Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,738 members • 28,100 posts

All posts for February 2020

Appointment at St Thomas - how?

I’ve had an usually bad relationship with both my rheumatologist and GP, both performing regular checks and hiding my results from me and refusing to send me...

I’ve had an usually bad relationship with both my rheumatologist and GP, both pe...

Iona467

•4 years ago

20 Replies

Can it be autoimmune?

Hi all, I hope you all are doing as fine as you can. I have written here my story previously with strange episodes I have been experiencing for the last 2.5...

Hi all, I hope you all are doing as fine as you can. I have written here my stor...

MatPatP

•4 years ago

3 Replies

Reducing steroids causing mini-flares?

I have been reducing steroids for 3/4 of a year now and ive noticed that i get mini-flares basically 1-2 times a month minimum. I was wondering could the fact...

I have been reducing steroids for 3/4 of a year now and ive noticed that i get m...

Sandy1212

•4 years ago

31 Replies

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Any suggestions appreciated

Good evening. I’m really struggling with pain at the moment. I have SLE and sjogren’s which were diagnosed about 10 years ago. I was initially on Hydroxy and...

Good evening. I’m really struggling with pain at the moment. I have SLE and sjog...

Ladyatlunch

•4 years ago

9 Replies

Headaches

Hi Any one suffer with bad headaches? Like migraines but not sever as I’ve had migraines before and been bed ridden. This has just been lingering now ....

Hi Any one suffer with bad headaches? Like migraines but not sever as I’ve had...

Natz36

•4 years ago

14 Replies

Hospital appointment - rheumatologist

Got my hospital appointment for the 26th of March to see a doctor in the rheumatologist department. Don’t really know what to expect, anyone got any tips or...

Got my hospital appointment for the 26th of March to see a doctor in the rheumat...

Montycorgi

•4 years ago

8 Replies

Looking for answers 10 yr ild

We are looking for answers our 10-year-old daughter has been having facial breakouts for about a year and a half her face gets super beat red and when that...

We are looking for answers our 10-year-old daughter has been having facial break...

Mariet75

•4 years ago

1 Reply

Alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out

Am busy alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out. Was diagnosed in July last year with Lupus (it...

Am busy alternating between wanting to scream and shout and wanting to curl up i...

pattypatchwork

•4 years ago

6 Replies

I'm back! With a weird red rash...

I don't know how many of you remember me. I haven't been on here in 3 years now! I decided to give myself space to be me when I fell pregnant with my youngest,...

I don't know how many of you remember me. I haven't been on here in 3 years now!...

1985mum

•4 years ago

3 Replies

Salty Crackers🧂🧂🧂and Crisps?

As many of you may know here, I have been going on with my lupus flare-up, and my new heart issues. My question to all is, I have for the last 3- weeks now...

As many of you may know here, I have been going on with my lupus flare-up, and m...

thestorm

•4 years ago

31 Replies

A little worried.

Hi everyone, I saw my rheumatologist last week and she said she is sure I have some sort of connective tissue disease possibly lupus. Didn’t want to diagnose...

Hi everyone, I saw my rheumatologist last week and she said she is sure I have s...

Aeam487

•4 years ago

7 Replies

High CK inflammation

What’s the best medication to lower the ck level? So far I tried cortisone but hasn’t work , I’m going to see the specialist the 4 /3 anything I could tell me...

What’s the best medication to lower the ck level? So far I tried cortisone but h...

Melaxx

•4 years ago

7 Replies

Rash on back along with my malar rash.

Update to previous post- along with the malar rash on face I have been getting this rash on my back some big scaly patches others almost circular, anyone...

Update to previous post- along with the malar rash on face I have been getting t...

SethHov

•4 years ago

3 Replies

Worsening malar rash and symptoms

This is a updated post from my last. Still waiting to get into rheumatology and because of a 1:320 homogeneous speckled ana count and multiple symptoms of...

This is a updated post from my last. Still waiting to get into rheumatology and ...

SethHov

•4 years ago

3 Replies

Please Need help for diagnosis and what to do next please help.

Male 33 years old No family history of any serious diseases or illnesses. In March of 2019 I was given a beta blocker propranolol and citalopram to take for a...

Male 33 years old No family history of any serious diseases or illnesses. In Mar...

Htak

•4 years ago

3 Replies

New Consultant cont

Well the visit to the renal consultant went well, he's going to speak with my lupus consultant to see if he still wants to see me and continue to liaise with...

Well the visit to the renal consultant went well, he's going to speak with my lu...

Hidden

•4 years ago

2 Replies

Update on lupus journey - medication advice

Hello All, I haven’t posted for a while as I was waiting for my first rheumatology appointment which was in January which I’ve already had. Appointment...

Hello All, I haven’t posted for a while as I was waiting for my first rheumato...

Staceylouise90

•4 years ago

6 Replies

Features of Sjorgrens Syndrome

Hi all I've just receive a letter from my Rheumy with results from my minor salivary gland biopsy. It simply writes to my doctor results showed features...

Hi all I've just receive a letter from my Rheumy with results from my minor sali...

Yellow-Petal

•4 years ago

22 Replies

Anti RNP positive??

Hi all, sorry me again! I have dicovered anti RNP positive on my blood results. I have looked it up and this brings up 'mixed connective tissue disorder'....

Hi all, sorry me again! I have dicovered anti RNP positive on my blood results. ...

Aurali

•4 years ago

5 Replies

Liver research

Hi again, I mentioned in my last post about the liver biopsy I underwent this weak, I had two samples taken, as there is research being carried out at...

Hi again, I mentioned in my last post about the liver biopsy I underwent this we...

frog

•4 years ago

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Liver Biopsy

I had a scan showing liver damage, and with blood results it was decided a liver biopsy was needed to find the cause of the damage. It could be fatty tissue,...

I had a scan showing liver damage, and with blood results it was decided a liver...

frog

•4 years ago

2 Replies

I'm running the London Marathon 2020 for LUPUS UK

At the end of March I will be taking on the role of Chief Executive of LUPUS UK. One of my first acts as CEO will be to put on my wolf costume again and...

At the end of March I will be taking on the role of Chief Executive of LUPUS UK....

Paul_Howard

Partner•4 years ago

45 Replies

Bulging Disc Pain

Hi, I had 6 lower facet joint injections in my back plus an epidural on a bulging disc L4 L5 on Christmas Eve. All was wonderful with no pain until a few...

Hi, I had 6 lower facet joint injections in my back plus an epidural on a bulgin...

Jhpc

•4 years ago

5 Replies

Papilladema

Hi all, just wondering if anyone has been diagnosed with this? Went for regular optician check up on Monday and was informed I had papilladema. Optician made...

Hi all, just wondering if anyone has been diagnosed with this? Went for regular ...

Jo1974manchester

•4 years ago

10 Replies

With ref to your query about Hydroxychloroquine

the internet Drs speak largely about side effects but my own experiences are all I can tell you about:- •nausea, - that's never affected me...

the internet Drs speak largely about side effects but my own experiences are al...

SLEEPINGDOG

•4 years ago

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Quick question ....

Good morning all, Just a quick question.... I rarely drink alcohol but when I do I feel awful the following day, this is literally 2 glasses of wine. Does...

Good morning all, Just a quick question.... I rarely drink alcohol but when I do...

Aurali

•4 years ago

33 Replies

Recurrent UTIs

So over the past two months I've had four hospital admissions for severe UTIs and kidney infections, as well as countless doctors visits. The third admission...

So over the past two months I've had four hospital admissions for severe UTIs an...

heatherevans28

•4 years ago

7 Replies

Burning Skin

Hi all, I am presently going through a possible SLE diagnosis! Initial symptons being rash on underside of upper arms and stomach At present my skin is...

Hi all, I am presently going through a possible SLE diagnosis! Initial symptons...

Maloo19

•4 years ago

5 Replies

Constant need for a pee

Hey guys, Back with another newbie question So I’ve had this frustrating constant and urgent need to go to the toilet since December. In September I...

Hey guys, Back with another newbie question So I’ve had this frustrating const...

GraceXNichole

•4 years ago

11 Replies

Night sweats!!!

Hello guys, I’m very new to the site and also newly diagnosed with SLE and type 3 nephritis (December 2019). This site has been is what is keeping my sanity...

Hello guys, I’m very new to the site and also newly diagnosed with SLE and type...

GraceXNichole

•4 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2020

Appointment at St Thomas - how?

Can it be autoimmune?

Reducing steroids causing mini-flares?

Any suggestions appreciated

Headaches

Hospital appointment - rheumatologist

Looking for answers 10 yr ild

Alternating between wanting to scream and shout and wanting to curl up in a corner and bawl my eyes out

I'm back! With a weird red rash...

Salty Crackers🧂🧂🧂and Crisps?

A little worried.

High CK inflammation

Rash on back along with my malar rash.

Worsening malar rash and symptoms

Please Need help for diagnosis and what to do next please help.

New Consultant cont

Update on lupus journey - medication advice

Features of Sjorgrens Syndrome

Anti RNP positive??

Liver research

Liver Biopsy

I'm running the London Marathon 2020 for LUPUS UK

Bulging Disc Pain

Papilladema

With ref to your query about Hydroxychloroquine

Quick question ....

Recurrent UTIs

Burning Skin

Constant need for a pee

Night sweats!!!

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