnosis I have noticed I’ve started getting a lot of intolerances arriving-...

Hi all, I’ve been on here previously asking about intolerances. Since my lupus d...

Becky1995

•4 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2020

Hydroxychloroquine for DLE

North Wales Lupus Group Cake & Chat, Sat 7th March, 11 am at Lovelies Delights in Mold, Flintshire

Frustrating

Brain Fog

Burning and tingling

Severe vitamin D deficiency.

Methotrexate advice.

Chest pain

Anyone have any experience with elevated resting heart rate (tachycardia) due to their sle?

For those who feel misunderstood, unappreciated, or criticised.

New consultant

advice please

Hives?

CNS Lupus

Long and drawn out!

Look on the bright side,

An interesting quote

Celiac

Facebook Group Cure the NHS - Liverpool Hospital Trusts

Lupus

Awaiting diagnosis

Eye problems

Could I have lupus?

White blood cells

Trigeminal Neuralgia

Never Ending Cough!

Diagnosis of Lupus

Newly dx with UCTD

Bleed on the brain..

Intolerances

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